Fever constipation

My fiancé had an emergency appendectomy about 4 weeks ago. The surgery went well, and the appendix did not burst during or before removal. Prior to the surgery, the CT also showed he had an unobstructed kidney stone and an unobstructed gallstone. The surgeon offered to remove the gallbladder too (in case there would be issues later) but he declined, as unnecessary gallbladder removal can cause a lot of complications (I myself have some of those, as does my brother. Surgeon said these complications are about 1 in 3 patients. His gallbladder has never bothered him, so why roll the dice?)
He was really sore after surgery but was doing better each day and on track for recovery. He went back to work after 2 weeks. His job is more physical and requires walking several miles, so post-pain we initially chalked up to all the walking. At about 3.5 weeks, the pain got much worse, and he was in as much pain as he had been after the end of week 1. The pain was on his left lower abdomen/side, and the pain stretched toward his belly button. They had gone in laparoscopically on that side, so figured it was his incisions bothering him.
His incisions all looked good and still do. No redness, drainage, etc. Then he spiked a fever of almost 103. We went to the ER and they saw in his chart that he had had an unobstructed gallstone. The ER team focused on that gallbladder hard and was trying to get him to have it removed before they even got any testing back. They did a blood panel (his WBC count was a little elevated, but nothing insane), an x-ray, a CT, a urine test, and an ultrasound. They lied and told him they did Murphy's Test on him and that his gallbladder had thickening walls and was inflamed. But they never did the Murphy's Test and he has and had no pain in that area. They really scared us, saying he could die etc. In the end, they called another surgeon to look at the scans and they said to cut us loose if he wasn't having pain. They gave him no antibiotics and just told him to follow up with his doctor.
He called the surgeon that had done the surgery and the surgeon said he did not see any wall thickening or inflammation in the scans. He said the gallbladder looked like it had before his surgery. He also said the CT did not show any abscesses or infections. So on top of everything else, we feel like the ER scared us for...What exactly? Money from an unnecessary surgery?
Over the weekend, his pain worsened, and he kept teetering between elevated and low-grade fever. He has been very constipated. His pain also began to stretch lower into his pelvis, and now into his balls. He seems to have some sort of lump on his pelvis - I'm not sure if its a lymph node or what it is.
He went in to see his primary care doctor yesterday who ordered more blood tests and then scheduled an ultra sound for today. His blood tests were pretty normal, except for a 13.1 mg/L high sensitivity CRP. Today, he also now has a rash developing on his arms and legs. We're just really worried and have no idea what is going on. Has anyone else experienced something like this or have any ideas?

23M Hello everyone. I know that I am particularly young to have this condition, but my older brother, dad, and uncle have all had this condition in their 20's and all had to get surgery. It's a family thing for me. Also I should note that I have no other health conditions other than anxiety and a nicotine addiction lol.
Yesterday I was working and had the worst stomach ache all day and thought I was constipated. It should be noted that I have never had issues with constipation. Went home and could barely sleep because the pain was so bad. Around 3am I developed a fever, which went away after I took some Tylenol. Called out of work today and went to urgent care. Aside from the painful experience of waiting for 4 hours, I found out that I have diverticulosis with a mild case of diverticulitis. Damn, I thought I was going to be the lucky black sheep!
The doctor has me on a liquid diet for the next couple days and then has me going on BRAT for a few more days after. I am aware that this is a condition that I will have for life and will have to avoid flare ups. For when things get back to normal, I would like to know what you guys have found to have worked in your diet. I hear that during a flare up, you go no fiber... and when you're normal, you go high fiber. Please let me know what foods you avoid and what foods work the best for this condition.
Thanks so much for your time.

(19M, 5'9 155 lbs.) Hi, this is gonna be a bit long, but let me explain the entire situation so far:
Going back about a year or so, I started noticing an elevated heart rate above what I usually would have. I have an apple watch that allows me to check my heart rate, and around this time I started to get notifications that my heart rate was above average (in the 120s to 130s range while resting as opposed to my normal 60-80 range). This happened a few times along with some very minor chest pain / tightness, however after laying down for a few hours / going to bed it would usually return to normal. Around the same time I got diagnosed with anxiety and ADHD and placed on an SSRI to help my anxiety after trying ADHD meds and not liking them. I never really had any incidents with high heart rate after that, so I had assumed it was just anxiety causing it (and that may still be the case). A few months went by and I ended up starting college and got myself a girlfriend. As I ended up finding out, SSRIs, while great, have the unfortunate side effect of erectile dysfunction, so I weaned off my meds so I could prioritize my love life. There were a few incidents after this where my heart rate was above average, but again I just chalked this up to anxiety, as it would usually go away on its own. At one point I went into my on campus doctor's office just to verify my heart was okay after an elevated heart rate the night before, and they gave me an EKG which came up clear. Months go by, and things are fine, besides a slight uptick in anxiety. Unfortunately however, my relationship began to crumble and my anxiety skyrocketed, and we eventually broke up, which led me to talking to my doctor and getting placed back on anxiety medication. However, I really didn't like how SSRI's impacted my libido, so after trying a few more SSRI's I was placed on Buspirone. I love Buspirone, and it's made a noticeable difference on my confidence / reducing anxiety. When I take my full dose at once (30 mg), I tend to get a bit dizzy / nauseous, however when split up into 10 mg taken at breakfast lunch and dinner I have no noticeable side effects. I will say (and I don't know if this is in any way important but I'm just naming everything possible), I have noticed that since stopping the SSRIs and starting Buspirone I tend to ejaculate VERY fast which is abnormal for me, and although I would like to fix that it is not my main concern. Moving on though, after about a month or two after being placed on Buspirone, we get to where my heart problems start. As someone who had never used any substances my entire life, leaving home and going to college gave me the freedom to try new things, and although I know it's not great, on weekends me and my friends will get together and drink or occasionally smoke weed / take an edible. I was worried at first about interactions with my medication, but after some research all anything online could tell me was that I may get drunk faster / more nauseous and dizzy, which wasn't too big of a deal for me. I had tried weed earlier in college and didn't like the way it made me feel, however after being placed on Buspirone I decided to try it again and actually enjoyed the feeling, so I started doing it more on the weekends as opposed to just drinking, which leads us to the incident. Me and some friends had just sat down to watch a movie, and all taken an edible. Time passed, and I started to notice that my heart rate was extremely elevated, way more than I was usually used to. I checked my heart rate, and found that my watch was displaying an average of 160 bpm. At first I thought I was just having a bad high and tried to calm myself. I laid on the floor and put some ice on my forehead, but nothing was helping. I checked my heart rate again and saw that my watch was displaying 190, which really freaked me out as that was way higher than I had ever seen before. I had my sober friend call Public Safety for me, and they came to my dorm room and did a basic check up on me. They said that I had a fever, and when they took my heart rate they got something in the 160s range. Their explanation was that my anxiety, when combined with being high and likely being sick made my heart rate elevated, which made sense at the time. I went into my college's health services to follow up the next day since my heart rate was still elevated (in the 120s-130s range), however they again told me it was probably just anxiety. A few days went by and my heart rate was STILL above average, so I decided to double check with my real doctor off campus. About a day before this I had also stopped taking my medication to see if it could be the cause for my elevated heart rate. The doctors took my vitals and immediately noticed that had very high blood pressure and an elevated heart rate, to the point where they sent in a second doctor to recheck my vitals and make sure it was correct. After talking to me and having me give a run down of my symptoms, they had me schedule an appointment with a cardiologist and told me that if I ever experience chest pain and a heart rate above 100 bpm that wouldn't go down to go to the hospital. I had also told them about how I stopped taking my medication and they told me that that was fine and to tell the cardiologist about it. About a week passes, and I have my cardiologist appointment in a few days. I had been up the night before working on my final exams, so I hadn't gotten much sleep, and besides a breakfast sandwich that I had for lunch I hadn't eaten much either. I had been experiencing chest pain all day, but I assumed it was being caused by my lack of sleep, so after classes I went and took a nap. After a few hours I woke up, and immediately noticed that I still had chest pain. I checked my apple watch, and my heart rate was displaying roughly 90-110 bpm while laying down, which on top of the chest pain made me worried since my doctor had told me that that was cause to go to the hospital. I called my parents to tell them about it, and they drove to the school and had me sit in the car and eat some food they had made to see if it would help at all. However, even after this, my heart rate was still above 100 bpm and I still had chest pain, so my mom made the call to bring me to the hospital. While on the way to the hospital, out of nowhere my heart rate increased to about 170-180 bpm, which freaked me out. We arrived at the hospital, and they immediately gave me an EKG to make sure I wasn't going to drop dead. During this time, I also was shaking a lot and couldn't make myself stop. Eventually they took me into a room and decided to run some tests on me. The tests they did are as follows: BASIC METABOLIC PANEL, CBC WITH DIFF, TROPONIN NH, D DIMER DEEP VEIN THROMB LEVEL, TSH REFLEX, X-RAY CHEST PA AND LATERAL, and ECG-12 LEAD. While I'm not a doctor, from what they told me and from what I can see, everything turned up pretty normal. My potassium was a smidge low, as well as my MCV and MPV, and my Monocyte (absolute) was a tad high, but generally nothing to worry about. The website where I'm viewing my test results display my ECG as abnormal and an attached document says I have left atrial enlargement as well as sinus tachycardia, but they only mentioned sinus tachycardia in the hospital so I assume that it was just the machine reading my test results and giving its own diagnosis. Long story short though, I left the hospital a few hours later, and although I still had a slightly elevated heart rate they said I was fine to go about life normally and to follow up with my cardiologist. Cut to the present, and I just met with my cardiologist a couple days ago. I gave him the general rundown of the above story (but didn't mention the edible as a precursor to the 190 bpm heartrate as my mom was in the next room over and the door was wide open), and after checking my vitals he told me that although I did have an elevated heart rate and high blood pressure, my chest pain probably wasn't a huge concern and that he wasn't too worried it was anything life threatening. He told me I could resume taking my meds (which I had temporarily replaced with ashwagandha supplements while I waited for the appointment and have since stopped taking), and had me wear a little device that monitored my heart rate for 24 hours, which I'm set to return in a couple days. He also told me that when I returned it he would check my results and give me an echocardiogram and go from there. So, with any luck, he should be able to figure things out then. However, I wanted to post this to see if anyone could help me get any ideas on what it could be that I could run by him to help speed things up. Oh and one last thing, if you can't think of anything in regards to what could be causing my elevated heart rate, I actually would like to know why I'm ejaculating so fast so I can fix it because its gotten to the point where I can't even enjoy masturbating because of how fast I cum.
In case I missed anything, here's a list of my symptoms (although I have no idea if they're all correlated):
- High heart rate (anywhere from 90-190 bpm)
- High blood pressure
- Chest pain / tightness on my left side and does not hurt more when I breath in / out (every now and then pain extends to my neck and shoulder)
- Frequently tired
- Insomnia (could be correlated with the above symptom lol)
- Get out of breath faster than usual
- Anxiety (already had this though)
- Mild depression (probably from my breakup)
- Lack of motivation (probably from my ADHD)
- Very rare and random spasms in my neck
- About 10 pounds weight loss in the past few months
- Headaches (could be from the meds)
- Sexual Dysfunction
- Minor rash under my eyes that’s been coming / going
- Eczema / rash flare ups past few months above my eyes, on my inner elbows, on my hands, and on my neck that I’ve been able to get rid of with a steroid cream
- Wrists, elbows, knees and ankles (although many joints in general) tend to bother me / crack a lot
- Glands under my neck are frequently swollen
- Rashes on the tops of my feet and toes
- Multiple gray / white hairs appearing in the last few months
- Probably something minor that I'm forgetting but if I can't think of it it probably isn't important (will update this list if new symptoms arise)
Brief family history:
- Grandma (moms side) has rheumatoid arthritis - Grandma (dads side) had multiple sclerosis - Great Grandma (moms side) had Alzheimer's - Aunt (moms side) has an undiagnosed heart problem - Aunt (moms side) has rheumatoid arthritis and Reynaud's, inconclusive testing for lupus - Aunt (dads side) has something? something to do with swelling of feet and ankles? not too sure - Mom had anemia
​
My personal theories (I'm not a doctor though so obviously not too sure): Autoimmune Disease + Dysautonomia: - From a list of symptoms, I have experienced all of the following at some point over the last month: Lightheaded when standing up, nausea, brain fog, fast heart rate, high blood pressure, changes in bowel movements over the course of the past few months (both constipation and diarrhea), fatigue, sexual dysfunction, chest pain and discomfort, shortness of breath, heart palpitations, sleeping problems, dizziness, sweating a lot, watery eyes, frequent headaches, changes in body temperature, drooling (when I sleep), mood swings, anxiety, and sensitivity to light. Based on this a potential theory could be an autoimmune disorder on top of a heart condition? Also explains the elevated monocyte (absolute) levels. Serotonin Syndrome: - I was doing research and discovered that Buspirone, when taken with other medication that increases serotonin, can cause serotonin syndrome. After another google search, I found out that weed can increase serotonin levels. The only hole in this theory is that I stopped taking Buspirone after the initial spike in heart rate / blood pressure but had no noticeable changes.
TLDR: I have a high heart rate and blood pressure and can't figure out why

