20F, 223 lbs at 5'4". Currently taking an antidepressant, levothyroxine for hypothyroidism, cephalexin for UTI (recurrent, stent in left kidney after lithotripsy nearly a month ago). Also have fibromyalgia treated with gabapentin that they're not currently taking. They have multiple allergies and took two antihistamine pills the past two nights in a row to sleep. Previously had an MRI of the brain to check for MS, came up clear (no imaging of spine).
Developed weakness in legs about a week ago, can't walk alone without stumbling/falling, which happened previously with a serious kidney infection that led to lithotripsy. Figured it would clear up with the antibiotics but today they woke up saying they "feel weird", with tingling and reduced sensation in their entire body. They can vaguely feel their kidney and fibro pains but nowhere near the level they should. It's like their body "doesn't belong to" them. Their vision is also altered but in a way they can't explain. They also say their chest hurts and it hurts to breathe (a symptom they've been having but more mildly for about a month at least, a hospital x-ray showed a little fluid on one lung but the staff were unconcerned). They also feel restless and "strung up" like they're "waiting for something bad to happen", another symptom they've experienced a couple times in the past few weeks. No headache or nausea or fever, heart rate is normal, blood pressure is 143/83 (elevated blood pressure has been the norm).
Should they go to ER? They're hesitant due to not having insurance but I'm worried

My 4 year old daughter gets sick every month or two. Her symptoms are usually high fever and vomit. She gets very weak and won’t eat anything. Every time we go to the doctor her white blood cells are high, between 23 to 25. Doctors never find the reason just say she has an infection.
She gets a lot of UTIs, my 12 year old used to have some type of urine reflux but she didn’t need surgery as it fixed by itself. So based on her sister history and my experience with her I brought it up to the doctor and she dismissed it, saying my 4 year old doesn’t have the same symptoms.
Two days ago she was sick same symptoms as always, I did a at home uti test and was positive, at the doctor she came out negative but doctor said she has red blood cells in the urine, as per the doctor is very normal.
Her throat was red but she came out negative for strep throat, so they did not gave me a reason of her symptoms other than we think she has strep but she came out negative.
I don’t know what else to do because she gets sick often and they’re not able to find the reason.
She goes to daycare.

My 4 year old daughter gets sick every month or two. Her symptoms are usually high fever and vomit. She gets very weak and won’t eat anything. Every time we go to the doctor her white blood cells are high, between 23 to 25. Doctors never find the reason just say she has an infection.
She gets a lot of UTIs, my 12 year old used to have some type of urine reflux but she didn’t need surgery as it fixed by itself. So based on her sister history and my experience with her I brought it up to the doctor and she dismissed it, saying my 4 year old doesn’t have the same symptoms.
Two days ago she was sick same symptoms as always, I did a at home uti test and was positive, at the doctor she came out negative but doctor said she has red blood cells in the urine, as per the doctor is very normal.
Her throat was red but she came out negative for strep throat, so they did not gave me a reason of her symptoms other than we think she has strep but she came out negative.
I don’t know what else to do because she gets sick often and they’re not able to find the reason.
She goes to daycare.

I don’t know where to start with this. There is so much and I’m pretty sure this is above reddits paygrade. I just don’t know where to turn too. I (38f) have been with my fiancé’ (38m) for almost 4 years now. I love him but I think I want out of the relationship. I can’t imagine being with someone else but I also cant imagine doing this for my entire life. There is so much to go over but I’m pretty sure at the end of this I am a huge double triple huge asshole for how I feel. I won’t make excuses. All I’ll say is that this has been happening long before we got to here. There is a lot of context but the first thing I guess I should address is that we both have chronic health issues. His is much more life threatening if not maintained but for the most part is healthy. He rarely gets sick but when he does it’s pretty bad. He has a rare form of anemia that is only treatable by lifelong steroid use or bone marrow transplant. I always keep up with his health and his hemoglobin levels are good but I don’t schedule his apps or attend all visits. He does all that. About a year and a half ago transplant talk was put on the table and he was vehemently against it. But after about a year he realized there wasn’t a choice his meds aren’t working anymore. I’ve always asked if hes in pain or struggling he makes it very clear he is fine and that he would tell me if he wasn’t. I am super aware of when things look off, or if he looks really pale. I always ask questions and when I do go to the doctors apps I pay attention.
I have an autoimmune disorder. It varies from being annoying as fucking hell to down right painful and I can’t walk. He has been less than sympathetic to just down right making fun of me. He’s told me I need to live in a bubble to you’re always sick, to what doesn’t hurt on you. Not much dude. Not much. To be clear I don’t whine, I don’t miss work unless is unavoidable, I went to work with Flu A, B and covid before I almost out right couldn’t set up. I’ve had full blown asthma attack on the bed and in-between breathes asked for him to get the nebulizer because I didn’t have a rescue inhaler anymore. My daughters cat laid on me because I was so sick and doing the treatment and while most cats love me, I’m not this cats favorite but even he was like mom needs me. He looked annoyed and thought I was being dramatic. It wasn’t until the doctor told me I was super mega sick that he relented. Im on immunosuppressants and I have two small school age kids who are walking petri dishes, I catch a lot. Its not for a lack of trying no too. One of the biggest I have a bad tendency to get yeast infections, its chronic and not entirely unavoidable. Sex is a huge factor in this and it’s a snow ball effect, it starts with a yeast infection that blooms in to a full on UTI then my lichen Sclerosis flares, and lots and lots of sex exacerbates these issues. He likes to bring up the first year we were together that we had a lot of sex but we didn’t live together and had to many days apart. I spent 100s of dollars on yeast meds and suppositories. I still ended up in urgent care for a UTI that caused a fever so high they were convinced I was septic. I wasn’t but I felt super awful. When we moved in together the sex things seem to bother him more. He had issues with all the things wrong and I tried to explain and give him things to read but it seemed to fall on deaf ears. We fought about it constantly. We had full blown arguments over sweatpants and sexy clothing. To when he actually told me unless I wore sexy panties sex didn’t matter to him. He apologizes after but I know that he meant what he said. I’ve never lied to him about any thing, I’m not an overly sexual person and not usually open about being attracted to someone but I have tried to meet him halfway. I knew my illness was causing a lot of problems so I tried so hard to be better. I had gained a lot of weight from steroid use so I went and got help to loose the weight, Ive lost like almost 80lbs. Ive gotten down to only one suppressant medication. But the skin issues still linger. I was told there wasn’t much I could do about it. I’ve gone to the doctor multiple times just for this issue. I’ve tried supplements and boric acid suppositories. Its helped but not enough to really notice. We just had to make changes to the way we have sex, we are still having it 2-3 times a week but we have to have days in-between and we have to minimize sperm contacting my skin. I was also diagnosed with seminal plasma hypersensitivity which is common with my skin disorders and it is an allergic reaction. But I have to put a huge wall up for spontaneous sex which is a huge bummer and he is 100% reliant on me being the one that’s spontaneous. Which he doesn’t think is fair. I understand all that but I’ve explained if sex hurt him or caused the issues I’ve had you’d understand why I have to do it this way. There have been times where I’ve had issues and had to abstain for sex or a week but It’s never been much longer than that and he’s constantly asking if its better or if we can do it. He rushes care and a lot of times I’m reinfected or I just never went away cause its never had time to heal. The only time he doesn’t press as bad is when I’m on my period and even then he makes comments about putting a towel down. He talks about sex constantly, asks for blow jobs when I can’t and insists on trying to lick me when I’m not in the mood. When someone has a yeast infection they aren’t thinking about anything going anywhere near this vag, they are uncomfortable and wished they could rip it off and throw it away. I have counted how many times hes brought up having sex in an hour and the most he’s done it is 23 times the least is 8. He can’t have a conversation with me without bringing it up. I could be talking about something completely different and he’ll go we doing it today? Completely off topic. ITs so much worse now that hes going to have to have transplant and has to go at the very least 30days with out sex. The first questions he asked whenever this was happening had nothing to do with will I live it’s been when can I have sex? He’s willing to risk my health and his health for it. I just can’t anymore. His main concern this entire time is don’t find someone else and don’t fuck anyone else. Not I love you and all of our kids, its’ been just about this and that he’s going to be ugly after the transplant. To which I could give a fuck about. I want to be clear I love him, I love having sex with him but this is just really hard to deal with. I’ve tried talking to him Ive tried expressing that this isn’t normal. He gets super defensive that why are you in a relationship for if you aren’t going to touch them and the entitlement to just grab at me has more than once sent me on edge. I’ve tried to explain it just devolves into fight where he just shuts down and says I just won’t fucking touch you period. Then spins it as I’m the one making a big deal. Its just sex.
These aren’t the only issues, we both have children from previous relationships my kids are much younger and hes jealous of the attention they get, hes so worried about me and him he doesn’t even pay attention to his own kids who are now teenagers. During this whole transplant talk hes made comments that he can’t wait to be alone and have a break from work and no kids around. His kids have heard him. All 4 are taking this super hard, he doesn’t care, he just says my kids are clingy and can’t do anything on their own. My kids are 7 and 5. I can go into more details but this would be so effing long if I did. And to be clear about this he has had these behaviors probably for the past 2 years way before we had the transplant conversations.
I know that I’m supposed to be one of his carers after the transplant. His mom will be primary as I am the main caregiver of my bio children and he will be located about 3 hours away. We were gone to testing this week and things were pretty fun we played and best friend game and for once no topics of sex came up. And it was like I got a glimpse of the person I fell in love with. But the next day it was right back to talking about sex every time he looked at me. When were seeing doctors, I had to excuse myself at one point because I realized if the roles were reversed he wouldn’t do this for me. If I lost any part of my beauty or ability to have sex this would be over. IT was so sobering and I was devastated. I tried talking to him when we got home and it caused a fight that we are still currently in. He says I’m not interested in sex every and he doesn’t try anymore cause Im never in the mood. Ive explained that constantly talking about it ruins it. Ive showed him time and time again if you just stop you get more from me. He doesn’t care. I don’t want to be his carer anymore. And I know that makes me a horrible person. Please excuse typos I am on voice text.

