A lot of people from this subreddit have been asking this question and i got this article together to answer that question. I hope it helps. Cheers.

I honestly have found great help when i started taking Omega 3 in a daily basis, Vitamin B1 B6 B12, enough zinc, magnesium and Vitamin D.
PS : for those who also want to increase their testosterone, improving your mood and lowering Cortisol greatly helps.

Stress Reduction

Our bodies release cortisol when stressed. Cortisol decreases serotonin levels in the body, by increasing serotonin reuptake. Too much cortisol can increase your risk of developing mental health disorders. That is why reducing mental stress can help balance cortisol levels and increase serotonin
Many of the lifestyle changes below can be used to decrease stress.

Mood Improvement

Serotonin impacts our mood, but mood also affects serotonin production. Studies using brain imaging (PET), showed that brains of people who are happy produce more serotonin than brains of people who are sad
Therefore, engaging in activities and doing things that make you happier can help boost serotonin production.
In addition, studies show that social interactions also influence serotonin levels. Spend more time with people who make you feel good in general

Exercise

Fatigue, as a result of exercise, increases the amount of tryptophan that can cross the blood-brain barrier (by decreasing BCAA levels) and thereby boosts serotonin production. Psychological benefits of physical exercise can be more readily achieved with consistent aerobic exercise training
Mice that ran on treadmills had higher levels of serotonin compared to mice that remained inactive. Brain tryptophan remained high even after exercise

Getting More Sun

It has been long known that bright light helps treat seasonal depression. But several studies suggest that light is also an effective treatment for other forms of depression
People have higher serotonin levels in the summer compared to winter
In fact, our modern way of life, in which we spend a lot of time indoors, may be depleting our serotonin levels, thereby making us more vulnerable to mood disorders
Pioneer studies suggest that our skin may produce serotonin when exposed to sunlight
In addition, you need vitamin D to produce serotonin, and sun to produce vitamin D
Therefore, going outside and spending more time in the sun on a regular basis is a great way to boost your serotonin levels.

Yoga and Meditation

A review of over 200 peer-reviewed RCTs, clinical trials, and meta-analyses studying complementary and alternative medicine suggest that yoga and meditation may help uplift mood and improve symptoms of mild, moderate, and treatment-resistant depression
In fact, meditation activates many parts of the brain important for understanding the self, emotions, problem-solving, adaptability, and increasing awareness. Serotonin plays a role in wakefulness, along with other neurotransmitters, which are all raised in meditators
Thirty minutes of yoga and breathing exercises improved mood in a study of 71 healthy adults

Psychotherapy

Psychotherapy or counseling may change brain chemistry and even increase serotonin activity (by increasing serotonin receptors). In a (DB-RCT) study of 23 patients with depression who participated in psychotherapy for 4 months, therapy significantly increased serotonin activity and improved symptoms of depression

Eat to Increase Serotonin

Tryptophan is the amino acid building block for serotonin. Tryptophan is not produced by the body, so it must be taken in through diet.
Current research shows that unlike purified tryptophan, consuming tryptophan-rich foods does not necessarily increase brain serotonin. That’s because tryptophan-rich foods, such as meat, dairy, fruits, and vegetables, also contain many other amino acids. Tryptophan has to compete with these other amino acids for transport across the blood-brain barrier
On the other hand, lack of dietary tryptophan (compared to other amino acids) may lead to lower blood and brain tryptophan levels, decreasing serotonin production. Increased BCAAs also lower tryptophan and serotonin, as well as dopamine in the brain. This may be especially problematic for people who take protein powders to enhance exercise performance

Carbs

Consuming carbs increases serotonin levels by increasing the transport of tryptophan into the brain
However, you should use other methods to boost your serotonin, as increasing carbs in your diet can have a plethora of negative effects.

which Supplements can Increase Serotonin?

L-Tryptophan and 5-HTP

In the body, L-tryptophan is used to make 5-HTP from which serotonin is made. Taking L-tryptophan may raise plasma serotonin, improving cognitive, motor, or gut issues in those who are deficient
A protein called alpha-Lactalbumin from milk contains more tryptophan than many other proteins. In a (DB-RCT) study of 18 inpiduals, 12 grams of alpha-Lactalbumin increased the amount of tryptophan in blood plasma by 16% after 90 minutes
In another (DB-RCT) study, 12.32 grams of tryptophan increased blood tryptophan by 43% after 1.5 hours and improved memory in 23 subjects vulnerable to high stress
In a pilot study of 13 female patients experiencing premenstrual syndrome (PMS), 6 grams of L-tryptophan taken daily for 14 days improved mood, irritability, difficulty sleeping, and carbohydrate craving
Tryptophan can be purchased in the form of L-tryptophan supplements. 5-HTP (5-hydroxytryptophan) supplements are also available. It is important to note that 5-HTP is not the same as 5-HT, which is the chemical name for serotonin. 5-HTP freely crosses the blood-brain barrier (serotonin itself does not) to be converted into serotonin

Probiotics

In the digestive tract, probiotics restore the gut microbiome and influence the gut-brain axis. Gut bacteria are important because they can produce tryptophan, from which serotonin is made. Many mental health disorders, such as Parkinson’s disease, are linked to less perse or fewer gut bacteria
In a study (DB-RTC), an 8-week probiotic regimen (2.0 x 109 CFU/g of Lactobacillus helveticus and 2.0 x 109 CFU/g of Bifidobacterium longum) increased tryptophan levels in 110 inpiduals with depression. Increased tryptophan can increase serotonin production
A probiotic (Bifidobacteria infantis) given to rats for 14 days raised levels of blood tryptophan

Vitamin D

Vitamin D helps the body make, release, and use serotonin in the brain. Vitamin D activates an enzyme that converts tryptophan into serotonin. If vitamin D levels are low, our brains make less serotonin. Thus, increasing vitamin D intake increases serotonin levels, reducing the risk of mental health disorders
A cohort study of over 9K subjects demonstrated that taking vitamin D supplements during the first year of life was correlated with a 77% reduced risk of schizophrenia. In other words, preventing low vitamin D levels early in life may reduce the chance of having schizophrenia later in life

Omega-3 Fatty Acids

While vitamin D helps neurons make serotonin, the omega-3 fatty acids, EPA (eicosapentaenoic acid) and DHA (docosahexaenoic acid), help neurons release serotonin and improve its activity (increasing serotonin receptor sensitivity). Fish, such as salmon or trout, are high in omega-3 fatty acids. The omega 3 fatty acid supplements are also sold as fish oil capsules
Inadequate omega-3 fatty acids intake may increase susceptibility to psychiatric illnesses, including depression
In a (DB-RCT) study of 49 patients that repeatedly self-harm themselves, 1.2 grams of EPA and 0.9 grams of DHA capsules daily for 12 weeks reduced suicidal thinking by 45% and depression by 30%
An observational study of 256,118 Japanese participants, discovered that people who ate fish daily had lower rates of suicidal thoughts compared to people who did not eat fish daily. In another observational study of 1,767 Finnish subjects, consuming fish less than twice a week was associated with a higher risk of depression and suicidal thinking
In rats, low levels of omega-3 fatty acids (specifically alpha linoleic acid) are associated with lower serotonin activity, while DHA deficiency reduces brain serotonin in piglets
Reduced intake of both EPA and DHA by pregnant rats resulted in less production, storage, release, and activity (receptor function) of serotonin in the brains of their offspring. Serotonin was not only reduced in the mothers’ brains but also its availability and production were reduced by (65% and 29%, respectively) in the brains of newborn rats

St. John’s Wort

St. John’s Wort is a popular medicinal plant (Hypericum perforatum) used as an antidepressant for mild depression.
The plant increases serotonin in animals, similar to typical antidepressants, but with fewer side effects
In a review (of 35 studies) of 6,993 patients with depression, St. John’s Wort standalone therapy improved mild to moderate symptoms as well as antidepressants and better than placebo. The typical dose is 300 mg of the extract 3 times per day for at least 4 weeks

S-Adenosyl Methionine (SAMe)

SAMe is needed to produce serotonin
It is a naturally occurring compound that plays a role in methylation, energy breakdown and may help patients with major depressive disorder (MDD) who are not responding to conventional, synthetic antidepressants
In a (DB-RCT) study involving 73 MDD inpiduals unresponsive to drug therapy, 800 mg twice a day improved symptoms of depression compared to the placebo
In a (DB-RCT) study of 144 inpiduals with MDD, 1,600 – 3,200 mg of SAMe daily for 12 weeks significantly improved mood
A review of 132 studies (115 CT and 17 preclinical) concluded that SAMe can be useful not just for depression, but for an array of mental health disorders, such as substance abuse and psychosis

Vitamin B

Lack of vitamin B may be associated with the onset of mental health disorders. The body needs Vitamin B6 to make neurotransmitters like serotonin from 5-HTP (Vitamin B acts as enzyme cofactor)
Vitamin B12 and folate (vitamin B9) are necessary for the folate cycle, which helps convert tryptophan into serotonin (by producing and recycling essential co-factors)
In a cohort study of 549 community-dwelling seniors, those with low vitamin B12 and B9 blood levels were more likely to have irreversible problems with cognition (memory, attention, and thought)
In Rhesus monkeys, a single dose of vitamin B6 increased serotonin production in the brain
In addition, treatment of healthy adult rats with a vitamin B mixture raised serotonin levels in the brain

Vitamin C

Vitamin C supplements over a period of 6 weeks increased brain serotonin levels in rats with drug-induced dementia

Vitamin E

Vitamin E supplementation for 8 weeks increased serotonin in rats suffering from spinal cord injury

Zinc

Zinc can target and activate serotonin receptors
In a meta-analysis of 17 observational studies, blood zinc levels were lower in depressed inpiduals compared to non-depressed inpiduals
In a study (DB-RCT), 25 mg of elemental zinc supplements daily for 12 weeks reduced depressive symptoms in a study of 37 patients with major depressive disorder
Zinc can be increased through diet in foods such as red meat, oysters, and whole grains

Magnesium

Magnesium supplements increase serotonin levels by increasing its availability (reducing reuptake) in the brain. In a (DB-RCT) study, 500 mg of magnesium per day for 8 weeks significantly improved symptoms in 60 patients diagnosed with mild to moderate depression
Magnesium is found in green leafy vegetables, nuts, and legumes

Inositol

Inositol increases the sensitivity of serotonin receptors
In one study of 30 women with a PMS mood disorder, myo-inositol reduced symptoms and improved mood given over 6 menstrual cycles
Inositol decreases depression in rats by binding serotonin receptors

Turmeric

Curcumin is the active component of turmeric. In stressed rats, curcumin extended the length of time serotonin stays active in the brain (by blocking the reuptake of serotonin). It also improved cognition and reduced serum corticosterone, a cortisol equivalent, in rats
In mice, a single dose of curcumin (10 – 80 mg/kg) increased serotonin levels

Velvet Bean

Mucuna pruriens, known as the velvet bean, combats Parkinson’s disease better than the standard treatment (levodopa) in rats. In addition to being a source of dopamine, the long-term use of the powder form of Mucuna pruriens also restored serotonin levels in rat brains

L-Theanine

L-theanine, an amino acid found in tea leaves (e.g. green, black, or oolong tea) and Bay Bolete mushrooms, has relaxing effects on the mind. Green tea has the highest concentration of L-theanine
In a cohort study of over 42K Japanese inpiduals, those who consumed at least 5 cups of green tea a day experiences less psychological distress that is often associated with reduced serotonin
In rat studies, L-theanine raised serotonin levels in the brain

Rhodiola

Rhodiola rosea is a flowering plant that may help improve anxiety and depression. In a (DB-RCT) clinical trial of 89 patients with mild to moderate depression and low serotonin, Rhodiola rosea extracts (340 mg/day and 680 mg/day) for 42 days improved overall depression, including insomnia and emotional instability
In 70 depressive rats suffering from chronic mild stress and serotonin deficiency, Rhodiola extract (1.5, 3, or 6g/kg) for 3 weeks restored normal levels of serotonin

Saffron

Safranal, one of the main active components of saffron (Crocus sativus), increases serotonin availability in the brain (by blocking reuptake)
A meta-analysis (5 RCTs) of 177 participants concluded that 30 mg per day of saffron capsules can improve symptoms of depression in adults with major depressive disorder within 6 to 8 weeks

Psychedelics

Psychedelics are hallucinogenic drugs such as lysergic acid diethylamide (LSD) and psilocybin mushrooms. Psychedelics can stimulate serotonin activity (by directly binding to serotonergic receptors and also increasing their number), raise serotonin levels, and reduce its breakdown
In a recent pilot study (DB-RCT) of 12 patients with anxiety, 200 μg of LSD significantly reduced self-reported anxiety. LSD was given in a safe psychotherapeutic environment with medical supervision to avoid side effects
In a (DB-RCT) study of 17 healthy inpiduals, psilocybin (215 micrograms/kg) enhanced mood, increased goal-directed behavior and decreased recognition of negative facial expressions
Though psychedelics can activate serotonin signaling, unsupervised use may lead to serious psychological consequences. Certain plant hallucinogens, as well as synthetic hallucinogens, can be especially toxic. Using this substance should be under professional supervision.