So, I'm 35 and pregnant. It's almost the end of 7 weeks now.
I'd like to share my story here, just so that maybe whoever reads it - you're not taken by surprise when you get that news. This is absolutely not a medical advise, I still call my OBGYN to ask stupid stuff, bcz at the end of the day they are the only ones qualified enough to give opinions.
I am the eldest in my family and extended families as well. Never had the opportunity to know more about the first trimester, and honestly no one talks about the first trimester as much as they talk about delivery and last trimester itself.
So first of all, whatever you google up, and see on the list be it fatigue, nausea, morning sickness or constipation - none of them are comparable to what you've experienced before in your entire life. Definitely it's different for everyone, but I was surprised when my OBGYN told me that the fatigue and sickness that hit me like I was down with some serious illness was - NORMAL ! In my entire life I've come close to this fatigue only twice, just for the span of fever of those particular diseases. I was shocked. Then I talked to other women, and they said yes it's normal to feel that sick.
Nausea is not, absolutely not comparable to any kind of nausea that you've experienced before. If you've had easy first trimester, bless you 🙌🫶, but don't be surprised. My nausea comes and goes. Bloating, similarly, isn't comparable to what normally I've experienced in life.
Your experience is welcome 🙏 , please share it, bcz I know it's just a start for me, and there's a lot to come in next trimester. Your experince will help me.

hi! F13 here. I don’t have endometriosis. However, my aunt does. My mom and I went to lunch with her recently when I’m on my period. I was in severe pain. My period cramps are equally horrible the entire week, usually being a 7-11/10. She was mentioning that she thinks I could have it since I fit a lot of the symptoms, so I’m wondering what to do. I’ll put my (period) related symptoms down below, plus a few other things to know.

• extreme rib pains, it feels like someone stepped on my chest.
• heavy flow, sometimes finding myself having to wear MULTIPLE pads at a time.
• a lot of discharge?? Like when I’m not on my period I sometimes think I get it because there’s so much discharge.
• a lot of lower back pain as well.
• either bad diarrhea, or severe constipation, even when I’m not on my period.
• urinating issues. It always hurts, sometimes I just can’t at all, and I’ve had a burning sensation is down there like 85% of the time and has been for a little over a year
• super dizzy, I almost always pass out when I stand and I’ve passed out twice recently prior to my period though
• awful nausea, so bad that I could also pass out
• terrible bloating, looks like I’ve gained 20 pounds every time
• extra fatigue. Even prioafter my period, I’m always tired no matter how much I sleep.
• super bad migraines that make my head spin -muscle soreness/numbess??

extra things to speak on

• I got my period when I was 9, the month before my 10th birthday
• I don’t remember my pain ever being this severe, it’s definitely worsened over the past two-three years.
• I do have ed history, so I may have just done some irreversible damage, I’m not sure.
• I have been having other health issues recently. To sum it up, for the past few weeks I’ve had severe stomach pain that traveled to the right side of my abdomen and my side, + daily fevers. Not sure if the two are connected though because I’m currently waiting to see a urologist which could take months
• nothing works for that long. I’ve taken Advil, ibuprofen, mitol, Tylenol, etc. it doesn’t work. Heating pads help a bit but that’s all.

Hi everyone, I hope your babies are well and safe. Mine, an 8month old female persian, has been having on and off fever for the past 3 days along with lethargy and lack of appetite.
It all happened suddenly. Tuesday she did not eat her lunch and I noticed her body shaking plus her temp was high. I took her to the vet and they ran a CBC, a blood chem and a Gardia, FPV, FCoV test plus an xray of her abdomen since she was not able to poop for almost 24 hours - all of it came back normal, just a constipation and a slight deviation from some of her blood chem results. So she was given tolfenol and some multivitamins through her IV bag and we went home. She was able to poop yesterday but she still isn’t feeling well: not eating or drinking on her own I have to force feed her with recov diet every 4 hours. When she stands she’s wobbly and she’s still lethargic. I also noticed even without fever her body is always trembling. We’ve been seeing 2 different doctors so we can have diverse ideas on what might be causing all of these in hopes a diagnosis can be found. Her xray also showed that her kidneys are somewhat not the usual bean shape so we were advised to take further tests for it.
I am just really worried and also concerned for her. I dont know if this has happened to others too and it would really be of great help to hear your experiences if it did. Please share what was the diagnosis and what were your course of treatments and how are your babies doing now. Thank youuu :>

Hi all! I'd appreciate your advice. I'm trying to gauge whether I should book another vet appointment or wait and see.
Species: Dog
Age: 4 years
Sex/Neuter status: M/Neutered
Breed: Dachshund/Chihuahua (probably)
Body weight: 18 lbs (I know, he was on a diet before all this happened and has undone all the progress)
History: My dog is just finishing a round of medication for a nonspecific issue. Basically, he woke up at 4am and regurgitated blood once, no fever or other symptoms. I talked to the emergency vet who advised me to wait and observe and keep him on a gentle diet. This was affirmed by my primary vet later. This resolved into what I interpreted as constipation followed by diarrhea. But he was acting normal the whole time, and was very excited about his new diet, so I gave it a few days to clear normally. Then, one morning there was blood in his diarrhea (which I was unable to collect - I had to get a different sample later) so I took him to the vet, who took a look at the sample and did an overall checkup but didn't find anything in particular, suggesting that maybe he just ate something funny. The vet prescribed Metronidazole, which is finished as of this morning, and that's where we are today.
I ran out of the chicken and rice I had been using (I'm vegetarian so I had to go buy chicken specifically for the dog) several days ago so I transitioned him back to dry food since he was eating well and his symptoms seem to have cleared. Even today his stool were normal and totally healthy in a typical amount. He eats in the morning and evening, and had breakfast like normal and finished it. Then, just as I was walking over to go feed him dinner, he regurgitated what looks like most of his breakfast. (I guess it can't possibly be most of it since he went out etc. But it looked like quite a bit of undigested food.)
On one hand, the regurgitation looked pretty normal, although he doesn't do it often normally, and he's not acting any different. On the other, he's just coming off of a possibly-related issue. So I can't decide whether I should make him another appointment or just continue as normal and see if it happens again. Everything was totally normal during the entire week of medication, except for now.
Clinical signs: Relevant previous/resolved symptoms in history. Currently - regurgitation of undigested food.
Duration: Either 1 day, or 10 days, depending on your interpretation.
Your general location: PA
Thank you!

