Seroquel like herion

Surgery Experiences or Outcomes?

2024.05.14 21:49 SnarkyPickles Surgery Experiences or Outcomes?

Hi all. Previous poster, here with not so great updates. I have severe colonic inertia and have tried essentially all medications in all combinations and my GI specialist is coming to a point where she feels she has maximized the treatment options she feels she can offer me with medication. She wants to refer me to Cleveland Clinic for a consult for a colectomy. I have, of course, heard a lot of negative outcomes from this procedure, so I am anxious. I am looking for anyone who has actually had this surgery who would be willing to share their experiences and what life is like now post-operatively. Also, if anyone knows of any support groups or other platforms where people who have had the procedure share their experiences, that would be helpful. Thank you!
Answers to questions in the guide: 1. I very rarely have the urge to go, but even when I do, it is difficult, and I never have the sensation of having had a complete bowel movement 2. Just constipation 3. I have always struggled with constipation, but it became significantly worse after I suffered from severe anorexia and food restriction in my late teens and early 20s 4. I have been on a plethora of antidepressants over the years, starting with Paxil in my tween years, run the gamut of SSRIs and even Seroquel, and eventually landed on Effexor, which I remain on currently 5. No
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2024.05.14 19:49 ABitFog Struggling

Hello, I'm new to this subreddit so here's some quick things about me- I got diagnosed maybe about 2-3 years ago and have been on my current medication regime, lithium, lamotragine and seroquel for about 2 years.
I don't think I've been on a specific dose for too long of any of my medications since it seems at a certain point I end up having side effects. I'm currently tweaking my lithium dose and have lowered my seroquel.
Every now and again I struggle to understand how in my head, I wasn't like this when I was younger but then once I got help, I was given this diagnosis. I can't really seem to grasp how I feel I didn't meet the requirements then but do now lol.
I'm also wondering, not necessarily looking for medical advice but more so for a personal anecdote, if anyone has gotten on medication and ended up getting off for good, or simply decided not to begin and find other ways to help themselves. I still feel so new to all of this and I grieve every now and again so I'm just looking to see other people's experiences! Thank you :)
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2024.05.14 19:44 mama_nugget222 Seeking any/all quitting success stories

I recently (FINALLY) got off Seroquel after 9 years. It's been a little over 2 weeks. I'm through the trenches of withdrawal which was way worse than I expected - severe nausea, couldn't eat, sleeping 2 hours/night.
I was put on seroquel at the age of 19 for a since resolved misdiagnosis of bipolar disorder, and adverse reactions to a plethora of SSRI medications.
I've been tapering down over the past year from 150mg. Originally was on 300mg. Stopped after getting down to 50mg for a couple months, under the advisement of my psychiatrist (who, in this light, has been quite dismissive and irresponsible).
Every dose decrease has been quite challenging - but equally rewarding. My emotions take a lot more effort to regulate, but I've felt less numbed out and more clarity of mind. I'm remembering old parts of myself that I thought were lost forever.
The finality of stopping ... has been BRUTAL. I didn't expect this. I wanted to feel LESS sedated and zombie-like. I feel such deep exhaustion and weakness of body and mind. I'm just getting to the point of feeling so defeated.
Somebody please tell me this gets better eventually.
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2024.05.14 19:23 persephoneelise Bipolar schizoaffective… any thoughts/experiences with work from home jobs?

I finally got a diagnosis! I’ve had symptoms (including hallucinations and psychotic episodes, as well as depressive/manic episodes) since I was around 12, but my former psychiatrist refused to diagnose me with anything other than depression because I was “too young for SZ or bipolar”. Now at 20, I finally went to a psychiatrist after avoiding it for years due to paranoia.
I was just offered a work from home position that would start in a month. My current job barely pays the bills and this one would start at nearly double my current salary. It seems like a great opportunity, but I’ve been having a lot of episodes lately (which prompted the psychiatrist visit), and my friends have said they worry I could become a shut-in and spending time alone may worsen the delusions.
Does anyone else currently WFH or have in the past? And if so, what were your experiences regarding your SZ or SZA hallucinations/delusions?
I was also put on Seroquel, Buspar, and Lamictal and would appreciate any feedback you guys have regarding those your experiences on those medications. It’s only been 5 days so far and all I’ve noticed is drowsiness from the seroquel, but I take it at night and it helps with my insomnia.
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2024.05.14 18:19 bugbrightbolts Positive withdrawal stories? Encouragement needed

