Modafinil

Hello all. The title is not clickbait. Just wanted to provide a post now that I am nearing the 2 year mark from infection. I have posted on here previously but deleted it as I wanted to just give this one post some light. For context, I’m in my early/now mid 20s, was in the middle of grad school, was an athlete/active/outgoing. My timeline is below (If you’d like to just skip to how I’m doing now, just keep scrolling down until the April 2023-Present). I would also like to say beforehand that the vast majority recover significantly faster than this. This is not the norm, and please don’t panic if you just got sick. You’ll likely recover in weeks.
August 2022: Initial infection. Swollen tonsils, rash, fever, etc, labs eventually come back positive for mono.
September 2022: Acute infection symptoms still prevailing, somewhat improved late in the month. Other notable occurrences: ER visit from tonsils obstructing my breathing.
October 2022: Felt like I got hit by a bus. Insane flu like symptoms, fatigue, brainfog, PEM, muscle aches, nerve pain, dizziness, dissociation, feeling of body not able to remember to breathe (very weird version of shortness of breath), horrible GI/IBS like issues, light sensitivity, noise sensitivity, genuine short term memory loss, motion sickness, heart palpitations/PVCs, temperature sensitivities, began losing weight/muscle from inactivity
November 2022 - June 2023: Virtually zero progress. Symptoms I listed above would cycle over and over randomly. I became obsessed with trying to feel better, track symptoms/what treatments worked or didn’t, and every single movement I did every day I thought about in terms of feeling worse or better. Doom-scrolled most of the day. Horrible on the mental health. I thought I had ME/CFS and that I’d have a slow and painful life, one that I’d rather not live if I have to be honest. Was barely able to keep up with all of the exams/labs/assessments/classes that came with grad school. I almost had to drop out. No parties. No sports. No hanging out. Couldn’t drive. I missed most of my classes. I felt like I had the flu every single day, all day. In any moment where I felt I could be doing better or I found something that might be helping, it didn’t. Went right back to flu like symptoms. Months 3-11 were truly hell. At this point, I lost 40 pounds of good muscle/fat and all my athletic abilities were gone. I felt so left out, alone, isolated, and depressed.
June 2023-September 2023: I am struggling to keep up at my internships. The hot weather made my brainfog worse, and I still had significant GI issues, light sensitivity, and noise sensitivity. On a positive note, my overall cycling of symptoms began to become less and less intense as it neared September.
October 2023: I will never forget this month. As I was still struggling at new internships, I vividly remember a string of days that I felt were better than usual. Usually after this happens, it goes right back to the same old stuff. But this time, it didn’t. Everyday became a “not bad” day. This was progress that I never ever thought would be possible.
November 2023-March 2024: Very slowly, this string of “not bad” days kept turning into some “good” days. I still had some ups and downs but, by winter time, I genuinely was able to feel like a functional human being again. I was able to go to work, study, hang out, and drive again. My brainfog has improved. All of my symptoms above have improved. The only one that really did not was noise sensitivity. Would I have occasional flares of awful GI problems? Yes, but so does every 20 something year old in this day and age from all the processed stuff we’ve been consuming. Occasional pain or headaches? Yes, but very normal amounts, just like any other normal person.
Late March/April 2024-Present: My brainfog, fatigue, and other symptoms, are afterthoughts. I don’t think about my symptoms most of the time anymore, because I don’t have them. My noise sensitivity improved so drastically over the past month that I’m now able to listen to music consistently for first time since getting sick. Having caffeine feels normal again somehow. I’m able to have some alcohol again. I can drive again. I went to bars and clubs with friends for the first time again. I went to weddings again. I went to trips with my family, friends, and significant other again. I graduated college. No more PEM crashes. Despite all odds, despite these symptoms, despite it being nearly 2 years, I have recovered. The only remaining symptoms of occasional muscle aches/heart skips/GI problems I really think are just from being so inactive for so long for the first time in my athletic life, and my autonomic nervous system/vagus nerve still being a little fried (but about 90+% back to normal). All those nights of crying, suffering, having horrible brainfog to the point of thinking I’m losing my mind, the nerve pain, heart palpitations, feeling so alone and wanting to not live life anymore, were gone. I don’t care what everything says here, and online. You can recover. I did in 2 years. The people who have also done this really must have decided to never update their progress on here, or anywhere. I don’t blame them in a way, this was by far the worst and darkest time in my life. But I can live again. I feel free.
I love you all and really hope you realize no matter how horrible you’re feeling right now, you can recover. There is no magic bullet right now that fixed it for me either. I’m sorry. The amount of tests I did at doctors offices, supplements I’ve tried, prescriptions I’ve tried, all either did not help or were incredibly inconsistent. Time was truly what healed me. Not over weeks, and not even over some months. It was over many many months. My heart breaks for all of you suffering and I will not forget everyone that’s still suffering. I hate how I can’t give everyone here exactly what I desperately used to scroll for; a treatment. But I can give you my assurance. I believe in you all, and I can’t wait for when I hear about some of your recoveries. Thanks for the read. Feel free to message with anything.