Magnolia Tree

The bark and seed cones of the Magnolia tree (Magnolia officinalis) appear to have anti-stress, anti-anxiety, and antidepressant effects
20 and 40 mg/kg of honokiol and magnolol, the main components of Magnolia officinalis, restored low levels of serotonin in rats with chronic mild stress
Magnolia bark and ginger rhizome are commonly used to treat mental disorders in traditional Chinese medicine (TCM). 30 mg/kg of a magnolia bark and ginger rhizome mixture increased serotonin in the brains of depressed mice

Essential Oils

Essential oils are commonly used to reduce anxiety, stress, low mood, and other mental health disorders. Smelling the essential oils (inhalation) can activate pathways in the brain to boost serotonin and dopamine production
In a study of aromatherapy in 60 elderly patients with depression (RCT), 5 ml of essential oil mixture (containing lavender, sweet orange, bergamot, and almond oil) increased serotonin levels after application two times a week for 8 weeks
Ylang-ylang essential oils increased serotonin levels in mice brains (hippocampus)
Bitter orange is an essential oil that reduced anxiety and improved mood by boosting serotonin activity in mice after 14 days of use
Lavender oil blocked the breakdown/reuptake of serotonin in cell studies

Valerian

The root of the Valerian plant increases serotonin levels and activity (by decreasing its turnover)
Valerian may help with irritable bowel syndrome. In a rat study, components of the Valeriani root balanced overactive serotonin in the gut (colon) and serum
Valeriana officinalis root extract prevented the breakdown of serotonin in mice exposed to stress

Apigenin

Apigenin is a nutrient in citrus fruits that may improve cognition and behavior as well as symptoms of depression and stress
In mouse models, 20-day treatment with apigenin (10 and 20 mg/kg) increased serotonin levels, and decreased anxious behavior
Apigenin was able to reduce the impact of chronic mild stress in rats by increasing serotonin availability and reducing its breakdown

Berberine

Berberine is a salt derived from plants in the Berberis family (the roots, rhizomes, stems, and barks), including barberry, tree turmeric, Oregon-grape, and others. It blocks the enzyme MAO-A, which breaks down serotonin, thereby raising serotonin levels
A single berberine dose increased levels of serotonin by 47% in the brains of depressed mice. Long-term treatment with berberine (5 mg/kg for 15 days) increased serotonin by 19%
Mice given berberine in a different study had increased serotonin levels in regions of the brain (hippocampus and frontal cortex) important for memory and mood

Acetyl-L-Carnitine

Carnitine may increase serotonin in the cerebral cortex, a region of the brain involved in cognition and memory
Acetyl-L-carnitine (ALCAR) is a modified form of carnitine, a common dietary supplement sold in health food stores. ALCAR protects the brain and may help with depression. In mice, it increased levels of serotonin in the brain when given daily for 25 days

Lithium

Lithium has long been used in the treatment of mental disorders such as bipolar disorder. It works by increasing serotonin activity in the brain

Physical Treatments that Increase Serotonin

Neurofeedback

Neurofeedback allows inpiduals to consciously change their brain activity (EEG waves) and therefore modify their behavior and cognition. Some of its clinical uses are for migraines, ADHD, and PTSD
In a study (RCT), neurofeedback (30 minutes, 5 sessions weekly, 4 weeks) was applied to 40 patients with fibromyalgia syndrome (FMS). FMS patients have lower serotonin and widespread pain in their muscles and bones. After 2 weeks, patients experienced less pain, fatigue, anxiety, and depression

Massage

Massage therapy decreased cortisol and raised serotonin and dopamine in a broad population with stress-related health problems in 3 studies
In one (RCT) study, 24 adults with low back pain were either given two 30 minute massages per week or subjected to standard relaxation procedures over the span of 5 weeks. Urine serotonin levels were higher in inpiduals who received massage therapy

Acupuncture

In a randomized clinical trial, 75 women with fibromyalgia, acupuncture increased levels of serotonin in the serum, compared to placebo
In rats, acupuncture-like stimulation increased serotonin activity in certain regions of the brain

Light Therapy

When sun exposure is not possible, bright light therapy can help increase serotonin levels
Bright light therapy (photobiomodulation) shows promising results for depression based on clinical trials
In a study of 10 women with chronic headaches (observational), 34 seconds daily use of low-level laser therapy (LLLT) significantly increased serotonin levels after just 3 days
In a study of 25 drug-free hospitalized veterans with depression or bipolar disorder, bright white light improved depressive symptoms. However, further testing needs to be done on the negative consequences of long-term light treatment

Vagus Nerve Stimulation

Long-term vagus nerve stimulation (14 days) increased serotonin levels in rat brains
In rats, sustained vagus nerve stimulation for 14 days also increased the action of serotonin

Testing Serotonin

Serotonin that gets released into the blood gets rapidly broken down in the liver and lungs, to inactive metabolites (such as 5-HIAA) that are excreted in urine . That is why normally, blood and urine contain very small amounts of serotonin. Larger quantities of serotonin in the blood/urine can be found in people with serotonin-producing tumors (carcinoid tumors).
Beware of the use of urine serotonin levels to check for “neurotransmitter imbalances”. While the companies providing these tests state that the levels in urine correspond to brain neurotransmitter levels, science has repeatedly shown that this is not the case
Serotonin doesn’t cross the blood-brain barrier. Even if it did, it is released intermittently and influenced by many different stimuli. Furthermore, levels differ within different parts of the brain. And finally, values differ for the same person from one day to another
In addition, companies have been known to intentionally use extremely narrow ranges, without any scientific support whatsoever, in order to sell supplements to their clients
If you do have neurotransmitter imbalances in the brain, more reliable tests of serotonin levels are cerebrospinal fluid tests or measurements of serotonin in blood platelets
A PET scan is the only direct way to detect changes of serotonin production in specific areas of the brain
Serotonin Risks and Safety
Excess serotonin may result in serotonin syndrome, which can be fatal. Usually, though, serotonin syndrome is a result of drug interactions. No cases have been observed just from safe, natural approaches
MDMA, LSD, and other synthetic drugs may cause serotonin syndrome, and should not be taken without medical supervision or outside a psychotherapeutic environment
Most of the studies mentioned above were performed on adults. More research involving children is needed in order to determine safety.
Abnormally heightened levels of serotonin (hyperserotonemia) is a consistent finding in inpiduals with autism. Pregnant women with hyperserotonemia are more likely to give birth to children with autism

Drug Interactions

The use of St. John’s Wort, SAMe, or lithium simultaneously with serotonergic drugs like selective serotonin reuptake inhibitors (SSRI), monoamine oxidase inhibitors (MAO-I), and triptans, can increase the risk of serotonin syndrome, a life-threatening and potentially fatal condition

Limitations and Caveats

Some of these studies have fairly small sample sizes. Additionally, many of these natural methods of increasing serotonin in the body have only been tested in animals and need further research in humans through clinical trials.
In addition to the concentration of serotonin, both the number of serotonin receptors and their sensitivity may also play an integral role in determining serotonin activity.
Though serotonin is mostly made, stored, and released in the gut, serotonin acts as an important neurotransmitter in the brain. Some of these natural remedies and supplements need further testing to determine if they are able to cross the blood-brain barrier. Long-term application of these remedies should also be further studied.

Hi there- I’m feeling really stuck and looking for advice from anyone knowledgeable.
My issues started 2 years ago when I had sinusitis that I couldn’t get to the bottom of until I realized I was overwatering my bedroom plants and was inhaling mold growing in their soil. It took me a year and a half to figure this out and then I was perfectly fine from then on. During this time I saw an ENT who said I had a slightly deviated septum but not enough so to explain what was happening to me , but I figured out it was my plant soon after this and assumed my sinus issues were gone for good.
Recently, I’ve been suffering with massive sinus pressure for the past couple of months - since St. Patrick’s day weekend to be exact -when I last went out with some friends. There were party favours involved and I’m uncomfortable having to mention this to health care professionals if it isn’t completely necessary. I’m actually quite embarrassed that I was stupid enough to do this after having multiple issues with my sinuses over the last couple of years.
I haven’t been the same since. My frontal, sphenoid, and ethmoid sinuses feel like they each have their own pulse and I can’t focus or concentrate well because of how dizzy and disassociated it’s making me feel. It’s hard to explain but they just feel like they are expanding.
I don’t feel there’s any congestion , though I some times have blood streaks in my mucus. My whole forehead sometimes feels like it’s throbbing and protruding, but it’s not a painful throbbing. I’m also getting occasional stabbing pain in my forehead as well, as well as a dull occipital and temporal pain. My whole head simultaneously hurts at times.
This only tends to happen when I’m at work and moving around a lot. Because of this, I’ve been staying home a lot more.
I’ve been to a walk-in clinic twice and was given a nasal steroid that did nothing, followed by 10 days of antibiotics that also did nothing. I’ve been doing sinus rinses and inhaling steam frequently and doing hot yoga classes for relief that seems to help briefly, but it always comes back just as bad.
I’ve also seen my family doctor who prescribed me an antidepressant because he thought it might be stress related because it gets worse when I’m at work and doing stuff.
He’s also referring me to an allergist though he says this doesn’t sound like allergies to him, and a neurologist to make sure he’s not overlooking something more serious.
My biggest fear is that I’ve suffered some type of collateral brain damage , because I have felt “once removed” from reality since that weekend. I sometimes feel like I have tunnel vision. I’m so mad at myself for putting myself in this position but need to focus on what to do about it.
My appointments with both of the specialists are months away and I’m really struggling trying to study for my huge final exams I have next month.
I’m wondering if it makes sense for me to go to a hospital and ask for a CT scan or MRI to get an exact idea of what it looks like up there.
Please help

Background:
I (25F) have dealt with chronic fatigue for almost 10 years now. I have pursued answers for this from many doctors. Eventually the Mayo Clinic told me it was chronic fatigue syndrome, but then also immediately followed that up with “but you don’t have the hallmark symptom, post exertional malaise.” So… I’ve taken that diagnosis with a grain of salt.
I have also been diagnosed with anxiety and depression for the last 10 years. My depression was hard to control. I eventually found ketamine infusions and that helped for a while. I moved to a new state with more sunshine (I also have SAD) and I have been feeling better than ever mentally. Been working hard in therapy as well. I don’t feel as tired, hopeless or anxious. I have a full time job, I am married and life it good- for the most part.
Current issue (weight loss):
Starts in 2020. I was depressed and anxious at the time. Covid hit hard mentally for me. I tried to lose weight in 2018/2019 to no avail, when I was around 160lbs. That number jumped to 200lbs in 2020. I have always been active, I play hockey and have played since I was 5. I tried to lose weight with diet and exercise for quite a while and didn’t get far.
I had at least learned to stop eating when I feel full, so my portion sizes started to become more “normal”. But besides that I didn’t change what I ate (I ate horribly). Jump to fall/winter of 2020 and I was down to around 165lbs, without really trying. I wasn’t upset I lost weight since I hated being 200lbs, but I was concerned. I went to the Mayo Clinic April 2021 and they didn’t seem concerned about the weight loss, which I found odd but moved on.
I lingered around 165lbs for quite a while. Still ate bad, but ate less. Jump to summer 2023 and I went from 165 down to 145, again without trying. This time I was even more confused because I didn’t change my portions like last time, or eat any better. Exercise habits stayed the same.
Jump to now. I started getting nauseous almost every morning, sometimes vomiting would occur, in October of 2023. I pursed help for this. Doctors tested for pregnancy 1000 times and also sent me for an ultrasound, CT scan, colonoscopy and upper endoscopy over the next 4 months. Nothing really came from any of these tests. The ultrasound showed some sludge in my gall bladder, CT was normal, upper endoscopy shipped some irritation in my stomach and the colonoscopy found a benign polyp.
I have been feeling better the last few months, but I still get nauseous some mornings. I stopped going to the doctor for this after being told they don’t know so many times (same as the fatigue issue I had/have).
I have also been dealing with recurrent UTIs. I had 8 in a year a few years ago, then went without one for quite a while. Last December (2023) came around and I got a UTI. I then proceeded to get one the next 3 months, 2 of them in the month of March. I saw urology where they gave me antibiotics to take to prevent them. So far so good, haven’t had one yet. When I saw urology they tested my urine (not symptomatic at the time) but I noticed my urine had moderate amounts of ketones in it, which she didn’t mention and I didn’t see the results until after I got home. Is that normal?

I weighed myself last weekend and I weighed 127lbs. My clothes from high school/college don’t even fit. I weighed 140 when I went off to college. I was probably like 14 the last time I weighed this weight.
I went gluten free last July, but that’s the only diet I follow right now. I feel better because of it.
Weight timeline: 2015-2018: 140 2018-2020: 160 March 2020: 200 November 2020: 165 2021-2022: 165 February 2023: 160 August 2023: 145 May 2024: 127
Medications: I was on antidepressants that caused weight gain, but haven’t been on them for years. Not currently taking much, mostly magnesium, over the counter Tylenol and ropinirole for RLS (been taking for around 5 weeks). I use marijuana recreationally.
Family: autoimmune diseases run in my family. My blood work has always been normal except for a positive ANA years ago, which lead me to the Mayo Clinic. They only diagnosed the CFS, which I found frustrating and dismissing.
TLDR: I lost 40 pounds in 2020 without trying and now I’ve lost another 30, coupled with GI issues, recurrent UTIs and no answers.