Hello! I was very incorrectly misdiagnosed with bipolar 1 a few years ago when it turned out to be autism and c-ptsd, and I'm in the process of starting to come off of my medications. Seroquel is the first one to go as the side effects I experience are terrifying and my insurance company has stopped covering it. I do not think that Seroquel is inherently bad or dangerous, it just isn't something that has ever helped me because I didn't need it in the first place.
I'm having to decrease my dosage with the pills I have left. I've been on Seroquel 150 mg for about six months now, and I'm four days into a lower dose of 100 mg. I'm going to do five more days of 100 mg, and then seven days of 50 mg, followed by seven days of 25 mg, and then if I'm struggling with withdrawals 25 mg every other day for a week, and then 25 mg every three days for a week. This is the schedule I was told to follow by my doctor.
I'm feeling alright so far, aside from my stomach being a mess. I'm worried that it's only a matter of time before withdrawal symptoms hit. I usually do pretty well with coming off of medications (in the past I've quickly tapered off of lithium, lamotrigine, and lexapro without any issues), but I know that this one is a really high-powered.
Most of the withdrawal stories I've read have left me feeling extremely nervous about this whole process, especially because I'm having to taper off of the medication a lot faster than I would like to. Really, the bad stories have left me more panicked than anything that's going on in my actual body. For the most part I'm just ready to get off of this medication that has been hell for me.
Does anyone have a withdrawal success story to share, or any sort of reassurance? Did things such as exercise, looking after gut health, etc. help? Thank you!
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2024.05.14 17:01 KnownKnowledge8430 Did anyone take Semaglutide along with Seroquel? If so what was your experience like?

My doc recommended semaglutide for my weight issues, did anyone have any experience with this?
submitted by KnownKnowledge8430 to seroquelmedication [link] [comments]


2024.05.14 14:34 SlikPurpleZag Adhd, asthma,bipolar

I had to take meds when I was a kid for adhd I stopped taking them in the 4th grade. They made me into a zombie I didn’t like or need them. When I was 11 or 12 the doctor gave me and Inhaler I never used I run and get around pretty fine I’m 30 now btw.
Also when I was 14-15 I had to take Seroquel because I was going through a change because I wanted to live with my real mom after I was sexually assaulted from 9-13 and felt like my foster mom didn’t care and swept it under the rug for so many years.
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2024.05.14 14:09 RandomlyKatatonic Odd sleep things

Not sure what flair fits this best. Bipolar 1 with comorbidities.
Went into a behavioral clinic (despite having an appointment for a psychiatrist the following Monday) because I wasn’t sleeping; manic for over a month and suffering insomnia. I just desperately needed help and SLEEP. I was prescribed Seroquel. I’d not been medicated for two years.
Well, I did sleep for sure, but also couldn’t function well the following day on the full dose. Was sleepwalking and SHOUTING at my kids to get ready for school the first two nights of taking it. That was probably terrifying at the time, but now it’s become something funny to them. 😑 I, however, am unamused.
Dose was then halved to help with next-day functioning. I was able to rest, but I was also painfully aware of what was on the TV while “sleeping”. My husband can not sleep without the background noise, so I can’t cut that out. I can best describe what was happening as my brain still processing everything around me instead of truly sleeping. Kinda like being in an 8-hour hell scape between sleeping and waking.
Had my psych appointment yesterday. She wasn’t super supportive of me taking Seroquel and suspected I was prescribed it to “kick” me out of mania. She told me to discontinue Seroquel by tapering off over the next few days, but prescribed trazadone and abilify. Start abilify asap, wait on trazadone until I am off Seroquel. I slept like garbage and was more mentally restless than before. I’m not convinced I’ve been “kicked out of mania”, due to the perceived activity while “sleeping”.
Uncertain of what there is to gain by posting this here, just trying to get through adjustments. Wondering if anyone else has dealt with anything similar.
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2024.05.14 07:59 Over-Mission3607 Please help me understand my mother's disease progression.