• Ev ____________________

Some meds I tried over the course of the last 2 years that either did not work, or were mid at best and had side effects (this is simply documenting what I tried and I DO NOT endorse/recommend any of these. Please ALWAYS talk to your doctor or pharmacist before trying any medication): B complex, Vitamin C, Vitamin D, zinc, ginger, 2nd gen antihistamines (like Claritin, Zyrtec, Xyzal), melatonin, Metamucil, ondansetron, modafinil, caffeine, CoQ10, ICS/ICS+LABAs (Pulmicort and Breo specifically), albuterol, monolaurin, bupropion, glycine. There were a bunch of others (like ibuprofen, Tylenol, viscous lidocaine) that I used in the beginning to help the initial infection, and a bunch of others that I did not try long enough to put on here. There were also a bunch of events and symptoms I did not mention above for simplicity sake. Please talk with your provider or pharmacist with any medical questions or if you think you may be having any other serious health issues. Thank you all again for the read, I will update you all once I get back into working out again in the coming weeks!

Hello there.
I want you to tell my story: It started somewhere 2-5 years ago (I have a very bad time perception). At first it was harmless, I woke up at night or in the morning and while my head was empty, intrusive thoughts about death found my head. It was horrible and made me realize "You will die someday" for about 1-5 minutes. I had to get out of my room and sometimes even talk with somebody to calm myself down. It was harmless, because what followed after... I cant even compare these two.
Sometime later a new kind of anxiety begin. At first, my lifestyle changed. Enormous. I started partying with drugs, drinking coffee, taking Modafinil (for my ADHD), vaping and after some months I started getting very very jittery. It made me nervous to the point that I couldn't control my breath anymore. I didn't think much about it and continued that lifestyle.
Last year, I took LSD for the first time and I was in a very good setting with very good friends. At first, it was very funny and I was laughing a lot, but as soon as it kicked in, everything went to hell. I was stuck in a loop, I tried constantly feeling my pulse and I couldn't feel it. I wanted to just lay down and sleep it off, but there were another 6 hours ahead of me. It was the biggest mistake of my life. Even writing about it, makes me a little anxious. After I woke up, I had some hours to realize that I was back to reality.
I probably did the worst thing I could do and drove home. I had 50 kilometers (30 miles) in front of me. I could drive without any problem for half the way home. But then my heart felt funny and I had to park and I thought I was dying. Everytime I went back into the car, the feeling came back. I parked again and waited for 3 hours. I didn't went away and I called my parents and they picked me up. The days after I had this feeling for a long time. Difficulty breathing, checking my heartbeat all the time and having anxiety.
3 months later I partied again and I had anxiety even while on drugs. I could barely sleep at night and exactly 3 days after that I baked some cookies at night and the worst panic attack of my life began. I didn't know that it was a panic attack at that time and it hit me out of nowhere. I had an extremely high pulse (160+) and I called an ambulance. They did an ECG and told me everything was alright. They took me to the hospital and gave me some xanax (I think). I was never as relaxed as that in my life, but at the same time the anxiety was still there.
This went on for a year. I stopped partying, I stopped drinking, I stopped drugs, I stopped going to the gym and unfortunately I couldn't stop vaping. I was most of the time at home office and I think me being indoors a lot was a bad thing. I didn't even consider it at that time. I took different kind of anti depression pills and checked in weekly with my doctor. None of those things helped. In the winter I stayed a lot at home and worked on personal projects at my PC or just played games.
About a month ago I dropped the anti depression pills and went out much more. I didn't notice it at first, but my anxiety was going down. Summer was coming and last week I tried doing a light workout. A little anxiety hit me in between and at the end, but two days after that there were no problems. Even after the workout. I was so happy and I think going out more, helped me a lot.
I understand that some people live daily with it and it's hell. It is worse than hell and to you I have the following to say: Don't give up, because for me that was the best solution with anxiety. Nothing helped and life sucked. If you try hard enough, maybe it wont help, but try harder. Go beyond your comfort zone and kick that SOAB in the ass. Behind that anxiety is a beautiful human and you matter. A life worth living awaits you and you have to keep trying. I believe in you and you should, too :)