Edit: (5-8-24 4:55) Sorry I haven't been super on top of updating you all. I have a doctors appointment with my primary care provider to have some tests run. Just to cover my bases, just in case it is something from our environment and not done super rare metabolic disorder manifesting in my husband now as an adult. He's gotten a few more tests, and they also did a liver biopsy. I will post them now. We haven't gotten the results back from the liver biopsy yet.
IR liver biopsy
Collected on May 8, 2024 3:35 PM
COMPREHENSIVE METABOLIC PANEL Collected on May 8, 2024 2:33 AM Results
Sodium View trends Normal range: 137 - 145 mmol/L Your value is 141 mmol/LNormal range 137 - 145 mmol/L Potassium View trends Normal range: 3.5 - 5.1 mmol/L Your value is 4.1 mmol/LNormal range 3.5 - 5.1 mmol/L Chloride View trends Normal range: 98 - 107 mmol/L Your value is 114 mmol/LThis value is HighNormal range 98 - 107 mmol/L CO2 View trends Normal range: 22 - 30 mmol/L Your value is 20 mmol/LThis value is LowNormal range 22 - 30 mmol/L Glucose View trends Normal range: 65 - 99 mg/dL Your value is 117 mg/dLThis value is HighNormal range 65 - 99 mg/dL Glucose View trends Normal range: 65 - 99 mg/dL Value
If result of random glucose > or = 200 or if result of fasting glucose is > 125 confirm Diabetes Mellitus diagnosis with second glucose on a different day. High Your value is If result of random glucose > or = 200 or if result of fasting glucose is > 125 confirm Diabetes Mellitus diagnosis with second glucose on a different day. mg/dLThis value is HighNormal range 65 - 99 mg/dL BUN View trends Normal range: 9 - 20 mg/dL Your value is 23 mg/dLThis value is HighNormal range 9 - 20 mg/dL Creatinine View trends Normal range: 0.66 - 1.25 mg/dL Your value is 0.96 mg/dLNormal range 0.66 - 1.25 mg/dL eGFR View trends Normal value: >60 mL/min/1.73 M2 Value 106 Your value is 106 mL/min/1.73 M2Normal value >60 mL/min/1.73 M2 EGFR Comment View trends Normal value: >60 mL/min/1.73 M2 Value Either of the following must be present for >=3 months to be Chronic Kidney Disease: -GFR less than 60 for >=3 months -Albumin to Creatinine Ratio >=30 mg/g or other markers of kidney damage
An estimated GFR chronically in the range of >/= 90 is categorized as normal or high, which corresponds to Stage G1 CKD.
CKD-EPI equation (2021) used to estimate GFR Your value is Either of the following must be present for >=3 months to be Chronic Kidney Disease: -GFR less than 60 for >=3 months -Albumin to Creatinine Ratio >=30 mg/g or other markers of kidney damage An estimated GFR chronically in the range of >/= 90 is categorized as normal or high, which corresponds to Stage G1 CKD. CKD-EPI equation (2021) used to estimate GFR mL/min/1.73 M2Normal value >60 mL/min/1.73 M2 BUN/Creatinine Ratio View trends Normal range: 6 - 22 RATIO Your value is 24 RATIOThis value is HighNormal range 6 - 22 RATIO ALT View trends Normal value: <50 U/L Value 23 Your value is 23 U/LNormal value <50 U/L AST View trends Normal range: 17 - 59 U/L Your value is 18 U/LNormal range 17 - 59 U/L Alkaline Phosphatase View trends Normal range: 38 - 126 U/L Your value is 100 U/LNormal range 38 - 126 U/L Bilirubin, Total View trends Normal range: 0.2 - 1.3 mg/dL Your value is 0.3 mg/dLNormal range 0.2 - 1.3 mg/dL Protein, Total View trends Normal range: 6.3 - 8.2 g/dL Your value is 6.9 g/dLNormal range 6.3 - 8.2 g/dL Albumin Blood View trends Normal range: 3.5 - 5.0 g/dL Your value is 3.8 g/dLNormal range 3.5 - 5.0 g/dL Calcium View trends Normal range: 8.4 - 10.2 mg/dL Your value is 8.6 mg/dLNormal range 8.4 - 10.2 mg/dL Globulin, Total View trends Normal range: 1.9 - 3.7 g/dL Your value is 3.1 g/dLNormal range 1.9 - 3.7 g/dL Albumin/Globulin Ratio View trends Normal range: 1.0 - 2.5 RATIO Your value is 1.2 RATIONormal range 1.0 - 2.5 RATIO Anion Gap View trends Normal range: 7 - 17 mmol/L Your value is 7 mmol/LNormal range 7 - 17 mmol/L Want more information about CAMMONIA Collected on May 8, 2024 2:33 AM Results
Ammonia View trends Normal range: 9 - 30 umol/L Your value is 120 umol/LThis value is HighNormal range 9 - 30 umol/L
THESE ARE ADDITIONAL TESTS I POSTED IN A COMMENT YESTERDAY. I WILL ADD THEM HERE FOR SIMPLICITY.
We've gotten back a few more tests, just in case anyone is interested.
CT liver multiphase w/iv contrast Collected on May 7, 2024 1:55 PM Results EXAM: CT THREE PHASE LIVER
INDICATION: evaluate liver function
Tech Comments: No additional history
TECHNIQUE: Low dose, multi-channel computerized tomography of the abdomen was performed with IV contrast according to the triple phase liver protocol. Multiplanar reformats were reviewed.
COMPARISON: CT chest abdomen and pelvis, 05/05/2024
FINDINGS: LOWER CHEST: Lung bases are clear. No acute findings.
LIVER: Normal morphology. No suspicious hepatic lesion.
BILIARY: No CT evidence of gallbladder abnormality. No bile duct dilatation.
PANCREAS: No evidence of mass or inflammation.
SPLEEN: Unremarkable.
ADRENALS AND KIDNEYS: Adrenal glands are normal. No suspicious renal masses. Normal enhancement bilaterally. Severe bilateral hydroureteronephrosis, similar to prior with significant thinning of the renal cortex.
GASTROINTESTINAL: Visualized bowel shows no abnormal wall thickening or obstruction.
VASCULAR: Abdominal aorta is normal in caliber. The portal venous system is patent.
LYMPH NODES: No pathologically enlarged lymph nodes.
PERITONEUM: No free air or ascites.
BODY WALL AND SOFT TISSUES: Unremarkable.
BONES: No acute or suspicious abnormality.
IMPRESSION: 1. Normal morphology of the liver. 2. Redemonstration of severe hydronephrosis bilaterally with renal cortical thinning.
Collected on May 7, 2024 2:43 PM Results
Prothrombin Time View trends Normal range: 8.8 - 11.7 s Your value is 10.9 sNormal range 8.8 - 11.7 s INR View trends Normal value: <1.14 RATIO Value 1.02 Your value is 1.02 RATIONormal value <1.14 RATIO INR View trends Normal value: <1.14 RATIO
BLOOD GAS VENOUS Collected on May 7, 2024 2:43 PM Results
pH, Ven View trends Normal range: 7.32 - 7.41 Your value is 7.43 This value is HighNormal range 7.32 - 7.41 pCO2, Ven View trends Normal range: 41 - 54 mm Hg Your value is 33 mm HgThis value is LowNormal range 41 - 54 mm Hg pO2, Ven View trends Normal range: 25 - 43 mm Hg Your value is 62 mm HgThis value is HighNormal range 25 - 43 mm Hg Bicarbonate View trends Normal range: 21 - 28 mmol/L Your value is 21 mmol/LNormal range 21 - 28 mmol/L Base Deficit (-) View trends Normal range: 0 - 3 Your value is 3 Normal range 0 - 3 O2 Saturation,Venous View trends Normal range: 60 - 85 % Your value is 92 %This value is HighNormal range 60 - 85 % O2 Intake View trends Value ROOM AIR Your value is ROOM AIR
Patient is 34, male. History of polycystic kidney disease, takes lisinopril 20mg daily for high blood pressure related to the pkd. Lactulose 40mg 3x day. Just began taking this 2 days ago. No other meds or drugs. 6'0, 200 lbs. He's a little over weight, but otherwise active and healthy.
My husband came home late Friday and was acting strange. I would ask him a question and he would just stare at me blankly instead of answering. As the night wore on I noticed his symptoms becoming more and more apparent. He was very tired, when spoken to he would either stare at you blankly, answer in one word answers or reply something totally unrelated to the question asked. He was very lethargic and dazed. His eyes were glassy and blood shot. I took him to the emergency room where he continued to get worse. He began to stare blankly all the time, he couldn't tell you what he did yesterday, he couldn't tell you where he was. From my uneducated view, he seemed to be exhibiting stroke like symptoms. The first hospital did a bunch of tests, everything came back fine. They sent us home. I wasn't satisfied so I took him to another hospital. The er did more tests, all came back within normal limits from my memory. They advised that he was having a psychological meltdown and to contact a shrink. The next morning he was almost absolutely comatose, so I took him to the er again. This time we had a PA who was willing to dig. They ended up finding that his ammonia levels were 203, when normal limits are between 9 and 30. We've been two and a half days. Poison control was contacted, they ran their own tests and couldn't find the culprit as his liver is functioning normally, and his kidneys aren't great, but they wouldn't be the cause either. I will post all the tests and there results below. I'll also post all the meds he's been given.
The whole staff at this hospital is stumped, they're all of the opinion that this might something he came into contact with, and not a product of his own body. As in they believe he has been compromised by something in our environment, but they're unable to find the culprit of the symptoms. They've had him on 40mg lactulose 3x a day and at their last test of his ammonia levels he is down to 120. At that level he is alert and conscious, but still pretty slow. As if he hasn't slept well in days and had a few beers on top.
Also, I have an obsessive stalker. I am not trying to fear monger by bringing that up, but that fact and then his sudden and intense onset of symptoms has me concerned. I have informed the hospital police about the situation. I believe our city police were also contacted when they contacted poison control. It might not be relevant, but it's better to mention it.
Here's a few short videos I took of his behavior.
https://imgur.com/gallery/WEjW3D9
His labs:
May 4th
Alcohol Bld Medical View trends Normal value: <10 mg/dL Value <10
COMPREHENSIVE METABOLIC PANEL Sodium: 147 Potassium 4.0 Chloride 115 C02 20 Glucose 111 BUN 29 Creatinine 1.04 eGFR 97 BUN/Creatinine ratio 28 ALT 44 AST 32 Alkaline Phosphatase 123 Bilirubin 0.5 Protein total 8.0 Albumin blood 4.6 Calcium 9.5 Globulin total 3.4 Albumin/Globulin ratio 1.4 Anion gap 12
CBC WITH DIFFERENTIAL
WBC 6.5 RBC 5.27 Hemoglobin 14.6 Hematocrit 43.5 MCV 82.5 MCH 27.7 MCHC 33.6 RDW 14.6 Platelets 311 MPV 9.0 Diff Method Electronic wbc differential cont Segs relative 58 Lymphocytes 30 Monocyte 9 Eosinophils 2 Basophils 1 Absolute Lymphocytes 1.95 Absolute Eosinophils 0.14 Absolute Basophils 0.03
MRI BRAIN WITH AND WITHOUT CONTRAST
INDICATION: ams, evaluate for stroke, intracranial infection
Tech Comments: AMS
TECHNIQUE: Multiplanar multisequence magnetic resonance imaging of the brain was performed with and without IV contrast.
COMPARISON: 05/03/2024.
FINDINGS: VENTRICLES AND CISTERNAL SPACES: The ventricular system and subarachnoid spaces are within acceptable limits for the patient's age.
CEREBRAL AND CEREBELLAR PARENCHYMA: There is no extra-axial fluid collection or hemorrhage. There is no mass effect or midline shift. No abnormal parenchymal gradient susceptibility signal. No diffusion restriction to suggest acute ischemia/infarct. There is no abnormal signal intensity or enhancement. The brainstem is normal in size and configuration. No abnormal signal alterations are present. The cerebellar hemispheres, vermis and tonsils are normal in size and configuration.
PITUITARY GLAND: The pituitary appears grossly unremarkable. Infundibulum is midline.
ARTERIAL FLOW VOIDS: The flow voids in the vertebrobasilar and internal carotid arterial systems are grossly normal.
DURAL VENOUS SINUSES: The dural venous sinuses appear patent.
CALVARIUM, SKULL BASE: The calvarium and skull base appear within normal limits.
PARANASAL SINUSES AND MASTOIDS: No fluid signal is identified within the paranasal sinuses or mastoids.
MISCELLANEOUS FINDINGS: None.
PROTIME-INR
Prothrombin Time View trends Normal range: 8.8 - 11.7 s Your value is 11.4 sNormal range 8.8 - 11.7 s INR View trends Normal value: <1.14 RATIO Value 1.07 Your value is 1.07 RATIONormal value <1.14 RATIO INR View trends Normal value: <1.14 RATIO
HEPATIC FUNCTION PANEL
AST View trends Normal range: 17 - 59 U/L Your value is 26 U/LNormal range 17 - 59 U/L ALT View trends Normal value: <50 U/L Value 45 Your value is 45 U/LNormal value <50 U/L Alkaline Phosphatase View trends Normal range: 38 - 126 U/L Your value is 132 U/LThis value is HighNormal range 38 - 126 U/L Bilirubin, Total View trends Normal range: 0.2 - 1.3 mg/dL Your value is 0.7 mg/dLNormal range 0.2 - 1.3 mg/dL Bilirubin, Direct View trends Normal range: 0.1 - 0.5 mg/dL Your value is 0.2 mg/dLNormal range 0.1 - 0.5 mg/dL Albumin Blood View trends Normal range: 3.5 - 5.0 g/dL Your value is 4.5 g/dLNormal range 3.5 - 5.0 g/dL Protein, Total View trends Normal range: 6.3 - 8.2 g/dL
C-REACTIVE PROTEIN CRP 0.7
SEDIMENTATION RATE, AUTOMATED
SED RATE 19
(Second Metabolic Panal) BASIC METABOLIC PANEL Collected on May 4, 2024 8:10 PM Sodium View trends Normal range: 137 - 145 mmol/L Your value is 145 mmol/LNormal range 137 - 145 mmol/L Potassium View trends Normal range: 3.5 - 5.1 mmol/L Your value is 3.7 mmol/LNormal range 3.5 - 5.1 mmol/L Chloride View trends Normal range: 98 - 107 mmol/L Your value is 111 mmol/LThis value is HighNormal range 98 - 107 mmol/L CO2 View trends Normal range: 22 - 30 mmol/L Your value is 21 mmol/LThis value is LowNormal range 22 - 30 mmol/L Glucose View trends Normal range: 65 - 99 mg/dL Your value is 108 mg/dLThis value is HighNormal range 65 - 99 mg/dL Glucose View trends Normal range: 65 - 99 mg/dL Value
If result of random glucose > or = 200 or if result of fasting glucose is > 125 confirm Diabetes Mellitus diagnosis with second glucose on a different day. High Your value is If result of random glucose > or = 200 or if result of fasting glucose is > 125 confirm Diabetes Mellitus diagnosis with second glucose on a different day. mg/dLThis value is HighNormal range 65 - 99 mg/dL BUN View trends Normal range: 9 - 20 mg/dL Your value is 32 mg/dLThis value is HighNormal range 9 - 20 mg/dL Creatinine View trends Normal range: 0.66 - 1.25 mg/dL Your value is 1.17 mg/dLNormal range 0.66 - 1.25 mg/dL eGFR View trends Normal value: >60 mL/min/1.73 M2 Value 84 Your value is 84 mL/min/1.73 M2Normal value >60 mL/min/1.73 M2 EGFR Comment View trends Normal value: >60 mL/min/1.73 M2 Value Either of the following must be present for >=3 months to be Chronic Kidney Disease: -GFR less than 60 for >=3 months -Albumin to Creatinine Ratio >=30 mg/g or other markers of kidney damage
An estimated GFR chronically in the range of 60-89 is categorized as mildly decreased, which corresponds to Stage G2 CKD.
CKD-EPI equation (2021) used to estimate GFR Your value is Either of the following must be present for >=3 months to be Chronic Kidney Disease: -GFR less than 60 for >=3 months -Albumin to Creatinine Ratio >=30 mg/g or other markers of kidney damage An estimated GFR chronically in the range of 60-89 is categorized as mildly decreased, which corresponds to Stage G2 CKD. CKD-EPI equation (2021) used to estimate GFR mL/min/1.73 M2Normal value >60 mL/min/1.73 M2 Calcium View trends Normal range: 8.4 - 10.2 mg/dL Your value is 9.6 mg/dLNormal range 8.4 - 10.2 mg/dL Anion Gap View trends Normal range: 7 - 17 mmol/L
(Second cbc)
CBC WITH DIFFERENTIAL May 4, 2024 8:10 PM
E County Line Rd Indpls, IN 46227Testing by Quest Diagnostics 1402 E County Line Rd Indpls, IN 46227 WBC View trends Normal range: 3.3 - 10.5 K/CUMM Your value is 11.3 K/CUMMThis value is HighNormal range 3.3 - 10.5 K/CUMM WBC Result Comment View trends Normal range: 3.3 - 10.5 K/CUMM Value
Difference from previous result noted. Specimen appearance and label verified. High Your value is Difference from previous result noted. Specimen appearance and label verified. K/CUMMThis value is HighNormal range 3.3 - 10.5 K/CUMM RBC View trends Normal range: 4.15 - 5.75 M/CUMM Your value is 5.51 M/CUMMNormal range 4.15 - 5.75 M/CUMM Hemoglobin View trends Normal range: 12.8 - 16.9 g/dL Your value is 15.3 g/dLNormal range 12.8 - 16.9 g/dL Hematocrit View trends Normal range: 38.8 - 50.2 % Your value is 45.4 %Normal range 38.8 - 50.2 % MCV View trends Normal range: 80.0 - 100.0 fL Your value is 82.4 fLNormal range 80.0 - 100.0 fL MCH View trends Normal range: 27.0 - 34.0 pg Your value is 27.8 pgNormal range 27.0 - 34.0 pg MCHC View trends Normal range: 30.5 - 34.5 g/dL Your value is 33.7 g/dLNormal range 30.5 - 34.5 g/dL RDW View trends Normal range: 11.5 - 15.0 % Your value is 14.6 %Normal range 11.5 - 15.0 % Platelets View trends Normal range: 150 - 450 K/CUMM Your value is 326 K/CUMMNormal range 150 - 450 K/CUMM MPV View trends Normal range: 7.7 - 12.2 fL Your value is 9.5 fLNormal range 7.7 - 12.2 fL Diff Method View trends Value Electronic WBC differential count Your value is Electronic WBC differential count Segs Relative View trends % Value 73 Your value is 73 % Lymphocytes View trends % Value 17 Your value is 17 % Monocyte View trends % Value 9 Your value is 9 % Eosinophils View trends % Value 1 Your value is 1 % Basophils View trends % Value 0 Your value is 0 % Absolute Neutrophils View trends Normal range: 1.30 - 6.00 K/CUMM Your value is 8.20 K/CUMMThis value is HighNormal range 1.30 - 6.00 K/CUMM ABSOLUTE LYMPHOCYTES View trends Normal range: 1.00 - 3.50 K/CUMM Your value is 1.92 K/CUMMNormal range 1.00 - 3.50 K/CUMM Absolute Monocytes View trends Normal range: 0.00 - 1.00 K/CUMM Your value is 0.99 K/CUMMNormal range 0.00 - 1.00 K/CUMM ABSOLUTE EOSINOPHILS View trends Normal range: 0.00 - 0.70 K/CUMM Your value is 0.14 K/CUMMNormal range 0.00 - 0.70 K/CUMM ABSOLUTE BASOPHILS View trends Normal range: 0.00 - 0.10 K/CUMM Your value is 0.05 K/CUMMNormal range 0.00 - 0.10 K/CUMM
AMMONIA 203 May 4, 2024 9:40 PM
Lactic Acid 0.8 May 4, 2024 9:40 PM
RESPIRATORY PANEL PCR Collected on May 4, 2024 9:42 PM Misc Source View trends Value NASOPHARYNX Your value is NASOPHARYNX Adenovirus DNA View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Coronavirus 229E View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Coronavirus HKU1 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Coronavirus NL63 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Coronavirus OC43 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED SARS COVID 2 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED METAPNEUMOVIRUS View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Human Rhinovirus / Entovirus View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED INFLUENZA A View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Influenza A H1 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Influenza A H3 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Influenza A,H1N1 '09 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED INFLUENZA B View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED PARAINFLUENZA 1 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED PARAINFLUENZA 2 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED PARAINFLUENZA 3 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Parainfluenza Virus 4 View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED RSV RNA, QUALITATIVE PCR View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Bordetella Parapertussis View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Bordetella Pertussis View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Chlamydophilia Pneuminae View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Mycoplasma Pneumoniae View trends Normal value: NOT DETECTED Value NOT DETECTED Your value is NOT DETECTED Normal value NOT DETECTED Mycoplasma Pneumoniae Comment View trends Normal value: NOT DETECTED Value
IP CARBOCYHEMOGLOBIN Collected on May 4, 2024 10:10 PM Carboxyhemoglobin View trends Normal range: 0.0 - 1.5 % Value <1.5 Your value is <1.5 %Normal range 0.0 - 1.5 %
IP TSH WITH FT4 REFLEX Collected on May 4, 2024 10:10 PM TSH W/REFLEX TO FT4 View trends Normal range: 0.40 - 4.50 mIU/L Your value is 1.00 mIU/LNormal range 0.40 - 4.50 mIU/L TSH W/REFLEX TO FT4 View trends Normal range: 0.40 - 4.50 mIU/L
IP CPK Collected on May 4, 2024 10:46 PM CPK 52
SALICYLATE LEVEL Collected on May 4, 2024 10:46 PM
Salicylate Lvl View trends Normal value: <20.0 mg/dL Value <1.0
DICTATED DATE: 05/05/2024 12:22pm TRANSCRIBED DATE: 05/05/2024 01:06pm/modl SOUTH
PATIENT NAME: HEALTH RECORD NUMBER: BILLING NUMBER: DATE OF BIRTH:
DATE OF PROCEDURE: 05/05/2024
CLINICAL SUMMARY: Altered mental status of uncertain etiology in the setting of serum ammonia elevation. Please assess for possible epileptic activity.
TECHNICAL SUMMARY: International 10/20 electrode placement was performed in this portable digital EEG. The background activity shows a poorly regulated intermixture of predominantly delta range activity. This activity is triphasic in nature without localizing or focal features. No significant stay changes were seen. Amplitude did vary at times.
Photic stimulation resulted in no change.
Sleep was not recorded.
Hyperventilation is contraindicated.
IMPRESSION: This EEG is abnormal with evidence of nearly continuous triphasic waves. These are highly compatible with a hepatic encephalopathy. There is no evidence of seizure activity and there is no asymmetry to suggest a structural process
PROCALCITONIN. May 5, 2024 1:25 AM
Procalcitonin View trends Normal value: <0.08 ng/mL Value 0.07
IP ACUTE HEPATITIS PANEL Collected on May 5, 2024 1:25 AM Results
Hep A IgM View trends Normal value: NON REACTIVE Value NON REACTIVE Your value is NON REACTIVE Normal value NON REACTIVE Hep A IgM View trends Normal value: NON REACTIVE Value NON REACTIVE
Hepatitis B Surface Ag View trends Normal value: NON REACTIVE Value NON REACTIVE Your value is NON REACTIVE Normal value NON REACTIVE Hepatitis B Surface Ag Comment View trends Normal value: NON REACTIVE Value NON REACTIVE
Anti-HCV View trends Normal value: NON REACTIVE Value NON REACTIVE Your value is NON REACTIVE Normal value NON REACTIVE Anti-HCV View trends Normal value: NON REACTIVE Value (NOTE)
HCV antibody was non-reactive. There is no laboratory evidence of HCV infection. Normal value NON REACTIVE Hep B core Ab, IgM View trends Normal value: NON REACTIVE Value NON REACTIVE Your value is NON REACTIVE Normal value NON REACTIVE Hep B core Ab, IgM View trends Normal value: NON REACTIVE
URINALYSIS, CULTURE IF INDICATED Collected on May 5, 2024 1:37 AM
Glucose Urine View trends Normal value: NEGATIVE mg/dL Value NEGATIVE Your value is NEGATIVE mg/dLNormal value NEGATIVE mg/dL Ketones, UA View trends Normal value: NEGATIVE mg/dL Value NEGATIVE Your value is NEGATIVE mg/dLNormal value NEGATIVE mg/dL Specific Gravity Ur View trends Normal range: 1.003 - 1.030 Your value is 1.009 Normal range 1.003 - 1.030 Occult Blood Urine View trends Normal value: NEGATIVE Value MODERATEAbnormal Your value is MODERATE This value is AbnormalNormal value NEGATIVE pH, UA View trends Normal range: 4.5 - 8.0 Your value is 8.0 Normal range 4.5 - 8.0 Protein, UA View trends Normal value: NEGATIVE mg/dL Value 30Abnormal Your value is 30 mg/dLThis value is AbnormalNormal value NEGATIVE mg/dL U Nitrites View trends Normal value: NEGATIVE Value NEGATIVE Your value is NEGATIVE Normal value NEGATIVE Leukocytes, UA View trends Normal value: NEGATIVE Value TRACEAbnormal Your value is TRACE This value is AbnormalNormal value NEGATIVE Color Urine View trends Normal value: YELLOW Value YELLOW Your value is YELLOW Normal value YELLOW APPEARANCE URINE View trends Normal value: CLEAR Value CLEAR Your value is CLEAR Normal value CLEAR WBC, UA View trends Normal range: 0 - 5 /HPF Value 11-20Abnormal Your value is 11-20 /HPFThis value is AbnormalNormal range 0 - 5 /HPF Epi Cell-Ur View trends Normal range: 0 - 5 /HPF Value 0-5 Your value is 0-5 /HPFNormal range 0 - 5 /HPF RBC, UA View trends Normal range: 0 - 3 /HPF Value 4-10Abnormal Your value is 4-10 /HPFThis value is AbnormalNormal range 0 - 3 /HPF Urine Comment Micro View trends
No Collected on May 5, 2024 1:37 AM
(note: not sure why it says no)
Cannabinoids View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Phencyclidine View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Cocaine Random View trends Normal value: NEGATIVE Value NEGATIVE Your value is NEGATIVE Normal value NEGATIVE Methamphetamines View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Opiates View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Amphetamines, Urine View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Benzodiazepines View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Trycyclic Antidepressants View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Methadone Metab View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Barbiturates, Urine View trends Normal value: NEGATIVE _ Value NEGATIVE Your value is NEGATIVE _Normal value NEGATIVE _ Oxycodone, Urine View trends Normal value: NEGATIVE Value NEGATIVE Your value is NEGATIVE Normal value NEGATIVE Buprenorphine, Urine View trends Normal value: NEGATIVE Value NEGATIVE Your value is NEGATIVE Normal value NEGATIVE Result Comment View trends Normal value: NEGATIVE
AMMONIA Collected on May 5, 2024 4:56 AM
Ammonia 134
Normal range: 9 - 30 umol/L
ETHYLENE GLYCOL Collected on May 5, 2024 12:42 PM Lab tests - Blood
Ethylene Glycol Lvl View trends mg/dL Value <10
Reference range: Negative [<10 mg/dL]
VOLATILE COMPOUNDS Collected on May 5, 2024 12:42 PM Lab tests - Blood
Methanol Lvl View trends mg/dL Value <10 Ref Range:Negative (<10 mg/dL)
VALPROIC ACID Collected on May 5, 2024 12:42 PM Results
Valproic Acid, Total View trends Normal range: 50 - 120 ug/mL Value <10Low
CT chest abdomen pelvis w IV contrast Collected on May 5, 2024 9:21 PM Results New EXAM: CT CHEST ABDOMEN AND PELVIS WITH CONTRAST
INDICATION: altered mental status, possible infection
Tech Comments: No additional history.
TECHNIQUE: Low dose, multi-channel computerized tomography of the chest, abdomen and pelvis was performed with IV contrast. Multiplanar reformats were reviewed.
COMPARISON: 12/05/2018
FINDINGS: CHEST: LUNGS: No focal consolidation. No mass. Major airways are patent.No pleural effusion or pneumothorax.
HEART AND VESSELS: Unremarkable.
MEDIASTINUM AND HILA: Unremarkable.
CHEST WALL AND SOFT TISSUES: Unremarkable.
ABDOMEN AND PELVIS: LIVER: Normal morphology. No suspicious hepatic lesion. No hepatic cysts are identified.
BILIARY: Unremarkable.
PANCREAS: No evidence of mass or inflammation. No pancreatic cysts.
SPLEEN: Unremarkable.
ADRENALS AND KIDNEYS: Adrenal glands are normal. Massively dilated renal collecting systems and ureters compatible with severe hydronephrosis is similar to although slightly progressive from 12/05/2018. Thin rind of renal parenchyma is present and enhances symmetrically. Bilateral hydroureter extends to the pelvis. There is some layering hyperdensity within the left distal ureter which may represent debris.
GASTROINTESTINAL: No evidence of abnormal bowel wall thickening or obstruction.
VASCULAR: Abdominal aorta is normal in caliber.
LYMPH NODES: No pathologically enlarged lymph nodes.
PERITONEUM: No free air or ascites.
PELVIC ORGANS AND BLADDER: Urinary bladder is distended.
BODY WALL AND SOFT TISSUES: Unremarkable.
BONES: No acute or suspicious abnormality.
IMPRESSION: 1. No acute findings. 2. Severe chronic hydroureteronephrosis is similar to although slightly increased from 12/05/2018. Urinary bladder is distended although is otherwise unremarkable. Although the morphology of the kidney is severely abnormal and mimics parenchymal cyst formation, there are no renal parenchymal or hepatic cysts to suggest autosomal dominant polycystic kidney disease. Etiology of severe hydronephrosis is uncertain possibly related to chronic reflux. 3. Thin rind of peripheral renal enhancement without focal abnormality. Small amount of nonspecific hyperdensity within the left distal ureter may represent nonspecific debris.
SODIUM, RANDOM URINE Collected on May 5, 2024 5:03 PM Results New
Sodium Urine Random View trends mmol/L Value 55 No reference range established.
OSMOLALITY,URINE Collected on May 5, 2024 5:03 PM Results New
Osmolality, Ur View trends Normal range: 50 - 1,200 mOsm/kg Your value is 304 mOsm/kgNormal range 50 - 1,200 mOsm/kg
CBC Collected on May 6, 2024 3:56 AM Results
WBC View trends Normal range: 3.3 - 10.5 K/CUMM Your value is 9.9 K/CUMMNormal range 3.3 - 10.5 K/CUMM RBC View trends Normal range: 4.15 - 5.75 M/CUMM Your value is 5.66 M/CUMMNormal range 4.15 - 5.75 M/CUMM Hemoglobin View trends Normal range: 12.8 - 16.9 g/dL Your value is 15.7 g/dLNormal range 12.8 - 16.9 g/dL Hematocrit View trends Normal range: 38.8 - 50.2 % Your value is 46.8 %Normal range 38.8 - 50.2 % MCV View trends Normal range: 80.0 - 100.0 fL Your value is 82.7 fLNormal range 80.0 - 100.0 fL MCH View trends Normal range: 27.0 - 34.0 pg Your value is 27.7 pgNormal range 27.0 - 34.0 pg MCHC View trends Normal range: 30.5 - 34.5 g/dL Your value is 33.5 g/dLNormal range 30.5 - 34.5 g/dL RDW View trends Normal range: 11.5 - 15.0 % Your value is 14.6 %Normal range 11.5 - 15.0 % Platelets View trends Normal range: 150 - 450 K/CUMM Your value is 321 K/CUMMNormal range 150 - 450 K/CUMM MPV View trends Normal range: 7.7 - 12.2 fL Your value is 9.3 fLNormal range 7.7 - 12.2 fL
COMPREHENSIVE METABOLIC PANEL Collected on May 6, 2024 3:56 AM Results New
Sodium View trends Normal range: 137 - 145 mmol/L Your value is 146 mmol/LThis value is HighNormal range 137 - 145 mmol/L Potassium View trends Normal range: 3.5 - 5.1 mmol/L Your value is 3.8 mmol/LNormal range 3.5 - 5.1 mmol/L Chloride View trends Normal range: 98 - 107 mmol/L Your value is 111 mmol/LThis value is HighNormal range 98 - 107 mmol/L CO2 View trends Normal range: 22 - 30 mmol/L Your value is 23 mmol/LNormal range 22 - 30 mmol/L Glucose View trends Normal range: 65 - 99 mg/dL Your value is 124 mg/dLThis value is HighNormal range 65 - 99 mg/dL Glucose View trends Normal range: 65 - 99 mg/dL Value
If result of random glucose > or = 200 or if result of fasting glucose is > 125 confirm Diabetes Mellitus diagnosis with second glucose on a different day. High Your value is If result of random glucose > or = 200 or if result of fasting glucose is > 125 confirm Diabetes Mellitus diagnosis with second glucose on a different day. mg/dLThis value is HighNormal range 65 - 99 mg/dL BUN View trends Normal range: 9 - 20 mg/dL Your value is 34 mg/dLThis value is HighNormal range 9 - 20 mg/dL Creatinine View trends Normal range: 0.66 - 1.25 mg/dL Your value is 1.23 mg/dLNormal range 0.66 - 1.25 mg/dL eGFR View trends Normal value: >60 mL/min/1.73 M2 Value 79 Your value is 79 mL/min/1.73 M2Normal value >60 mL/min/1.73 M2 EGFR Comment View trends Normal value: >60 mL/min/1.73 M2 Value Either of the following must be present for >=3 months to be Chronic Kidney Disease: -GFR less than 60 for >=3 months -Albumin to Creatinine Ratio >=30 mg/g or other markers of kidney damage
An estimated GFR chronically in the range of 60-89 is categorized as mildly decreased, which corresponds to Stage G2 CKD.
CKD-EPI equation (2021) used to estimate GFR Your value is Either of the following must be present for >=3 months to be Chronic Kidney Disease: -GFR less than 60 for >=3 months -Albumin to Creatinine Ratio >=30 mg/g or other markers of kidney damage An estimated GFR chronically in the range of 60-89 is categorized as mildly decreased, which corresponds to Stage G2 CKD. CKD-EPI equation (2021) used to estimate GFR mL/min/1.73 M2Normal value >60 mL/min/1.73 M2 BUN/Creatinine Ratio View trends Normal range: 6 - 22 RATIO Your value is 28 RATIOThis value is HighNormal range 6 - 22 RATIO ALT View trends Normal value: <50 U/L Value 34 Your value is 34 U/LNormal value <50 U/L AST View trends Normal range: 17 - 59 U/L Your value is 19 U/LNormal range 17 - 59 U/L Alkaline Phosphatase View trends Normal range: 38 - 126 U/L Your value is 138 U/LThis value is HighNormal range 38 - 126 U/L Bilirubin, Total View trends Normal range: 0.2 - 1.3 mg/dL Your value is 0.9 mg/dLNormal range 0.2 - 1.3 mg/dL Protein, Total View trends Normal range: 6.3 - 8.2 g/dL Your value is 8.2 g/dLNormal range 6.3 - 8.2 g/dL Albumin Blood View trends Normal range: 3.5 - 5.0 g/dL Your value is 4.6 g/dLNormal range 3.5 - 5.0 g/dL Calcium View trends Normal range: 8.4 - 10.2 mg/dL Your value is 9.7 mg/dLNormal range 8.4 - 10.2 mg/dL Globulin, Total View trends Normal range: 1.9 - 3.7 g/dL Your value is 3.6 g/dLNormal range 1.9 - 3.7 g/dL Albumin/Globulin Ratio View trends Normal range: 1.0 - 2.5 RATIO Your value is 1.3 RATIONormal range 1.0 - 2.5 RATIO Anion Gap View trends Normal range: 7 - 17 mmol/L Your value is 12 mmol/LNormal range 7 - 17 mmol/L
AMMONIA Collected on May 6, 2024 3:56 AM Results New
Ammonia. 124 View trends Normal range: 9 - 30 umol/L
I'm sorry you had to endure all of that, but thank you for doing so.