I've been doing a lot of research over the past months band years and it didn't play out like I expected.
8 years ago. Flu causes her sodium levels to bottom out, causing a seizure. After the seizure came a few days of confusion an delirium, including a violent psychotic outburst, for which she was sedated. (She had no prior history of psychosis or mental illness of any kind). After waking up from the sedation, she was her normal self, but had no memory of the previous events.
6 years ago. Another series of seizures. Diagnosed with epilepsy, placed on medication for it.
Four years ago, another violent psychotic episode. Hospitalized. Placed on Seroquel. Diagnosed with dementia but doctor says it is very mild and she can continue doing anything she wants to. She returns to more or less normal although at this time she begins having memory issues and trouble with executive functioning.
Two years ago. Dementia has progressed. No longer drives but can still bo basic household tasks, although with difficulty. Begins sleeping up to 12 hours a day. Has intermittent periods of tremors and involuntary movements, sometimes accompanied by altered states of consciousness. Hallucinations and delusions begin.
Five months ago. Need help with dressing, bathing, etc. Physically very weak. Enters nursing home where she stabilizes for a while then enters a rapid decline. Stops eating and drinking, appears to be in pain. Becomes unresponsive and dies on May 4.
The thing is it seemed to profoundly affect parts of her brain and leave other parts intact. She always remembered family and friends right up to the end. Just a few weeks ago an old friend visited who she hadn't seen in a long time and she immediately recognized her. She only lost her ability to speak in the last week or so of her life. She could still read, and to some extent understand what she was reading, although she may not remember it a few minutes later. Most of all, she continued having occasional really good days until nearly the end, days in which she could carry on a relatively normal conversation. The last day of her life she could look in my eyes and clearly recognize me.
Based on what I had read and conversations with her doctors and nurses I expected she would go on for another several months at leastt. I didn't expect the sudden rapid decline.
submitted by Over-Mission3607 to dementia [link] [comments]


2024.05.14 07:33 Happy4days21 Wish me luck on Seroquel

I’ve not recovered from rebound insomnia since stopping Xanax 2mg for a couple nights in row (a few too many, this is such a fucking sensitive drug it’s annoying asf. A lifesaver but tricky) and I’m fucking EXHAUSTED. I look tired, I am tired, and even willing to give the CPAP another go. I’m waiting for it in the mail. I’m not that old and am usually on Ambien and have went through SO many sleep or sleep type medications. There’s like 5 I haven’t tried and that’s bc they are brand most likely. The only one that I feel really worked for ME, I capitalize the me because my personal peak trouble with my insomnia is ONSET. Maintaining sleep for me is second hardest. Dayvigo helped with sleep onset like no other… but it’s also a really weird ass drug that paralyzed me moments before going to sleep. It’s actually a really harmless side effect, so if you can get through that, you can get some good help there. Only problem is there is no generic so it’s 350+ a month and I just can’t do that. So now I’ve been able to make a return back to Seroquel, I forgot why I moved on from it years ago, wish me luck tonight on 25mg. I’ve been burned and exhausted and it’s getting dangerous. I’m in a rigorous PhD program and so I have a lot to lose. Afraid of dependence with benzo medication but it still has a place in my arsenal, so I’m trying to find something sustainable or at least something to get me through this sleep deprivation and not detrimental enough to really screw me when it comes to the books. As someone who has to go through dense ass material and expected to process it and know it?… it’s the not sleeping that has fucked me more than anything. I see sleep as an exchange.. good sleep = good work Bad sleep = fuck your future. I’ve seen for myself, it’s that fucking simple. Fill in the blank of what all that could mean, I think it adds up…
PS I’m overall healthy but have PMDD. I stay relatively active as I play rugby and go to the gym. I could eat more and I take vitamins. Ik ppl usually like to reference these details
TLDR; trying Seroquel for the first night in years tonight and crossing all crossables that it works :(
submitted by Happy4days21 to insomnia [link] [comments]