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Hi there ! I'm coming to ask for advices, if there would be any. I've been suffering from a burnout with moderate depression since months. Due to exhaustion, instabily and emotional surges. I've been on 4 different types of ssri before, none really worked for my anxiety, maybe a little bit for mood. So since a few weeks, my doc upgraded me on effexor (venlaxafine), an snri. This stuff has improved my mood and reduced my anxiety more than all the ssri I've tried. But I still have a problem : very low motivation, energy and almost constant lethargy. Kratom has been a godsend for keeping me off alcohol and drugs, been using daily since 2,5 years. Never had a single relapse since then. Took a good care of my anxiety and mood also. I intend to quit daily use as soon as ill be back to a somewhat baseline of mental health. As I'm very interested in nootropics and cognitive enhancers, studying them before ordering and trying a few, phenylpiracetam is now the God send. It's the only thing that gets me rid of all depression and low energy symptoms while making me productive, because I can't lie in bed all day, got things to do ! But it's not intended for daily use as tolerance increases rapidly. So I think that my problem is dopamine related, phenylpiracetam being a dopamine reuptake inhibitor. So I was about to ask my doc for a script of wellbutrin (bupropion) which also acts as a dopamine reuptake inhibitor. Unfortunately I read yesterday that it's a bad idea to mix this one with kratom, many people report seizures. Modafinil has the same consequences along kratom. So maybe any of you might have an idea of a med that could take care of dopamine? Thanks for reading me.

Hi there ! I'm coming to ask for advices, if there would be any. I've been suffering from a burnout with moderate depression since months. Due to exhaustion, instabily and emotional surges. I've been on 4 different types of ssri before, none really worked for my anxiety, maybe a little bit for mood. So since a few weeks, my doc upgraded me on effexor (venlaxafine), an snri. This stuff has improved my mood and reduced my anxiety more than all the ssri I've tried. But I still have a problem : very low motivation, energy and almost constant lethargy. Kratom has been a godsend for keeping me off alcohol and drugs, been using daily since 2,5 years. Never had a single relapse since then. Took a good care of my anxiety and mood also. I intend to quit daily use as soon as ill be back to a somewhat baseline of mental health. As I'm very interested in nootropics and cognitive enhancers, studying them before ordering and trying a few, phenylpiracetam is now the God send. It's the only thing that gets me rid of all depression and low energy symptoms while making me productive, because I can't lie in bed all day, got things to do ! But it's not intended for daily use as tolerance increases rapidly. So I think that my problem is dopamine related, phenylpiracetam being a dopamine reuptake inhibitor. So I was about to ask my doc for a script of wellbutrin (bupropion) which also acts as a dopamine reuptake inhibitor. Unfortunately I read yesterday that it's a bad idea to mix this one with kratom, many people report seizures. Modafinil has the same consequences along kratom. So maybe any of you might have an idea of a med that could take care of dopamine? Thanks for reading me.