Hi, I’m 31 weeks pregnant, I have diarrhea since yesterday, it’s worse since yesterday actually with no fever and I did had stomach pain which lasted for 15 seconds twice which I think is gas , whole pregnancy I was experiencing constipation .i do feel movement Thank god, I am worried if it’s a sign of an early labor , I am hungry but not sure what to eat , have messaged Dr but haven’t gotten a reply back . Please advise what should I do or have to relieve my symptoms , is it normal.

Hi, I’m 31 weeks pregnant, I have diarrhea since yesterday, it’s worse since yesterday actually with no fever and I did had stomach pain which lasted for 15 seconds twice which I think is gas , whole pregnancy I was experiencing constipation .i do feel movement Thank god, I am worried if it’s a sign of an early labor , I am hungry but not sure what to eat , have messaged Dr but haven’t gotten a reply back . Please advise what should I do or have to relieve my symptoms . Or is it normal

Hi, I’m 31 weeks pregnant, I have diarrhea since yesterday, it’s worse since yesterday actually with no fever and I did had stomach pain which lasted for 15 seconds twice which I think is gas , whole pregnancy I was experiencing constipation .i do feel movement Thank god, I am worried if it’s a sign of an early labor , I am hungry but not sure what to eat , have messaged Dr but haven’t gotten a reply back . Please advise what should I do or have to relieve my symptoms

hello i just sent a message to my doctor about this but i was wondering if anyone has any ideas as to what it might be or what i can research? my symptoms are pretty common so i understand if you guys can’t
heat intolerance-i used to wear sweatshirts 24/7 even in the hottest summer days now it hits like 60° and i have to lay in my bed naked because i’m overheating
random low grade fevers: i’ve noticed this for a couple of months pretty frequently i’ll get a low grade fever that’s like 99.6-100.5 when my body naturally rests at 98.5-98.7.
onset of headaches- i used to never get headaches to the point where i would literally brag about it not i get frequent moderate (they feel moderate-severe but im also not used to headaches so i’m prolly just being a baby)
memory worsening/blacking out chunks of my day-i have a ton of mental health issues and a past history of drug use that fucked up my memory really bad already but randomly it’s gotten excessively worse to the point it’s affecting work. I’ll do that thing where you walk in a room and go “what was i doing?” except i’ll do that an EXCESSIVE amount i did it more than 5 times in an hour and a half at work which is insane.
Tingling in hands and feet-just slight tingling and occasional itching or pain in my hands and feet, i’m diabetic so they’re thinking diabetic neuropathy for this.
maybe worth mentioning i just got not officially but pretty much diagnosed with pretty bad GERD that’s caused severe morning nausea for two years and then other classic symptoms started about 6 months ago and severe IBS-C that randomly came on in the past year i mean i went from never being constipated in my life to not shitting for 2 weeks going to the er because of the pain type shit

So sorry in advance for the long post. I just need to get this out.
TW for talk of suicide and depression
If you’re my partner and you see this - please don’t read this. I promise you are a wonderful support but I know my venting hurts you because you want to fix things and you can’t.
Edit to add some probably important context: I was misdiagnosed with BPD when I was 19 after a traumatic experience. And while every mental health professional I saw after told me it was wrong and was actually PTSD and CPTSD, it was not actually “officially” diagnosed on record until the hospitalization, at the start of my ADHD assessment. But, the psychiatrist that ordered the assessment is the first doctor to ever bring up ADHD or neurodivergence. Just to demonstrate how many people missed these things over the years, how many “second opinions” I’ve had to get. Not in any way dissimilar to my experience seeking diagnosis for my physical health issues.
I feel such immense grief and rage. I don’t even know where to begin, so I guess I’ll start at the start of this “health journey”. When I was 16, I became incredibly ill. I was vomiting all the time, exhausted to the point of sleeping 14 hours a day from the time I got home from school til just before I had to leave for the bus. I don’t remember much from this time period because of the brain fog and genuinely don’t know how I passed my classes. I was gaining a lot of weight, too, and hadn’t had a menstrual cycle in 6 months, and was so so depressed. My mom ignored the health issues because she thought I was just being dramatic (there is much deeper context with the issues there but it comes down to I am now NC as an adult), but when I said I needed to see a doctor for my depression she did. My then-family doctor was wonderful and listened, and to be safe decided to run some blood tests though I hadn’t described to her my physical symptoms aside from the oversleeping I attributed to depression. I was diagnosed with autoimmune thyroid disease, or Hashimoto’s. I started medication and my symptoms improved though some things, like the weight gain, never reversed.
I ended up going into remission for a time and no longer needed the HRT. But when I was around 20/21, I started having health problems again. I started experiencing numbness and tingling in both my hands and wrists, which I thought was from repetitive movement working as a cashier, though the symptoms only appeared about 6 months into that job and in hindsight it probably isn’t normal to develop that quickly that way. But I ignored it because I didn’t think it was serious as it was “just” carpal tunnel, and began wearing wrist splints regularly. I did not ask my doctor, as during this time I was having difficulties hearing at work and the hearing test I requested came back normal and I was dismissed and I didn’t want to reinforce the belief I have unreasonable worries about non-issues - later, I learned this was actually an auditory processing issue, which was never brought up by any medical professional I saw as a possible cause.
In 2020, when I was 24, I began experiencing the same autoimmune symptoms I had when I was first sick at the age of 16. I fell asleep at work which had never happened before and it worried me. I went to the ER on recommendation of Telehealth, where the doctor didn’t believe my symptoms and ordered just an EKG that came back normal. He told me I didn’t fall asleep/pass out while actively working, and simply “took a nap” and it’s normal. Follow-up with my GP after was unsuccessful, until I pushed for thyroid testing. I was found to no longer be in remission and put back on HRT, and once again my symptoms improved but did not resolve.
At the same time, and for the year or so that followed, I experienced extreme digestive health issues. I had visible yellowing of the skin, very dark under eye circles, issues with itchy and red patches of skin, and was passing undigested food and eventually became obviously malnourished as a result. I had what seemed to be a kidney stone that passed before I could get in for the ultrasound so it couldn’t be confirmed. I alternated between constipation and diarrhea, and always felt pain. My GP told me it was “probably just IBS” and had me do an elimination diet (twice) that did not work. He dismissed my concerns telling me I’m fine, until I sent a novel of my symptoms and saying I know he thinks I’m a hypochondriac but I am unwell and need to be looked at. The liver tests I pushed for came back normal. He offered to test me for Celiac but advised against it due to the cost of the blood test, so I didn’t. He did, however, refer me for a colonoscopy but the pandemic made this severely delayed. During the wait, I found some relief of my symptoms by cutting out gluten and dairy from my diet, and the yellowing of my skin and dark circles went away as did, eventually, the skin patches my doctor insisted was “just eczema”. I was off of gluten for a full year when I had my colonoscopy in fall 2022, the results came back normal and that doctor reiterated that it is “probably just IBS”. I learned later that I should have been consuming gluten for at least 3 months prior in order for it to be an effective test for Celiac, and my doctor failed to tell me this.
In early 2022, the joint pain had become frequent enough and painful enough in the knuckles where my hands meet my fingers, and in my wrists with definite carpal tunnel in both wrists as well, that I went to my GP. However, he is busy, and it’s often easier to book an appt with his assistant who is able to assess many conditions. At this time I also believed he would be more likely to listen and take me seriously. I went to the appt, described the nerve and joint pain issues. I had an exam where he confirmed bilateral carpal tunnel and arthritis in my hands. He said no testing was needed. I pushed back, stating that I am only 25 and there is no normal reason for the inflammation, and I have Hashimoto’s which has very high comorbidity with RA and I was concerned due to the fact the inflammation was symmetrical. I was dismissed, told the only test that could be done is an x-ray which was pointless as all it would do is confirm the presence of arthritis which he already confirmed with the exam. He told me to keep wearing wrist splints, keep taking ibuprofen and acetaminophen for the inflammation and pain, told me taking them was risk-free, and told me to come back when the redness and swelling of my joints got worse. I didn’t feel comfortable going to my GP for fear of being marked further as a problem patient, and assumed he would tell me the same information his assistant had based on my experiences with him and the fact his assistant is his staff that sees many of his patients.
My depression worsened during these years, coming to a head in early 2023 when I attempted. I did not succeed due to a mistake I made, fortunately. I was hospitalized for a time, where I was finally officially diagnosed with PTSD and CPTSD. And for the first time, a doctor asked if I suspected I’m neurodivergent. I was assessed and diagnosed with ADHD, which explained a significant amount of non-health related issues, though it also explained some like my KP and teenage cystic acne as they are common comorbidities. It’s important to note that I have a younger sibling that was diagnosed with ADHD as a child, and I was viewed as the “normal” child and any issues were dismissed as my sibling had higher support needs and was the priority and I was always viewed as simply being overdramatic and wanting attention. I was told the cause of my depression was trauma, including childhood trauma, as well as 26 years of undiagnosed and unmanaged ADHD I had been forced to deal with on my own. I was told I had done the best I could but they were not surprised it reached the point it did, as sadly the mental health system in Ontario is not what it should be and often people do not receive help until they’re long past the point of needing it. And for many, it’s too late. I am fortunate that it wasn’t too late for me, I’m fortunate I survived.
Prior to my stay at the hospital, I had gotten to the point of needing to take ibuprofen daily for the inflammation. When disclosing my medical history and medications, I was asked if I had received a formal diagnosis for my arthritis and what tests had been performed. I told them I had been assessed for and diagnosed with arthritis, but that no tests were performed. It was clear they did not believe me, and I wasn’t provided ibuprofen during my stay. They did not follow-up with my GP regarding the arthritis either, though to be fair I was in the psych ward and non urgent physical ailments were not their concern.
Now we get to 2024. It’s a jump, but I don’t feel anything between is significant. I do not go a day without pain, and havent for 3 months. The pain has now reached every joint in my body, I feel fatigued and foggy, I feel horrible all the time and have had 3 UTIs since February. The last one reached my kidneys rapidly, and coincided with the worst full-body arthritis flare of my life - this was 2 weeks ago. I woke up every 2 hours sobbing in agony because my body and knees in particular were so warm and painful and stiff. For a full day I was unable to get out of bed and ran a low grade fever with chills I assumed were due to the infection but now I’m not so sure. Since then, I have been in constant pain though not as severe as then. My knee and hip pain keep me up at night, and/or wake me up often due to the pain and stiffness. Regardless of my larger joints, my hands and wrists always hurt now. I feel ill in the way I did with my Hashimoto’s. Ibuprofen and acetaminophen aren’t doing anything anymore, and I rely on cannabis for relief which isn’t always suitable. My partner got me a topical ointment that has been incredibly but isn’t affordable enough to be sustainable with how much of it I need in one go, and I need to use it sparingly when I absolutely need it. Despite not feeling that my joints are red and swollen enough to go back (because I see them every day and they look normal because they always look like that), I stuck with my plan to see my GP. I first tried to book in February, but only saw him this week.
I described all the physical symptoms asking about my lower leg/ankle swelling and to have my thyroid levels checked for potential med increase need, and I described my joint issues. He assessed my hands, and told me my knuckles are red and swollen. I’ve realized after in research and really looking at my hands that the top knuckle on one of my fingers has a lump on it, albeit a very small one. He immediately said he is testing me for RA with blood work, and in my research I’ve confirmed the req form is thorough, and also includes urinalysis and an EKG. However he told me for the inflammation marker test to go for it when it’s at its worst, and with my work schedule I can’t, and I’ve waited so long for this I refuse. I’m going for it as soon as I can. I’ve waited so long to be listened to and believed. And as many as half of people with RA test negative on the blood tests so I’ll end up needing imaging tests anyway either way and I want this process to be as fast as possible. Even if it’s not RA, I need them to figure out what’s wrong with me and give me the appropriate treatment. He was alarmed and visibly displeased to hear that I had seen his assistant 2 years ago for an assessment - though I forgot to mention to him that that appointment was also for bilateral carpal tunnel (which I now know is an early sign of RA due to compression of nerves). It wasn’t explicitly stated but it was clear that I should have been tested 2 years ago. And wasn’t.
I’m tired of being in pain. I’m tired of being sick. I’m just plain tired. I feel so failed by the system that’s supposed to care for us. I’m so frustrated with people insisting that doctors are all-knowing and infallible and if they tell you you’re fine, you are. I’ve been fighting for years to be heard and have only been left to feel like I’m losing my mind and imagining these problems and am just overdramatic after all. I feel vindicated that I was right all along, but it’s too little too late. RA is a progressive disease, and the earlier it’s diagnosed and aggressively treated the better. I’ve had at minimum 2 years of progression that cannot be undone. The damage can’t be reversed. I am angry and devastated. The grief is so f*king immense.
I’m 27. I don’t know what my future looks like anymore and that scares me. I’m worried about the damage this disease has done to my internal organs. I worry having kids is no longer an option for me, due to my health. I worry that my physical capabilities will continue to deteriorate. I am so angry that I’ve been written off as an anxious hypochondriac when I knew something was wrong.
Diagnosis of an autoimmune disease or any illness really, apparently doesn’t negate medical misogyny and ageism. Advocating for yourself doesn’t go anywhere when you’ve been labelled crazy and a problem patient. The most it’s gotten me is my doctor “offering” to send my files if I wanted to switch to a different GP, which I can’t with the GP shortage. I have to live with the lifelong consequences of doctors failing me. And it f*king sucks.