So I am 37(M) and my mother (73) before she passed away on 24/12 /23. The thing that happened was that my mom ended up, having health scares one after another last year. So essentially it was first when she was told to get minor cataract surgeries, this time of month last year and both her and me were busy with her tests and later surgeries in June, July. Since she had Care insurance, she applied for her cataract surgies claim - earlier both got approved for 30k each for both surgies costing almost 50k each but then suddenly they backtracked & said one claim was rejected as place where we got surgies done, was blacklisted later. Now the single 30k claim should have been deposited, right. But nope, it still stuck & since my mom later got diagnosed with stage-4 kidney cancer in September which really shocked both me and my mom as my mom's tests have always been decent, we couldn't follow up more than couple of attempts & instead got focused with dealing with the cancer situation. Irrespectively, I got her on keytruda immunotherapy asap as surgeon couldn't operate till it was reduced and my mom was indeed reacting very positively to the treatment despite some issues with side-effects. However despite my best efforts, my mother suffered a brain stroke and I had to take the difficult decision of taking her off life support while dealing with another care insurance tantrum where they rejected her icu charges when she was admitted as I rushed her to hospital while having a brain stroke. In short, I ended up paying almost 1lakh out of my pocket and still had to pay additional 2.5lakh for further processes which was further complicated by my narcissistic sister who was only around to get her inheritance & making my life hell so I had almost no time to arrange the amount as I had only 40k left. Thus I unfortunately withdrew funds from my mom's accounts (I am Nominee & had her credentials though I also refunded them once I had a more stable mindset & recovered from fevemy learning disability med issues throughout January). Either way, I initiated the Maharashtra govt ppo closure (I had refunded the amts taken from pension accounts prior to initiating paperwork) by Jan end & also approached local cbi home branch for also closing my deceased father's family pension to my mom. The branch manager directed me to this problematic deputy branch manager to whom I did admit that I had to withdraw funds from my mother's pension accounts but I have refunded them once I gathered resources(basically my sibling & family members are useless besides the fact that my sister has indulged in some criminal offenses like harassing me & my mom both before & after her death, etc while said family members did nothing besides ignoring my complicated health issues as I could have died the day my mom passed away). Since my mother also took 3 online FDs earlier in 2023, the deputy branch manager wanted me to break them & told me that individual account won't be closed & only her CIF would be directly deactivated. Also it was only few months for FDs to maturity & state govt pension closure was yet to occur - I told her that I will file for death claim settlement once state govt pension is closed & excess pension is recovered by them as deactivating the CIF will make this troublesome & a legal case. So she agreed to wait till state govt pension is closed and I gather all necessary documents in the meantime. Luckily state govt treasury did close the ppo & withdrew excess pension by 19th March while I also managed to transfer most of the mutual funds where I am Nominee. However since state govt treasury office (it's in another city from where I live & reasonably far), didn't give me letter of closure/confirmation - I was asked to wait for 1 month by local treasury officer (as financial year closing was approaching) which I informed to said deputy branch manager again. During this time, I also had to deal with legal paperwork as the lawyer my mom knew, didn't inform her or me to register the will, my mom made & also wasted my time in March. So I had to look for other ways to inherit one immovable property (my sibling holds 16.66% share and I have 83.34% as per my mom's wish to inherit the property as per her will), one problematic mf scheme transfer which I accidentally botched by editing Nominee details (still not sure as my mental health was seriously impaired in Jan/Feb & I also have same scheme, so not sure how it happened as there's no email confirmation except for an otp I found though I am not sure why I would update nominee details when I am already nominee there & even mentioned in will). Since UTI rejected both of my transmission claims so I am waiting for my current lawyer to complete the gift deed & apply for heirship certificate at municipality for filing my deceased mom's ITR. Also please note that despite timely updates to deputy branch manager, she let the FDs renew without my permission & has been acting dubious besides acting very rudely with me. So situation is,

1. I have filed compliant with cbi bank (or rather couple of them as again, I wasn't informed properly nor received proper feedback from bank plus despite calling customer care for almost 7 times, most aren't clear in their instructions as some mentioned different email-ids to complain to one asking to file a complaint with branch itself but I am not sure as branch manager said nothing despite my confrontation with deputy branch manager happening in front of him). Now I will be collecting the FDs physical certificates from branch & wait for resolution as said deputy branch manager is very suspicious(like asking me to file false FIR for missing online FDs physical certificates which I never had & whose online receipts I already have to also blaming me that I didn't tell her they were online while she wasted time & made me do a Rs500 stamp paper indemnity bond with additional documents like death certificate, AadhaPan, etc or saying there will be penalty for breaking autorenewed FDs that strangely got renewed on maturity dates without any prior indication & some things not adding up with new scheme plus the whole confusing me with different instructions & false claims all the time). Though luckily I have recorded the conversation with her first blaming me then backtracking once her fault was found. Also I atleast managed to travel to the distant city for closing state govt pension bank account & it was transferred to my savings account (it's at same problematic home branch) on 3rd May & de-activated my mom's CIF. So as bank resolution will take additional 15days to come(customer care first said 48hrs & now saying different), should I approach branch with resolution & LHC to minimize further problems despite being Nominee.(there's an error in relationship in cbi's savings account where my name & details are there but relationship is daughter instead of son but I already made Rs.100 self-affidavit as per dubious deputy branch manager instructions & all other documents including death claim form).