I have been dealing with this for over 10 months now following a series of unfortunate events and I am so tired of it, it felt like it just came out of nowhere, one day eating without thinking then the next unable to drink or eat without convincing myself I’m inhaling it all - also physically unable to swallow it.
MY STORY SO FAR: (this is in depth because one thing I realise is I need to share my story for so long I felt like I was the only one, sometimes I still do like no one has this as much as me or in the same way I have)
2023 was a stressful year for me. I had come to the end of my veterinary nursing degree and had my final exams coming up… I had previously left veterinary medicine degree after 3 years when everyone that knew me knew that’s what I wanted to do and expected me to continue with it but lockdown hit, I hated living in London and wanted my family so came home and did veterinary nursing instead. So if I failed veterinary nursing I would be such a failure. ANYWAY. The day before my exam I was travelling to my friends house in Basingstoke about an hour away from where I live, on the motorway I witnessed a crash that had already happened but I drove passed as the emergency services were arriving. So I saw a whole lot as we all had to slow down. My curious mind wanted to look deeply into the scene, and I saw a man squashed up against the screen of his front window pretty mangled. Arm out the side of the lorry. Had my first proper panic attack. Couldn’t breathe, mind spiralling realising he was dead. I went blind, couldn’t see because I was so stressed. Had to stop and call my mum along the side of the motorway just to calm down. Crying hyperventilating the lot. Anyway I eventually calmed down and went and done revision because if I didn’t I’d fail.
All was good, travelled to my exams the next day. Nervous as hell but we did it. A few days later I found out I passed my exams. All being well with pure relief and excitement but with now a feeling of well now what? I’m qualified what now do I have to learn and strive for in life… my whole life at school college and university lead up to this moment, the pure blood sweat and tears… now what? I work for the rest of my life? Same thing everyday?