2024.05.14 04:30 throwaway10327591 How to learn how to move past anger for being on a high dose of medication for 11 years- but knowing I was the one who asked for a med increase

I was diagnosed with bipolar disorder when I was 13 by a nurse practitioner and a separate psychiatrist. My parents knew I was struggling and wanted to do their due diligence, so took me to a few different doctors/therapists before taking action. I don't blame them at all because they were just trying to help and how were they supposed to know that it was just normal teenage mood fluctuations that caused temporary anger issues? They simply saw me suffering and did what they thought would help. After explaining about 1 intense mood episode I had to all these doctors, and the fact that both my uncle and grandfather suffered from psychotic/detached from reality episodes, I was put on a low dose of seroquel. I don't know how to feel because I know the way I described it was very stark and I can logically see how they would come to the conclusion they did. But I was 13 and didn't know anything about bipolar, I just knew that something was wrong with me for feeling how I was feeling and I wanted help. I didn't really notice any difference with my moods on seroquel so each time I visited the NP I asked her to increase the dose, hoping it would do something. Eventually I got to 600mg. And gave up with expecting it to do anything about the moods and stopped asking for the increases and just stayed on that dose. And I also feel like it's in the range of a "normal" dose so it's not like that in particular raised any red flags. The only reason I stayed on it was that it 1) it gave me apathy and numbed my emotions which, to be honest, was something I didn't mind when my normal emotions were just me suffering from sadness and loneliness. Feeling numb was better than feeling sad, 2) I'm pretty sure I have insomnia and seroquel was the only thing that let me sleep at night and 3) in low doses it acts as an antihistamine so it helped with my allergies. So I can't say that it was entirely unhelpful, but as I went to college and got away from my childhood I realized that when things started happening to me I just... didn't feel anything? People kept telling me I was so incredibly emotionally intelligent, but that was because I didn't have any emotion so relied 100% on logic to make my decisions. It wasn't like I had so much emotions I could detangle them to figure out what they were, I just didn't have any emotions to begin with and you can't detangle something that doesn't exist. I'm now finally weaning myself off seroquel after reading the DSM criteria and doing extensive research and realizing that although some symptoms match up, I don't have nearly enough to actually align with that disease. I'm currently down to 200mg and i'm starting to smell more things, i'm not longer constipated to the point of going #2 hurts, I don't sleep for 10 hours every day, and I can start feeling some emotions again. How do I make peace with the fact that I spent 11 years unnecessarily on this medication, and the only reason the dose got so high was because I, being naive, asked for it? Because I don't expect my health care professionals to say "no, I think I know your body better than yourself and i'm going to dictate what dose you'll be on". To be fair, the anxiety medication they prescribed genuinely did help, and i'm not so much against meds as I think that doctors need to do a better job at explaining how exactly they work, what side effects can happen, and then ask the patient if they would like to try it and what their boundaries/comfortability surrounding it are and follow that lead instead of acting superior and a "let's get as many patients in as possible" sort of deal. Basically being a lot better at informed consent and respecting patients wishes and not treating them like a number. So how do I get past the anger I feel about how much this medication robbed me of normal experiences when I was the person who asked for the increase??? How do you make peace with something like that when it's your fault???
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2024.05.14 03:57 sharifmuezik Explaining seroquel like

Explaining seroquel like
My coworkers: so blocking your dopamine receptors makes you sad? Me: actually it prevents this:
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2024.05.14 01:06 PreferenceNatural657 Thoughts on sober houses? Im considering breaking my lease and moving 2 hours away

