Symptoms muscle ache headache bites on stomach

Does anyone know what this could be?

2024.06.02 10:48 Diligent-Exit9171 Does anyone know what this could be?

Hello, I'm 18M soon 19 and for the last 3 months I've been experiencing weird headaches.
It started off as sharp pains that would last seconds and happened around once every couple of days.
Those sharp pains got more progressive and slowly started to accompany with this dull-pressure inside my head.
One morning I woke up and was super tired, no matter what I did it wouldn't go away and I've been feeling fatigued ever since. Last month I've noticed extreme progression in them. Loads of muscle spasms on both sides however more common in my left leg. Sometimes random tingling and pain, also noticed that my right arm falls asleep very easily for example when I'm working on my computer and holding my mouse, It falls asleep super easily and it never did that before. Sometimes sharp pain behind eyes and around the temple however my eyes were checked and said to not have any problems. My hands are always cold even though it's summer and it's literally boiling hot outside. The only suspicious thing that was caught in my bloodwork was a high number of white blood cells but then on my 2nd blood test they dropped so I really don't know. Also some nausea especially in the morning. Having loads of tinnitus especially at night and It's super high frequency. No seizures, no memory problems, no full numbness in any part of my body.
I have an MRI scheduled in 2 weeks time since doctors said to get one just to be sure.
Does anyone know what this is if they had similar symptoms?
submitted by Diligent-Exit9171 to headache [link] [comments]


2024.06.02 10:10 WrongdoerCareless957 Long Covid recovery-help

Hello to everyone, [26F], for three months I experience some symptoms: joints and muscle pain, muscle twitching, night sweats (and sometimes poor themperature regulation), my skin on my chest is sometimes randomly red, GERD (sore throat that my doctor told me it’s from GERD but idk) and also my stomach is very noisy. I would like to go to the gym again but I’ve seen that I should rest. If is somebody here with some of these symptoms to tell me what helped and also what is your opinion about returning to exercise? How much the recovery last? And were your symptoms progressilvely better or worse? I know everybody is different but I wanted to hear other stories
submitted by WrongdoerCareless957 to LongCovid [link] [comments]


2024.06.02 09:29 LossLucky4012 what do you think?

I've been working on this story for... 3 months? 4? who knows, with my ability to keep track of time I could have started this yesterday, anyway, this is a story that has sci-fi elements, and some fantasy, although the fantasy stuff is mainly dragons so lets say adventure for now, (cause I don't know shit about genres, I just wrote the story) , Keep in mind, this has been written in free time, of which I don't have a lot, so if you don't like the story it is probably my fault, here is a look at:

Dragons wing

I slowly drift from my sleep and think to myself, ow, why is everything warm? I check the thermostat and see that it is at a temperature as cool as Canada and when I turn back to go back to bed so that I can sleep in, I see that my stuff has been knocked over? Oh sorry, where are my manners? I'm James O’Maley, I put everything back into place, and lay down on my bed but nothing is comfortable! I just decide, you know what, whatever, I’m just gonna get ready for work, and with that i get dressed, everything feels harder to put on, but it really hits me when I go to brush my teeth, when I looked into the mirror, I saw that their were, wings on my back, and a tail, growing out my butt like a lizard, I obviously spend several minutes having an existential crisis about this shocking revelation, and I decide to look at what these wings can do, I open a window, crawl out, with some difficulty and some slamming the window on my tail. I go to the edge of the fire escape railing, hop on, and jump, and I flew, higher and higher, until i nearly flew into a mountain but that's when I suddenly breathed fire, from my mouth, and bore a hole straight through the cliffside, I could spend all day flying, breathing fire, and fiddling with my tail, but I began to feel as tired as if I’d just gotten back from lifting weights with tigers, I landed on a cliffside and fell asleep. When I woke up I wasn’t on the cliffside anymore, there were monitors and scientists all around me. I tried to show some sign that I was awake, but I was chained up! I spent several moments struggling to get free, I must be free, I am not something they can chain down! I struggle, I roar, I attempt to move my head enough to burn the surrounding area, but I can’t, until someone finally talks to me,
“Hello there, James, please forgive us for our caution, but with your kind we can never be too careful.” I can see the scientist, I read his name tag, Dr. Crane William, I roar out
“My kind!? Get me out of these chains!” I breathe fire, claw, kick and swing my tail, trying to free myself, until I see two other people watching, one with weird whiskers, a long tail and a smug look on his face, and the other with a similar appearance to me but her wings are her arms. The next few days go by, until the two finally decide to talk to me, and in those days, My face becomes a snout like a komodo dragon’s, the one with the whiskers opens his mouth first and I already hate him
“Would you look at that, he’s even uglier up close!” I glare at him with absolute hatred, that seems to anger him more,
“What are you mute or something? Speak before I tear you apart!” he takes one step closer and that's all I need, I Bite his shoulder and use his head to break the chains on my right arm, I continue to break the rest of them with ease, and tell whiskers
“You want to fight? Let’s fight!” I leap on top of him, clawing at his face, he tries to slash me with a blade on his tail but I grab it and stab the wall with it, until I feel a burning sensation in my veins, The girl had bitten me! She looks at me with sadness,
“Sorry about this,” I look at her and drift into unconsciousness, when I wake up next I’m in some kind of, medical wing, ha, wing, as I look around I feel that my mouth is bound shut, but other than that, I can move my body, I get up off the gurney and just when I think it looks nice, whiskers shows his face,
“Well thanks a lot freak, now I’m on probation with Dr. Crane.” I motion to my mouth and he seems to have enough brain cells to understand what I mean
“Ha! You got the boot, Lily had that on her when she wouldn’t stop biting staff, I’m Ryan Mist.” I just walk away and try getting this muzzle off, That's when Crane walks in,
“Well, I must say it has been a while since we’ve had to use the boot, Ryan, your behavior was unacceptable!” I can tell that Crane is annoyed, and right as he finishes his sentence, click, the boot falls off my face and clatters to the ground. I don’t bother trying to fight Ryan again, I’m just happy to be able to talk!
“Well that’s a lot better, now, talk, I want answers.” I growl, Crane and Ryan seem surprised that I got the boot off but they talk, turns out, I’m what’s called a dragonkin a Human who has dragon genes in their genome, Lily and Ryan are also dragonkin, although they can’t breath fire, Lily has fangs and a venomous bite, turns out she’s the girl that bit me, and Ryan just looks weird, apparently we are the only dragonkin who evaded the organization that Crane works for, Called ‘Kadmus,’ into adulthood, Lily being found at 22, ryan at 20, and me at 24, on top of that, we are the only dragonkin who have survived that long, it’s at that moment that I notice Lily looking at us from behind some glass, I decide that I’ve heard enough and open the door, and I leave the room.
As I leave the room I can tell that Lily was not expecting me from the look on her face, I start a conversation with her, trying desperately to be friendly and not notice all the scientists glancing at me nervously.
“Hey, Lily, Right?” I say in the friendliest tone I can, “I’m James.” Lily looks at me with a calculating look before answering
“Hello, yeah my name is Lily, Lily Megan.” she clearly is wary of me, but I can tell a few things about her, making herself look small, clearly smarter than she lets on, seems shy,
“How did you get it off?” Lily breaks into my train of thought with the question,
“What?” I ask her, confused,
“The Boot, how did you get it off?” She gestures to the room where Crane and Ryan were having an argument, but more specifically to The Boot, laying on the ground
“Oh that? I once took a lockpicking class when I was younger.” I explain
“Huh, you mind teaching me that sometime?” She catches me off guard with that one, I can tell that she is being genuine so I agree, And we begin working out what time works best.
The next few weeks go by in a flash, but I’ll summarize it for you, I ended up getting my own room like Ryan and Lily, I start teaching Lily how to pick locks, and we end up having a few game nights where we played games like charades, poker, even monopoly, lets just say that we will never play monopoly again. However, the most important thing of all, we ended up finding another dragonkin! We aren’t sure what dragon ancestor he has, but we think he’s another eastern long tail, like Ryan, the new guy’s name is Dillian, He’s great, absolute goofball, he’s from Australia, and according to him, his family has never been anywhere but the land down under, weird, but the guy’s like a little brother to me, so it’s cool, and that catches you up. “Hey Dillian!” I lean my head into his room, “Wanna come hang out with the rest of us? It’s movie night!” Dillian just looks at me, unreadable, 
“Okay, your loss.” I try to hide how unnerving that look felt, but something doesn’t feel right. I go back to the lounge, where Ryan, Lily, and Crane are all waiting for me,
“Sorry guys, Dillian, isn’t up for it.” Lily looks at me disappointed,
“Aw man, and we're even watching Dune!” I just look at her with a sad look, but Ryan manages to lift the mood a little bit,
“Last time we let Crane pick the movie!” Crane just glares at Ryan, I can tell he’s about to lecture him so I just start the movie, around one hour in, boom, everything is blurry, and there is dust swirling, everything hurts. I see Lily and Ryan helping evacuate the scientists, I don’t see Crane anywhere! But that's when I see it, Cranes lab coat, soaked red and underneath a piece of rubble, I try to run towards it, but I can't stay on my legs, I call out,
“CRANE!” My friends hear me, they rush towards me and they see the lab coat, Lily tears up, Ryan is too stunned to speak, then we hear it, we hear him. Dillian, he’s laughing, laughing at the lab coat, laughing at us, My head snaps toward him, I feel the rage burning, my wings flare out, fire rises in my throat, I grab Dillian by the collar, and I roar,
“Do you think this is funny?!” Dillian just keeps laughing, “Crane is deadI!” Dillian looks at me, and he finally stops laughing, he pushes me off and spikes erupt from his skin, his tail wraps around my throat, and he growls,
“Don’t touch me you cretin, my ancestors were nearly wiped out by yours, I’m just returning the favor.” I look at him confused, Ryan seems to have been just as confused as me because he asked,
“What do you mean? The Eastern long tails have never had an issue with the Flying flame drakes.” Dillian just flicked his wrist and one of the spines shot out and nearly sliced Ryan’s head off!
“Do not compare the Wyrms to those foolish sky beasts! They have ruled the land for centuries!” Dillian roars, at this point I finally manage to choke out,
“Wyrm? Like the dragon inside the mountain Wyrm?” I struggle against his tail, I finally get a claw hooked under it and pull, it takes all of my strength to get my head loose and retreat, and then I see Dillian fully for the first time, pale skin covered in red spines and a long tail that could probably crush a normal humans windpipe, if I wasn’t a dragonkin I’d be dead.
“So, you do have a brain. Indeed, my ancestors were the Wyrms, Masters of the land, and the only dragons to be nearly forgotten by time, if it weren’t for the colony under Australia, I would not be a dragonkin.” Dillian snorts, and after saying his piece he leaped up, dived down, and bore through the earth, I try to go after him, but Lily holds me back,
“James you're hurt, and you would not stand a chance against him in your current state!” I hate to admit it, but it’s true, I would not stand a chance against Dillian, oh man, my leg hurts, I look at my left leg and I see that it has a shard of metal sticking out of it, and then everything feels heavy, I hear Lily yell out my name, but she sounds so far away, I don’t try and fight it, I just let the darkness envelope me, at least in the dark I can’t hurt, when I wake up I’m in the medical wing ha, it’s still funny, I have a bandage around my leg and then it all rushes back to me, Crane’s lab coat, Dillian laughing, the rage, everything, replaying over and over in my mind, I immediately try and stand up and I find a lot of difficulty in that, but I manage to stumble off the bed, I avoid putting weight on my leg, and I use my wings when necessary,
‘Well it’s about time you woke up, and here I was thinking that we had wasted time and resources.” I spin around to see a lady in a suit and glasses looking at me with a look of disdain,
“Hello, I am Dr. Leanne Vern, but you can call me Leanne. I am your new head researcher, I hope you are ready for your next few tests, Dr. Crane wasted a lot of time ‘bonding’ with you.” It’s right as she finishes that sentence when I feel the urge to make it her last, I feel rage burning under my skin and I glare at her with every last ounce of anger possible,
“What.” Either she didn’t get the memo or she is just a jerk, because she did not care, but either way I continued,
“Do you think that now is a good time to either ridicule Crane, or tell me that you need to run tests on me? I am not your lab rat” I grab her collar “I am not something you just get to boss around, If you say something like that again I will send you straight to the underworld where you belong.” I shove her back and go look for Lily and Ryan, I find them in the cafeteria, I get some food and sit down across from them,
“Mind if I sit here?” It clearly lightened the mood, but not even Ryan found the humor to reply, but we started to talk turns out I had been knocked out for two weeks, when I asked about Dillian Ryan tensed up, he explained to me that Dillian goes by ‘Death Wyrm’ now, he’s spent the last two weeks tormenting the city, and eventually I brought up Leanne,
“That Dr. Leanne is a jerk though, when I got out of the medical wing she just introduced herself, told me that she would run some tests and insulted Crane.” Lily seemed to agree because she replied,
“Yeah the first day she got here she told me I was ugly, and had me escorted into the testing chamber and forced me to fly for as long as I could or else I would get shocked.” Upon hearing this I feel rage flare up inside me, I flare out my wings and fly straight towards Leanne's office,
“You threatened Lily with being shocked?! What is wrong with you?” Leanne just looked at me stone faced and told me,
“You dragonkin are nothing but freaks that look interesting, you should not be treated like humans, you are tools.” I just stand there, shocked until the dam just breaks, I roared, I grabbed her by the collar and I slash her face with a claw,
“Tools? TOOLS?! The only tool in here is you! First you insult Crane, someone who died only two weeks ago! Then I learned you threatened one of my friends with a shock if they stopped playing your sick little game!” I feel the fire rise in my throat, I open my mouth, but then I see the look in her eyes, fear, absolute, paralyzing fear, I hesitate, and think to myself, oh my god, what am I doing? I release Leanne and walk out of the room, as I’m leaving I hear Leanne bellow from behind me,
“Where do you think you’re going?” I glare back, I don’t need to answer her, but because I know she will hurt my friends if I don’t I tell her what I’m doing, I explain.
“I’m going after Dillian, don’t try to stop me.” I can tell that Leanne is angry, I can feel her eyes shooting daggers at me, she clearly disagrees with me,
“Oh no you don’t, listen to me you bloated gecko, we did not spend millions tracking you down for you to play superhero!” I just walk away from her and go to the cafeteria to tell Lily and Ryan, they of course freak out at me, saying that I should not go after Dillian, that he’d kill me, and that I should stay here, but I look at them with all of the emotion in the world, I tell them
“Look, I know that Dillian would probably kill me, but I at least might tire him out enough for the police or military to stop him, but it’s more than that, I can’t let him hurt innocent people.” Lily and Ryan look at me, Lily hugs me, and tells me,
“Don’t you dare die or I will kill you.” I look at her, And I say to Ryan,
“I hope she’s joking.” Ryan looks at me and punches my arm,
“You are a good friend man, I hope you live through this.” I look at Ryan and Lily, knowing that this might be the last time I see them, I hug them both, and I flare out my wings and I fly off.
As I sped off towards Dillian, no, Death Wyrm, he stopped being Dillian when he killed Dr. Crane, one thought was going through my mind, am I going to survive this? It doesn’t really matter, as long as Death Wyrm gets what he deserves, when I arrive in the city I look around from above first, I decide to stop by my old apartment, I remember when My dad helped me find this place before he died, it has looked weird since I had my stuff moved into my room at the Kadmus site, I decide to sit down on the floor, when all of a sudden I hear a click and a secret safe opens from the wall. Inside I find a video message to me from my dad, along with an envelope, with the words for when I’m gone written on it, I look through the envelope and I find an old Kadmus keycard for my dad, so that's what his work was, I knew he was secretive but damn, A few other papers that talk about dragons, turns out, Kadmus had been looking into the dragons for years, although these papers are odd, as if my dad had prior knowledge of the dragons. The ball drops when I play the video message it says, 
>Hello, James, if you are watching this then I’m probably dead. In the envelope that you have found alongside this message, there is also my old keycard, it will give you full access to any Kadmus site. Along with my personal notes on the Flying flame drakes, the Eastern long tails, the Wyverns, and some vague knowledge of a supposed fourth dragon species, including some vague diet, and possible weaknesses, but if you’ve already read them, then that means you have seen that the Flying flame drake notes are more definitive, that’s because I am also a dragonkin, I only inherited physical strength from our ancestors, but I have a feeling you will have more characteristics, but I am saying this because you need to know the history behind our ancestors, and the rest.<
I look at the message and wait for it to continue, until a small piece of paper slips out of the metal box that is the message, when I open it I find out that in the beginning of the dragons, there were supposedly four species, the Flying flame drakes, the Eastern long tails, the Wyverns, and the Wyrms, until the Wyrms struck out, they had felt as though due to there inability to fly, that the other dragons thought less of them, the dragons were forced to lock away the Wyrms deep beneath what would one day be called Australia, and then man arose, and along with them the first dragonkin, Tiamat, a Flying flame dragonkin, as my dad called him, but the humans lived in fear of the dragons, eventually driving them to the bleeding cut edge of extinction using their advancing technology, eventually humans all but forgot about dragons, reducing them to myth or fairy tales. That was more or less all that was written, I committed all of this knowledge to memory, and then I heard a loud boom and some maniacal Dr. Doom esc laughing, I peer out of the window to see Death Wyrm, tormenting people, I leap out of the window and into the air, getting a good angle before dive bombing Death Wyrm, breathing fire on him and slashing him with my claws,
“Hey Dillian, did you miss me?” I laugh, I tried to pull a Ryan and joke myself into feeling confident, and it kinda helped, Death Wyrm roars out in rage,
“Why didn’t you stay out of my way?” He whips his tail up, shooting spines out at me, although thanks to my practice I manage to dodge them, I decide to not make a joke and just stay quiet for now, I remember something a security guard once told me, if the enemy is in range so are you, don’t just talk, actually attack, I know that I am in range for a fireblast but Dillian doesn’t know that, I shout out,
“Those spines must really hurt, but not as much as my claws!” I suddenly make a sharp turn and get in close with my talons, I first duck beneath Death Wyrms hook, and slash at his stomach, I then dodge a spine shot, and quickly follow up and through with a tail whip, knocking him off balance, then quickly blast fire right at his feet, but I didn’t see that Death Wyrms tail had grabbed my leg before it had already thrown me two blocks away, I was getting up when I felt a Burning pain in my arm, when I looked to see, it was one of Death Wyrms spines, It had only penetrated the outermost muscle tissue, I would heal in a few weeks but that doesn’t mean it didn’t hurt like hades, I rip the spine out and breath fire on the wound in order to cauterize it, when I suddenly feel Death Wyrms tail around my throat, choking me, and I am all of a sudden pinned to a wall, with my mouth bound shut, great it’s the boot all over again, I see Death Wyrm, he’s grabbing the spine I ripped out, he walks towards me, and he gives me a small speech,
“You know James, if you weren’t so noble I’d actually have let you join me, I never wanted to kill you, but you leave me no choice.” He lifts the spike up, when all of a sudden he is blasted back seemingly by a freakishly strong gust of wind, wait, that's a thermal updraft, I turn to see the best sight I could have seen, Ryan and Lily! Ryan opens his mouth first and I couldn’t be more thankful for his humor,
“Nobody treats James like that but me!” He then flies into battle riding on a thermal, while Lily freed me, she slices through the binding on my mouth and I immediately ask,
“What are you guys doing here?” Lily opens her mouth to answer but Ryan cuts in with being thrown into a wall
“Me and Lily are saving you, idiot, speaking of which a little help here?” Me and Lilly help Ryan up and we all get ready for a fight, but before we can charge in, Lily hands me a headmic,
“Here put this on,” I do as she says and suddenly Leanne's voice buzzes in through the speaker,
“Well it’s about time,” I am just happy to have some help with knowing my surroundings,
“Whatever happened to ‘we didn’t spend millions tracking you for you to play superhero?’” If Leanne heard me she didn’t answer, I just started to run towards Death Wyrm, before I took off alongside Lily and Ryan, I felt a familiar rage build up in my veins, I allow the rage to drive me forward, I feel the heat, the fire, rushing to every vein in my body, building along with all of the rage in my life, I gather my thoughts, a raging body is good for combat but a raging mind is bad for victory, when this feeling washes over me, I finally feel calm, I feel at peace, I never want this feeling to end, I open my snout, and unleash a twisting, flowing, blooming tunnel of flames,wounding Death Wyrm and distracting him long enough for Ryan to swing in with a bladed tail to his back, followed by Lily, biting into Death wyrms tail, as Death Wyrm roars I dive in and I do something unexpected, I talk to him,
“Dillian, I thought of you as a little brother, but you killed someone I cared about, I am sorry but, we need to take you in.” Death Wyrm roars, he writhes, up until Lily’s venom takes hold and he falls to the ground, defeated, a news reporter had been, well reporting, nearby and walked up to me, and asked me for an interview,
“Under normal circumstances I would agree, but not right now.” I wave as I signal to Ryan, it takes an embarrassingly long time for him to get the hint that I want him to create a thermal under Death Wyrm in order to transport him, but he follows my lead, and before we know it, we are flying toward the Kadmus site, but as we fly, I yell behind me,
“Hey, go ahead, I’ll… I’ll catch up.” Lily looks at me while Ryan just zooms ahead, no questions asked,
“Okay what are you doing?” I just look at her, feeling conflicted about telling her about my dad, for all I know this could get me in trouble, or worse, I make a split second decision,
“I… I think I saw something.” surprisingly it works, I swoop back towards the city and back to my old apartment and I grab the message from my dad, his keycard and the papers, I then fly off with them clenched between my arms and my body, I then fly into the Kadmus site, and discreetly go to my room, in order to hide them, I then get out of the site, and fly back into it acting like nothing happened, and to my surprise, there was a celebration waiting for me, there was cake, and wine, and even a nice Irish whiskey, eventually I asked about Death Wyrm, and turns out he was placed in a secure facility, deep under the site, and that anyone with high enough clearance could go down there, I decide that that is probably for the best.
After the celebration, I go into my room, and pull out the message, I look over it, Dad was a big fan of puzzles, so maybe this message is a puzzle? After several minutes fiddling with it, the message began to whir, and it then showed a place for a fingerprint, gotcha, I placed my thumb on the finger print and it pricked me, like I was getting my blood drawn. After that a key fell out of the message box, and a keyhole on the side, I of course used the key, which then played a different message,
Hello James, and I know it's you who will be watching this, at the time of making this message I am about to help you “find” an apartment, this is one that will only play for other people if you give them access and get a blood sample, the key you used is a one of a kind, and allows you full access to pre-recorded messages, and answers for certain questions, I hope that there will come a time when you don’t need it, but, knowing you, you will probably forget what the messages say within an hour, but anyway, I hope that this helps you greatly, here is a list of topics that the message box can give you data on.< The video then becomes like an interactable encyclopedia, where I can read the list at my own pace, I skim through it before my eyes lock on one entry, Dr. Crane Williams, I open the entry and i read about Crane, turns out, he was my fathers research partner and close friend, and the two of them met in college because they had managed to win a competition that landed them tuition for any college of their choosing, and they became friends after my dad stopped somebody from messing with Crane, there was a whole lot more there about Cranes upbringing, his family, his education, but I had to cut it short when Leanne entered my room, unannounced,
“What are you doing?” She glared, in her usual condescending tone, I am not in the mood for this “Jump off a cliff.” I growl, as I tuck the message away, but she sees it, and by the look on her face she could tell what I was looking at, “Let me guess, a message you don’t want anybody seeing?” I hate her but damn it she can connect the dots well, “Was it obvious?” I don’t bother denying it, she’ll just be a jerk about it, “No, I’m just used to being lied to, who's the message from?” Leanne nods at the message box, 
“It’s from my dad, he apparently worked at Kadmus and was friends with Crane.” The fact that my dad both worked ant Kadmus and was friends with crane seem to shock her, what’s really shocking though is what she asks next,
“Was your dad by chance Shane O’Maley?” I look at her, confused, “He was, why?” Leanne immediately seems to get shell shock, as she starts to geek out, “James your father was pretty much science royalty, I would have done anything to speak to him, oh my god I insulted the dead friend of Shane O’Maley, and of his son!” I feel angry that she brought that up again, but now feels like I can get something good out of this, “Ok I’ll make you a deal, if you only do tests with me and the other dragonkin willing to do so, and make sure not to do things like threatening to shock us if we don’t do what you want, I’ll tell you stories about my dad, deal?” It was almost impressive how quickly she answered, 
“Deal! Shock threats, exhaustion tests, and anything else like that is gone!” I am really happy that I can do stuff like that. That is the best ability ever.*1
*1 WIP
submitted by LossLucky4012 to writingcritiques [link] [comments]