 

1. Applying for my mom's final ITR is necessary & I have already submitted most financial statements to my CA to compute including the TDS deducted on the FDs since I have been given July-end deadline. Plus as my mother & me spent more than 10lakh+ for her cancer treatment, I am hoping that I will get some deductible relief on her final itr besides tds. The issue is that I am still lacking any legal heirship document that will allow me to register as assessee for filing my mother's ITR. I did ask another bank where I am also nominee for mom's account, for issuing bank letter confirming Nominee details but they refused. However hopefully as I am going to execute a registered gift deed with help of my new lawyer that will mention my mom's unregistered will, I am hoping it allows me to register for the ITR. Otherwise I will have to approach local municipality office for issuing surviving family membeheirship certificate once gift deed allows me to initiate transfer property to my name.

 

1. There are still some untransferred assets such as a SBG linked to my mom's account besides the UTI scheme that's linked to same account(for uti, I already have most paperwork ready except that they asked for legal document that confirms relationship between me and my mother so while I can submit my passport copy though feeling it's better if will gets registered during gift deed process as it's mentioned there). Then there's the care insurance claim associated with same account & taken by bank officials of same bank yet it came to my attention that Care apparently messed my mom's name multiple times while issuing the policy & the claim hasn't processed as policy name & bank account name don't match (it's only a difference in middlename and could have been conveyed to my mom when she approached them multiple times). I did ask my lawyer regarding this & as amount is only 30k, he has asked me not to think about claim as for now as Care doesn't seem sincere as they haven't given it in writing that they will issue claim if I submit LHC/Registered Will with other documents. So while I will get SBG once I close the account & also uti mf scheme (hopefully), I am not sure if I should file a consumer case against Care (as an employee even misbehaved with my mom & the claim situation feels really fraudulent) or just hope that Care would honor the claim once I submit the documents.(they also only mentioned sending documents over email so again felt weird)

 
Overall all these incidents have seriously affected my health and frankly I need a break for myself as I am still struggling with my grieving (I saw my mom die 3 times & the family drama still triggers my cptsd though I am not suicidal or having med issues unlike in Jan besides still unable to take some personal time off due to these commitments). I also apologize if this post ended up too long or having details all over the place as I am still trying to piece together as much information I have as I do have written journal records of the paperwork & events that occurred though I forgot to list down some details here & there due to trying to manage everything by my own.

So I am 37(M) and my mother (73) before she passed away on 24/12 /23. The thing that happened was that my mom ended up, having health scares one after another last year. So essentially it was first when she was told to get minor cataract surgeries, this time of month last year and both her and me were busy with her tests and later surgeries in June, July. Since she had Care insurance, she applied for her cataract surgies claim - earlier both got approved for 30k each for both surgies costing almost 50k each but then suddenly they backtracked & said one claim was rejected as place where we got surgies done, was blacklisted later. Now the single 30k claim should have been deposited, right. But nope, it still stuck & since my mom later got diagnosed with stage-4 kidney cancer in September which really shocked both me and my mom as my mom's tests have always been decent, we couldn't follow up more than couple of attempts & instead got focused with dealing with the cancer situation. Irrespectively, I got her on keytruda immunotherapy asap as surgeon couldn't operate till it was reduced and my mom was indeed reacting very positively to the treatment despite some issues with side-effects. However despite my best efforts, my mother suffered a brain stroke and I had to take the difficult decision of taking her off life support while dealing with another care insurance tantrum where they rejected her icu charges when she was admitted as I rushed her to hospital while having a brain stroke. In short, I ended up paying almost 1lakh out of my pocket and still had to pay additional 2.5lakh for further processes which was further complicated by my narcissistic sister who was only around to get her inheritance & making my life hell so I had almost no time to arrange the amount as I had only 40k left. Thus I unfortunately withdrew funds from my mom's accounts (I am Nominee & had her credentials though I also refunded them once I had a more stable mindset & recovered from fevemy learning disability med issues throughout January). Either way, I initiated the Maharashtra govt ppo closure (I had refunded the amts taken from pension accounts prior to initiating paperwork) by Jan end & also approached local cbi home branch for also closing my deceased father's family pension to my mom. The branch manager directed me to this problematic deputy branch manager to whom I did admit that I had to withdraw funds from my mother's pension accounts but I have refunded them once I gathered resources(basically my sibling & family members are useless besides the fact that my sister has indulged in some criminal offenses like harassing me & my mom both before & after her death, etc while said family members did nothing besides ignoring my complicated health issues as I could have died the day my mom passed away). Since my mother also took 3 online FDs earlier in 2023, the deputy branch manager wanted me to break them & told me that individual account won't be closed & only her CIF would be directly deactivated. Also it was only few months for FDs to maturity & state govt pension closure was yet to occur - I told her that I will file for death claim settlement once state govt pension is closed & excess pension is recovered by them as deactivating the CIF will make this troublesome & a legal case. So she agreed to wait till state govt pension is closed and I gather all necessary documents in the meantime. Luckily state govt treasury did close the ppo & withdrew excess pension by 19th March while I also managed to transfer most of the mutual funds where I am Nominee. However since state govt treasury office (it's in another city from where I live & reasonably far), didn't give me letter of closure/confirmation - I was asked to wait for 1 month by local treasury officer (as financial year closing was approaching) which I informed to said deputy branch manager again. During this time, I also had to deal with legal paperwork as the lawyer my mom knew, didn't inform her or me to register the will, my mom made & also wasted my time in March. So I had to look for other ways to inherit one immovable property (my sibling holds 16.66% share and I have 83.34% as per my mom's wish to inherit the property as per her will), one problematic mf scheme transfer which I accidentally botched by editing Nominee details (still not sure as my mental health was seriously impaired in Jan/Feb & I also have same scheme, so not sure how it happened as there's no email confirmation except for an otp I found though I am not sure why I would update nominee details when I am already nominee there & even mentioned in will). Since UTI rejected both of my transmission claims so I am waiting for my current lawyer to complete the gift deed & apply for heirship certificate at municipality for filing my deceased mom's ITR. Also please note that despite timely updates to deputy branch manager, she let the FDs renew without my permission & has been acting dubious besides acting very rudely with me. So situation is,

1. I have filed compliant with cbi bank (or rather couple of them as again, I wasn't informed properly nor received proper feedback from bank plus despite calling customer care for almost 7 times, most aren't clear in their instructions as some mentioned different email-ids to complain to one asking to file a complaint with branch itself but I am not sure as branch manager said nothing despite my confrontation with deputy branch manager happening in front of him). Now I will be collecting the FDs physical certificates from branch & wait for resolution as said deputy branch manager is very suspicious(like asking me to file false FIR for missing online FDs physical certificates which I never had & whose online receipts I already have to also blaming me that I didn't tell her they were online while she wasted time & made me do a Rs500 stamp paper indemnity bond with additional documents like death certificate, AadhaPan, etc or saying there will be penalty for breaking autorenewed FDs that strangely got renewed on maturity dates without any prior indication & some things not adding up with new scheme plus the whole confusing me with different instructions & false claims all the time). Though luckily I have recorded the conversation with her first blaming me then backtracking once her fault was found. Also I atleast managed to travel to the distant city for closing state govt pension bank account & it was transferred to my savings account (it's at same problematic home branch) on 3rd May & de-activated my mom's CIF. So as bank resolution will take additional 15days to come(customer care first said 48hrs & now saying different), should I approach branch with resolution & LHC to minimize further problems despite being Nominee.(there's an error in relationship in cbi's savings account where my name & details are there but relationship is daughter instead of son but I already made Rs.100 self-affidavit as per dubious deputy branch manager instructions & all other documents including death claim form).