Hello, For the past threeish weeks I’ve had this problem with a lump around my anus that is confusing the hell out of me. I’ve called six different doctors to try and get it checked out, all of whom either A.) don’t offer that service B.) don’t have an opening anytime soon or C.) don’t take my insurance/cost is expensive. I am willing to go with places like C if the severity is high enough, but I’m at a loss for what this is and if immediate treatment is needed. I’ll describe it below along with my symptoms.
Wednesday, three weeks ago: l notice that my anus burns, causing mild discomfort but no pain (unless I pass a stool, which have been normal, as have my bowel movements). It’s not itchy, and I feel fine other than that. I pass it off as not washing my asscrack well enough in my last shower.
Saturday: after cleaning well in my last shower, burning is still there. Not worse but not better either, though now it only burns when I poop and a little bit after. I take a look and find a small white bump inside the opening of my anus. Bump does not hurt to touch, am unable to tell if it’s full of pus or just looks like that cause it’s white all around rather than at the top like a whitehead. I could, of course, be wrong in my assessment.
At this point, I do some research, coming up with no conclusive ideas. Symptoms most align with hemorrhoids but it looks the most like infected anal abscess or skin tag. In the interim, I get hemorrhoid ointment and wipes to help with swelling. I have brief constipation but nothing crazy.
While I put medication on it, it gets irritated and flares up a bit, then dies down quickly. I minimize how often I touch it and keep everything clean.
A few days later: I get diarrhea for unrelated reasons (period), which makes the lump flare up. Flaring dies down the next day.
Now: Lump shrinks more, but is still there. No more burning or discomfort of any kind, hasn’t gotten worse in a week. Not once have I had symptoms of leaking, blood, itching, fever, major changes in bowel movement (with the explainable exceptions mentioned above). Rest of my anus looks perfectly fine.
I should also note that: I am not sexually active. I have never had sex with someone who has a penis, nor have I done anything related to my anus. I am fully vaccinated for all STIs (that you get can vaccines for, of course). The very few partners I’ve had in the past did not have any infections. I also haven’t had sex in over a year, so it can’t be from anything recent.
As of now, my symptoms are non-existent to the point I wouldn’t know it was there if I hadn’t seen it prior. Was curious if, based on all this, I should get it checked out ASAP or just wait till the far away appointment the doctors have openings for. Thank you!

I was very much blindsided by the newborn stage, but after 12 months I was finally starting to feel like I was getting the hang of things. Well, my son has decided to change things up again (of course). Essentially, he now screams or whines at us non stop.
It started about a month ago, but we were able to redirect his attention fairly easily. Recently, however, it seems like we can’t do anything right in his eyes. He wants me to pick him up and hold him a certain way, or hold him and walk around till the end of time. He wants to touch everything on the counter. If I don’t let him touch something dangerous or if I can’t figure out what he wants, cue the back bends and meltdowns. Sometimes I can make things better by sitting him on my lap and singing songs, but that works maybe 50% of the time. He’s also become an incredibly picky eater and all the food he once loved he refuses to touch. He ate cheerios for dinner the other night.
l feel stupid asking this, but is this normal? We have a doctors app scheduled for Friday to rule anything serious out has he did have a fever over the weekend and was dealing with constipation the last few days on top of that. As far as teething goes I can see both of his upper K9s, but there’s been no movement for over a month. I feel like I’m going crazy waiting for them to make their way down. We are also weaning him, which can’t help things, but my supply is basically gone so it unfortunately has to be done.

Some people still swear up and down that ivermectin is actually effective against COVID-19. This is false. They also insist ivermectin has far fewer side-effecs than the Coronavirus vaccine. This is also false. I'm going to prove it to you, but whether you are capable of accepting evidence such as listed below is something I obviously have no control over. I can try, and you can keep an open mind.
First of all, ivermectin has many side-effects, ranging from innocuous to severe.^[1]
To wit:

General

Ivermectin is well tolerated compared to other microfilaricidal agents (i.e., thiabendazole, diethylcarbamazine). Adverse reactions (i.e., pruritus, fever, rash, myalgia, headache) occur commonly during the first 3 days after treatment and appear to be related to the extent of parasitic infection and systemic mobilization and killing of microfilariae. The majority of reactions can usually be treated with aspirin, acetaminophen and/or antihistamines. Adverse effects tend to occur with lesser frequency during periods of retreatment.