2024.06.02 08:31 RagefulShrimp Constantly mentally tired after covid 3 years ago. Neurologists and psychiatrists find nothing and sending to each other

30M,173cm,64kg,W. In may 2021 I had a 10 day period of fever 39.5 degrees with other symptoms such as severe headache(more than usual when I have high temp), particles in urine and itchiness in urethra after urination, added weird odor to both gases from colon and from mouth(took 2 years to disappear). After the illness I had a period of muscle weakness for about a month. Also I had issues with severe decrease in bowel movement which took more than 2 years to heal(things become much better after I've started eating white rice). Although it was not confirmed but it's likely that I had a covid19.
After a month and a half I felt like I've almost recovered but some symptoms remained which I expected to just disappear over a longer period of time but they did not. At first I just stopped feeling well rested after waking up and I couldn't get energized from anything like music or sports. I've started quickly getting mentally exhausted from any activity. Right now after 3 years I can't even look straight when walking because processing that amount of visual information is already too exhausting for me. I have to look at the ground to not waste my mental energy when walking outside. Before the easiest and the most enjoyable things for me were reading and playing games which I could do for days or weeks almost ignoring sleep and eating but now even 30 minutes of playing video games could feel like previous 9 hours of office work.
Before this issue I was very healthy and still don't feel physically anything wrong. Did some sports, eat only healthy boiled food, mostly grains and eggs/meat. Never consumed any harmful substances like alcohol or drugs. Don't have any phycological issues. I have a decent family, no reason being stressed, accept myself for who I am and even if I'm not doing my best - I'm having fun with my life and it is all I care about.
I did brain MRI, encephalogram, neck vessels ultrasound which showed venous insufficiency which does not explain the symptoms, blood(general, hepatitis, ferritin, thyroid functions), urine tests.
In December 2023 neurologist assumed I have a depression and prescribed escitalopram. I took 5mg for 24 days with no positive results. But it helped me realize that I at least don't have the kind of depression that this drug induced. It completely cut off my concept of having fun reading a book. I stopped being able to understand this. And it made everything else felt much more bland till I've stopped taking the drug. I feel everything the same way I felt before the illness and I can enjoy everything I could before but I'm just constantly very tired with nothing being able to alleviate this.
In February 2024 I visited a psychiatrist as previous neurologist advised and after some talk no mental disorders or other issues were discovered. Got advised to check in with neurologist and received a prescription for emoxypine 250mg/day, idebenone 60mg/day and sulpiride 100mg 2 times/day. After 24 days of taking this stuff also got zero improvement.
Other drugs and vitamins I've taken over the period of 3 years with no short of long term improvement for the main symptoms: B1+3+6+9+12, D, Iron, Mg, Zinc, Ca, potassium iodide Ginkgo biloba, choline alfoscerate, vinpocetine, detralex, cinnarizine, pentoxifylline, inosine, piracetam, phenibut, levocarnitine, meldonium
Would be important to mention that I had 3 remissions since then: 1st for about 2-3 weeks starting at 1st of July 2022. It took 1 or 2 days to get from pretty bad condition to somewhat alright 2nd was for about 1.5 - 2 weeks at around 12 sep 2022. Took around 12h including sleep to get from bad into a decent condition(but worse then in previous remission) 3rd was for 4 days from around 11 of july 2023. My condition was gradually improving for 2 weeks before that stating from when I began taking ginkgo biloba and choline alfoscerate. I'm not sure if those drugs actually did anything or if it was a placebo effect.
From at least the first two remissions I would assume that my condition is reversible and should have an easy fix but I haven't found anything that energizes me or makes me less tired, Sports which I liked my whole life only makes me sleepy depending on intensity of physical exercises. Also my condition continues to deteriorate. Now I feel a little but noticeable worse than at June previous year. My condition does not have any effect on mood or irritability. At beast it is an indirect result of me having hard time doing things I liked to do before and being frustrated about it.
submitted by RagefulShrimp to AskDocs [link] [comments]


2024.06.02 07:10 IveDiedTwice Having Odd Symptoms, think it is Covid related (18M)

So it is currently Sunday at 1AM. I just woke up from a nap from 6PM. I’ve felt gross since about Wednesday. It all started when I woke up and my eyes hurt to move far and fast, I had a massive tension headache (still lingered all week to now) and my body felt fatigued. Drank a glass of milk, was supposed to expire in 8 days but it tasted watered down or expired. Great, my taste is gone. Night of Wednesday and Thursday I start having chills and shivers and my skin temperature is VERY hot, 100.4F fever. This lasted until an hour later where I would start sweating or wake up sweating. Shivers died down. Saturday evening a weird rash appeared on my torso. I recently showered and was sitting shirtless and my torso just became itchy. There was several dime sized red blotches and a rash started to appear. It felt like bug bites and looked like them too but in large blotchy areas. I wake up now and the rash is a little on my shoulders and neck. Now the weirdest symptom is every time I move, even as little as lifting my arm or rotating my neck all the muscles burn as if they’ve been stretched about 2 seconds after performing the action.
Is my body slowly rotting? Am I a victim to Covid part 2? What the heck is wrong with me. Symptoms persist I will be going to doctor.
submitted by IveDiedTwice to AskDocs [link] [comments]