 

1. Applying for my mom's final ITR is necessary & I have already submitted most financial statements to my CA to compute including the TDS deducted on the FDs since I have been given July-end deadline. Plus as my mother & me spent more than 10lakh+ for her cancer treatment, I am hoping that I will get some deductible relief on her final itr besides tds. The issue is that I am still lacking any legal heirship document that will allow me to register as assessee for filing my mother's ITR. I did ask another bank where I am also nominee for mom's account, for issuing bank letter confirming Nominee details but they refused. However hopefully as I am going to execute a registered gift deed with help of my new lawyer that will mention my mom's unregistered will, I am hoping it allows me to register for the ITR. Otherwise I will have to approach local municipality office for issuing surviving family membeheirship certificate once gift deed allows me to initiate transfer property to my name.

 

1. There are still some untransferred assets such as a SBG linked to my mom's account besides the UTI scheme that's linked to same account(for uti, I already have most paperwork ready except that they asked for legal document that confirms relationship between me and my mother so while I can submit my passport copy though feeling it's better if will gets registered during gift deed process as it's mentioned there). Then there's the care insurance claim associated with same account & taken by bank officials of same bank yet it came to my attention that Care apparently messed my mom's name multiple times while issuing the policy & the claim hasn't processed as policy name & bank account name don't match (it's only a difference in middlename and could have been conveyed to my mom when she approached them multiple times). I did ask my lawyer regarding this & as amount is only 30k, he has asked me not to think about claim as for now as Care doesn't seem sincere as they haven't given it in writing that they will issue claim if I submit LHC/Registered Will with other documents. So while I will get SBG once I close the account & also uti mf scheme (hopefully), I am not sure if I should file a consumer case against Care (as an employee even misbehaved with my mom & the claim situation feels really fraudulent) or just hope that Care would honor the claim once I submit the documents.(they also only mentioned sending documents over email so again felt weird)

 
Overall all these incidents have seriously affected my health and frankly I need a break for myself as I am still struggling with my grieving (I saw my mom die 3 times & the family drama still triggers my cptsd though I am not suicidal or having med issues unlike in Jan besides still unable to take some personal time off due to these commitments). I also apologize if this post ended up too long or having details all over the place as I am still trying to piece together as much information I have as I do have written journal records of the paperwork & events that occurred though I forgot to list down some details here & there due to trying to manage everything by my own.

37 Female - 5'4" - 130 lbs - ex smokevape - weekly alcohol use of like 1 or 2 on weekends - no drugs
Allergies: Erythromycin
My gallbladder was removed in 2011
Ok so, the situation, Wednesday morning I woke up at 4:30 AM to pee and it stung. I immediately knew I had a UTI and would go to my Durgent care once they opened to get antibiotics. Not five minutes later I had to pee again and there were blood clots. Never had blood clots before with a UTI and also I'm not super prone for UTIs like some people. I've had maybe 4 in my life.
It escalated pretty quickly. I went from no symptoms when I went to bed to passing massive clots and my urine looking like chunky strawberry jello within just a couple of hours.
So go to the Dr office, they take a sample (it comes back E Coli), give me a shot of Rocephin and a script for Bactrim to take for 7 days, 2 pills a day. Since then I have been taking the medicine but I'm still having horrible symptoms.
Now the blood, clots, stinging, anything related to the UTI cleared up within a day. However I started to develop fevers (no fevers prior to taking the antibiotics), chills, massive constant headaches. My skin hurts so bad it's painful to move. It's the kind of pain you get when you're sick but just very intense. Hurts the most right below my breasts but even just getting up to use the bathroom feels horrible because I'll get the chills and it tightens my skin and it's just very painful.
Other symptoms I still have: heart palpitations, hunger seemed to disappear Friday. I am forcing myself to eat. Prickling sensation in my hands that sometimes appear elsewhere on my body - this feeling is not constant but comes and goes. Can feel/hear blood pumping in my head which makes me feel like I've got fluid? Tired/Woozy feeling in general.
So my concern is that I've never had UTI symptoms last long once I start the antibiotics and it's usually easy sailing while I finish the script. These prolonged symptoms are weird for me. What could possibly be going on? Stubborn UTI? Sepsis? Back doesn't hurt for kidney infection. Could I be allergic to Bactrim?
Any thoughts would be appreciated. Thank you!

Female, 22. Taking Euthyrox 75 6x a week and currently Furolin antibiotics.
Almost two weeks ago, I started getting UTI symptoms, the same ones like every time (for me its burning sensation and feeling feverish without elevated temperature, I've never had a fever with this infection).
I went to the doctor a week ago to get antibiotics and I am on my last day out of 5. The thing is, I feel the exact same I did before taking them. I think they're not working and I am a bit scared to wait till Monday's morning to go to my doctor once again. I don't feel any pain when pressing down around my lower back or where my bladder is, no fever, no nausea, just random pinching pain around my lower ribs, but I know how fast it can change.
I am mainly worried about having to wait even longer for possible culture, which would take like 3 days, because I am petrified of kidney infection and sepsis. I am debating wherever I should go to the ER or not or wait.

Almost two weeks ago, I started getting UTI symptoms, the same ones like every time (for me its burning sensation and feeling feverish without elevated temperature, I've never had a fever with this infection).
I went to the doctor a week ago to get antibiotics and I am on my last day out of 5. The thing is, I feel the exact same I did before taking them. I think they're not working and I am a bit scared to wait till Monday's morning to go to my doctor once again. I don't feel any pain when pressing down around my lower back or where my bladder is, no fever, no nausea, just random pinching pain around my lower ribs, but I know how fast it can change.
I am mainly worried about having to wait even longer for possible culture, which would take like 3 days, because I am petrified of kidney infection and sepsis. I am debating wherever I should go to the ER or not or wait.

My pain and cramping is nearly completely gone. Today I have had cramping once and it was much more bearable. However, my fevers have not stopped. I also feel like the smell has gotten 10x stronger. This is the 4th recurrence that I’ve had in 5 years. The first time the vanco helped nearly instantly but recurred so I did a second round. A few years later I had a recurrence and was given flagyl that didn’t work then vanco. I can’t remember how long it took but it was a little less seamless. Last October I was hospitalized for sepsis due to staph aureus and was on iv vanco along with several others while they identified the exact strain. A few weeks ago I was given antibiotics for a uti that triggered cdiff. I’m worried that ive developed a resistance. How long should I wait for the fever and diarrhea to get any better before worrying about this?

I figured out I had it bc yesterday I suddenly felt very achy and I had a fever of 102. Later on in the night, I started drinking cranberry juice, and I felt a little better. This morning I feel almost back to normal just a few symptoms. This is my first uti, and I’m treating it with drinking cranberry juice and over the counter medicine as well as drinking a lot of water. I don’t want to go to the doctor cuz that’s a bill I don’t want to pay. Is there any other tips I can use?