Ocular

Ocular side effects have included eyelid edema, anterior uveitis, blurred vision, conjunctivitis, limbitis, punctate opacity, keratitis, abnormal sensation in the eyes, and chorioretinitis/choroiditis; however, these effects are also associated with the disease onchocerciasis. Loss of vision has occurred rarely but usually resolved without corticosteroid treatment. Conjunctival hemorrhage has been reported during postmarketing experience in patients treated for onchocerciasis.

Other

Worsening of Mazzotti reactions, including arthralgia, synovitis, lymph node enlargement and tenderness, pruritus, skin involvement (including edema, papular and pustular or frank urticarial rash), and fever, has been reported during the first 4 days following treatment for onchocerciasis.

Nervous system

Nervous system side effects have included dizziness, headache, somnolence, vertigo, and tremor. Serious or fatal encephalopathy has been reported rarely in patients with onchocerciases, and heavily infected with Loa loa, either spontaneously or after treatment with ivermectin. Seizures have been reported during postmarketing experience.

Gastrointestinal

Gastrointestinal side effects have included anorexia, constipation, diarrhea, nausea, vomiting, and abdominal distention.

Other

Other side effects have included asthenia, fatigue, abdominal pain, chest discomfort, facial edema, and peripheral edema.

Hematologic

Hematologic side effects have included decreased leukocyte count (3%), eosinophilia (3%), and increased hemoglobin (1%). Hematomatous swellings associated with prolonged prothrombin times have been reported, but the clinical significance is unknown. Leukopenia and anemia have been reported in at least one patient.

Hepatic

Hepatic side effects have included elevated ALT and/or AST. Elevated liver enzymes, elevated bilirubin, and hepatitis have been reported during postmarketing experience.

Cardiovascular

Cardiovascular side effects have included tachycardia and orthostatic hypotension. EKG changes, including prolonged PR interval, flattened T waves and peaked T waves, have been reported in single cases. Hypotension (primarily orthostatic hypotension) has been reported during postmarketing experience.

Dermatologic

Dermatologic side effects have included pruritus, rash, and urticaria. Toxic epidermal necrolysis and Stevens-Johnson syndrome have been reported during postmarketing experience.

Respiratory

Respiratory side effects have included worsening bronchial asthma, laryngeal edema, and dyspnea.

Musculoskeletal

Musculoskeletal side effects have included myalgia.

Renal

Renal side effects have included rare transient proteinuria.
I tried to get incidence rates for these side-effects, but in some if not most instances, the answer given for these side-effects is either simply "unknown" or they're just not shown. Imagine telling this to anti-vaxers: if they have at least a consistent set of beliefs, this should deeply alarm them, shouldn't it?
Some people actually did take the horse dewormer version out of sheer desperation and got really sick, were hospitalized or worse: they died.

1. In New Mexico, two people died after taking a deworming drug for horses and other livestock to treat COVID-19.^[2]
2. The FDA received multiple reports of patients who required medical support and hospitalization after self-medicating with Ivermectin intended for horses.^[3]
3. There was a significant increase in calls to poison control centers due to misuse of Ivermectin. Texas saw a 550% spike in poison control calls due to people ingesting horse and cow dewormer.^[4]
4. People poisoned themselves with the horse-deworming version to thwart COVID-19, resulting in an uptick in calls to poison control centers.^[5]

Ivermectin was consistently found to be ineffective in treating COVID-19:

1. A systematic review and meta-analysis published in the Virology Journal evaluated the efficacy of Ivermectin for COVID-19 patients based on current peer-reviewed RCTs. The study concluded that Ivermectin did not have any significant effect on outcomes of COVID-19 patients.^[6]
2. A Cochrane meta-analysis of 11 eligible trials examining the efficacy of Ivermectin for the treatment of COVID-19 published through April 2022 concluded that Ivermectin has no beneficial effect for people with COVID-19.^[7]
3. An article published in the Journal of the American Medical Association (JAMA) concluded that taking 400 mcg/kg Ivermectin for three days, when compared with a placebo, did not significantly improve the chances for a patient with mild to moderate symptoms of COVID-19 to avoid hospitalization.^[8]
4. A study published on News Medical concluded that in COVID-19 outpatients with mild or moderate illness, Ivermectin use for three days at a dose of 400 μg/kg showed no significant improvement in the time to sustained recovery compared to those who received placebos.^[9]

The unwarranted hype surrounding ivermectin can be traced back to its promotion on the Joe Rogan Experience.^[10]

Public interest in ivermectin ballooned following Joe Rogan’s podcasts. “On a national level Rogan’s podcast was a tipping point,” said Keenan Chen, an investigative researcher with First Draft News, an organization that tracks misinformation. (Rogan, who has previously expressed hesitancy to vaccines, announced in September he had contracted Covid-19. He claimed to be taking ivermectin among several other treatments.)

Joe Rogan took a cocktail of Big Pharma^tm meds which, with the exception of monoclonal antibodies, were not indicated for his situation. In fact, some of the medication he took could have made things worse.^[11] Rogan probably didn't get seriously ill because he's fit and without significant comorbidities. The one thing that would have actually been the most effective was the vaccine, which he refused to take.
Many others weren't as lucky as Joe was. I suggest you follow the footnotes and see for yourself. Especially the first one.^[12][13]
Other than ivermectin, coronavirus vaccines are also a subject both Joe Rogan and his guests have shamelessly lied about numerous times, which could have caused medical harm to people who bought into it, and probably did. The most prominent guest which comes to mind is RFK Jr.
RFK Jr.'s influence is so odious, I am comfortable saying he probably contributed to thousands of unnecessary deaths in total. One incident in which 83 people (mostly children) died is particularly disgusting:^[14]

In June 2019, Kennedy and his wife, the actress Cheryl Hines, visited Samoa, a trip Kennedy later wrote was arranged by Edwin Tamasese, a Samoan local anti-vaccine influencer.
Vaccine rates had plummeted after two children died in 2018 from a measles vaccine that a nurse had incorrectly mixed with a muscle relaxant. The government suspended the vaccine program for months. By the time Kennedy arrived, health authorities were trying to get back on track.
He was treated as a distinguished guest, traveling in a government vehicle, meeting with the prime minister and, according to Kennedy, many health officials and the health minister.
He also met with anti-vaccine activists, including Tamasese and another well-known influencer, Taylor Winterstein, who posted a photograph of herself and Kennedy on her Instagram.
“The past few days have been profoundly monumental for me, my family and for this movement to date,” she wrote, adding hashtags including #investigatebeforeyouvaccinate.
A few months later, a measles epidemic broke out in Samoa, killing 83 people, mostly infants and children in a population of about 200,000.
Public health officials said at the time that anti-vaccine misinformation had made the nation vulnerable.
The crisis of low vaccination rates and skepticism created an environment that was “ripe for the picking for someone like RFK to come in and in assist with the promotion of those views,” said Helen Petousis-Harris, a vaccinologist from New Zealand who worked on the effort to build back trust in the measles vaccine in Samoa.
Petousis-Harris recalled that local and regional anti-vaccine activists took their cues from Kennedy, whom she said “sits at the top of the food chain as a disinformation source.”
“They amplified the fear and mistrust, which resulted in the amplification of the epidemic and an increased number of children dying. Children were being brought for care too late,” she said.

The pandemic is over. Ivermectin wasn't effective. On the one hand we should move on, on the other hand, there should be some accountability for people who pushed this lie, especially those who benefited from it financially.^[10][15]
[1] Drugs.com - Ivermectin Side Effects
[2] USA Today - 'A serious issue': New Mexico health officials suspect two people dead from ivermectin poisoning
[3] Global News - FDA warns Americans to stop taking horse dewormer for COVID-19: ‘You are not a horse’ (Some anti-vaxers counter that the FDA lost a court battle about ivermectin, proving that it works - this is false)
[4] USA Today - Fact check: 590% jump in poison control calls about ivermectin seen in Texas
[5] Ars Technica - More people are poisoning themselves with horse-deworming drug to thwart COVID
[6] Virology Journal - Ivermectin under scrutiny: a systematic review and meta-analysis of efficacy and possible sources of controversies in COVID-19 patients
[7] JAMA Network - At a Higher Dose and Longer Duration, Ivermectin Still Not Effective Against COVID-19
[8] KU Medical Center - Ivermectin shown ineffective in treating COVID-19, according to multi-site study including KU Medical Center
[9] News Medical - Ivermectin is ineffective in non-severe COVID-19 patients according to new study
[10] The Guardian - Ivermectin frenzy: the advocates, anti-vaxxers and telehealth companies driving demand
[11] Doctor Mike - Here's Why Joe Rogan's COVID Treatment Is Problematic
[12] /JamiePullDatUp - "I made a terrible mistake" vs. "I'm still not a 100% sold on the inoculation" - videos of unvaccinated COVID-19 patients in the hospital
[13] /HermanCainAward
[14] AP - RFK Jr. spent years stoking fear and mistrust of vaccines. These people were hurt by his work
[15] Time - ‘What Price Was My Father’s Life Worth?’ Right-Wing Doctors Are Still Peddling Dubious COVID Drugs