2024.06.02 06:04 Different_Week_96 Just left the Urgent Care ER from a PA out of nowhere 😔

Just left the Urgent Care ER from a PA out of nowhere 😔
Title says it all. Woke up this morning with a headache and a queasy stomach. Nothing 2 tylenols couldn't fix. Laid in bed until about 1pm, got up and chilled around the house finally feeling fine. Had a yogurt and coffee with my multivitamin and fish oil, proceeded to go about my day.
Around 7:15pm, my gf and decided to get something to eat since we hadn't eaten all day so I got a cool wrap from chick fil a. My stomach immediately told me after 2 bites I couldn't finish it. I got up from the table because I started feeling a little panic-y so I went to the bathroom and noticed my heart rate beginning to increase. Trying to do deep breathing exercises, I started feeling more loopy/lightheaded so I went to my car to think maybe it was my PTSD and I was overwhelmed. Nope it got worse to where my gf had to drive. We planned on hurrying back to my house which was 30 mins away to get my hydroxyzine but everything began getting worse as I was driving so we decided to go to a nearby Urgent Care ER.
What I was experiencing: Increased heart rate upwards of 145 bpm, dry mouth, hands and feet tingling, nauseous/faint, panicking to where I dialed 911 saying I need help to my gf... but my gf hung up quick enough for it to connect and we decided to go to a nearby hospital. Luckily, no chest pains. But everything just felt out of my control.
Got there, front desk lady immediately asks if I'm normally pale in the face - my response was "Hell no!" I get to the room and laid in the bed. Vitals came back really elevated as everything was still going on. High blood pressure, high heart rate, excellent oxygen level, cold feet, nausea, slight confusion, fast breathing, etc. After asking additional questions like if I've taken anything today, smoked, vaped, drank alcohol, etc. They then grabbed an EKG machine to check everything out with my heart. After that was done, they came in and gave me a 1mg injection of Ativan and zofran for the nausea. Within 20 minutes, everything started slowing down but still felt panicky. My stomach started aching like hunger pains.. felt nauseas, etc. They came back in and said my EKG showed 98 bpm and was clear. After about an hour, they checked vitals and everything came back down.. BP was 120/80, HR was raining between 90-105, oxygen at 100, and I just started feeling the ability to breathe normally.
Now I'm home. They prescribed me (10) .5mg Xanax as needed and told me to work with my PCP which I see Monday. Kind of still feel a little loopy but they said it could be from the Ativan.
What a night. 😰
submitted by Different_Week_96 to PanicAttack [link] [comments]


2024.06.02 05:48 PETERBFLY Symptoms driving me crazy

Hey all, i’m new to the group and have been reading many of the posts, which make me feel like i’m right where I belong.
My GI symptoms began approximately one year ago. I was woken up with awful upper indigestion/heartburn and can not sleep through it. Burping up mucus, hiccups and an on and off again pain in the chest. These episodes were approximately happening once every two or so months, so not terrible. Always while I was asleep, and it wakes me up everytime.
In between then and May 2024, I would occassionally get random diarrhea and my stomach would act up out of nowhere. So I began to change up my diet and started cutting out many things, to include red meat.
Fast forward to around May 14th. I ate my dinner (smokey gouda chicken which was a Factor meal) and had a really bad stomach ache with very bad gas afterwards, which seems to be a constant for me now, after pretty much everything I eat (for the most part). My stomach starts to ache, I get gas all over to include in my chest. I’ve had a lower back ache for over a month, that I believe is related to these GI problems now. The pain/dull back ache moves around a bit from the left, to the right and to the right side of my body, so its not always the same spot. Obviously, this has me freaking out a bit, because i’m lost as to what it could be.
My poops are definitely not as normal as they use to be and I am sometimes constipated now. Some days I poop 2-3 times, so its not very consistent. The only thing that is consistent is the gas and stomach aches I keep getting. I even cut out dairy completely (4 days ago), but i’m still getting the gas pains. My stomach will also be super noisy and I fart like crazy. Not trying to be disgusting or inappropriate, just want to make sure I explain everything going on with me. I’m losing weight now also, because i’m eating much less. I will also sometimes have to urinate way more frequently then normal, which will also come out of nowhere. Sometimes I will pee 4 times in an hour and its always pretty clear urine.
I am a 45 year old male and had a clean colonoscopy in 2021. Next one will be in 2026, since I was 100% clear when they violated me lol.
Monday June 3rd, i’m scheduled for an Endoscopy and that will be my first. I’m a little nervous because of all the crazy symptoms I have been having the last few weeks.
Any info or advice would be greatly appreciated. I do find that Pepcid and Gas-X gives me some relief, but not complete and its only temporary. Problem is, i’m living on that stuff now. I take one Pepcid and two Gas-X a day after dinner now. Dinner always seems to be the worst reaction for me afterwards, so I save it for then.
Also I have not had any nausea or bad fatigue. Just the above symptoms.
Thank you for reading
submitted by PETERBFLY to Gastritis [link] [comments]


2024.06.02 05:10 Automatic_Wealth1160 Did anyone else get WORSE after their 2nd Covid Infection?

I’ve noticed on this forum that many people that have gotten reinfected either:
A. Got set-back for a few months and went back to normal or baseline.
Or
B. Got better after reinfection.
I was wondering if somebody could share their experience and give me some insight. For some background I dealt with my first Covid infection in December of 2021. I had the typical brain fog, headaches, fatigue, and muscle twitches. Best of all… NO PEM! Fast forward to March of 2023 and I was reinfected with Covid. A month or two passed and I thought I was in the clear. I started working manual labor jobs, going on trips etc. Next thing I know, I crashed. As of today I am housebound 80% of the time. My symptoms have tripled and now I’m left feeling hopeless after a year in a constant up-and-down rollercoaster. My newest longhaulers symptoms are but are not limited to:
Vertigo Aches and pains Neuropathy Shaky hands Tachycardia SOB Brain fog Weakened in arms and legs Heat intolerance Headaches PEM Fatigue
I’m not trying to sound pessimistic either, but I’m just so sad that a year has passed already and I’m in the same spot… Im just curious as to if anybody happens to be on the same boat as me.
submitted by Automatic_Wealth1160 to covidlonghaulers [link] [comments]


2024.06.02 05:07 placeholder398 Stomach pain on left side up to my pectoral muscle. Is this anxiety or a problem? [19M]

19 Male 180 5 9
About 4 days ago I started getting a dull pain in the left side of my stomach up until my pectoral muscle area. Normally I wouldn’t care but it’s different than anything I’ve had. It’s just this dull pain probably a 3ish on a scale from 1 to 10. It hasn’t gone away and has been accompanied by light swelling in that general area as well as other discomforting things like random weird feelings, sensitivity to the touch, and headaches (could be unrelated but started around the same time). Sometimes I get random sharp pains too but overall it’s just dull.
I have decently bad health anxiety so I am trying to determine if it’s worth getting checked out. A few things recently that could be contributing to this are: my friend who I shared drinks with recently just tested positive for money. I also after 7 years of being vegetarian started eating meat again. I started about 3 weeks ago which is a major diet change but I don’t know why it would all the sudden affect me.
What do you think I should do and what do you think is the problem?
submitted by placeholder398 to AskDocs [link] [comments]


2024.06.02 04:56 Anvj Solar injuries (2024 Eclipse)