I’ve been battling alcoholism for years. Hospitals and institutions.
I don’t have insurance for an inpatient program.
I currently live in Daytona Beach Florida, I’m considering moving to Jacksonville fl simply because of the sober community in that area.
Daytona Beach is , kind of rough to get clean.
I’m also concerned that AA, hasn’t worked for me. Moving into a sober house I know is gonna be , an AA revolving environment.
I have a decent job right now. I live on my own. I’d have to break my lease and everything. I told work the other day I was struggling with alcoholism. Surprisingly I still have a job. Told me to see a doctor, take a little time off.
I feel like I’ve used all the resources here. With the exception of a real licensed psychologist or therapist. It’s just too expensive.
I’m also on prescription meds. Ambien. Seroquel. 1mg Klonapin. Been on them for years. Scared of doing a 2 day detox. Then going into sober living off of all those meds I’ve been on for years. I know seroquel is excepted but. Getting off benzos and booze is dangerous. I don’t think a simple 2 day detox is gonna cut it.
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2024.05.14 00:48 wanderlusterian Persecutory Delusions? How to cope?

Hi everyone. I have had auditory and visual hallucinations most my life since I was kid. Nothing scary tbh. Kinda recently, I was medicated with Seroquel 8 months from May 2023 to December, I believe. I left them fully early January this year.
Since then, I believe my persecutory delusions are worse. Tbh, I am not sure if I had them before? If they got worse? Anyways, they are here.
At times I feel xyz person is out there to tell on me, others that the gov is out there to get me for no real reason, other that strangers will use the little information they know about me to threaten me. I don't know why they affect me so much when I can reason that it is not likely, but I still can't get out of bed or I feel like deleting every message I write and disappearing for safety.
Anybody got this symptom too? How do you deal with it? I cannot go back to medications right now because I have another disease doctors are trying to look after. Thank you for any help.
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2024.05.13 23:35 boulevardepo Does Seroquel change behavior so much?

My husband started Seroquel a month ago and has changed a lot.
I noticed he drinks alcohol more often like every day. He started smoking. And I feel like he has a porn addiction.
I noticed he goes to the restroom often and hangs out in there for average 30 minutes. So I’m Not sure if he’s avoiding me or just watching porn in there that often.
I have taken Seroquel as a teenager and don’t remember it doing stuff like this. Is this normal? It’s starting to make me depressed because my husband is not the same.
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2024.05.13 20:01 Purple-mountains-inc Hyper-sexuality is out of control

I’m single and I really feel like I wanna do something crazy!
Like text an ex to hookup, or try to hookup with my friendthat I’m picking up soon, in my car, and last weekend I was flirty with a married man and I’m still processing what happened and I wanna cry 😭
What is this weird itch? SOMEONE MAKE IT STOP!
How does it stop?
My doc increased my meds and I’m on 300mg of seroquel now but nothing stops this hypersexual feeling!
I feel like I’m a cat in heat :(
submitted by Purple-mountains-inc to bipolar2 [link] [comments]


2024.05.13 13:05 rauhweltbegrifff Akathisia- can't sleep. Any advice from people who experienced this?

I keep jumping up when I fall asleep. It feels like a mix of dyskenia and akathisia. They both kick in once the seroquel is working.
I'm using mirtazapine and gabapentin. I had the mirtazapine from my old doctor.
Gabapentin works the best though. If I don't time my doses properly I'll feel the akathisia until the new dose kicks in.
I have to take the gabapentin correctly before I take the seroquel so I'm not having full on panic attacks. But it's still very difficult to fall and stay asleep. Respiratory dyskenisia is also affecting me and I'm out of breath all the time.
TIA
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2024.05.13 11:09 Ewrenloch Almost fainted after eating sugar and not enough protien, should I still take seroquel for sleep? (25mg)

I'm really scared I went through an episode tonight after a day of work where I ate primarily sugars, and little protein. I got home and felt like I was going to faint or die for about an hour while I felt dizzy, lightheaded, tingly in my limbs, and panic in my chest
I know seroquel interacts with blood sugar I just want to sleep is it okay to take my 25mg?
submitted by Ewrenloch to Hypoglycemia [link] [comments]


2024.05.13 08:03 Direct-Network-1365 do all doctors prescribe off-label?

ive been taking 150mg seroquel for 3 weeks and its not helping at all. and i just figured out its prescribed off label and is used to treat psychotic episodes. this makes me really wanna switch back to hydroxyzine which worked way better and get off of random psychotic drugs like this .. has anyone else been able to do a direct switch? do all doctors prescribe random off label drugs for insomnia? whats so bad about the approved medications? any advice helps
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2024.05.13 06:49 ILostMyHalo24 Rules