Update post on my progress and protocols for my treatment with side effects and how I managed it all.
Now that I'm done with treatment, I hope that this can help others who may be starting the same journey and have questions. I attribute my easy time to the premeds and my mental willpower. I focus on the positives and silver linings over the negatives. You can only control one thing -- your reactions. The rest requires you to practice acceptance.
Diagnosis: Stage 2 Endocervical Adenocarcinoma Gastric Type with LVSI
Treatment Plan: Surgery (cervix, uterus, and ovaries) followed by concurrent Chemo with Radiation with a PET Scan scheduled 2 months after treatment to determine if NED or more treatment is required.
I was scheduled for 6 chemo cycles, once a week, and 28 radiation beam therapies. Chemo happened on Monday and Radiation was Monday through Friday. I had to skip Cycle 3 on Chemo only because I was hospitalized with Norovirus and my counts were too low. I still did radiation those days.
Chemo Protocol in order of meds:

1. Magnesium Sulfate + Potassium Chloride. Cisplatin strips this from your body, supplements.
2. Emend (Fosaprepitant) - antiemetic. I had to get a port for this, it burned my arm vein and I had to use other arm for Chemo, no fun.
3. Aloxi (Palonosetron) - antiemetic.
4. Decadron (Dexamethasone) - steroid. It burns in your nether region, if it burns too much, ask them to push it slower.
5. Lasix (Furosemide) - diuretic. Cisplatin is hard on kidneys, this is to help purge the chemo faster. Be close to a bathroom and ask nurse if you can just unplug your IV pole and go to bathroom freely vs. pushing call button -- its easier.
6. Cisplatin (Platinol) 70mg (my dose). Didn't make me feel any different than the other infusions.

Plan for at least 5 hours for the above. I started at 7:30am and ended between 12 and 12:30pm.
Cisplatin Symptoms: This is going to vary person to person and you may get different premeds than me.

• Mon (Day 1) - just the cold feeling in your veins from all the fluid infusions. You also gain like 5lbs of water weight that day. I was typically ravenous and ate whatever I wanted, the antiemetics made this possible. Be wary of constipation from chemo, it took me by surprise the first week. The other weeks I ate a few prunes on Sunday and then after chemo on Monday to help. Otherwise you won't poop for a week and be miserable.
• Tues (Day 2) - no appetite and I don't eat. Even marijuana does not work to stimulate. I'll force myself if DH forces me, but since I eat everything in sight Day 1 I'm not too hard on myself. Important to have first BM this day, if nothing then you need to start addressing. Of course I BM daily so this may not apply to you.
• Wed - Thu (Day 3 - 4) - acid reflux and indigestion. Keep some Tums handy or use pills, it doesn't really help and you get used to it. All in, better than throwing up, so take it as a win if this is the worst for you. Appetite back.
• Fri - Sun (Day 5 -7) - less side effects, should be at normal BMs, if you are not you need to address for next cycle. Very important to purge your bowels if you are constipated before your next chemo. I ended up doing Miralax my first week, I had zero BM before Sat and I could feel the pressure. The following weeks I just did a handful of prunes Sunday night after dinner and Monday when I got home from chemo. I happen to like prunes and they worked to keep me regular.

Pelvic Radiation Symptoms: This is going to be different based on what areas are treated. My bladder, vagina, and pelvic nodes were heavily treated. Be sure you understand the side effects before you start treatment - so you can be on top of everything. Below is my experience and I had a fairly easy time of it.

• The fatigue sets in slowly. By week 3/4 I needed 12 hours a night to sleep. Don't ignore this important rest. I adjusted my work schedule from day 1 -- from 7a to 1p Tue - Thu. I didn't work Mon due to Chemo and Fri I had to get labs done and radiation so I worked from 7a to 11am. I did this from day 1 to set the tone with my boss and ensure I had the time needed to rest even if I didn't need it. I ended up working Sat and sometimes Sun to make up for things. I am a WFH executive - right hand of CEO and in charge of operations. Helps to have a great boss pick up the slack and an amazing team who supported me every step of the way.
• Bowels get softer over time, they do not go from hard to diarrhea overnight. If you have diarrhea fast, don't ignore it or let your doctor's ignore. I thought it was the prunes week 2 that did it, no it was norovirus. They didn't catch it until I had a 102 fever week 3 and had to be hospitalized. The chemo constipation masked it during the week.
• AZO is your BEST FRIEND. Take it every day. It is made to as a pain reliever for the bladder. I missed it for a week and paid for it so bad. Do not skip this important drug. I need to keep taking it for a few weeks until the symptoms subside.
• When you go in for your initial telemetry setup for the machines, make sure you are comfortable before they start anything. The moment you lay down on the machine bed, you need to make sure you are in a good position. They used a mold on my legs and I was not in a good position so it really hurt my hips every session thereafter.
• You have to put your hands on your chest. They give a ring, I hated it. I recommend relaxing your shoulders or you'll have a hard time while they do the treatment.
• You get used to the flow. You walk into the treatment room, hop on a bed while two techs adjust you (I had x marks on both hips and belly that they lined up). Then you get a quick CT to ensure your bladder is full and you're in a good position. Adjustments are made as needed. You know when the radiation beam starts because it is the only thing with noise. Don't move until they say you can. Whole thing is 10 mins or less.
• Bladder management is the worst part. You need to have a full bladder for this and as the treatment progresses you will have a harder time determining if your bladder is full or not. Your kidneys will also work slower (I attribute to the chemo) as the weeks go on, so you'll need to drink earlier. I recommend drinking what will fill your bladder two hours before your treatment. It is easier to let of some pressure than it is to fill the bladder. Tea is a natural diuretic and is very helpful to giving your kidneys a boost. I usually drank 20+ oz of Powerade two hours before (chugging), then tea when I arrived (they had fancy machines) and this worked 90% of the time.
• Be wary of foods you eat. I did great until Week 4 when I had lots of stuff with red sauce and it caused gas. I had to pass this gas before they could do my treatment, it was a riot but you don't want your visits to be like that every day. Stay away from tomato products and anything else that gives you even mild gas outside of treatment. It is nearly impossible to pass gas with an overfull bladder.

Nurses are your best friend. Having cancer and going through treatment sucks, but the nurses are there for you and my experience was all-inclusive resort service. Take advantage of the snacks (yes they have ice cream) when you're getting chemo. Don't be shy about asking them about your meds, they did a good job explaining this to me, but I still had questions now and again. It takes a special person to be an oncology nurse and you feel it. It never felt fake or like they were putting on a show/smile just for me. They truly cared. I never want to see them again either way :)
Edited to add: get a port. You will not regret it. I plan on keeping mine for a year after NED, which will require a monthly flush. It makes things so much easier, especially if you have to be hospitalized. I didn't need the numbing cream, it hurts less than the arm pokes for labs and infusions. I asked for mine before chemo and doctor didn't think it was necessary. First treatment proved it was - I had three IV's that day and I'm still suffering from the Emend infusion (not the chemo surprisingly) on my arm. Yes, its surgery but its easy. I had it in place before my 2nd chemo and it was lifechanging. I'd keep it for life it wasn't for the monthly flushes lol, my arm veins were crap to start and the more they are poked the worse they get.