Solar injuries (2024 Eclipse)
I'm wondering if anyone else has experienced vision symptoms such as mine, which are:
Sensitivity to direct sunlight and reflections Astigmatism (streaks/halos) Floaters (strings/blurry specks/worms) Possible coloboma (perforation in iris) Possible corectopia (off-center iris) Possible retinal detachment
During the solar eclipse I looked at the sun after totality for a few seconds unprotected. I also glimpsed at it a couple times inadvertently before totality and immediately put the solar glasses back on, when I noticed a bright blurry patch in my right eye (pictured) about where the darkened area in the top left is. Obviously it wasn't my plan to look at partial coverage unprotected and I did have adequate solar glasses that I used the rest of the time and didn't notice this afterward. I rested my eyes as much as possible while I was on the trip to Ohio where I saw the eclipse for the next 2 or 3 days and noted a mild discomfort and minor headaches, but had no problems driving 8 hours home. I noticed the main symptoms about 4 or 5 days in when I went back to work and could no longer look at cars because the sun glare from them would leave streaks from my retinas being overexposed, which hadn't been an issue the days before when I was driving to and from the trip I took to see it or the day or two after. I went to work for the next few days after initially noticing this and things only seemed to worsen. I sceduled an eye exam and rested my eyes as much as I could before my appointment with an eye clinic I found near where I worked.
The following days I drove with polarized sunglasses (unsure if they are UV blocking), drank more water and intermittently took fish oil pills, which might be in vain but I figured it couldn't hurt. 11 days after the exposure I noticed an increase in eye floaters and I decided to research what could cause them and learned a lot about how the eyes actually work. Floaters can often be caused by the gel-like substance that fills the eye clumping up and solidifying, causing small, blurry streaks that look kind of like an out-of-focus hair in your vision, although they may be precursors to other conditions. They are common, I've noticed them now and again since I was a child, and they're often associated with normal changes in the eyes and typically don't last very long. However, I hadn't noticed these ones until the past few weeks and have been around since.
Before I had even visited the clinic, I thought I might have solar retinopathy, which is damage or inflammation of the light-sensitive tissue in the back of the eye, since that was one of the first results for web searches for "light sensitivity after eclipse". I didn't get examined until over 2 weeks (15 days) since the exposure, where I had a dilated eye exam that concluded I was nearsighted and was otherwise fine, with either minimal or no damage to my retinas. I was told if I hadn't noticed anything by this point it was unlikely I'd have issues later on. I've been nearsighted since I was a kid, and wore glasses for a short time, but decided to stop wearing them before 5th grade so I didn't think much of this. I'd read that most cases of sensitivity are resolved after a couple weeks and thought mine might just take longer.
Between days 22 and 41 I still continued to report symptoms of sensitivity, floaters and astigmatism more extreme than it had been just a month ago, and had to drive with sunglasses on as it was often the only way I could handle reflections off auto glass and paint unless it was cloudy. The floaters hadn't been too bad by this point so I didn't have any cause for concern about them, and I thought they might be fading. Most of the time they aren't noticeable.
A couple days ago I decided to research my symptoms of sensitivity and astigmatism again. I found this can be associated with a damaged iris. After a visual analysis (looking in the sunvisor mirror of my car) a full 6 weeks after exposure, I saw that there was a lightened ring in my iris and some groups of the stroma (strands) looked broken/split and white which I hadn't noticed until now. The patch where I saw the bright spot suring the eclipse is in the same place as the darkened area in the top right above the pupil in the first image, though this could be totally normal. I'd been looking at my eyes in the mirror trying to denote any changes for the past couple weeks and never noticed this before, though I'm not really sure what I was looking for in my eyes to begin with. An older photo of my eye (second image) from February shows a somewhat drastic difference, at least in my opinion. I've also been having this twitching sensation a couple days prior to this discovery, which I theorized might be the stoma breaking, although I have very little to otherwise back this as I've only just begun recording this specific symptom and taking pictures of my eyes a few days ago. My pupilary (inneunder) stroma seem to take up more area of my eye than they did before and are darker, but this could be a lighting thing. I took the first photo in my bathroom and the other during late afternoon in a car. My pupil might also be off-center in both photos which I've just realized.
Most recently I've been been noticing light flashes, usually quick phases of certain colors in my peripherals, which can be a symptom of retinal detachment (though the visit with the optometrist suggested this wasn't likely), and I haven't experienced other symptoms associated with it like blind/black spots or curtain vision (darkened peripherals). Sometimes I'll get a general discomfort/mild ache/"weird" feeling in my eyes. Sometimes they'd feel like they were strained like I'd been looking at a screen too long, others like they had something in them, and sometimes oddly cold or unusually warm. Sometimes I had a sensation where it feels itchy or twitchy, or causes me to reflexively blink. Though this comes and goes they are some of the newest symptoms and may be concurrent with damage to the iris. As I write this I can notice a slight blurring around some of the text and my eyes take a little longer to focus but can still read, type and see just fine with no central vision defects or color distortion.
I'm really unsure how to go about this. Am I set to lose my vision? Could this just be a minor but permanent situation? Is there anything I can do to treat/negate it? I'm only 20 years old and likely not able to afford surgery since I don't have vision coverage in my health insurance, but if it's my only option I may just have to look into it more. I've also read that the iris can heal over time, but I haven't seen a ton of evidence. I may just have to live with it without treatment and hope it doesn't progress any further.
It may just be that I'm having intense anxiety about this, that I'll probably be fine and it's "all in my head" as the astigmatism and nearsightedness may have been preexisting and I'm imagining some of these, however I still feel my symptoms could be very real and might require attention. As much as I want to say things have improved, I'm not sure whether or not that's true or if I've just learned to ignore it most of the time. I wanted to ask the community to see if anyone happens to have noticed a similar progression of symptoms or have similar conditions and how they've treated it if at all. I figured the best thing I can do is document my experience in case anyone else has any symptoms similar to mine. I'm not sure who else to talk to so any guidance, advice, suggestions, help or information is greatly appreciated. I'll update this if anything major changes.
TL;DR - I looked at the sun past totality for a few seconds and now sun glare is extra mean to me and I have floaters and astigmatism. Does anyone else have or know of eye injuries from the eclipse and what they are like?
submitted by Anvj to solareclipse [link] [comments]


2024.06.02 04:26 Ok_Mode_6503 One month today

So far I’ve been taking this pill for one month exactly. The first week I experienced extra thirst, some headaches that come and go, bloating, but also an increase in energy and libido. My period started one week after taking the pill. All symptoms went away except for bloating and thirst. First period came after one week on the pill. had a second period one week after my first period ended. They were very heavy for the first few days . The bloating has been the worst of all; I have gained a few extra pounds around my normally flat stomach. Today I am having my first depression day where I’m having uncontrollable sad emotions where I feel like I can’t function and am crying over everything for no reason. I did find having something to eat that is sweet, like chocolate does help my mood improve.
The bloating has been the absolute worst. I just feel full and big all the time , it never went away. My pants size DID INCREASE I don’t fit in my old ones. I look like an early pregnancy and it’s hard to hide my new belly, my family has commented that I’m looking a bit “chunky” although eating habits have not changed and if anything I haven’t been wanting to eat much and am eating less due to this.. I know this will react differently to everyone and it takes the body a few months to adjust!
Overall, it’s not bad but I have not tried any other birth control before so I can’t compare it. I just wanted to share my one month experience for others.
I am debating on not taking my pill tonight because of the bloating the bleeding and the fact that I’m gaining weight I can’t afford to keep buying new wardrobe
submitted by Ok_Mode_6503 to Opill [link] [comments]


2024.06.02 03:52 emmerlooeez Long term psoriasis sufferer. Does this sound like PsA or other autoimmune?

I was dx with psoriasis age 7 and I' was covered head to toe really until my teens, where I had it bad but only on arms and legs and scalp. In my mid 20's it had settled down and I was mostly clear. However it would flare up badly when stressed. Only ever my skin and scalp.
I'm now 34 and my mother has been diagnosed with cancer and as you can imagine it's been very stressful for me. She's alone, autistic and has several conditions like fibromyalgia and arthritis. I'm looking after her the best I can whilst raising 4 children and working.
My psoriasis has very predictably flared up. But I've a whole host of new inflammatory feeling symptoms. I have read a bit online about PsA and tick some boxes - others I'm unsure of. Maybe I've inherited my mother's fibromyalgia? Who knows. I'd be grateful if anyone could share their experiences of any of these symptoms, and what to expect after I visit my GP on Monday.
I feel like my body is just reacting to my life stress. I'm surprised how strongly. Unsure if it's general inflammation, possible PsA, fibro, or something else. I'm not asking for a diagnosis obviously. Just opinions and maybe some hope. Thank you
submitted by emmerlooeez to PsoriaticArthritis [link] [comments]


2024.06.02 03:30 Correct_Still_1893 Treatment Side Effects

  1. Rifampin 600mg daily,
  2. INH 300 mg daily,
  3. EMB 1600 mg daily,
  4. PZA 2000 mg daily.
  5. Pyridoxine 50 mg daily
I am on my 8th day of taking this medication, but I am exhausted and sick all the time. I have thyroid issues, too, but I did not have TB symptoms at all, partially due to being infected two months before I got sick. I am (27), and I traveled abroad in January; when I returned three weeks later, I started feeling sick and had shortness of breath. My doctors first suspected that I had lung cancer after the CT SCANS showed masses. I am glad I don’t have cancer, but this medication makes me feel like I am sick all the time. I have vision problems, blurry eyes and lost center vision, lightheadedness, nausea, dizziness, diarrhea, and stomach aches. I’m not sure if this is normal. My nurses refused to change the medication or lower the doses. Please let me know if you know something that could help me.
submitted by Correct_Still_1893 to Tuberculosis [link] [comments]


2024.06.02 02:00 jddupont Want to share and value perspective here - Missed sepsis 4/29 - Heart issues the next day - Discharged 5/2 after cardio stress test. Diagnosis seemingly conflict with imaging/labs/other tests done. Principal on discharge paperwork of Postural Dizziness.