1: no gross stuff, like porn. nevermind and in utero stuff is fine because it's not in THAT way
2: memes are are to be posted on Nirvanacirclejerk
3: no making jokes about Kurt's death, or herion addiction, and no murder talk. (Unless it referring to the controversy that recently happened bc it's actually important)
4: do not be rude, to members of this subreddit, or anyone else.
That's just about all I could think of, sorry if it's written badly, I have to go to bed soon, if you have any requests or questions, comment below.
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2024.05.13 02:50 frenchynerd My state is deteriorating quickly

I was doing quite well until last December, where I got a stomach bug.
Then, the winter was super stressful. Stress at work, financial stress, housing stress.
I'm getting flare up after flare up, losing weight quickly and feeling like shit.
Today, for lunch, I ate a small portion of potatoes and pork. Two hours later, I was on the toilet every five minutes. At first, solid stools. At the end, just small bits with mucus. But not any liquid watery diarrhea. Just solid stools every five minutes. How many stools can be in a body??
And very upset stomach and nausea.
I just tried to eat dinner. A small bowl of white rice and tofu. Couldn't eat half of it. Stomach very upset. Nausea once again.
I have started working with a nutritionnist, but I can't get in the food she wants me to get it because of how shitty I feel.
A few years ago, I almost died because of being too underweight because of my digestive symptoms. I was hospitalized for a while. And now, I'm officially underweight again.
I'm terrified of going back there, and I'm just seeing the vicious circle of eating less and less and symptoms increasing. This is also increasing my stress.
But I was feeling fine and relaxed when I ate at lunch. And there was nothing irritating in my meal. I don't understand this afternoon's flare up.
I am going to start supplement drinks. But I am really worried, and I'm having a very hard time getting a doctor's appointment.
I do have some days that are alright. Yesterday went fine. I really don't understand what's going on now.
I already take Dexilant and Motilium for the stomach, Dicyclomine as needed for my IBS, Prochlorazine for nausea, Clonazepam for anxiety and Seroquel for sleep and anxiety.
Desperate, I even started hypnotherapy with the Nerva app two weeks ago. Don't see any difference. I feel like I'm even worse now. But I can't get into a deep enough relaxed state to get really into it.
They say IBS is not dangerous. Well, I feel like it is getting dangerous for me now. And I almost died from it in the past. I am scared. Shaking and crying in my nausea and worry as I'm writing this.
And if I am able to see a doctor. I really don't want to have to do a colonoscopy, with self inflicted nausea and diarrhea for 24 hours and probably losing a few pounds, putting me even more underweight.
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2024.05.12 20:45 SpecialistDevice5770 I feel like my body is hijacking my weekends