I posted about this awhile back and did not get much response but I am gaslighting myself and need people who have gone through this or similar to help me be objective.
I will Try to keep this brief but it's a lot.
-long history of stricturing Crohn's of terminal ileum diagnosed in 2006. First resection Sept 2018, Last resection in April 2022. Surgeon told me he found Crohn's high up in small bowel, could not remove safely, hoped new biologic (Stelara) would take care of it.
-6 month delay in starting Stelara due to GI F up (forgot to send preauthorization)
-July 2022 began having severe upper gastric pain (under ribs and belly button) after even the smallest amount of food, followed by severe nausea and often vomiting. Within half hour multiple liquid BM's undigested food and insane amount of fluid. Began to eat less and less, moved to soft diet, and finally to complete liquids in August 2023
-July 2023-Oct 2023- Weight loss of 20 lbs over 3 month period. Many ER visits needed for rehydration and IV anti emetics and pain meds as could not keep down any oral meds. GI did colonoscopy but only found microscopic Crohn's in anastomosis site (he only took 2 biopsies from that area and nowhere else). CT's done in hospital showed thickening of wall of ascending colon, and collapsed bowel, free fluid in peritoneum. GI dismissed as "not reliable". Fecal Cal slightly elevated. Constant low grade anemia. After 4th ER visit in Oct 2023 they did a high res Ultrasound and I was admitted by surgery department. However, as I was urgent but not emergent, there were no beds available. Was given choice of staying in ER and receiving IV steroids, or going home and following up with GI. Chose home and was given Entocort. Entocort slowed down bowel from 30-50 bm's a day to ten. Did not help pain, nausea, vomiting, lack of ability to eat. After several desperate emails where I begged for help, said I wanted to die-GI ordered urgent MRI, would not change meds or give prednisone without "proof".
-November 2023-Began to experience fatigue like never before. Could hardly keep eyes open. This would be followed by severe upper gastric pain, nausea, vomiting and diarrhea that went on for days, followed by constipation for 1-2 days and severe bloating, only on the left side of belly which would be rock hard and hot to the touch. Then the diarrhea cycle woud begin again. Always pure liquid, sometimes black, always tons of mucous.
-Went to Mexico to visit my parents for the holidays where I usually feel better but still could not eat. Injecting myself with IM Gravol (anti emetic) just to keep fluids down. I lived off of chicken broth with rice. Saw GI in private hospital. Ordered full workup. Blood found in stool. 3 D CT ordered (could not find a vein for IV after 5 nurses, two doctors, and a radiologist with a vein finder so only had oral contrast) showed inflammation in small bowel, thickening of the ascending colon wall 11 mm, and inflammation of ileum. He wanted to send me to special IBD hospital in Mexico City for MRI but it would have cost 2500$ so I decided to wait till I got home to Canada where it would be free. Treated me with antibiotics for IBS (only available in Mexico and Germany) Zero improvement. I lived off of electrolyte drinks.
-Jan 29th 2024 returned to hospital because I could not keep any oral meds in (pills would be in toilet) also pain was 9/10, high fever, vomiting. Admitted again, but no beds. Left AMA with another prescription for Entocort.
-Feb 12 2024- High fever followed by two days of 40 plus liquid BM's, some of them bloody, all of them black. Husband insisted back to ER where I was admitted immediately. Cortisol levels 11 (close to adrenal failure) very low potassium. Doc said if we'd waited I likely would have died from heart event. Spent 8 + weeks in hospital having every kind of test imaginable. NOTHING showed on MRI, inflammation on CT, lower scope clear, upper endoscopy showed inflammation in esophagus, stomach, and duodenum. Negative for H Pylori, negative for celiac. Started on 150 mg of hydrocortisone for low cortisol to rescue my organs. MRI of brain showed small tumour on pituitary. Endocrinologist did ACTH test and was unhappy, kept me on 40 mg of hydrocortisone IV. PICC line insertion went awry when they Discovered I had complete stenosis of veins and needed port catheter surgically implanted. Was on TPN for 5 weeks. Needed pain meds and anti emetics every 4 hours or severe vomiting and diarrhea would ensue. 30-50 liquid bm's continued (they made me write down everything I ingested and every time I had a BM. They tested me for everything. No blood, NO CDiff, no parasites, no infection. High fever 104.5 plus delirium and CRP shot up to 50. Continued Anemia, blood work all over the place, even with TPN I needed potassium and sodium boluses 3 times a day.
-Requested pill endoscopy, GI said no Crohn's, no need for test. Suggested psych evaluation for a fucking eating disorder. Endocrinologist disagreed, said starvation and whatever disease process was causing symptoms was causing my cortisol issue. Psych diagnosed medical PTSD and generalized anxiety disorder (no shit) but NO eating disorder. Fired GI and hired IBD specialist from another city. Re ran all tests, CT showed huge diverticulum on duodenum otherwise clear. Was going to be moved to a ward from a private room. Had a panic attack because I could not share a bathroom and was not about to use a commode. Asked to be discharged after nearly 9 weeks. They were so overcrowded and basically did not know what else to do to help me, so they let me go even though I was still on TPN and NPO. Got a 5 minute instruction on how to insert a butterfly catheter for pain meds, and let go.
-Present-3 weeks later, still on liquid diet, (Boost drinks, blended oatmeal, yoghurt and soup) still on sub q and IM meds. Finally got new IBD doc to order capsule endoscopy and is treating me for SIBO (never been tested) plus set me up with nutritionist and psychologist for support. MRI repeated- totally clear.
I FEEL CRAZY. This is the sickest I have ever felt. It's been almost a year since I chewed food. The pain under my ribs just to the left of my belly button is now constant, whether I eat or not, pain meds barely take the edge off. Sometimes it's so intense I can hardly breathe. I keep passing out on the toilet. I projectile vomit daily, even using Gravol and Pantoprozole, the bile acid is awful. I've been doing tons of research and have learned that GDC and Jejunal Crohn's are extremely hard to diagnose. I have every single symptom and fit the criteria. Does this sound familiar to anyone????

• Species: Cat
• Age: 10
• Sex/Neuter status: Male Neutered
• Breed: Domestic Shorthair
• Body weight: 10 lbs
• History: Diagnosed with Small Cell Lymphoma of GI two years ago. On Prednisolone and Chlorambucil. Multiple ultrasounds (including recent) and blood test shows no reoccurance of cancer in body. Recently brought to vet for unrelated symptoms. Lethargy, unable to really meow, excessive drooling, eye dischange, possible mouth pain, squinting
• Clinical signs: Extreme Lethargy, usually chatty cat doesnt really meow anymore, squinting eyes and a ton of discharge, nose running and recently been droollng alot. keeps making mouth smacking noises. been on and off going on a few weeks now. Seems to have hit a high point of fatigue today after his ER visit yesterday. One thing that caused me to bring him to ER was I was giving him his usual medicine and he kind of cried when I tried to open his mouth.
• Duration: 3 weeks
• Your general location: Northeast USA
• Links to any test results, X-rays, vet reports etc. that you have: Results attached. Blood tests came back OK. Platelet count confirmed OK. Ultrasound came back fine. Cat had fever of 104 going into vet and leaving it 6 hours later. Given sub fluids.

Here is a summary of the last couple visits:
4/29/24 AFAST: negative peritoneal effusion, no obvious abnormalities TFAST: La:Ao ~1:1, intermittent B-lines, negative pericardial/pleural effusion CBC: HCT 33%, WBC 11.96K, Neut 10K, Lymph 1.15K, Plt 220K Chem17/lytes: Glu 205, BUN 9, Creat 1.3, Phos 3.1, Ca 9.4, Na 156, K 3.5, Cl 118, TP 8.1, Alb 3.5, Glob 4.6, ALT 13, ALP 41, GGT 0, Tbili 0.1 PCV/TS: 32%/7.6, serum clear CXAXR: 1. The appearance of the stomach, small intestine and colon can be compatible with a nonspecific generalized functional ileus (e.g. gastroenterocolitis or infiltrative bowel disease such as IBD or the clinically reported gastrointestinal lymphoma). There is no evidence of small intestinal foreign material or mechanical obstruction. Consider initiation of therapy for generalized functional ileus and if clinically indicated, abdominal ultrasound might be pursued for further investigation. 2. Mild constipation. 3. Normal thorax. 4. Incidental small defect in the cranial endplate of L5 of uncertain etiology, likely a schmorl's node.
5/12/24 PCV/TS: 30/7.8 CBC: RBC 6.02 (L), HCT 29 (L), PLT 31 (L), bands suspected, rest unremarkable Blood smear: Majority of neutrophils appear toxic. Platelet clumping noted, suspect that platelet number is adequate. Chem17/lytes: Glu 177, rest unremarkable BP (doppler): 100mmHg FUO standard panel submitted to idexx Respiratory PCR panel submitted to idexx AUS with Radiologist: Conclusions/recommendations: 1) Mild gastritis. This is suspected to represent a secondary rather than primary condition however a flare up of small cell LSA cannot be completely excluded. Cursory evaluation of the cervical soft tissues did not reveal any abnormalities as well. Recommendations: Pending results of other testing, consider a GI panel if not recently performed, empirical treatment for gastritis and complete the work up for FUO
Treatments/Plan:
LRS 100ml SQ Ondansetron 0.5mg/kg SQ Convenia 8mg/kg SQ Rx mirtazapine TGH Rx famciclovir x 14d to pick up at pharmacy Rec to follow-up with pDVM in 1-2 days if CS not improving/worsening

Does anyone have any experience with this stuff? I see there are some vendors pairing it with kratom and some are pairing it with PEA.
Info about/small study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8908788/
Video of a vendor discussing how it's changed his life.
https://youtu.be/2sZgBw8zUmA?si=lCY_ZLh7rlgeaXHo
Excerpt from article
2.2. Conolidine Conolidine has unique qualities that can be beneficial for the management of chronic pain. Conolidine is found in the bark of the flowering shrub T. divaricata, otherwise known as the pinwheel flower or crepe jasmine, and is used in traditional Chinese, Ayurvedic, and Thai medicine to treat pain and fever (57). The compound makes up .00014% of T. divaricata bark. Tabernaemontana divaricatea contains several alkaloid compounds with a carbon-based framework resembling opioids (57). It is plausible that conolidine induced analgesia may lack complications associated with classic opioid medications (58). It is now being investigated for its effects on the atypical chemokine receptor (ACK3), an opioid scavenger of the dynorphin, enkephalin, and nociceptin families (59, 60). The ACK3 receptor has been found to regulate the availability of these opiates to classical opiate receptors. It is found in high concentrations in several important opiate-related centers of the brain (59). It was demonstrated that this novel receptor does not trigger the G protein cascade signaling pathway, and peptides specific to this receptor block the downregulatory effect it has on endogenous opiate levels, resulting in increased availability of opiate peptides for other classical opioid receptors (58). Modulation of this receptor has been postulated as an alternative opiate system target, and evaluations by Szpakowska et al. found it to be highly responsive to conolidine (58). Conolidine is a potent non-opioid analgesic and has been found to lack the typical complications associated with opiate analgesics like nausea, vomiting, respiratory depression, constipation, tolerance, and physical dependence (60).