• ANYWAY. TRIGGER WARNING DONT READ NEXT PARAGRAPH IF YOU HAVE A FEAR OF CHOKING LIKE ME* My dad celebrating my victory took us out for a meal.. everyone ordered steaks or burgers. I turn half way through the meal to look at my 13 year old brother (i was 24 at the time for reference) who has a face like a ghost, not moving frozen in fear with his neck twitching. I ask him if he’s okay he nods, trying to swallow. He then looks at my mum in fear and tries to down a glass of coke. The coke sits in his throat and he just tips his head down and it pours out. I just knew he was choking, he always had eaten his food fast without really chewing. I scream like a headless chicken, flaying around not knowing what to do. Screaming to everyone in the restaurant he’s choking someone help him call and ambulance. Poor waitress had me shouting at her whilst she was on the phone to the emergency services because I was panicking. My brother makes his way in a panick trying to get air outside where two men are enjoying sun and a beer. He’s going blue and could not get a slight bit of air down. My dad walks him extremely hard on the chest and then performs Heimlich manoeuvre which I didn’t even know he knew. The steak flies out and my brother can breathe. Sat around the table totally off our food my brother then proceeds to eat the rest of his steak and orders pudding and we all eat nothing. He’s totally unfaised. I wish I could be like him. Anyway I go back to eating normally within a day or so, not really put off by food anymore. END OF TRIGGER