I understand that this title seems a bit silly, but every. single. week. I find myself googling why I can't get out of bed and where this fatigue comes from. It is really puzzling, and very frustrating.
So, basically, every weekend I (29F, 182 cm tall, 150 kg heavy) struggle to do anything at all. I am in my bed, my head feels foggy, I am in pain, sometimes I have low grade fevers (around 38-39 degrees celcius). I am so tired that even getting up to go to the bathroom is hard. Usually it is better at the start of the day, but during the afternoons I am either so out of it I feel concerned (what I mentioned earlier + headaches, dizzy, nauseous, heart racing but not in an anxiety way, more in a like a the body is so overworked kinda way - they feel a little different to me) - or I actually fall asleep, which is the worst case scenario, because then I sleep in short bursts and wake up again after a bit, not having any other choice than to keep sleeping and waking up because I feel so bad.
I want to and need to do things during my weekends, and this frustrates me so much, and makes my life feel so small, and it has been like this for a long time. A while back I thought it was diabetes, because of my weight and the fact that I usually got extra tired after meals, but I even got a blood sugar monitor to check and I was fine, and it has never been a problem in any of my blood tests.
I started feeling this way back in 2014 when I was in uni, and checked with doctors then who thought I was stressed and didn't sleep enough due to insomnia, and I figured ok sounds fair. It got worse between 2017 - 2019 where I would have really bad pain and episodes with fevers every week, I would have reoccuring dizzy spells and such bad brain fog. Around sunmer 2019 I went on sick leave for depression, and around spring 2020 I was fine, worked for a bit, and it didn't stop but it definitely wasn't as much of a problem. When I was home on sick leave between autumn 2021 - autumn 2023 because of a depressive episode, this was worse, pretty much a problem daily, and it had been escalating for about a year prior. Once it got a little better again I thought it might just disappear, and sure, my weekdays I am doing okay. I usually feel this kick in around the time that I am about to leave for work, and I don't need to get much done then so it is okay, but my weekends are still so bad.
I've seen doctors about this, but I am not being taken seriously - I think the combination of my mental health and being fat makes them suspicious of me. It sucks though, because every single time I go my blood tests look pretty bad. I am always higher than normal on the sedative rate and the CRP, I have an excess of leukocytes and thrombocytes, sometimes erytrocytes, I have low MCH, my iron is typically really bad and my transferrin saturation was like five percent last time. My homocysteine is constantly high, and my folate is low. My doctor gives me iron + b12 + folate supplements, which do not help me feel better, and then when the levels go back to normal she takes me back off, only for my levels to be bad again a few months later, and we do the same thing over again.
I was sent to a physiotherapist for my pain and a popping sensation I feel in my muscles whenever I do something that requires even just a little physical work (like walking for more than 20 min, carrying grocery bags home, taking the stairs for more than one floor, you get it). She said the popping was probably just stress, but the other pain she said could be due to me being hypermobile. She did the beighton scale and I scored six points on there, and she said that some of my joints moved way more than they should. I got soft hand and feet supports for the daytime and some specially constucted hand braces for sleep, which I guess have helped a little, and some exercises which honestly truly just have created more pain.
So my current health situation: I am obviously obese, I also took a DNA test that my parents gave me for christmas, and that said I had a homozygote MTHFR mutation. I have autism (lvl 2, so moderate support needs), post traumatic stress (i was in a trafficking situation for a few years - no longer in it and I've done all the tests for that and I am good, apart from hpv, I was also physically abused a lot during that time, which I didn't go see anyone for, so not sure if that has created any long term issues). Depression, dissociation, anxiety. Insomnia (I sleep maybe between 4-6 hours a night, sometimes waking up during the night but usally just struggle getting to sleep and staying asleep for long enough). I take Concerta 54 mg in the morning and Zopiclone 7,5 mg + Seroquel 25x3 mg at night, and I have the nexplanon implant (currently supplemented with some birth control pills as well as the implant isn't working as well as it should). I've tried basically every antidepressive med out there and none have worked, even trying some mood stabilizers and anti-psychotics, as well as rTMS.
My mother has a neurological condition, they haven't been able to discern what it is apart from poly neuropathy, but she has been sick for a little more than ten years now. Her main symptom are brain fog, fatigue, loss of muscle function (trouble swallowing, trouble talking clearly, drop foot that she uses foot supports for, hands randomly stop working, no longer being able to urinate (she has a cath that she can use on herself)), arrythmias, eye problems (pressure + some issues with the optimal nerve apparently). They've checked her for MS but they can't find any plaques on her brain. My sister has hypermobile Ehlers-Danlos. Otherwise no significant history in the family, apart from maybe cancer (prostate, breast) in my grandparents.
I want to figure out what is going on with me, or if it just is my weight and my mental issues that are making life really tricky I would like to know that too. I am doing what I can to lose weight (the autism + joint pain + antipsychotics combo is making that kind of tricky, but I am working with a dietician and I am actually doing the work) and I have an occupational therapist to help with the mental issues that make me inactive. Is there anything else I can do? I would switch doctors in a heartbeat, but I would like to have more to present to them if I do, because it sucks getting dismissed over and over even though something actually does seem off. Maybe it would help if I knew what to ask them to look into.
Thank you!!
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