I was given Chlamydia and Mycoplasma by my bf. He had no idea he had anything and neither did I for almost a year. It was a freak incident and he’s learned his lesson to never endanger someone again by not getting tested after being with someone. We both got squared away. Several months ago now. I thought. I’ve had lab work done to verify #1. I even had an STD and then #2. Went back after medicine to insure everything is gone. Let me read off my final lab results after medication. No Chlamydia, Trich, Mycoplasma Genitalium, Mycoplasma Hominis, Ureaplasma, gonorrhea, Candida, Gardnerella, or BV. I don’t have anything. But look at these other lab results. My WBC is 11.8 which is very high. My Neutrophils were 7.8 which is also out of range. High white blood count indicates infection right? Now for my symptoms. This is gonna be TMI but we’re all grown and I just need y’all to know I’m not crazy. I feel like my doctor thinks I am which is why I’m trying so hard to explain this perfectly because when I go to her I just get shut down. Maybe you guys can push me in the right direction. Anyway, the smell is 110% different. It’s not fishy like BV but it’s strong even a couple hours after I shower and I HAVE NEVER HAD ISSUES CLEANING MYSELF FYI. It’s not a hygiene issue. This is all new stuff. And there’s a different taste too. Not only did I notice but so did my partner. He’s never tasted it on me before even when we unknowingly had the STDs so it’s something else. I told you TMI. Then my discharge. It’s sometimes clear but mainly really milky white and sometimes has tiny traces of blood in it. In all bathroom lighting it looks yellowish/greenish but when you shine a flash light on it it’s just white/cloudy and sometimes has little amount of blood. And I will say the last several times I’ve gone when they do the pee stick thing to check all your levels and stuff there was blood in my urine. They’ve told me that several times but never treat me for anything. I don’t have any constant pelvic pain. I have no fevers. My question is that since I had STDs for so long without knowing, could they have wreaked havoc elsewhere in my body? Could I have a UTI with no pain? Cystitis?? Cervical cancer?! I DONT KNOW. What is happening to my body?!! I scheduled an appointment AGAIN with my doctor to try to figure this out. Is there anything you recommend I tell her to look for? I am beyond stressed out about this and so uncomfortable. I just want my regular sex life and the little amount of confidence I did have. I feel like I’m going crazy because I KNOW something is wrong and they can’t find anything. Or they aren’t looking in the right place but I don’t know where to tell them to look. Kinda why I’m not a doctor. Please help me. I’m telling you something is wrong

I was given Chlamydia and Mycoplasma by my bf. He had no idea he had anything and neither did I for almost a year. We both got squared away. I thought. I’ve had lab work done to verify I

1. Had an STD and then

2. Went back after medicine to insure everything is gone. Let me read off my lab results.

No Chlamydia, Trich, Mycoplasma Genitalium, Mycoplasma Hominis, Ureaplasma, gonorrhea, Candida, Gardnerella, or BV. I don’t have anything. But look at these other lab results.
My WBC is 11.8 which is very high. My Neutrophils were 7.8 which is also out of range. High white blood count indicates infection right? Now for my symptoms. This is gonna be TMI but we’re all grown. I feel like my doctor thinks Im crazy which is why I’m trying so hard to explain this perfectly because when I go to her I just get shut down. Maybe you guys can push me in the right direction.
Anyway, the smell is 110% different. It’s not fishy like BV but it’s strong even a couple hours after I shower and I HAVE NEVER HAD ISSUES CLEANING MYSELF FYI. This is all new stuff. And there’s a different taste too. Not only did I notice but so did my partner. He’s never tasted it on me before even when we unknowingly had the STDs so it’s something else. I told you TMI.
Then my discharge. It’s sometimes clear but mainly really milky white and sometimes has tiny traces of blood in it. In all bathroom lighting it looks rellowish/greenish but when you shine a flash light on it it’s just white with blood. And I will say the last several times I’ve gone when they do the pee stick thing to check all your levels and stuff there was blood in my urine. They’ve told me that several times but never treat me for anything.
I don’t have any constant pelvic pain. I have no fevers. My question is that since I had STDs for so long without knowing, could they have teamed havoc elsewhere in my body? Could I have a UTI with no pain? What is happening to my body?!!
I scheduled an appointment AGAIN with my doctor to try to figure this out. Is there anything you recommend I tell her to look for? I am beyond stressed out about this and so uncomfortable. I just want my regular sex life and the little amount of confidence I did have.
I feel like I’m going crazy because I KNOW something is wrong and they can’t find anything. Or they aren’t looking in the right place but I don’t know where to tell them to look. Kinda why I’m not a doctor. Please help me.

Yesterday I got the symptoms of a UTI after having sex two days before. The only symptom I really got was needing to pee every 30 mins and a bit of pain and burning while peeing.
I immediately got cranberry pills, women's probiotics/prebiotics, and d-mannose. I also drank a lot of water. While peeing later in the day, I noticed gray mucas and flakes coming out with my pee, I researched and found that could be my bladder flushing out it's lining, and hopefully all the infection with it.
Today I have been fine, no excessive peeing or pain. I'm still going to take the pills I bought. Also, my pee is now running normal, no flakes or mucas, and there was never an abnormal smell. I do feel like I'm getting a bit of a head cold, but that seems unrelated. I don't have a fever or chills.
Does it seem like I'm out of the woods? I'm going to take an at home UTI test tomorrow, but I hear those aren't super accurate. I don't have health insurance and in general I try to avoid antibiotics unless necessary.
UPDATE: Woke up the next day after writing this with some pain and excessive peeing again. I figure I just reduced the infection for a while but it's come back, so to knock it out I ordered antibiotics. I'm bummed out, but I just want this gone and will use preventative care (d-mannose) so this hopefully doesn't happen again.

I've (32F - 140ish lb - 5'7") been in chronic pain for my whole life. I've been diagnosed with fibromyalgia, CFS, bipolar 2, adhd, scoliosis, cankor sores, and something about sores in the abdomen (sorry poor word recall). Occasional ovarian cyst ruptures. I hsve had one child, pregnancy was fine but developed HELLP at 38 weeks and had to be induced. I wear glasses, but my eyes are healthy (I get them checked regularly). Currently I'm on:

1. I have a hormonal IUD
2. Duluxotine 90mg
3. Vyvanse 50mg
4. Pregabalin 150mg 2x/day
5. Lamotrigine 200mg 2x/day
6. Zoplicone 5mg
7. Magnesium 500mg
8. Women's multivitamin
9. Lorezepam 1mg (when needed)
10. Rizatriptan 10mg (when needed)

I feel like I'm just collecting diagnoses at this point. It's the Canadian medical system, and so it's like every doctor is disjointed from the other and it takes years to get specialists etc. I've moved a lot, so I usually had long distance family Dr's, but before I was like 20 or so I had no family doctor. So it was all walk in clinics. Then because I had family doctors that lived far from me (both were because I had moved away), I also had to use walk in doctors. And hospitals unfortunately.
I've suffered from really bad back pain (at first I was treated like I was after drugs, then was told it was muscle spasms, until finally got my scoliosis diagnosis). It's not bad enough for surgery I guess and they said it shouldn't cause problems, but it does. I also have fused vertebrae near the bottom of my spine? (Naturally). Like just two. It's been a long time since I was told this, sorry.
Over the years I've had:

1. migraines,
2. a pain in my ribcage/back area on the left side that feels like someone just put their fist there and left it there (it comes and goes),
3. UTIs,
4. severe fatigue (it's so life ruining)
5. overall body pain,
6. swelling of joints and joint pain,
7. nausea
8. gastro pains (I can't have gluten [only started after i had my kid at 23, but got much worse - im not celiac though, i had the scope], but almost everything I eat makes me feel sick, and now I have anxious reactions about food because.. yeah, I get really bloated and uncomfortable and so forth, even when its healthy)
9. depression (clearly),
10. rage, 11.panic attacks,
11. abdominal pain (unrelated to the food issue) so I've been in the hospital a bunch of times because they thought I had appendicitis or something (one time my appendix was like on the cusp of being considered to be removed I believe - but usually they were ovarian cysts that have ruptured),
12. Really cold fingers and toes
13. Feet will sometimes look purple. Ankles have been quite swollen as of late.
14. My hands can get kinda purpley looking
15. Sometimes half my face goes hot and the other doesnt? But more noticeably I'll have one ear go bright red and the other stays the same
16. I almost never have fevers. It would be super impressive to break 100.
17. Swollen lymph nodes.
18. very bad memory, but very good long term memory
19. Absolutely horrible and embarassing word recall issues. I'm not a dumb gal, I am great at writing and such, but you would never know when I speak, it's so bad.
20. Pre-canerous ovarian cells, got them removed with LOOP I think it's called - both follow ups after were clear
21. Shakey hands
22. Brain fog