The next unfortunate event happens couple weeks later, I get my first proper non basher of a car for my birthday/ Welldone for passing exams. My dad buys me a Mini Cooper and I’m overwhelmed with excitement! After 3 weeks of owning this car, one sunny day me and my partner take my sister who is 6 to the beach and water park, and have a beautiful day out with picnic and ice cream. On way home we are singing in the car to Miley Cyrus ‘PARTY IN THE USA’ - setting for you it was literally like a movie scene. Having the time of our lives all singing and laughing. I’m driving, my partners in the front seat next to me, my sister behind me in her car seat. We are 5 minutes from my road, if that and the road slows from a 40mph speed limit to a 30 on a bend, small little village road over a river bridge into a mill village. As we come round the bend starting to go to 30 but most likely still doing around 37mph, we notice a car drifting onto my side of the road coming head on. I didn’t react as quickly as I thought I would in that situation, I remember my last words being what the fuck is she doing! Then slam on my breaks as I realise she is not stopping and she is going fast. As I then slam my break, BAM she has hit us head on. I remember being flung forward and the bang was SO LOUD. I woke up to smoke all around me, a white bag in my face me pushing it down. Then looking at my partner slowly coming too. I don’t remember but my partner says I screamed so traumatisingly he still hears it to this day. I just keep screaming and crying. I remember it differently, I remember looking at my partner and seeing him hit the dashboard and saying what the actual fuck over and over again with pure anger. He undoes his seatbelt and climbs out the car, I realise I cannot get out my side as my door is crumpled and climb out the window. I was so confused as to what just happened I forgot my sister was in the back seat. To this day I’ve never stopped feeling guilty for that. My partner screamed my sisters name and ran in to get her out. She’s unconscious and paler than anything i look around and people enjoying their lunches come running towards us from the mill. I scream someone help her. At this point, all the injuries you have endured, you don’t feel. I was running around perfectly on a broken ankle. People are rushing off with my sister, my partner is running to get her from these people, I’m running around again like a headless chicken so clueless on what I need to do. Calling my mum. Telling her to come down now. The ambulance arrives swiftly as my partners phone automatically called services as it detected a crash - what an amazing thing to be able to have nowadays.
My partner faints in the car, my sister is in and out of consciousness and I am strapped into a bed with blood coming up into my mouth and once we were in the hands of the ambulance team I relaxed a little and the adrenaline started to wear off. I remember feeling almighty pain everywhere, especially my chest and right ankle. I remember thinking if my sister dies I swear to god. My mum screaming panicking my sister was going to pass away. Long story short it turns out my sister was having an adrenaline response and passed out from the pain as she completely fractured her collar bone in half from seatbelt injury. My partner had broken his hand and fingers, severe bruising internally and externally, I had broken many ribs, head injury as on inspection we found out I hit my head and cracked my front screen of the car. I also had a broken right ankle and severe internal bruising around chest and abdomen, I was pretty much blue and purple and black all over my body.
But anyway, we survived. But the pain my ribs caused me made me feel like I couldn’t breathe sometimes so that scared me. Then the trauma from the crash hit and I started to not trust the world, that anything could happen at any time and something bad was always going to happen. I could not bare the thought of going through something traumatic again! I genuinely thought my body wouldn’t be able to hack it I’d just die if I lost anyone or anything bad happened I couldn’t cope.
So I started to have panic attacks after a few weeks, really awful ones. Chest hurt, severe shooting pains, tingly arms and legs, almost numb and weak. Light headedness but also with a band around it, awful stomach pains, along with a lot of other things. This went on many times a day and night and progressively got worse and worse, and one day, I just couldn’t swallow food anymore. The simplest of food like soup, it was like and the only way I can still explain it so people with no issue swallowing get it - try and swallow repeatedly multiple times in a row without stopping, eventually your throat just can’t do it voluntarily anymore and it becomes harder. Well that’s what was happening to me. It got so bad I couldn’t drink anymore. I couldn’t spend a second of the day not swallowing my own saliva and panicking about that. I couldn’t even talk sometimes as I was adamant I could feel saliva entering my trachea. It was THE WORST TIME I HAVE EVER HAD. For reference, I ate 3 meals at once. I was a big girl weighing nearly 15 stone and had trouble dieting because I was the biggest eater going. Everyone knew me and defined me for the girl who LOVES her food and never thought twice about stuffing my face non stop.
This went on for months, of constant panic attacks and thinking I was having heart attacks or lung collapsing that I ended up in hospital countless amount of times because I then developed health anxiety and it became an addiction to make myself admitted to hospital to be check nothing was wrong with me. It got to the point my mum and my partner took my phone off me to stop me from calling the ambulance to come and get me at 3am in the morning, or right before work, AT WORK SOMETIMES or whenever I felt like it. But like all addicts I found a way everytime and they would wake up to me surrounded by paramedics having an ECG. I broke down to one paramedic about my eating so hard that HE TOLD ME TO EAT SOMETHING RIGHT NOW AND IF I CHOKE HE HAD THE EQUIPEMENT TO SAVE ME. I still couldn’t do it. I even bought things to monitor my ketone levels as I’m a veterinary nurse I understand a lot of science behind things and I had lost 2 stone in 4 weeks from not eating or drinking a single thing. I then sent my self into non-diabetic starvation ketone scidosis which then lead me to be in hospital with more time off work inbetween the times I couldn’t go into work because of anxiety, or because anxiety had kept me up all night I was exhausted the next day. Or because I left work because of anxiety attacks. It was horrendous. I had multiple tests done for ALL SORTS OF THINGS. X-rays of chest, CT scans, ultrasounds, blood tests, urine tests, faecal tests, BP, ECGS just everything you can imagine. They found nothing. I then got referred to psychiatricw ward in hospital because they thought I was going insane as I was yelling at the doctors they aren’t looking hard enough there is something wrong with me. My parents were about to admit me to priory despite not being able to afford it.
Anyway over time I got onto meds - antidepressants and had lots and lots of therapy. To this day - 11 months on and I’m still crying that I can’t eat. I really do struggle. However I’m so much better than I was. I’m not up at night worrying about swallowing saliva all night, I’m not having panic attacks anymore. I’m able to eat small tiny mouthfuls of food - better in the morning with a huge bottle of drink. But I still lunge my self forward with every swallow, cry after thinking I’ve inhaled it. Cover my mouth as I try to swallow, grab something. Cough after. Spit food out etc etc. I still get so many chest pains. I still wonder when will it ever end and will I ever be able to scoff my face again. I’m now 11 stone. Frail and weak but also silver linings I’m near my goal weight I’ve always wanted to be since the age of 16!! I take many many supplements and try to make nutritious smoothies most the day to get some fruit and veg in. I weirdly find chicken, cheese and chocolate the easiest things to eat. I’ve seen a ENT doctor and had a Nasoendoscope 3 times. Possible nerve damage but can’t be sure. But my doctors are still all adamant it’s psychological. I’m still coming up with diagnosis for myself, cancer, gallbladderstones, heart disease, COPD, lungs are actually full of food etc. but I’m trying my hardest to keep eating solid foods and powering through. But it is the most tiring and draining thing I’ve ever been through, if I don’t eat I feel so tired and my body hurts everywhere but if I do it I’m panicky tired and done all day thinking about food and trying to eat it. Let alone the fact it takes me 2 hours to eat half a kids sized dinner if that. Possibly even 4 mouthfuls. I’m now have a barium swallow booked in, then if nothing a gastroenterologist to have an endoscope in my intestines etc. if nothing then therapy it is, severe therapy.
Anyway that’s my story. There is a lot missing symptoms and how bad things actually got with phone calls to people and my overall anxiety let alone the relationships were being effected by all this. Then to top it off half way through my recovery from this my parents split up and there’s been a whole lot of drama. I’ve then had to move out with my partner because the drama at home and everyone crying all the time was triggering bad anxiety and eating. I the rescued a stray kitten from my job and had the joys and stress of raising that with a partner who is allergic and hates cats.
But regardless I’ve come a long way in the 11 months, I am now the happiest I’ve ever been - seeing friends and family regularly going out, feeling confident in my body and I have my own place, my own responsibility and my own pet who brings us so much joy. However, I still can’t eat, I still cry and it still feel SO UNBELIEVABLY UNCOMFORTABLE with every bite and swallow.
Please someone tell me it gets better.

I’m a 59 yo post menopausal woman who throughout life blushed easily when embarrassed/anxious. I was on antidepressants for 20 years and spent 5 years tapering off. During the slow taper I experienced burning skin sensations and diarrhea and first brought it up to a doctor about 7-8 years ago. In the withdrawal forums people mentioned these symptoms so I figured it was a normal response while coming off an SNRI and mirtazapine, the latter which can really mess people up with cramping and diarrhea. The intermittent diarrhea continues, going from normal to constipated to loose. I’m chicken so hadn’t done a true colonoscopy, opting for Cologuard stool tests because there’s no history of colon cancer in my family.
A few years ago an integrative care PA treated me with an antifungal, presuming my intestinal issues were yeast overgrowth. Helped for awhile but didn’t last.
I’d been bulimic for a lot of years and sometime in 2010 I woke with severe right side sharp pain. Rather than shamefully go to a doctor, I thought I had done damage to myself and quit the purging for good.
I later learned that a cousin had her gallbladder out - she is a half sister of sorts since our moms were identical twins. I continued to have right side spasms once in a while. Denial. Ignored it.
I went through menopausal hot flashes but they were more of the sweaty version, not full red flushes. I am currently on HRT.
Sometime last year I woke to severe right side pain that almost sent me to the hospital but it passed in about 5 minutes.
Around Christmas it happened again and wouldn’t stop. Ambulance to the ER-bad, but fentanyl knocked the pain down. CT scan showed no gall stones or kidney stones. Liver, gallbladder, spleen, pancreas normal but mild diverticulosis. I figured the diverticulosis was the cause of the intermittent diarrhea. Just deal with it. I should have stayed for a HIDA but was there all day and wanted to get home, intended to do it at an outside place, but life marched on…
Don’t remember when, maybe three months ago I had the first severe flushing episode at work. My boss came into the office and I get embarrassed around him - next thing I know my skin is burning and my face and neck are brick red, spread down to my hands! Took Benadyl but it took more than an hour to subside.
I was also waking to a hot flashy heat at night but attributed it to my HRT timing not being right.
Two days ago I ate the rest of a Thai chicken peanut bowl for lunch that I started the day before with no issues. I went outside for something and felt the flush coming on, same as last time. I purposely vomited lunch for fear the food was the cause. I was due at work but called in to say I was delayed. I looked so hideous, I couldn’t go in like that. When I did go in the redness was much reduced but still present.
I took my BP and it was elevated for me, 128/75 or close to it. I oddly usually run low, sometimes 98/65 or such.
During covid I got a pulse oximeter and discovered that my resting pulse is often high, in the 90’s, but never like that at my doc appointments. With the low BP and fact that I don’t hydrate well enough, I figured the higher pulse might be dehydration. I exist in denial over these smaller things…
I’ve had niggly sensations in my right side lately.
I researched severe facial flushing and stumbled upon carcinoid syndrome and proceeded to freak out.
Never in my life have I experienced flushing to that degree, but once: I ate fish at a restaurant that triggered severe flushing, probably not stored properly- almost 30 years ago.
I can’t get in to my doctor for 3 weeks. I’m afraid he will poo-poo my fear and waste time chasing other prospects first. I will go armed with the three tests.
What does the 24 hr urine testing entail? Can urine be collected on a Sunday and returned the next morning?
I’m on a state medicare plan and am afraid they won’t authorize testing. We used to have financial security but my husband was laid off and we both work low wage jobs now. If I can’t work we can’t cover monthly expenses on his income and I fear losing our house and savings. I know I’m jumping the gun catastrophizing.

A close friend of mine (27M), whom I'll keep anonymous, is facing a series of escalating medical issues that doctors haven't been able to diagnose. It's reached a point where it's seriously affecting his personal relationships with friends and family, and thus, we decided to make a post in this subreddit in case anyone might have a lead to follow.
While I don't have his exact medical history, we've always been close friends, and he's never exhibited any neurological or uncommon health conditions before. Several years ago, he started experiencing involuntary and intermittent spasms where certain parts of his body (e.g., his arm) would move rapidly and uncontrollably. This issue eventually subsided over time.
However, a few years ago, it resurfaced and has since worsened. Coincidentally, it started at the same time he started his first job, leading us to initially suspect it might be related to anxiety or similar factors. The spasms have become more severe and frequent (lasting several minutes). He now also experiences episodes where his jaw "opens up and his tongue sticks out." He says he spends nights awake, sometimes even screaming. There's a recorded video of this, albeit distressing to watch, where his face contorts, and he appears to be a different person while screaming uncontrollably.
It's true that he seems to have some degree of hypochondria. Every time he experiences a physical issue (e.g., ankle sprain), he handles it with extreme caution and refrains from activity for months. Whenever he feels an itch or pain somewhere, he always thinks it's a serious condition and brings it up to us.
Initially, we judged it as something psychological, perhaps as trying to avoid work and adult life. But it's true that his symptoms are becoming increasingly concerning. He has seen several doctors already. The neurologist can't find any explanation for what's happening to him. He has undergone CT scans and MRIs, blood tests, and some neurological examinations, yet they always turn out "normal". The psychiatrist has also evaluated him and found nothing relevant in this matter.
Currently, he's taking diazepam and antidepressants, but there doesn't seem to be any change and he keeps getting worse. I'm also worried that he might become accustomed to relying on these drugs without them having any positive effect.
I have been told some symptoms match with an extreme tourette's syndrome but we are probably wrong since the doctor didn't even mention it. From what I know tourette's syndrome might be more "light" than what is happening to him.
I know it's not much information, but all tests always come back with normal results. If anyone suggests any leads we could follow, I would be grateful. Thank you.
(In case it's relevant, we are from Spain)

Back in Nov 2021 I ended up in the ER due to having severely high bp and heart rate. I believe was a panic attack after I ate. I was tested for everything, CT SCAN, STRESS TEST, BLOOD WORK to see if I had a heart attack everything was negative. Was do with anxiety and sent home, discharge papers stated CT Scan saw small hiatal hernia. I went home saw my cardiologist had an echo and heart ultrasound and he also told me my heart was fine and it was just tachycardia probably caused by anxiety. PCP started me on antidepressants.
I was on antidepressants for about a year and seemed to be doing fine had some symptoms but not to bad I was also on metoprolol for palpations which probably helped.November 2022 I got pregnant and stopped taking antidepressants and metoprolol.
For the past two months I have been experiencing extreme anxiety and I feel it is more after I eat. These are the symptoms I feel. Does anyone have any advice?
*heart palpitations *always feeling bloated no matter what I eat. I honestly look pregnant most of the time. *I have a bulge in my upper abdomen. *lightheadness sometimes *headaches that start at the front of my head and moves towards the back which also makes my neck and back hurt. *anxiety times 10 after I eat a big meal. *high blood pressure when I am anxious *sometimes I feel like I can’t take a complete deep breath
Only thing that seems to help a bit is throwing up after eating a big meal. TMI when I do throw up I notice I have a lot of clear mucus along with my throw up. I am currently waiting for an appointment with the GI. Do you all think maybe the hiatal hernia has increased in size?