Reposting this here given UCLA took it down. After people started to believe what I'm saying. Essentially, it looks like they downplayed diagnoses - intentionally or not TBD. Mis-recorded a lot on my medical records, especially from the initial visit. I don't have the history they're saying I do and my medical records back that. Plenty more on my profile as well. I put up imaging, some lab tests, some medical records, enough to give people enough information to make their own observations. I fully understand what I'm doing in posting this in this way too. People even came on my profile after I put this up on the UCLA subreddit, trying to pick apart specifics that are not relevant to what's going on here. Trying very hard to put this on psychosomatic causes and my mental health. It was intense what happened, but I'm alright in that area. Happy to put up more to support these assertions if that's helpful too.
I was the patient in a missed sepsis diagnosis at a major university hospital on April 29th. I spent all day in the hospital trying to escalate a worsening infection that seemed to be spreading all over my body. I was experiencing fever symptoms on and off, fluid sensation, new infection sites popping up all over rapidly. The worst of the infection was on the left side of my neck, and my entire jaw was filled with pus and fluid. My face was swollen enough I tried telling them I didn't look like myself. Nobody at this hospital listened to a word I said and I was repeatedly saying that I strongly felt like I needed IV antibiotics because of the worsening symptoms. Every staff I talked to ignored me. They finally called me out of the tent, had me see a resident ER doctor who chose not to respond to my symptoms. I was dealing with a lot of family stress at the time, and he spent more time telling me that this was more of a GP/Dermatologist issue than it was an ER issue. I was shocked they weren't immediately putting me on IV antibiotics. He wasn't paying attention to what I was trying to tell him, and in the medical notes, recorded my age wrong, recorded my statements pertaining to my rapidly worsening symptoms wrong - failed to follow any standard of care for infection treatment. The picture attached is what this doctor looked at, and put an ultrasound to, only the picture was taken about 10 hours before this doctor looked at it. It had gotten much worse by that point. I told him that I'd been draining it with gauze the nurses in the waiting area gave me due to the amount of buildup in the infection. I drew his attention to my arms, chest, and stomach where active infections were coming up all over. I didn't have medical terminology to put to it, but I told him they seemed to be connected. His response - "don't touch them." This doctor recorded that I have a history of picking at my skin and causing infections to the point I regularly go to the hospital for antibiotics, I don't. I was trying to tell him I've two cellulitis infections in my lifetime, I'm 28 years old, and have a gauge on when doctors respond to infection symptoms seriously and this seemed past that point. The ultrasound imaging looked alarming due to what looked like a mass still inside. He told me it was muscle tissue, I don't think it was. It's hard to know definitively, the report was resigned about 7 hours after I pulled through in ICU the next morning. They didn't even record my age or symptoms right. This doctor had no idea what he was doing.
The next morning, I was in bad shape. I got out of bed, and fluid seemed to start coming out of my toes. I knew I needed to go back to the hospital. I start experiencing serious chest pains in the car, something was definitely going on with my heart. This part is hard for me to back medically at this point. I get to the hospital. I try to tell them my worsening symptoms. At that point fluid is building towards my chest again, leaking out of my toes. They completely ignore me. They treat me like I'm on drugs. Soaked in body fluid, they think it's sweat. Acting like I'm anxious for no reason again and I'm trying to tell them I need a doctor bad. Getting weaker. I'm sitting in the waiting area, I don't know how long. Actively relaying cardiac and sepsis symptoms on a real time basis, and they just don't believe me.
I'm finally called over to the triage, asking for a wheelchair, they won't bring one so I have to walk over. The chest pains were coming and going at that point. I try to tell the triage nurses what's happening and what my symptoms were in the car. Finally one male nurse takes notice, I talked to him after I pulled through, recognizable guy and one of the few people that admitted anything in line with the truth that treated me. He has them put an ECG on. They see the heart drop coming and say are you having chest pains. I wasn't at the time. Then it hits, my legs start shaking, heart tanks into the mid 30s instantly. They're panicking. Get on the phone, call an ICU response to the triage of this hospital. Takes a minute or two for them to get there. I'm being held down as I'm being transferred to a gurney, wheeled through the ER, doctors yelling to everyone get out of the way. I'm literally going black trying to keep my breath going at this point.
By the time they get me to ICU/trauma unit, I'm so weak that I can't even move my shoulder to help get my shirt off, still fully awake. They get my shirt off and start sticking me with IV's all over. Monitoring equipment goes on, doctors start working on me seriously. Administer IV antibiotics, lactated ringer solutions, whatever else they did there. I was just trying to fight it. I basically gave up, thinking I was going to die on that ICU bed, and start coming back. They send in portable imaging and seemingly ID something concerning in my heart. Imaging records show sepsis indicated on a chest X-ray. Possible endocarditis on a bedside ultrasound per what the doctors signed off on. I'm so weak, half dead at that point, really didn't think I would make it.
They put me in a hallway for like 8 hours after that, not telling me what happened. I'm so concerned that what put me in the trauma unit is going to happen again, telling them I'm feeling tightness in my chest, fluid concerns, hooked up to full heart monitoring, dual deep vein IV's in. They ignore all my symptoms and complaints to the point I get pissed and I basically tell them, per the nursing notes - "stop bullshitting me." They finally move me to a more private hallway after I tell them I'm freezing cold and can't take it. The door kept opening where the ambulances were bringing people in. I finally get a room on the intensive care floor after throwing another fit after my phone dies, they won't find me a charger, and still telling me they can't find me a room.
They give me the runaround for two days, telling me they don't know what caused my heart to literally go into failure. I would have died without trauma unit intervention, and I'd been there the night before asking over and over again for IV antibiotics. These doctors and nurses bullshit all the diagnoses. They're saying they're calling it a pre-syncope. I'm not a doctor - but that's medical terminology for nearly fainting. They don't even tell me sepsis in the hospital from what I can remember. I find out from the discharge paperwork, where sepsis is written underneath the principal diagnosis of postural dizziness with a pre syncope. So much more conduct in the hospital that was just not okay. They released me after subjecting me to a cardio stress test they ordered using some diagnosis that has nothing to do with the infection I had. The scarring all over my body alone shows how bad this infection got. Fluid in my body for weeks. The day before they released me, a vancomycin IV burst in my arm, left a bruise for weeks. The same morning, my elbows were soaked in fluid when I woke up, and they just came in and cleaned it up, not telling me a thing.
On the morning they released me, my WBC was higher than the day I got to ICU. They didn't do any updated imaging, conflicting diagnoses everywhere. And they literally try to say "HIGHLY suspected" psychosomatic caused, while treating me for sepsis and using a lot of lactated ringer solutions. Imaging indicating the infection was in my heart. Highly elevated HS troponin readings multiples outside their reference range, and they don't even tell me any of this. The last reading they took was the day before they released me. Vital signs stable was the clinical goal on Wednesday 5/1. MAP>65 on the day they released me. I can't remember a doctor on my treatment team doing my actual discharge. Just some nurse. I was asking for medical records and reports of what treatments they did as I was leaving, wouldn't tell me anything. The nurse let it slip and told me I could find them online, which I already knew. Same response from every doctor and nurse.
A lot more to this story, but this happened at one of the biggest university healthcare systems in the country. Nothing in these records is accurate and contradictions everywhere. Pictures attached. Plenty more happened too. I was so sick for awhile after I left the hospital, I really wasn't positive I would survive for a couple weeks. They tried to say this was psychosomatic, bullshitted all the diagnoses to hide the severity of what happened. This same hospital is already getting some heat from media for their policies affecting people's health.
This definitely did not feel psychosomatic at all. I'm still recovering, still feel it in my chest sometimes. I really thought my life was over at 28. I also apologize if any of the writing comes off erratic, the experience was intense, so I relive it a little when I talk/write about it, but otherwise doing pretty well at this point. If anyone wants me to explain the specific issues there seem to be better, I'm happy to do that as well. I'm happy to put up more imaging as well if it's helpful.
I honestly don't have a clear long term picture of my health at this point. I feel alright all things considered, some lingering symptoms, but I was so shaken up and having a hard time getting another hospital in the area to talk about some of what's in these records so don't have any updated imaging at this point. Getting that done next week. Not something I expected to go through. I thought this would be a relatively routine IV antibiotic situation. I also don't have the history of picking at myself and causing infections like they wrote on the records for the initial visit - I caught a lot of hate for that and past addictions that are fully in remission after quite a lot of work and a pretty difficult upbringing with family dysfunction bad enough my brother and I had an attorney representing our interests at one point.
submitted by jddupont to AskDocs [link] [comments]


2024.06.02 01:44 SomethingClever_23 How do you deal with the anxiety of a new pregnancy after losses?

Got a positive test this last week (while on the trip we had planned as a baby moon for my last loss). I went from overjoyed and feeling meant to be, to anxious mess really quick.
This is my third pregnancy in less than a year and I am fighting hard not to be nutty over every little symptom or lack their of (like I’m usually constipated but haven’t been - I’m having a headache today and usually get migraines before a period - what was that little cramp? - lower back ache - etc). Doing my best avoiding cheap test strips to track line progression until I start blood draws on Monday… but so hard.
I was actually on a progesterone challenge at the time too, so I’m nervous I may not have fully investigated a potential issue after my last D&C…
Any coping tips to avoid the spiral?
submitted by SomethingClever_23 to CautiousBB [link] [comments]


2024.06.02 01:41 jddupont Missed Sepsis at UCLA - Got bad and almost killed me - Taken down from UCLA Subreddit - More on my profile.