Started lexapro in December 2022. Diagnosed with IH with long sleep in June 2023 after MSLT, at-home sleep test, blood tests, etc.
In the autumn/winter of 2022 (unfortunately exact timing for the symptoms is foggy) I began experiencing extreme fatigue. I was napping upwards of 4-5 times a day for usually 1-3 hours per nap, and able to sleep 14+ hours on weekend. After stressful events, I would need a nap. I even napped in public on occasion. If I didn’t nap, I’d get bad headaches and often get chills or experience severe brain fog.
I started pursuing an answer, which ultimately led to an MSLT. My doctor didn’t tell me to stop taking lexapro for the MSLT, so I’m anxious that maybe my diagnosis/fatigue is all just from the lexapro. I’m currently tapering off lexapro and can’t tell if I’m less tired or if the prescription just added for my IH (adderall) is just doing its job. I was on modafinil before to little effect.
Does anyone else have experiences with or like this? I don’t know if lexapro fatigue could be this severe. Should I pursue another MSLT?

I was recently diagnosed with N2 - which was a major shock but a relief (dad always just called me lazy). But this is my first time living alone and I am struggling to keep up daily tasks.
My apartment isn’t to the point where it’s gross but I have a hard time putting clothes away, sweeping, and doing daily tasks like that.
Does anyone have any advice or have personal routines/schedules that they utilize? I can’t keep living like this. On days off I’m literally sleeping all day and on work days I’m out almost immediately after getting home.
I am taking medicine. I just started Modafinil (200 mg once a day) but I don’t think it’s working.
*I’m new to Reddit so sorry if my format or anything is weird.

Have you tried both? Thank you very much!

Hello, I'm new here and I'm really happy to be able to share my experiences with others for the first time, thank you for that! I'm 19 and I was diagnosed with narcolepsy and I don't really know how to deal with it yet... I came up with the idea of going to a doctor because a year ago I started falling asleep a lot and was tired all day. I also had very bad nightmares and often woke up and couldn't move. These are the 2 things that scare me the most about narcolepsy. Does anyone have tips for me what could help me to accept I have this FOREVER now and on how to explain it to other people? Until now I only ever got the answer: “Oh, I could sleep all day too”. People just dont wanna believe me:( I also now have a medication called Modafinil, which really helps me. However, should I assume that I will need these tablets for the rest of my life? Because of this constant sleepiness you notice that people tend to see you as lazy, which has already led to some problems at work and when meeting new friends. Without this Narcolepsy Reddit I would have felt so alone.

Just got diagnosed with Idiopathic Hypersomnia a few weeks ago. It's been a struggle for the past few months, but even worse now with how much this has been affecting my mental health, job, and personal relationships. Definitely have some a lot of anxiety and some level of depression because of this whole situation.
What have been the smallest or biggest hacks you have for getting more energy every day?
Been on Modafinil for 2 weeks now, but failing to see it's effectiveness as I get tired at around noon-early afternoon and have been having headaches and nausea.

Just got diagnosed with IH a few weeks ago. It's been a struggle for the past few months, but even worse now with how much this has been affecting my mental health, job, and personal relationships. Definitely have some a lot of anxiety and some level of depression because of this whole situation.
What have been the smallest or biggest hacks you have for getting more energy every day?
Been on Modafinil for 2 weeks now, but failing to see it's effectiveness as I get tired at around noon-early afternoon and have been having headaches and nausea.

I am m/19. When I was 15 I went to my pediatrician because I was constantly tired and after school I just slept until the next day. I was diagnosed with thalassemia minor, but I was told that there was no treatment. Now at the age of 19, the same thing with my Doc. . But she said that I could read through the clinical picture, as I'm studying nursing and want to study medicine later. Despite sleeping 8 hours a night and sometimes even somr hours during the day, I am still tired. I just manage to finish my shift or my lessons and then I can't manage anything else that day. Three times a week I go swimming for two hours and then I'm totally exhausted and fall asleep straight away. I did a lot of reading and came across amphetamines (Ritalin, Aderall). They are supposed to be able to keep you awake and focus your concentration. However, as I find this too strong (I would try it if I had the chance), I looked for milder alternatives and came across the active ingredient modafinil. This is marketed in the USA under Provigil and here in Germany under Vigil. It is actually intended for narcolepsy, but there have been (a few) cases where thalassemia patients have been prescribed it and it has worked.
What do you think? How do you deal with the fatigue ?