And then lately I've been struggling with: 1. Light headed 2. Double vision sometimes 3. Impressively, even worse fatigue 4. Short of breath - I think that's related to COVID I had last month. I've gotten it twice and both times it kicked my ass, especially breathing wise 5. But the one that's been bothering me the most is the JERKING. At night it's the worst apparently, ill thrash and stuff... but it's gotten a lot worse lately. And then I would randomly get like a random leg jerk or something now and then, no big deal.
But within the last half month, it's gotten way progressively noticeable. I can sometimes feel it about to come on so I will sit down and yeah, it'll just happen. It happens to every part of my body, it's not picky. Fingers, legs, arms, whole body jerks. I've had a couple of auditory jerks (if that makes sense?) But only probably like three times total, and I think it'd usually when I have a full body spasm.
It's gotten to the point where my partner gets nervous about me driving long distances because he worries about me pressing too hard on the pedal or just, idk, moving the wrong way or something.
I went to the Dr recently and he ordered bloodwork. It was admittedly probably the best bloodwork I've ever had. I'm not anemic or have any deficiencies. The only thing that was off on my bloodwork was eGFR (88L) but was told that it was like on the cusp. Oh, and my specific gravity urine thing was <=1.005L. Went back to the walk in clinic and saw a different Dr. He said it was all fine and I was "probably a little dehydrated" (I drink more than recommended amount of water usually) and then did the knee slap like "alright see ya" and I was just stunned and was just kind of... ????
So I ask why I would be having these twitches and he paused and then asked if I have ever heard of tourettes and then said he was going to refer me to someone to discuss that possibility. I asked if adult onset tourettes is a thing and he said it was "rare, but can happen." I feel like that wouldn't be a first choice.. like if you hear hooves, think horses, not zebras kind of thing. Like he went straight to zebra.
I felt so defeated when I left. I hate being on 11 pills a day. I hate how tired I always am. I hate feeling like my life is passing me by or like I'm failing my daughter. I've had so many jobs because I can't keep a hold on them... either I get too depressed or get fired or just job hop for funsies, I don't know. I just feel like at this point I'm either misdiagnosed or something is missing I'm just... I don't feel like something is right. I know everyone thinks I'm a frequent flyer and my nurse sister straight up calls me a hypochondriac.
I'm just frustrated. I don't think I have "adult onset tourettes" but I feel like this isn't getting better and it's just getting worse. I'm not sure if any of my diagnoses are actually like... not actually separate, if that makes sense?
I don't know. Does anyone have any ideas or anything? Anything maybe I can suggest when I see my family dr next month? I just don't know what to do anymore about my health. I just know I'm in pain and I just want to live a more normal life.
Thanks for reading my novel.

I went to have yearly physical done, and suspected I have UTI/KI as I’d been feeling a little discomfort at the time, I let them know. Preliminary tests all came back abnormal with a list of other things abnormal as well. They let me know they’d do a culture and get back to me. Weekend goes by I don’t call till Wednesday to see if they have results they just say they need to speak to my provider. Friday rolls around call in the afternoon before close and only the nights and weekend clinic is there. Need to speak to my provider to get my results, Tuesday of this week comes around I’m in a full blow endo flair and know at this point I have a UTI. Need to wait on ruling results from my provider.
TODAY, I finally speak to someone who will listen to me for more than a few minutes, mention it’s been 2 weeks. I’m in extreme pelvic pain, I’m flaring, everything is making me nauseous and I’m having a fever.
Test? What test? What are you talking about? We didn’t send for a test! The lab didn’t run that culture test you’re calling about. We aren’t waiting on anyone.
You guys probably can’t use a 2 week old sample.
Yes, You’d be correct it would have been bad even after 5 days.
So, what do we do….
WELL, I need to call management and talk the provider.
Why can’t this just be done, why do I have to consistently be on top of people to get the simplest tests to completed. Why do I have to constantly advocate for myself, I feel like I was treated better when I was healthy. I’m tired and everything hurts.

RE: 21F daughter (who has given me permission to post this)
only notable medical history: 15ish years ago she had tick borne relapsing fever (from soft ticks) and after 8 fever episodes was treated w/doxycycline and had a J-Herx reaction. I remember at the time the discussion of how these spirochetes are not the same, but similar to those that cause Lyme, and how they can also stay in the brain for decades. I will fully admit that I was a bit panicked and mentioned this during this ED visit and although everyone thought I was insane, they spoke w/ID who agreed to run a smear even if it is very rare (I mean, it was super rare when she had it 15 years ago too!)
Since then, only Dx has been acne and she took Accutane (last dose more than 5 years ago). She is a professional athlete. She drinks alcohol rarely and uses pot on occasion. Not sexually active (identifies Ace/Aro)
Current issue: She has had a fever ranging from 100-103 since Sunday. Originally with no other symptoms. No headache, no respiratory issues, no tummy issues, no pain anywhere. Just fever and some occasional chills related to the fever. Tylenol and Advil worked to keep it from going higher, but it still stayed right around 99-100, not less than 99.5 on the thermometer at home. Tuesday she had a virtual urgent care visit where they said she needed to be seen at in-person urgent care the next day.
Tuesday night she vomited 3x. Wednesday morning she called a nurse line before having me take her to urgent care just to be sure that was still the right place to go (last thing anyone wants is to go to UC just to be sent to ED). They said she just needed UC, but soon (within 4 hrs of the call). So we went to an UC. Then they sent us to the ED (ha!) because they wanted her someplace where labs come back faster.
At the ED she was given zofran and was able to start drinking again (yay!). A nasal swab came back neg for like 10 respiratory viruses. Her blood work came back w/elevated WBC, high neutrophils and high monocytes. They also ran her urine and it came back w/high white blood cells, some bacteria, and leukocyte esterase, neg for nitrite, and some protein and ketones (I assume those last 2 were because she was dehydrated). They told us this is a clear UTI that has gone /is going to her kidneys, gave her an Rx for cefpodoxime and zofran, instructed to continue the Tylenol and Advil and sent us home.
The thing is, she has had NO UTI symptoms. Her only symptoms were the fever and then the vomiting Tuesday night. Today, she is still running right around 100F. She asked the nurse during discharge how she could have recognized this was a UTI because it sure would be nice to NOT have anything get out of hand like this again if that is what is going on. The nurse replied something about how they are still waiting on the smear and urine culture and this might not be a UTI or kidney infection after all.
SO! Tomorrow being Friday, would it make sense to seek a 2nd opinion right away, or just continue wait for the labs /cultures and go the PCP follow up next week?
With the Zofran, she is eating and drinking well today, and she is tolerating the antibiotic fine. Still using Tylenol and Advil every 4-6 hours.

32M, 5'8", 245lbs, White.
Starting on Monday out of nowhere, I had a strong urge to pee 24/7. Even after going to pee, seconds later I would feel the exact same way I felt before I peed, but nothing would come out of course cause I just peed. I would wait about 30 minutes, and then pee again > rinse and repeat. No pain anywhere.
With it continuing the next day, I went to Urgent Care in the morning. Urine test came back from the doctor without any leukocytes or nitrate in it, but there was trace amounts of blood. I also had a 99.1 degree fever. The doctor prescribed me Ciprofloxacin 500mg and told me to take it twice a day for 7 days (for a total of 14 doses). She said that she believes it to be a UTI but I came in and caught it early enough, and that the Cipro would fix it up. On the note it also says that if I don't see an improvement within 3 days, to come back.
I'm coming up on my 6th dose of Cipro in a couple hours and not seeing really any improvement. The urge to pee quite isn't as strong as it was on Monday/Tuesday morning but it's still very much there and very close to how it felt when this started, I'm not really experiencing any fever anymore (though I am taking 4-6 Tylenol every 24 hours just in case), but I am experiencing intermittent mild pain in the front of my pelvis.
Any opinions on where to go from here? If I don't notice any difference tomorrow morning, should I go back for more tests?