My doctor sent me to have a CT myelogram for a suspected CSF leak. Turns out I didn’t have one but the procedure caused one and I had to have a blood patch done in the ER. The contrast they used during the CT Myelogram caused a massive headache which then caused me to vomit from the pain. I have been having residual sciatica pain since. Is that common? Could it be nerve damage? If so does anyone know if that goes away with time?
Also, to those who are suffering or have suffered from a CSF leak I am sooo sorry because that pain and headache is not something I’d wish upon my worst enemy.

Does anyone have any suggestions on dealing with gabapentin and robaxin withdraws symptoms for 72 hours. I have an upcoming CT Myelogram and they said I have to stop usage. I have been on Robaxin and Gabapentin for 5 years. 750x4 a day robaxin and 600x4 a day gabapentin. I am being told I have to halt them for 72 hours. 2 days before and 24 hours after. I am a bit concerned about the withdrawal symptoms and how to deal with it. Any suggestions?? I take robaxin for muscle spasms and gabapentin for nerve pain. 5 level cervical c3-c7 acdf and 3 level posterior laminectomy and fusion c567. They still don't know why I am in so much pain. Last surgery was 7-8 months ago.

Hello, my name is Pablo, and I'm 18 years old. My history with drugs began at 16 when I started consuming cannabis every day. It felt good at first until I began experiencing paranoia and panic attacks, and later, psychotic episodes with antidepressants.
After the summer of 2023, marked by drug use, I began experiencing anxiety, OCD, and daily worries. I also noticed my vision deteriorating and felt disconnected from reality, with confusion and an unreal perception of reality. I couldn't think clearly. I started taking antidepressants in October 2023 for these reasons. My doctor mentioned it could be pseudodementia (a cognitive impairment due to depression). I started with Lexapro (escitalopram 20 mg), which didn't work well for me. I decided to consume cannabis, alcohol, cocaine, and MDMA while on antidepressant treatment. In February 2024, I switched to Vortioxetine (Trintellix 10 mg), but it didn't help much either. I continued consuming cocaine and alcohol.
Right now, I'm worse off than before starting treatment in September 2023. My OCD has improved, but I still feel anxious about never getting better. I fear not returning to my old self. I have terrible memory, concentration, and poor vision (no diopters; I was told at the optician that I have high intraocular pressure, pending an ophthalmologist appointment). I started worrying about this in November; I couldn't watch a movie or perform tasks requiring mental effort. I had to drop out of higher education because I couldn't study.
I used to be a good student, always passing exams. But now, I feel like I've lost a lot of intelligence. In November 2023, I had a brain CT scan, and they said my brain was fine; it was all mental. I've talked to my psychiatrist about this, but it hasn't helped. I would like to seek psychological help and hear people's experiences. Right now, I feel like I'm dead inside, like my life has no meaning. I can't study, can't work, and have no future ambitions.
I am also concerned that the interaction between drugs and antidepressants may have had some negative interaction leaving long term sequelae.
My days are spent wondering if I will ever get back to my old self.

So I’m getting a CT Myelogram Thursday and I had to stop my meds starting today and can’t take them again until Friday. I’m scared to be off my meds and I don’t like how I feel when I’m off them.

Long time lurker but figured I would post to share my experience for anyone else going through this. It took 6 months and numerous negative MRI’s but I was finally diagnosed with a leak in my spine.
Over the past 6 months I’ve had the following symptoms. Initially the symptoms would go away after lying down but over time the symptoms became constant.

• Neck Pain
• Pressure in head (No headaches)
• Blurry Vision
• Nausea/Dizziness
• Lower back ain
• Chills down legs
• Ears feel clogged

Over that 6 month period I visited three different doctors; primary care, neurologist 1, neurologist 2. I had 10 different MRIs (Head, Lumbar Spine, Thoracic Spine, Cervical Spine) with and without CSF leak protocol. All 10 MRI’s were negative for a CSF leak.
Quick summary of my experience: My primary care had no clue what was wrong and I asked him about a CSF leak after finding Dr Ian Carrol’s videos on CSF leaks. He referred me to neurologist 1. Neurologist 1 thought it may be a CSF leak but moved on after negative MRIs( without CSF leak protocol). Neurologist 2 re-ordered MRI’s with CSF leak protocol and a CT myelogram. Neurologist 2’s MRI’s also came back negative (with CSF leak protocol) but showed some cause for suspicion (herniated disk effacing thecal sac). Based on the MRI neurologist 2 ordered a CT myelogram in my lumbar spine which finally confirmed a leak.
My biggest takeaways from this whole experience:

1. Go to doctors with spontaneous CSF leak experience.

It’s shocking how little is known about CSF leaks and if you go to doctors without experience they may lead you astray.

1. Get an MRI WITH CSF Leak protocol and a CT myelogram.

I’ve never heard of CSF leak protocol before this experience. From my understanding, a MRI with CSF leak protocol is a high resolution MRI used to pinpoint where to focus the CT myelogram. Without both I highly doubt I would have been diagnosed.

1. A negative MRI and high opening pressure does not mean you don’t have a CSF leak.
   In all of my MRI’s I never had any signs of a leak. Neurologist 2 took a chance with a CT myelogram after seeing a herniated disc coupled with my symptoms. My opening pressure during my lumbar puncture was 23 cm H2O (normal is somewhere around 20 cm H2O)
   

It’s been an absolute struggle juggling work, doctor’s appointments, and feeling like shit over the past 6 months. Hopefully this helps someone else going though this find a faster diagnosis than I did.

I’ve had up and down AST and aLt for almost 10 years…. I do take an antidepressant that may contribute to it. I’ve had ultrasounds and ct scans done along the way along with panels for autoimmunes and hepatitis . Nothing shows anything. Liver ultrasound done two years ago was clear, I’m due for another one soon. I’m wondering since my cholesterol is high if I should just assume it’s fatty liver. I also get upper right sided pain. I do like junk food but I’m not over weight. My liver specialist does not think it’s alcohol related so he said one alcoholic drink here and there isn’t a problem unless it’s excessive then no. My elevations are always just with in 4-5 points out of normal range.

I thought I was finally okay...I had left behind all the trouble in the past, I was doin so great, gained weight and livin the life. But since this year started things little by little started going bad. At first I thought it might be normal....but here I am after 4 months .... everything has gone back to how it was and even worse, stomach issues, insomnia, depression everything is back. I lost 5 kgs in just 2 months. For some reason antidepressants are also not working. On top of that , I recently got blood test done and my cholesterol is so high that I am literally on the verge of heart attack. So I decided to stop taking anti depressents.... idk what kind of cursed object I touched in the past ...but it is too much. .....I cant even bring anything in front of my parents, because anytime I tell them about my issues , they start giving me lecture and taunts and side eye and stuff. I am se fed up. I did so many tests done even abdomen ct scan but every test result comes out negetive....so then what exactly is the issue. I am so fed up....I don't know what to do at this point.

Being told I need to stop my Gabepentin and Robaxin 48 hours before CT Myelogram. Problem is I have been on these medications for 5 years and solid since 2021 I am on 2400mg a day of Gabapentin for nerve pain and 3000mg of Robaxin(Methocarbamol) muscle relaxer a day. That is an issue because both can cause issues stopping these medications especially the Gabepentin. Has anyone had this experience?

Hi everyone, nearly 6 months ago I had an epidural spinal for my sons planned c section. Within the week of his birth I had horrible sciatic pain shooting down my right leg. The potential for a CSF leak was never mentioned. Everyone assumed the sciatica was from pregnancy (which it still might very well be). But here’s a piece of the puzzle:
After my sons birth I had terrible, terrible nausea. I couldn’t eat most days and ended up losing my pregnancy weight within 6 ish weeks. (Roughly 50lbs). I also had horrible headaches. Everything was chalked up to postpartum hormones.
Now nearly 6 months later, after a potential leak was seen by fluke in an MRI (ordered to try an diagnose sciatica pain) I had a CT myelogram done that confirmed a CSF leak from my L4-L5 to my L2 on the left side. Exact terms are:

1. CSF leak identified at L4-L5 on the left with focal left-sided dural defect and spillage of contrast into the epidural space and the left neural foramen at this level. Extrathecal contrast material tracks cranially in the left anterolateral epidural space up to the L2 vertebral level.

The sciatic pain I’ve had has been on my right side, but is there ANY hope that this leak on the left side is what’s been causing my right side sciatica pain?!? I’ve done all the therapies/conservative measures and had cortisone injections with no relief….I’m only 27!
Any thoughts/ideas are appreciated! Waiting to hear back from the neurosurgeon on their thoughts.