Reposting this here given UCLA took it down. After people started to believe what I'm saying. Essentially, it looks like they downplayed diagnoses - intentionally or not TBD. Mis-recorded a lot on my medical records, especially from the initial visit. I don't have the history they're saying I do and my medical records back that. Plenty more on my profile as well. I put up imaging, some lab tests, some medical records, enough to give people enough information to make their own observations. I fully understand what I'm doing in posting this in this way too. People even came on my profile after I put this up on the UCLA subreddit, trying to pick apart specifics that are not relevant to what's going on here. Trying very hard to put this on psychosomatic causes and my mental health. It was intense what happened, but I'm alright in that area. Happy to put up more to support these assertions if that's helpful too.
I was the patient in a missed sepsis diagnosis at a major university hospital on April 29th. I spent all day in the hospital trying to escalate a worsening infection that seemed to be spreading all over my body. I was experiencing fever symptoms on and off, fluid sensation, new infection sites popping up all over rapidly. The worst of the infection was on the left side of my neck, and my entire jaw was filled with pus and fluid. My face was swollen enough I tried telling them I didn't look like myself. Nobody at this hospital listened to a word I said and I was repeatedly saying that I strongly felt like I needed IV antibiotics because of the worsening symptoms. Every staff I talked to ignored me. They finally called me out of the tent, had me see a resident ER doctor who chose not to respond to my symptoms. I was dealing with a lot of family stress at the time, and he spent more time telling me that this was more of a GP/Dermatologist issue than it was an ER issue. I was shocked they weren't immediately putting me on IV antibiotics. He wasn't paying attention to what I was trying to tell him, and in the medical notes, recorded my age wrong, recorded my statements pertaining to my rapidly worsening symptoms wrong - failed to follow any standard of care for infection treatment. The picture attached is what this doctor looked at, and put an ultrasound to, only the picture was taken about 10 hours before this doctor looked at it. It had gotten much worse by that point. I told him that I'd been draining it with gauze the nurses in the waiting area gave me due to the amount of buildup in the infection. I drew his attention to my arms, chest, and stomach where active infections were coming up all over. I didn't have medical terminology to put to it, but I told him they seemed to be connected. His response - "don't touch them." This doctor recorded that I have a history of picking at my skin and causing infections to the point I regularly go to the hospital for antibiotics, I don't. I was trying to tell him I've two cellulitis infections in my lifetime, I'm 28 years old, and have a gauge on when doctors respond to infection symptoms seriously and this seemed past that point. The ultrasound imaging looked alarming due to what looked like a mass still inside. He told me it was muscle tissue, I don't think it was. It's hard to know definitively, the report was resigned about 7 hours after I pulled through in ICU the next morning. They didn't even record my age or symptoms right. This doctor had no idea what he was doing.
The next morning, I was in bad shape. I got out of bed, and fluid seemed to start coming out of my toes. I knew I needed to go back to the hospital. I start experiencing serious chest pains in the car, something was definitely going on with my heart. This part is hard for me to back medically at this point. I get to the hospital. I try to tell them my worsening symptoms. At that point fluid is building towards my chest again, leaking out of my toes. They completely ignore me. They treat me like I'm on drugs. Soaked in body fluid, they think it's sweat. Acting like I'm anxious for no reason again and I'm trying to tell them I need a doctor bad. Getting weaker. I'm sitting in the waiting area, I don't know how long. Actively relaying cardiac and sepsis symptoms on a real time basis, and they just don't believe me.
I'm finally called over to the triage, asking for a wheelchair, they won't bring one so I have to walk over. The chest pains were coming and going at that point. I try to tell the triage nurses what's happening and what my symptoms were in the car. Finally one male nurse takes notice, I talked to him after I pulled through, recognizable guy and one of the few people that admitted anything in line with the truth that treated me. He has them put an ECG on. They see the heart drop coming and say are you having chest pains. I wasn't at the time. Then it hits, my legs start shaking, heart tanks into the mid 30s instantly. They're panicking. Get on the phone, call an ICU response to the triage of this hospital. Takes a minute or two for them to get there. I'm being held down as I'm being transferred to a gurney, wheeled through the ER, doctors yelling to everyone get out of the way. I'm literally going black trying to keep my breath going at this point.
By the time they get me to ICU or “Trauma Room”, I'm so weak that I can't even move my shoulder to help get my shirt off, still fully awake. They get my shirt off and start sticking me with IV's all over. Monitoring equipment goes on, doctors start working on me seriously. Administer IV antibiotics, lactated ringer solutions, whatever else they did there. I was just trying to fight it. I basically gave up, thinking I was going to die on that ICU bed, and start coming back. They send in portable imaging and seemingly ID something concerning in my heart. Imaging records show sepsis indicated on a chest X-ray. Possible endocarditis on a bedside ultrasound per what the doctors signed off on. I'm so weak, half dead at that point, really didn't think I would make it.
They put me in a hallway for like 8 hours after that, not telling me what happened. I'm so concerned that what put me in ICU is going to happen again, telling them I'm feeling tightness in my chest, fluid concerns, hooked up to full heart monitoring, dual deep vein IV's in. They ignore all my symptoms and complaints to the point I get pissed and I basically tell them, per the nursing notes - "stop bullshitting me." They finally move me to a more private hallway after I tell them I'm freezing cold and can't take it. The door kept opening where the ambulances were bringing people in. I finally get a room on the intensive care floor after throwing another fit after my phone dies, they won't find me a charger, and still telling me they can't find me a room.
They give me the runaround for two days, telling me they don't know what caused my heart to literally go into failure. I would have died without ICU intervention, and I'd been there the night before asking over and over again for IV antibiotics. These doctors and nurses bullshit all the diagnoses. They're saying they're calling it a pre-syncope. I'm not a doctor - but that's medical terminology for nearly fainting. They don't even tell me sepsis in the hospital from what I can remember. I find out from the discharge paperwork, where sepsis is written underneath the principal diagnosis of postural dizziness with a pre syncope. So much more conduct in the hospital that was just not okay. They released me after subjecting me to a cardio stress test they ordered using some diagnosis that has nothing to do with the infection I had. The scarring all over my body alone shows how bad this infection got. Fluid in my body for weeks. The day before they released me, a vancomycin IV burst in my arm, left a bruise for weeks. The same morning, my elbows were soaked in fluid when I woke up, and they just came in and cleaned it up, not telling me a thing.
On the morning they released me, my WBC was higher than the day I got to ICU. They didn't do any updated imaging, conflicting diagnoses everywhere. And they literally try to say "HIGHLY suspected" psychosomatic caused, while treating me for sepsis and using a lot of lactated ringer solutions. Imaging indicating the infection was in my heart. Highly elevated HS troponin readings multiples outside their reference range, and they don't even tell me any of this. The last reading they took was the day before they released me. Vital signs stable was the clinical goal on Wednesday 5/1. MAP>65 on the day they released me. I can't remember a doctor on my treatment team doing my actual discharge. Just some nurse. I was asking for medical records and reports of what treatments they did as I was leaving, wouldn't tell me anything. The nurse let it slip and told me I could find them online, which I already knew. Same response from every doctor and nurse.
A lot more to this story, but this happened at one of the biggest university healthcare systems in the country. Nothing in these records is accurate and contradictions everywhere. Pictures attached. Plenty more happened too. I was so sick for awhile after I left the hospital, I really wasn't positive I would survive for a couple weeks. They tried to say this was psychosomatic, bullshitted all the diagnoses to hide the severity of what happened. This same hospital is already getting some heat from media for their policies affecting people's health.
This definitely did not feel psychosomatic at all. I'm still recovering, still feel it in my chest sometimes. I really thought my life was over at 28. I also apologize if any of the writing comes off erratic, the experience was intense, so I relive it a little when I talk/write about it, but otherwise doing pretty well at this point. If anyone wants me to explain the specific contradictions there seem to be more thoroughly, I'm happy to do that too.
submitted by jddupont to healthcare [link] [comments]


2024.06.02 00:43 TheBeeHasAKnee Is this possible?

Is it possible to have fluey flares that cause hyperthyroidism…
29F, TPO 363 (February) 50mcg Synthroid
Recently had a “flare” of something (maybe autoimmune, docs haven’t figured it out yet) but here are the symptoms.
Since day 3 of fluey symptoms I’ve had sky high anxiety with heart palpitations and just feeling like I’ve had a ton of caffeine despite not drinking any or eating anything with caffeine ingredients.
Then today I woke up with multiple heart palpitations, short of breath, and anxious. Like now 100% certain it’s not just emotional anxiety but something physically driving the heart palpitations, breathing, and restlessness sensation.
My question is: Is it possible to have swung hyper and that these symptoms could have been a flare causing my body to dump too much hormone into my system ontop of the 50mcg Synthroid dose and that is why I’m suddenly having soooo many heart palpitations after a week of not even one? I know y’all can’t diagnosis so I guess a better way to frame this would be to ask: has anyone else experienced similar “flares” and symptoms following the flares? All flu symptoms are gone now but I’m so anxious I could crawl up a wall and my heart palpitations are still hanging around with the shortness of breath.
Thanks! 🙏
submitted by TheBeeHasAKnee to Hashimotos [link] [comments]


2024.06.02 00:06 baker2002 Diagnosed with 3 hernias, Femoral and Inguinal right-side and an inguinal left side.

A week after my 40th birthday, I had to complete an obstacle course for work, which is a physical requirement for my job. On the morning of the test, my pants button broke, forcing me to change into a new pair of fatigues that felt a whole size smaller and were very tight.
About three-quarters of the way through the course, I reached the dummy drag. The dummy is supposed to weigh about 180 lbs, but it had rained the day before, making it wet and heavier. As I did the drag and turned the corner, I felt a sharp pain in my groin area, near the belt line and around the inguinal area. I thought my hip had popped out of the socket. I paused for a second and then slowly finished the last 15 feet of the drag, using mostly my left leg to pull. I walked the remainder of the course and reported the injury to the proctor, which immediately sent me to medical for an evaluation.
This led to a visit to an outside doctor, two slow ultrasounds, and now a six-month wait to see a surgeon. I called immediately on Friday, hoping for a quick resolution, but that is not going to happen. I am in constant pain if I overdo anything. I feel good in the morning, but any activity causes pain by the evening. The doctor told me to stop taking ibuprofen as my blood pressure was skyrocketing. He prescribed 10mg of Flexeril because my back and psoas muscle flare up when I try to do anything active.
The hernias are all small and fat-containing. My doctor at the VA wants to do a full scan of my groin as he thinks there might be more going on than just the three hernias. I attribute the weak groin to a knee injury I had at work a year prior and the lack of working out since then. I couldn't do weighted abs exercises because they strained my knee.
I am now concerned about what surgery looks like for hernias on both sides, the recovery process, and my future. I already see the writing on the wall that I may have to leave this physically demanding job.
Not sure if the slow process is as a result of the L&I but I would rather be at work than be in this constant ache old person feeling. The crazy thing is my symptoms closely match a sports hernia more than the hernias they saw on imaging. Anyone in a physically demanding job have this happen and recover?
submitted by baker2002 to Hernia [link] [comments]


2024.06.01 22:46 Zealousideal_Tart_56 What’s the possibility of me being pregnant?

My boyfriend and I had sex on May 21st according to Flo my ovulation date was the 24th. I am not using Flo as an ovulation tracker or anything because he and I aren’t trying for a baby I use it strictly for tracking my period. I know the pull out method is not 100% effective. He pulled out but some semen still went inside of me. I am currently 8dpo ( according to Flo ) I started having weird symptoms. I could barely get out the bed this morning due to how tired I was. I barely could focus at work then , This morning while driving to work I started with a slight headache just on and off. Cramps in my stomach and back area that comes in like a dull nagging pain and goes away after a minute or two. Randomly throughout the day today I would get random burning in my chest like heartburn but hadn’t eaten anything. Currently I’m laying in bed and the cramps in my stomach and back are coming and going. The pain in my back is in the lower and middle area and the stomach cramps are either in the middle or the sides. When I finally ate lunch earlier today I started to gag. I had to spit the food out to keep myself from throwing up. My period is expected to come on June 8th.
submitted by Zealousideal_Tart_56 to amipregnant [link] [comments]