* Species: Dog * Age:6 years * Sex/Neuter status: Spayed Female * Breed:Rat Terrier * Body weight:12#
* History: For the past few months we have been dealing with what we thought was an UTI. She has never had any illnesses or UTI's in the past. Vet gave her 2 rounds of antibiotics. Each round seemed to have good results but came back
* Clinical signs: * Duration: February - prescribed Floxacillin ?? UTI Symptoms went away. Late March, bacteria found in Urine Sample and was given Cephalexan Sp?? UTI seemed to go away. Mid May - Now, Been oozing puss from Vagina and a rancid smell. Male brother keeps licking and inspecting and seems concerned. This is new for him. Female is in good spirits , still trying to kill everything in site. Was lathargic for a few days but no fever.
* Your general location: * Central Ohio
Links to any test results, X-rays, vet reports etc. that you have: Went to new Vet for 2nd opinion. I didnt feel other vet staff at vet I have had for 20 years was being very attentive or even cared really. Like they were too busy. Anyways New vet ran urinalysis, pulled urine from inside for a separate urinalysis and sent to lab. Nothing. No bacteria, no white or red blood cells,nothing odd is showing up. He now wants xrays and/or a scope.

for the past 4 days I have been experiencing what I believe to be a UTI.
My symptoms are as follows:
Day 1/2: Burning after expelling urine, and constant urge to pee, feeling like my meatus (urethra hole) is glued shut and the urine breaks the seal.
Day 3-5: Pressure on my bladder, constantly tired after getting full 8 hours of sleep, and a tingling sensation that has taken over the urge to pee.
It doesn’t burn when i urinate, only before and after expelling urine. I don’t have any pus or discharge, n leakage, no fever, as for other symptoms that I don’t have; i don’t remember.
I have an appointment with my physician tomorrow but I wanted to get the court of public opinion before then.
Thanks in advance.
edit: I am a male, I don’t know if that changes anything. I just know men get them a lot less than women do.
second edit: back and side pain has recently started, should I be worried that it’s a kidney infection?

So sorry in advance for the long post. I just need to get this out.
TW for talk of suicide and depression
If you’re my partner and you see this - please don’t read this. I promise you are a wonderful support but I know my venting hurts you because you want to fix things and you can’t.
Edit to add some probably important context: I was misdiagnosed with BPD when I was 19 after a traumatic experience. And while every mental health professional I saw after told me it was wrong and was actually PTSD and CPTSD, it was not actually “officially” diagnosed on record until the hospitalization, at the start of my ADHD assessment. But, the psychiatrist that ordered the assessment is the first doctor to ever bring up ADHD or neurodivergence. Just to demonstrate how many people missed these things over the years, how many “second opinions” I’ve had to get. Not in any way dissimilar to my experience seeking diagnosis for my physical health issues.
I feel such immense grief and rage. I don’t even know where to begin, so I guess I’ll start at the start of this “health journey”. When I was 16, I became incredibly ill. I was vomiting all the time, exhausted to the point of sleeping 14 hours a day from the time I got home from school til just before I had to leave for the bus. I don’t remember much from this time period because of the brain fog and genuinely don’t know how I passed my classes. I was gaining a lot of weight, too, and hadn’t had a menstrual cycle in 6 months, and was so so depressed. My mom ignored the health issues because she thought I was just being dramatic (there is much deeper context with the issues there but it comes down to I am now NC as an adult), but when I said I needed to see a doctor for my depression she did. My then-family doctor was wonderful and listened, and to be safe decided to run some blood tests though I hadn’t described to her my physical symptoms aside from the oversleeping I attributed to depression. I was diagnosed with autoimmune thyroid disease, or Hashimoto’s. I started medication and my symptoms improved though some things, like the weight gain, never reversed.
I ended up going into remission for a time and no longer needed the HRT. But when I was around 20/21, I started having health problems again. I started experiencing numbness and tingling in both my hands and wrists, which I thought was from repetitive movement working as a cashier, though the symptoms only appeared about 6 months into that job and in hindsight it probably isn’t normal to develop that quickly that way. But I ignored it because I didn’t think it was serious as it was “just” carpal tunnel, and began wearing wrist splints regularly. I did not ask my doctor, as during this time I was having difficulties hearing at work and the hearing test I requested came back normal and I was dismissed and I didn’t want to reinforce the belief I have unreasonable worries about non-issues - later, I learned this was actually an auditory processing issue, which was never brought up by any medical professional I saw as a possible cause.
In 2020, when I was 24, I began experiencing the same autoimmune symptoms I had when I was first sick at the age of 16. I fell asleep at work which had never happened before and it worried me. I went to the ER on recommendation of Telehealth, where the doctor didn’t believe my symptoms and ordered just an EKG that came back normal. He told me I didn’t fall asleep/pass out while actively working, and simply “took a nap” and it’s normal. Follow-up with my GP after was unsuccessful, until I pushed for thyroid testing. I was found to no longer be in remission and put back on HRT, and once again my symptoms improved but did not resolve.
At the same time, and for the year or so that followed, I experienced extreme digestive health issues. I had visible yellowing of the skin, very dark under eye circles, issues with itchy and red patches of skin, and was passing undigested food and eventually became obviously malnourished as a result. I had what seemed to be a kidney stone that passed before I could get in for the ultrasound so it couldn’t be confirmed. I alternated between constipation and diarrhea, and always felt pain. My GP told me it was “probably just IBS” and had me do an elimination diet (twice) that did not work. He dismissed my concerns telling me I’m fine, until I sent a novel of my symptoms and saying I know he thinks I’m a hypochondriac but I am unwell and need to be looked at. The liver tests I pushed for came back normal. He offered to test me for Celiac but advised against it due to the cost of the blood test, so I didn’t. He did, however, refer me for a colonoscopy but the pandemic made this severely delayed. During the wait, I found some relief of my symptoms by cutting out gluten and dairy from my diet, and the yellowing of my skin and dark circles went away as did, eventually, the skin patches my doctor insisted was “just eczema”. I was off of gluten for a full year when I had my colonoscopy in fall 2022, the results came back normal and that doctor reiterated that it is “probably just IBS”. I learned later that I should have been consuming gluten for at least 3 months prior in order for it to be an effective test for Celiac, and my doctor failed to tell me this.
In early 2022, the joint pain had become frequent enough and painful enough in the knuckles where my hands meet my fingers, and in my wrists with definite carpal tunnel in both wrists as well, that I went to my GP. However, he is busy, and it’s often easier to book an appt with his assistant who is able to assess many conditions. At this time I also believed he would be more likely to listen and take me seriously. I went to the appt, described the nerve and joint pain issues. I had an exam where he confirmed bilateral carpal tunnel and arthritis in my hands. He said no testing was needed. I pushed back, stating that I am only 25 and there is no normal reason for the inflammation, and I have Hashimoto’s which has very high comorbidity with RA and I was concerned due to the fact the inflammation was symmetrical. I was dismissed, told the only test that could be done is an x-ray which was pointless as all it would do is confirm the presence of arthritis which he already confirmed with the exam. He told me to keep wearing wrist splints, keep taking ibuprofen and acetaminophen for the inflammation and pain, told me taking them was risk-free, and told me to come back when the redness and swelling of my joints got worse. I didn’t feel comfortable going to my GP for fear of being marked further as a problem patient, and assumed he would tell me the same information his assistant had based on my experiences with him and the fact his assistant is his staff that sees many of his patients.
My depression worsened during these years, coming to a head in early 2023 when I attempted. I did not succeed due to a mistake I made, fortunately. I was hospitalized for a time, where I was finally officially diagnosed with PTSD and CPTSD. And for the first time, a doctor asked if I suspected I’m neurodivergent. I was assessed and diagnosed with ADHD, which explained a significant amount of non-health related issues, though it also explained some like my KP and teenage cystic acne as they are common comorbidities. It’s important to note that I have a younger sibling that was diagnosed with ADHD as a child, and I was viewed as the “normal” child and any issues were dismissed as my sibling had higher support needs and was the priority and I was always viewed as simply being overdramatic and wanting attention. I was told the cause of my depression was trauma, including childhood trauma, as well as 26 years of undiagnosed and unmanaged ADHD I had been forced to deal with on my own. I was told I had done the best I could but they were not surprised it reached the point it did, as sadly the mental health system in Ontario is not what it should be and often people do not receive help until they’re long past the point of needing it. And for many, it’s too late. I am fortunate that it wasn’t too late for me, I’m fortunate I survived.
Prior to my stay at the hospital, I had gotten to the point of needing to take ibuprofen daily for the inflammation. When disclosing my medical history and medications, I was asked if I had received a formal diagnosis for my arthritis and what tests had been performed. I told them I had been assessed for and diagnosed with arthritis, but that no tests were performed. It was clear they did not believe me, and I wasn’t provided ibuprofen during my stay. They did not follow-up with my GP regarding the arthritis either, though to be fair I was in the psych ward and non urgent physical ailments were not their concern.
Now we get to 2024. It’s a jump, but I don’t feel anything between is significant. I do not go a day without pain, and havent for 3 months. The pain has now reached every joint in my body, I feel fatigued and foggy, I feel horrible all the time and have had 3 UTIs since February. The last one reached my kidneys rapidly, and coincided with the worst full-body arthritis flare of my life - this was 2 weeks ago. I woke up every 2 hours sobbing in agony because my body and knees in particular were so warm and painful and stiff. For a full day I was unable to get out of bed and ran a low grade fever with chills I assumed were due to the infection but now I’m not so sure. Since then, I have been in constant pain though not as severe as then. My knee and hip pain keep me up at night, and/or wake me up often due to the pain and stiffness. Regardless of my larger joints, my hands and wrists always hurt now. I feel ill in the way I did with my Hashimoto’s. Ibuprofen and acetaminophen aren’t doing anything anymore, and I rely on cannabis for relief which isn’t always suitable. My partner got me a topical ointment that has been incredibly but isn’t affordable enough to be sustainable with how much of it I need in one go, and I need to use it sparingly when I absolutely need it. Despite not feeling that my joints are red and swollen enough to go back (because I see them every day and they look normal because they always look like that), I stuck with my plan to see my GP. I first tried to book in February, but only saw him this week.
I described all the physical symptoms asking about my lower leg/ankle swelling and to have my thyroid levels checked for potential med increase need, and I described my joint issues. He assessed my hands, and told me my knuckles are red and swollen. I’ve realized after in research and really looking at my hands that the top knuckle on one of my fingers has a lump on it, albeit a very small one. He immediately said he is testing me for RA with blood work, and in my research I’ve confirmed the req form is thorough, and also includes urinalysis and an EKG. However he told me for the inflammation marker test to go for it when it’s at its worst, and with my work schedule I can’t, and I’ve waited so long for this I refuse. I’m going for it as soon as I can. I’ve waited so long to be listened to and believed. And as many as half of people with RA test negative on the blood tests so I’ll end up needing imaging tests anyway either way and I want this process to be as fast as possible. Even if it’s not RA, I need them to figure out what’s wrong with me and give me the appropriate treatment. He was alarmed and visibly displeased to hear that I had seen his assistant 2 years ago for an assessment - though I forgot to mention to him that that appointment was also for bilateral carpal tunnel (which I now know is an early sign of RA due to compression of nerves). It wasn’t explicitly stated but it was clear that I should have been tested 2 years ago. And wasn’t.
I’m tired of being in pain. I’m tired of being sick. I’m just plain tired. I feel so failed by the system that’s supposed to care for us. I’m so frustrated with people insisting that doctors are all-knowing and infallible and if they tell you you’re fine, you are. I’ve been fighting for years to be heard and have only been left to feel like I’m losing my mind and imagining these problems and am just overdramatic after all. I feel vindicated that I was right all along, but it’s too little too late. RA is a progressive disease, and the earlier it’s diagnosed and aggressively treated the better. I’ve had at minimum 2 years of progression that cannot be undone. The damage can’t be reversed. I am angry and devastated. The grief is so f*king immense.
I’m 27. I don’t know what my future looks like anymore and that scares me. I’m worried about the damage this disease has done to my internal organs. I worry having kids is no longer an option for me, due to my health. I worry that my physical capabilities will continue to deteriorate. I am so angry that I’ve been written off as an anxious hypochondriac when I knew something was wrong.
Diagnosis of an autoimmune disease or any illness really, apparently doesn’t negate medical misogyny and ageism. Advocating for yourself doesn’t go anywhere when you’ve been labelled crazy and a problem patient. The most it’s gotten me is my doctor “offering” to send my files if I wanted to switch to a different GP, which I can’t with the GP shortage. I have to live with the lifelong consequences of doctors failing me. And it f*king sucks.