My symptoms don't really line up with anyone else's regardless of where I look. Things started for me at 13 after being sick with a cold in PE. I decided to play basketball that day even though I was sick and I spaced out really bad, like time was skipping all around me. This went away when I sat down. Later when I got home, I noticed that my vision was off and that I had increased visual noise that I could see with my eyes open and closed, different from how visual snow looks, and that when I tried to look at something, it felt like I was looking in a general direction but not focusing exactly on what I was looking at. This was very slight and didn't really cause issues, but basically my perception was very slightly off to the point where I didn't know anything was wrong. This never went away but never progressed, it felt like maybe something happened that caused me to have some sort of neurological dysfunction based on how things progressed to where I am now. I developed painless ocular migraines during this time which went away, every time the the painless ocular migraines went away, it seemed as though the visual noise looked a little bit clearer. At 19, my symptoms got worse after I was doing something with poor lighting with bad posture for prolonged period of time. Afterwards, I felt very off and the visual noise slightly increased, it felt like all of my senses were off and my memory was bad, this never went away ans never progressed, I accepted it and moved on with my life even though everything was off. At 25 I was watching a movie at the movie theatre, didn't want to put my head on the back of the seat so I sat with forward head posture throughout the movie. The next day I woke up, I looked at my phone and started to get pain at the back of my head, the pain went away when I put my phone down, and resumed when I looked at the phone again, I tested it at the time. I turned my game on and then started to get head pain at the back as well. Next semester in school I noticed the visual noise has gotten much more noticable. And where it was only really visible at night before, it was very clearly visible during the day. I describe it as visual noise because it doesn't look like visual snow. I ignored the pain at the back of the head when using digital devices and just went on with life (I was in college so nothing I could really do to avoid digital stuff). Over the next few years I noticed the visual noise slowly progressing, but it didn't come with any increase in neurological issues since what happened at 19. I would notice I had to move closer to the TV etc because I was trying to see through the transparent visual noise that has become stronger. In February of this year, everything imploded after gaming one night, next day I woke up feeling a bit off with heavy eyes. Over the days the head pressure got worse, and the visual noise was worse, along with severe cognitive decline and all of my senses being off and foreign to me. Basically everything at 19 had gotten much worse. Every day things continue to get worse and worse, my vision has slowly gotten blurier each day and all lightbulb type lights look brighter to me. I have mild astigmatism but never had light sensitivity. I have had CT scan of head done throughout the years, one recent, one in 2018, and one in 2013 at 19, all unremarkable. I have had thoracic and cervical xrays done, showing unremarkable but slight scoliosis. I as well as a nucca chiropractor noticed that my neck in the X-ray is leaning to the side in a weird way (I have not had any adjustments). I also have a straight neck, which I'm sure many people do, but the neck leaning thing is a bit odd to look at. The best way I can describe the way that I feel, is that it feels like all of my senses are being compressed , everything from memory, to sight, voice and sounds, taste, and general perception ,like something is putting pressure on the back of my head that is causing some kind of neurological dysfunction. It is like how dpdr, dissociation is, but not like that. I have never done any drugs in my life, never smoked, never drank alcohol, never anxious, and have done my best to live life as stress free as possible mentally, even in college I was carefree because I believed stress is a silent killer, and because of what happened to me at 19, which at the time I didn't see how this was all connected, I was extremely humble and just grateful for what I had in life, and didn't believe in getting stressed over much of anything. I also rarely if ever get sick, haven't been sick with even a cold since I was a kid. Never got covid. Blood work normal. I have exercise intolerance from a heart murmur that went away as a kid, and have mild pots like symptoms that I developed in late 2019 spontaneously. My blood pressure is normal for the most part, blood glucose is also normal. But all of that seems completely unrelated to what I've experienced that occured following specific situations. I have come here again today because I am just trying to find guidance. My situation is so severe, but with no clear reason as to what I'm going through. I can't tell if the cold in had as a kid caused me some kind of brain damage, or if my spine is actually somehow pressing against my skull in a weird way and causing some weird amount of compression that are in a way filling all of my senses, memory etc. it feels like whatever I am dealing with has a physical component to it and seems very time sensitive. The way the progression has been is everything gets worse simultaneously without question, and has never gotten better. So I don't think it is diet related or mold related, I have lived in 5 different places and I am very certain all of those places didn't have mold oved the years, not only that but my symptoms have never once fluctuated, only gotten worse. I feel like I have one of the most mysterious weird cases going on here and feel like I have some sort of brain damage or something very off. I have never been in any major accidents. One time as a kid I fell off a swing set and hit my chin on black concrete, so it is softer than usual.. I had some scrapes but my chin healed up fine. I don't have tinnitus. One weird thing is I had a really bad dentist as a kid, who put a bunch of unnecessary fillings in my mouth, my dental health is not the best because of that and I do have broken teeth, but if unless something silently imploded, I don't think that would be related to what is going on, unless I have some kind of tooth infection that has been going on for years that spread to my brain. Last time I went to dentist for cleaning was December 2021, and the dentist just said I had very mild gingivitis but noted no infection. I also had a couple teeth pulled randomly in 2018, which was not told of any infection if I had one. I am giving all of this information because I am stumped and am trying to find solutions but I really don't know what I should even do. I feel like if I went to a doctor with this I'll be thrown on antidepressants and that'll just be the end of it. I live in northeast Louisiana and healthcare here is not the best. I was just recently approved for Medicaid Aetna but am waiting for the card to come. What I am going through is truly traumatizing, but I can't and won't bring myself to panic or freak out over it, as I know that will just make things worse, I've always been extremely level headed. The one thing that worries me is that I will be left in a vegetative state very soon if I don't do anything to stop the progression of what's happening. I am in a very weird situation where my symptoms do not seem to align with the brain fog community or with the dpdr and dissociation communities. The only thing I can say, is that this slow progression has been happening since I was 13, and everything im experiencing today I feel as tied to what started or began back then. And the only things I can think of is the cold I had, and the slight scoliosis that has probably been there my entire life. Another thing is that I am a glaucoma suspect, I forgot what it is due to, but I do not believe raised pressure. However my optometrist noted my vision at 20/15 when I went last month and neurolens glasses (essentially prisms) made no difference, so it is likely not a binocular vision issue on my end. It seems like something is throwing off of causing some kind of compression on my entire neurological system. I am also the only person in my family that has exercise intolerance, and I am male. It seems like whatever I am experiencing are causing neurological symptoms similar to that of dpdr and dissociation, but not actually those things in and of itself. It's like there is a physical component that is causing these symptoms, and I say this after researching dpdr and dissociation a lot just to make sure, even watching hour long videos on it to see if my symptoms aligned at all, but they don't. What I'm dealing with seems very extreme and has been slowly progressing for years. So I come to this community again in just hopes of hearing any and all thoughts related to this and my theory. In hopes that maybe even one person can look through my entire post and help me narrow down what could be going on. I understand if my symptoms go a little beyond what is typically seen on the subreddit, and that the fact that my symptoms have only progressed makes it even more difficult to find the answer. But I really hope anyone can help and converse with me even a little about this so that maybe I am able to figure this out. I don't want to throw things off, but stomach X-rays typically show I have full stools, it always seemed like I had endless p**p even as a kid and I can sit on the toilet forever. I don't believe this is relevant to the situation, and that it may just begin some rabbit hole I can't mentally afford to go down, but I just want to honestly put everything out there. I do not have gerd or heartburn, I do have a family history of hypertension, which is why I went vegetarian in 2018, I do not eat much salt. I am of African American ancestry and we are more sensitive to salt so I have always been conscious of it my entire life as to not gain high blood pressure. Over the years, after what happened at 19, 25, and 30, my head gets hot really easily, much worse now and I can no longer wear stuff on my head. I have thought of stuff like iih because of this and due to the head pressure at the back of head. Well, I think that is everything I have, I hope I didn't throw anyone off with the new information, but my theory centers around what happened at 13, and possibly something structural in my body that aggravated these symptoms. I am going to post my cervical and thoracic X-rays since I feel I am desperate and just any advice at all helps out a ton. Because maybe it's even possible that something related to the way my neck curve could be causing these odd symptoms as well as some kind of light cervicogenic pressure that has been aggravated due to postural events. I will link my X-rays after posting them. I am of normal height and weight, my posture is poor due to years of inactivity outside of walking, my neck is not often sore or stiff, though I do have slight upper back discomfort between the shoulder blades that started recently. However, I am doing door dash for money as of the last couple months to save money before I no longer feel safe driving. Thank you for taking the time to read my post, if anything at all helps me I will come back inform.
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TLDR: my mom switched our PPO insurance to an HMO so I can no longer see my mecsf specialist in another state. was about to do some testing I was really hopeful for
Hi all im 23 and have had mecfs for 3.5 years. Me and my fam have a PPO insurance and the last year Ive been traveling out of state to see a specialist that I really really like. He does all the right testing and really listens to my concerns. BUT my mom thought it would be a great idea to switch our insurance to an HMO plan now.
We are a pretty well off family so this is aggravating to me, its not like we are struggling for money at all weve had this insurance for several years. My parents have always been dismissive of my condition and never try to seriously help or listen to what I have to say about it. They just like to force me to go to smalltown primary care and cardiologist doctors that make me run on a treadmill for 6 minutes and tell me im fine and need to enjoy life more im so young. I dont want to hear about different ways I could try to talk to them about it. I have tried every approach possible. They are closed minded MAGAs theres no way to talk to them logically.
I am not working and living at home. So to try and ease the tension of our relationship more Ive been getting foodstamps and secondary state medicaid to help pay for my copays left over from the familys PPO insurance. I have also been doing small side projects to pay for gas and stuff. I have tried to make myself as small as possible but they just find new ways to fuck me over liking switching our insurance to an HMO. My mom says i have no reason to ever see a provider out of state. I begged her to just wait a few more months at least so I can get this testing done first or until I graduate and maybe can get a job that will give me insurance but she doesnt give a shit. I have invested hundreds in travel fees just to see this doctor, obviously without my parents help in any way.
I just get so frustrated when I see other people my age with this condition that have parents at least trying to help. Ive seen some super star parents that cook every meal, wear masks, go on FB groups to try to find docs or help, are cognizant of when they are in a crash and help with clothes and lowering stimuli. But if you think for a second my close minded parents believe that shit youre dead wrong. When im in that catonic state and need rest they will barge in my room and start yelling at me and even hitting me to get up and chase my through the house and outside saying they are going to take me to a psych ward. I know it could be worse but it could also be not this fucking bad all the time.
Im sorry this turned into another rant about my parents. My main question in all of this is how can I keep seeing this doctor? For those who dont know an HMO only works for the state you reside in. But I think his hospital accepts National Medicare which works in all 50 states. The issue with that is I applied for supplementary income because i dont meet the full social security disability requirements and I was still denied. So I doubt I could receive Medicare. He wanted to do one special test called a CT Myelogram and I think it could cost $3000-5000 out of pocket. This testing can help identify CSF leaks, tethered cord or other issues with CSF flow which im positive i have due to daily positonal migraines, history of a whiplash, and also having EDS. I could do the testing locally in Illinois but ive heard nothing but bad stuff about the team at Northwestern. If im gonna do this test I want to go somewhere I feel comfortable and ik the radiologist and doctor looking at it will be competent and thoroughly examine my testing.

Hi all,
I saw many individuals here who have gone through similar stuff as I did but most of those threads ended up unanswered or unsolved. I'm just looking for possible solutions from people who might've managed to solve their issue and didn't have time to update their threads or didn't even open one because it's affecting my quality of life very immensely last two years.
29M, 180cm, 88kg, and living in the EU, IBS and reflux sufferer since 14, moved into a new apartment in July 2022 and a couple of months later I started to have nasal inflammation (no infection, no runny nose or no mucus just nose getting blocked like concrete) and breathing problems through nose gave me tens of other physical anxiety symptoms which last year ended up in 9 months of antidepressants and psychotherapy. Since I moved in, I have observed silverfish around the apartment from time to time and since they are an indication of dust and dust mites, my focus was always on fixing probable dust mite issue. Although if mites existed I believe they would've been already eliminated because of the stuff I tried.
Stuff I tried:

• Examinations by ENT and family doctor
• Stop consuming milk products or at least lactose most of the time.
• To reduce dust mite and silverfish population, lowering the humidity, lowering the heat, and getting rid of dust/papers/cereals in the apartment.
• Administrating Avamys spray for months (Fluticasone furoate)
• Administrating Nasonex spray for months (Mometasone furoate monohydrate)
• Administrating Flonase spray for months (Fluticasone propionate)
• 240mg Pseudoedepherine tablets (can't use them anymore due to triggering physical anxiety symptoms)
• Crebros antihistamine tablets (Levocetirizine dihydrochloride)
• Loratin antihistamine tablets (Loratadine)
• Neti Pot (Water + Salt + Xylitol)
• Saline sprays (Water + Salt)
• Nasal Inhilator (Ocalyptus + Menthol)
• Moistruzer nose spray (Natural oils)
• Allergodil antihistamine nose spray (azelastine)
• Air Dehumidifier
• Air Humidifier
• Air Purifier
• Keeping windows open for days
• Vacuuming floors and furnitures daily with HEPA filtered self-cleaning robot, 800W HEPA Filtered floor Vacuum, HEPA Filtered Cordless FlooHand Vacuum, and Mattress Cleaner emitting UV light.
• Xylometazoline spray (This becomes a last resort if I can't sleep at night, but I can live without using for months)
• Nasal strips (Using at nights, they somewhat saved me from dependency on Xylometazoline)
• Massage Gun in case if the nasal issues are the result of constant muscle tension instead of vice-versa.

Tests conducted:

• Blood allergy test for common allergens (which came out negative for everything)
• Nasal endoscopy by ENT (Some dryness was found, but no polyps, no deviation, no infection)
• At home Sleep Apnea Test by sleep clinic with and without CPAP (No apnea or blood oxygen issue was found, but intermediate hypopnea was found probably due to nasal inflammation)
• Nasal breathing test, which showed improvement in breathing through nose when Xylometazoline is administrated which kinda indicates the Xylometazoline dependency but quitting the spray for months doesn't show any improvement. Go to QuitAfrin and you will see no one had issues after quitting the spray for at most two weeks.

Things I did not try yet but I will be looking into this year:

• VivAer or any surgical procedure
• CT Scan (Tomograhpy) on sinuses
• Seeing an allergist
• Mold test
• Test to see what chemicals are used for wall paints. (Happened to another Redditor)
• Lose weight (I was 65 kg in 2020, last year ended up almost 100kg due to antidepressant but I already started having health issues when I went over 80 kg in 2021.)
• Wheat-free diet, keto diet and other anti-inflammatory diets.
• Wet fasting, dry fasting, daily intermittent fasting.
• Acupunture, spa, sensory deprivation tank, massage, exercise/cardio/lifting at gym, yoga to reduce anxiety and also sauna (one Redditor fixed his issue permanently by going to sauna only two times)
• Kimchi powder

I'm open for all recommendations, Thank you.

I've read a few posts and it sounds like quite a few of you have experienced the exact same issues I'm having, so I'm convinced that is what I'm suffering from. I would like to post my story here, for advice or support, from people who can relate.
In late October, I started having breathing issues. They quickly became severe and I went to see my Nurse Practitioner several times, twice of which she sent me to emergency. My experience in the ER was...stressful. It felt as though they brushed me off, and the second time they told me it wasn't an emergency and I had to go. They talked me out of getting a CT scan, and someone from internal medicine told me there's nothing they can do, so I went home.
My NP was immediately on top of things. She got me a CT scan, an MRI, an EKG and a pulmonary test, as well as a breathing test that I can't recall the name of, and a sleeping test as I was/am having problems sleeping. Everything came back clear, good, positive, with the exception of a 'nodule' in my lung from the CT which she wasn't terribly worried about, but has me on regular CT's to keep an eye on it.
I had been off work for a two months at this point. I couldn't get a good deep breath, talking was hard as it made my symptoms worse. I was gassy, burping for hours after even just drinking water so I hated to eat. I couldn't eat anyway without feeling out of breath and so I lost a lot of weight. I tried two different inhalers, (symbicort and one other I can't remember) and neither lessened my symptoms. At this point, my NP was lost on a diagnosis and told me it is probably long COVID, and that there were no resources in town for help but she would continue to support and work with me.
It is now 6 months later and I still feel as though I can't get a full deep breath without forcing it and gulping in air, but I do feel well enough to work more regularly and I am eating normally without the incessant burping. However, now my back is sore and has been for the past two weeks, right behind my right lung. It hurts to force the deep breaths so much, so I'm torn between trying to breath or saving my back pain. I've tried hot/cold treatments, but ibuprofen seems to help the most.
Recently my NP prescribed me with an anti depressant/painkiller, Cymbalta. I took one pill and felt absolutely awful, and that's where I am today. I don't know if I should keep taking this pill, since I am having darker thoughts than I normally have but I don't know if I'm at the point where I need to take an antidepressant. Some days are better than others, and some weeks are worse than others. It's been an absolute ride that I didn't want any part of. I didn't even have COVID at the time it started happening! I had gotten it earlier in the year, in the spring around March, and then felt fine up until October.
Anyway, finding people who describe the same symptoms as mine has been encouraging and I'm convinced that I could only have long COVID. For those of you who feel better, how long did it take? Did anything help, or was rest the most important thing?