Hello, I'm thinking of obtaining modafinil or armodafinil. I haven't tried either before, but I'd like to see if they assist with some problems. I've read and understood the distinction between the two, and people have varied perspectives on which one they prefer. Is there any suggestions for a 20-year-old female with anxiety/depression and possible ADHD? I can get one modafinil product or several armodafinil choices online. Sun Pharmaceuticals manufactures Modalert, a modafinil product.
The armodafinil choices are Artvigil by HAB pharmaceutical, Armod by Emcure pharmaceutical, and Waklert by Sun Pharmaceuticals.
Because it's fairly expensive, I'd prefer order the best one for me than try them all. Obviously, I can't tell until I try it, but I'd love recommendations.

I've been trying with Modafinil for a while and have had excellent results. I have started thinking about combining it with other nootropics to boost its benefits. Has anyone tried taking Modafinil with other smart drugs? What combinations have you found to be effective, and what should one look out for?

You see, I was diagnosed twice by different psychiatrists. I wasn't sure until I saw the second psychiatrist. This guy recommended me 100mg Modafinil to treat my problems. For the first four days, it worked well. I was able to complete tasks more efficiently than ever before, but the results quickly faded. I suppose the favourable changes were only because I was awake.
Two weeks in, and I'm a complete wreck, practically back at square one. On other forums, I've heard that Ritalin, Adderall, and Vyvance are the primary lines of treatment for ADHD because they have the best effect. However, on Indian subs, I notice that most people are prescribed Modafinil or Armodafinil. My problem right now is whether I should go to this doctor and tell him about Modafinil's ineffectiveness. He urged me to see him again in 15 days following our initial session.

I'm in the UK, and I've been waiting for more than six months to see a doctor about getting an ADHD prescription. I've been investigating alternative possibilities in the meanwhile to help treat and manage the everyday issues that come with ADHD.
Any stories on taking modafinil or any other similar medicine would be greatly appreciated.
What benefits does it provide for ADHD? When utilising modafinil, how is the quality of your sleep? Are there any more crucial things to think about before using modafinil?
Any knowledge or guidance would be much valued, many thanks!

What do you use to wake up in the morning? I’m struggling so hard to get to work on time and that’s even with accommodations. I set what seems like a bazillion alarms and manage to sleep through them. I’ve downloaded apps on my iPhone but they don’t seem to work in the background so I have to remember to open them before I sleep. My dogs can barely wake me up half the time. I’ve talked to my sleep doctor, my psychiatrist, and my primary, and they all want to give me meds to take before bedtime but I don’t have issues falling or staying asleep… it’s the waking up and getting out of dreamland that’s the problem?
Once I’m out of bed and have had my modafinil and caffeine I can manage through the day but the sleep intertia and feeling heavy is a problem in the mornings.

People with ADHD are especially prone to claim this. Yet a stimulant is a stimulant. It's not like it becomes a sedative magically because someone has ADHD. Plus, one has to think many cases of ADHD are misdiagnosed due to so many other disorders potentially presenting very similar symptoms, but ADHD being a more salient disorder often results in that diagnosis. But it still helps those people. A stimulant is going to help anyone focus better, and at high doses will cause a feeling of increased energy and mood elevation. I haven't seen any evidence that the brains are so utterly different between ADHD vs. not that somehow a big increase in dopamine, norepinephrine, and serotonin isn't going to cause similar effects in both groups.
I say this as someone who was diagnosed with ADHD at age 9. But I feel like many of my fellow ADHDers simply want to feel more justified in being the ones that "deserve" stimulants more. In reality, stimulants help most people to an extent and make them feel good. Hence why the most common use in the past was for depression. I think they should be more widely prescribed for a wider range of reasons.
The DEA is very puzzling in that it has some drugs that aren't harmful at all as schedule I, and benzos are schedule iv vs. schedule ii for stimulants, but I think benzos are FAR more harmful. Methylphenidate being scheduled the same as amphetamines is also a joke. It's so much weaker than amphetamine, far less prone to cause addiction, and works in different ways. I could understand keeping adderall schedule ii, but Methylphenidate should be schedule iv. I've taken most stimulants in my life, and I've also taken modafinil/armodafinil. Modafinil is schedule iv but seems far more potentially addictive than XR formulations of Ritalin.