Hi guys, before I found out I have Lyme, I struggled with muscle weakness and muscle fasciculations (I still do but now I know why) so naturally I thought about all the problems related to that and tried all kinds of supplements. On one post on BFS reddit someone mentioned Copper supplement fixed his muscle fasciculations, so I was convinced that would fix mine because before the fasciculations stared I had a pretty bad viral infection so I took long for a long time Zinc (long story short, lasted 2 months and had pneumonia from it and that is when neuro Lyme symptoms started) Zinc depletes Copper in the body. So since then, My right calf and knee felt weak and had lots of fasciculations and problems.
So I rushed to the pharmacy and bought an over the counter Copper supplement, but not just any copper supplement, On ingredients says:

Brewer's yeast (Saccharomyces cerevisiae), extract with min. 1000 ppm Copper*: 400mg; Brewer's yeast (Saccharomyces cerevisiae), dried and deactivated, powder: 100 mg; gelatin capsule; *the recommended daily dose provides 0.4-0.8 mg of Copper, representing 40-80% VNR (Nutritional Reference Values ​​cf. Regulation 1169/2011). 

I took one afternoon and by evening I was starting to feel exactly like I was starting to have a bad flu. I was in it so bad my heart was pounding at the slightest move I made , then the fever came. I felt worse than when I had covid the first time.
The weird thing is that that night I slept so good, and when I waked up my knee and calf felt way better. It was a paradox for me. Then when I went to the bathroom to pee my urine was red.
I went into panic mode and went to the ER where they did some blood tests and found major inflammation somewhere in the body, but the doctor did not know where because I was not hurting anywhere except a small discomfort in gut, in the Ileum area (is the lower part of the small intestine).
Next they did a CT scan, and they found nothing so the ER doctor thought of UTI infection because of the urine color and discomfort zone. So the next days I did full urine test for bacterial infection, but none were found.
What I believe not that happened is that that copper killed lots of Lyme and lots of bad bacteria and I had the most insane herx reaction ever. The urine was read because copper is naturally reddish in color. It was not and UTI because the fever did not continue and urine was normal after that morning, so I know it was from the copper I took.
I have found articles that copper not only inhibits but is the most potent alloy against bacteria and viruses.
quote "“Copper is universally toxic to bacteria,” said Johnson, assistant professor at the University of Arizona's department of immunobiology. “Our body uses copper to kill pathogens.” For centuries, people have harnessed copper's antimicrobial properties. They stored food in copper pots."
read ->Copper’s Antimicrobial Properties Might Treat Bacterial Diseases NIH Record
Now I know what happened but I am scared to take it because I reacted so bad, maybe will try it later if everything else fails who knows.
What are your thoughts on this?