2024.06.01 22:26 Moist_Caterpillar432 Repost cuz I could really use a help

Been struggling from 2 years, 3 doctors haven't been any help
17 year old female
2 years ago, I had an accident. I was in a vehicle accident, thankfully nothing was hurt on the outside, nor did It looked like I had any kind of concussion. I was completely normal (just a bit shaken up) and went home off my own
I don't/can't exactly tell if my symptoms have been there since then or from before, the memory blends together.
So, the reason I came here is because no doctors so far has been able to help me
I have changed since the last 3 years, I became way too irritable, I got anger issues (upto the point that everything in a day affects me in a negative way (mostly)) I also gained a lot of unexplained weight, I don't eat a lot.
I don't exercise or move often for the matter, I used to sleep like 11 hours a day 3 years ago
but I have gained so much weight even tho I don't eat (I'm obese), I have hormone imbalance, I have constant stomache ache and nauseous, Have bad headache most of the time (I have my prescription glasses I wear sometimes, not often) my periods are completely irregular, sometimes d skipping month or coming early, I once bled a lot and It's usually extremely painful
and recently I've been constantly having cramps even though my periods haven't arrived yet, I try to exercise to lose weight but my head hurts frrom moving too much
a few of the doctors diagnosed me with a very small benign tumor in my brain and pcos like 2 months back, The medications didn't seem to work. 1 doctor said my prolactin levels at 53 over 18.5
Ps. please help me with advice or any kind of help if you can, I feel like I'm dying
submitted by Moist_Caterpillar432 to AskDocs [link] [comments]


2024.06.01 22:13 sluggutslushy i feel like i’m going insane

19f here. i’ve been to the er over 30 times now, last time was yesterday actually.
i did blow on monday (i know bad decision with this phobia) and ever since then, my anxiety or whatever the hell is going on has spiked up so bad.
this has been ongoing for a year, but my symptoms are: - chest pain (center to left side): ranges from tight, sharp, burning, to aching - left arm pain - back pain on my left side - rib pain on my left side - tachycardia - lightheaded, sometimes blacking out - nauseous - tingling in hands - feeling a sense of doom - entire body feels like it’s floating - headache
i have gotten every single test done except for a heart monitor or stress test. everything has come back completely clear. i’m relatively healthy. 5’4 140lbs. i drink and vape and most recently, did a little bit of blow (about half a gram). i don’t work out or anything but i am active. i don’t eat nearly as much as i should though from this fear and unknown food allergies. i’m also always dehydrated because i don’t drink anything because of this fear.
i am so tired of this shit and i just want one day of peace. i cleaned my house today and i’m planning a picnic for tomorrow for me and my boyfriend and i got some of it done but now i’m paralyzed in fear on the couch.
submitted by sluggutslushy to Cardiophobias [link] [comments]


2024.06.01 22:07 nilarzu My son has been diagnosed with celiac disease, but apart from medical evidence, everything is very complicated. Is it gluten or casein that causes this?

(I definitely don't want medical help or diagnosis, I'm just curious about your opinions. Our doctor has already made the diagnosis.)
He is my wind, he is my sunlight, my dear son who is 10 years old and has been diagnosed with celiac disease. I feel like I’ve been pulled into a black hole’s gravitational field. When he was just 5 years old, questioning the universe, he said, “Mom, who knows, maybe our world is inside a black hole…”
He has always been a fun-loving and life-loving child. When he was 5, I took him to a pedagogue to learn about his cognitive profile, and the pedagogue said his cognitive age was 3 years older and that such children might develop attention deficit disorder and what we could do for his development. How could I have known that his distraction could have been due to celiac disease in the following years?
He loves eating, especially pasta, pastries, and other junk foods like other kids. I managed to protect him from junk food until he was almost 5 years old. Even if there were tricks, you only realize this after starting school and you can’t stop it (this is the point where I blame myself the most). I always cooked at home, everything was made at home with vegetables and meat. These should have been the rules of healthy eating for me, and even though eating out has increased a bit in the last year, this hasn’t changed; I still cook homemade meals. I am a vice-principal at a school, which requires me to be at school 5 days a week, including summer holidays. I’ve been doing this job for almost eight years. And now I’ve decided to resign and switch to teaching because I know I need to cook more homemade meals at home and pay attention to cross-contamination. I have a 5-year-old daughter, her tests came back negative, and I think I need to be home to protect her (another point where I blame myself is that I should have been home).
Rüzgar generally didn’t have any issues after meals. All my observations showed this except for milk. Whenever he went through a heavy milk-drinking phase, his stomach pain would increase. Like every child, we thought it was an infection he caught from school when he had diarrhea. Actually, maybe he had diarrhea 5-6 times in his life, but we had to go to the emergency room a few times due to stomach pain and gas pain. He was generally a very healthy child. In the last few years, he mentioned a few times that he had numbness in his hands and legs, usually when he stayed in the same position for a long time, and we interpreted it that way (but maybe because I was very worried as a mother, I took him to the doctor and everything was said to be normal). We went to orthopedics because of leg pain and had an X-ray taken. It was said that his legs were growing and this was normal. When he said he had headaches, we went to the doctor again and came back with the explanation that everything was normal. I didn’t listen to those who said I was exaggerating and didn’t stop taking him to the doctor, but no doctor listened to the mother either. Maybe if they had, the diagnosis could have been made earlier (when I reviewed past records, I found that the emergency doctor diagnosed him with gastroenteritis colitis in 2022 when we went for gas pain. But he said gas and sent us home. Now I blame myself for not looking back on this).
(Rüzgar’s peers usually complained about the same issues; headaches, leg pain, numbness, we witnessed these, and this was always considered normal by the mothers, even if I didn’t find it normal and visited doctors.)
And the date is February 20, 2024. Rüzgar had a three-day, non-feverish diarrhea. No vomiting, generally fine, but stomach pain and diarrhea lasted three days. On the third day, we went to the pediatrician and the diarrhea had subsided. I explained all the previous symptoms, but the diarrhea was like all other children and the doctor was going to give us probiotics and send us home (actually, his sister also had diarrhea on the fourth day). Rüzgar loved eating, but didn’t eat much, his weight and height were in the 95th percentile, but he had a slight belly. I expressed my concern and asked for his liver enzymes to be checked and the doctor agreed. I asked the doctor to check these values for Rüzgar because his father and aunt had thyroid disease. Suddenly, the doctor thought of something and said if there is an autoimmune disease in the family, the child might have another celiac disease, let’s check. (But every time blood was taken, I would say these things for Rüzgar and have them checked, no doctor would think of this). And of course, the value came out to be 200 (tissue transglutaminase reference: <20) and then we were referred to gastroenterology. The gastroenterologist gave us the anti-gliadin antibody test: negative, EMA: positive, and performed endoscopy + biopsy. When we found out it was Mars 3b (stage 3b), we were in shock. Rüzgar’s vitamin and mineral values were good, liver enzymes were normal, iron was at its highest level, thyroid and sugar were normal.
On the day of the endoscopy, my son and 4-5 other children were going to have an endoscopy for celiac disease, and I talked to their families. When they saw Rüzgar, they were all very surprised and said it was impossible because Rüzgar was almost twice the size of all the other children (some were older and some were the same age). When Rüzgar saw the children, he turned to me and said, “Mom, I guess I’m an exceptional case.” Even then, he made me laugh.
Everything happened so fast that, as Rüzgar said, I feel like I’m being pulled into a black hole.
After getting the celiac screening results on February 23rd and reading all the scientific articles (I think all the available articles are crazy), I gave him more gluten than usual until April 26th to avoid disrupting the endoscopy. I used to feel very sad about his belly, I wouldn't make pasta unless he wanted it and I would limit bread. Until the endoscopy, he ate pasta, ravioli, pastries, sandwiches, etc. every day. Even though he ate so much gluten, he didn't experience a single headache or stomach ache. In fact, her belly shrank and her bloating decreased. We went to the doctor on May 7 with the biopsy and gene result (HLA-DQ2: positive) and the diagnosis was made. The doctor talked to Rüzgar, gave a diet list, and explained what we needed to do: Switch to a gluten-free diet and check the values ​​again after two months (he was a very gracious and good doctor). My husband and I were devastated. I almost couldn't look at Rüzgar for two months. I cried every time I saw him. However, the day I was diagnosed, I was unresponsive, too unresponsive to understand anything. And I was trying to understand that I had to be strong.
The doctor said we could consume dairy products but it should be lactose-free for a few weeks. And we did as he said after the diagnosis, Rüzgar started drinking lactose-free milk, I completely changed and cleaned the kitchen, bought new pans, cutting boards, and gluten-free products, and baked the bread myself. I had enough knowledge to prevent cross-contamination, but something wasn’t right. Since Rüzgar started drinking milk, almost 9 days have passed, and his stomach has been hurting for 3 days, and his belly is more bloated than ever. I feel very confused. If gluten bothers him, he ate more gluten for a month and a half; yet he wasn’t bothered at all when I removed milk. He is currently on a gluten-free diet and is very uncomfortable because he drinks milk. I don’t know if I should consider that Marsh 3b grade damage could affect serology due to casein protein. I explained the situation to the doctor, and he said it was no longer necessary to question celiac disease and that he could consume dairy products, but we should stop milk. In two months, we will see if the strict gluten-free diet has worked. I won’t know which one is the reason.
On the day of diagnosis, the doctor referred us to measure bone mineral density with a bone mineral densitometer. The measurement was done with a device, and the specialist who performed the measurement said, “Your son has the healthiest bones I’ve ever seen. What kind of celiac is this?” He consoled me because I was very upset. He said he did not think it was celiac, but that I should still trust the doctor.
For the past three days, the middle part of his chest has been hurting just like when he drank milk (we took him to the cardiology professor the day after the diagnosis, and he said everything was fine).
Intelligent children may have attention deficit disorder, right? I didn’t give up on this, and the doctor I saw in September said it was normal and recommended fish oil. In the past, he had small itchy rashes on his scalp, and we took him to the doctor for this. Medications were given for eczema, and when we went again, they suggested changing the shampoo.
Celiac patients can develop sensitivities to many foods due to intestinal damage, but since gluten is the main trigger in these patients, they primarily react to it. However, we are on the 25rd day of a strict gluten-free diet, and Rüzgar’s belly is still swollen and hurting. He is currently consuming dairy products except for milk. Despite having a Marsh 3 score, Rüzgar always reacted to casein, not gluten, and this contradiction confuses me.
(Please forgive me as this is a very long post.)
submitted by nilarzu to Gluten [link] [comments]


http://swiebodzin.info