Several people have approached me that they might have endometriosis. Lifelong warrior so thought I would share my tips and tricks I put together for my friends and family to share with you :) Hope this helps someone!
ENDOMETRIOSIS SURGERY FACTS

• EXCISION SURGERY! I cannot stress this one enough. If you have an ablation, it will grow back and likely quick (but consult with your doctors on your case 100%). Excision is when they cut it out vs. it gets burned off. You will have a better success rate and slow rate of growth if they excise. Not all cases can be depending on location so again, please talk with your doctor about your situation. This is not the same for everyone.
• If your doctor cannot do excision surgery. Skip and move on to the next! Trust me, well worth the time to research and find the right doctor. You will thank me later for this one too haha.
• Finding a doctor is stuff. Also tough to find resources. If you cannot find an Endometriosis specialist in your area who does excision, you may need to look out of state, but one tip is exploring gynecological oncologists. Some will take benign cases, but not all so do your research. But it’s a good avenue for help in your area or you want insurance coverage.
• Nanny’s Nook is a good resource for online information regarding endometriosis: https://nancysnookendo.com/
• Dr Seckin’s book called The Doctor Will See You Now is also worth the read (https://www.amazon.com/Doctor-Will-See-You-Endometriosis/dp/1681621126)
• Definitely look into Egg Freezing before doing any permanent surgeries. The ovaries are more intact when there is a uterus in place, so I recommend immediately following any excisions with Egg Freezing if you can and if it’s part of your plans. I found my AMH levels low (1.2) but still retrieved 25 eggs, so never be discouraged if this is your future planning path.
• My Symptoms: I experience bloating, constipation, diarrhea, nausea and vomiting as the main culprits. I have irregular periods in regards to the number of days and if it comes or not (even with an IUD). Pelvic pain is probably the worst of all since it accompanies these symptoms and is present a majority of the time. Others may have different symptoms, and there’s many others I didn’t list but wanted to paint the picture of some I’ve experienced.

ENDOMETRIOSIS LAPAROSCOPIC SURGERY (WHAT TO EXPECT)
PRE-SURGERY

• List of questions to ask your doctor
• Insurance Information and ID
• Necessary forms or paperwork the doctor requires
• Make sure any medical records are sent that would be relevant

POST-OP PREP

• Eat smaller meals and simple foods days beforehand. If bowel prep is necessary, they also recommend taking a laxative in the days leading up to help prep.
• Pack a bag! Not every surgery is an overnight stay but even if you have a day-of surgery, back an overnight bag. Here’s the essentials:
  • Phone/Headphones/iPad/Kindle/Books
  • Device Chargers
  • Medications that you currently take
  • Glasses (do not wear contacts day of)
  • An extra pair of underwear
  • Sanitary Pads or Always Discreet
  • Comfy pants with light elastic band around the waist
  • Non wired bra
  • Slip on shoes (this is clutch! Recommend slides -https://www.amazon.com/gp/product/B0BL7LJKZW/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1).
  • Layers - Sweatshirt, Long Sleeved Shirt etc. - Hospitals are cold!
  • Toothbrush and tooth paste
  • Hairbrush
  • Face wipes, wash cloth, small towel and bar of soap.

SPACE PREP

1. Make sure your bed or couch is prepped. I stayed on the first level for the first 2ish days before feeling well enough to stay upstairs.
2. I used a pregnancy pillow on the bed to help me stay on my back while sleeping and help you feel cozy.
3. Stock the house with foods that will be light for your stomach. Think soups and casseroles! Saltine crackers, broths, rices etc..
4. If you have a raised bed, get a step stool to assist. It’s best to sit on the side of the bed and slowly lay your upper body down while bringing your knees up and over to your back. You will need to use arm strength the first couple of days to get you up and over since you can’t use the abdomen.
5. Water and Beverages stocked at all times. I have a reusable water bottle and avoid carbonated beverages for the time being. They fill you with gas for the procedure so it may make those symptoms worse.
6. Netflix, Kindle, Puzzles, Craft Projects…visits with friends. Whatever makes the time pass, set it up ahead of time so it’s handy.
7. Items to Keep on Hand: Baby Wipes, heating pads, pads/diapers, candles, essential oils, things that smell good haha

BOWEL PREP
This is dependent on the type of surgery you are having, but its good to have Gatorade, Magnesium Citrate (liquid), laxatives and enemas on hand just in case you need these.
ON SURGERY DAY
It’s important to follow the instructions on what to stop taking and/or eating/drinking prior to the surgery. Wear comfy clothes (wide elastic waistband) and slides with cozy socks. Double check your to go bag and breath.
AT THE HOSPITAL

1. Do your check-ins and keep your people with you as long as you want.
2. Make sure to read all the consent forms and ask any questions upfront. Make any advance directives clear.
3. Just try to remain calm as there’s a lot of down time while they do intake. It is about 2 hours of prep before they bring you in for the surgery itself.
4. They will ask you the same questions over and over again, that’s normal and trust me, you want to confirm it’s all being done properly.
5. If you need something for anxiety, they will be sure to give you something if you ask :)
6. You will be wearing a gown, socks, funky underwear and a cool hair net haha wear the gown backward so you keep warm and keep the butt covered.
7. Vitals will happen and the anesthesiologist will come and speak with you to make sure they prep the right meds beforehand. Bring up any concerns here with them!
8. You may be wheeled or walked into surgery. I’ve only ever walked in and laid on the table myself.
9. They will then put the IV in your arm and sometimes will put on a mask, they will then ask you to count backwards and before you know it, you will be awake again!

RECOVERY

• You will wake-up and feel groggy. Totally normal and you will be in a different room. They will likely say a lot really quick about your surgery. Before leaving ask for them to walk through it or see if you can speak with the doctor again when clear headed. RECOMMENDED!
• Your throat will be sore, that’s normal from the tube.
• Just relax and sleep it off if you want, the goal is to be relaxed and pee once before leaving.
• Before you go, eat and drink and pass smoke urine. They’ll provide you with the meds and you’ll be good to go.
• Make sure someone brings you home after :)
• Make sure you have a bag for vomit in the car.
• Bring a small pillow that can be strapped between the car belt and you for maximum comfort on the trip home.
• Pain Med Management: This one is important. I messed up night one and didn’t take it soon enough and was in too much pain so make sure you stick to the schedule the doctors give you to ensure you are comfortable.
• Keep Walking: It seems unnatural to have a surgery then walk, but the sooner you get up and keep moving around the house, the better. Just avoid heavy lifting and immense bending like movements. Stairs are also ok but also consult with your doctor!
• Gas Build Up: I did feel pain in my shoulders from the gas. Just keep moving! It will help get that out of the system but this pain is normal.
• Relax and let people take care of you! Don’t be too quick to recover.
• Keep an eye out for fever, increased vaginal bleeding, or feeling terrible.
• Keep all post op appointments and follow all post op instructions!

ENDOMETRIOSIS MAINTENANCE
Here’s the tips and tricks I found helpful for maintaining my pain and symptoms (GI and back pain related):

1. Pelvic Floor Therapy: This is important for keeping the muscles in your pelvis healthy and strong to maintain your structure and also help manage pain. Consult with your doctor on whether this is right for you.
2. Physical Therapy: I do PT for my back and pelvic floor since it’s all related. We focus on Myofascial Release Therapy to help break up the adhesions and give me more mobility. This helps with temporary pain relief (reduction in number), but that is always welcome :)
3. Acupuncture: I swear by Acupuncture. I don’t know what it does or why, but it works. It’s not a cure by any means, but it's great for relaxation, fertility, digestion, endometriosis, sleep, etc.. I can go on, but it’s not covered by insurance plans all the time so you will need to check and see what you’re able to take on.
4. Diet/Exercise:
   1. Eating high protein, lower fat/carbs (not none just low) helps your body, but overall learn your trigger foods! This will go a long way.
   2. Ginger, turmeric and fennel all help with bloating. I like to drink them in tea form when I’m feeling particularly hard stomached as it’s a good natural way to decrease the bloat. Peppermint also works for some, for me it irritates my GERD.
   3. Chamomile for relaxation
   4. Walking and movement are important. I cannot do anything high impact due to my sacroiliitis diagnosis, so I stick with light yoga and walking.
5. Alcohol/Other Substances: Don’t do it. Don’t touch it. You’ll thank me later on this point.
6. Sleep: Insomnia is a very real thing. I think I went 2 or 3 days at its worst one time and I cannot say enough how important trying to keep the same sleep schedule will benefit you. Waking and sleeping around the same time each day will still feel exhausting but at least you know your body is getting the most sleep it can get.
7. Medications/Supplements:
   1. Ibprofuern: This does NOT work for me. I have GERD and ulcers so I cannot take NSAIDs, but with that in mind, NSAIDs are supposedly the best pain medication over the counter to help you manage it.
   2. Pain Killers: These are AS NEEDED. I try to refrain and leave these for the TRULY bad days which I try to spread out. Not even worth it sometimes, because I don’t like how I feel and sometimes vomit after taking them. But they do help the pain!
   3. IUD/Orilissa: An IUD will NOT do anything. If you are diagnosed, ask your doctor about Orilissa or similar medicines instead of birth control methods. This will not stop the growth, just suppress it. There are side effects and it is only a short term solution.
   4. Linzess: This worked well for me for constipation symptoms when they got severe. Definitely recommend bringing this to your doctor if you’re truly suffering and they have not yet mentioned. I also resorted after trying magnesium citrate
   5. CBD Lotions/Salves: For my pelvis, I use Healing Rose CBD Salve in Orange and Lavender (https://www.thehealingroseco.com/product/orange-lavender-with-chamomile-herbal-salve-300mg-cbd/). For my back, I use a medical grade CBD lotion with menthol (https://cbdclinic.co/clinical-strength-series/). I also use a CBD massage oil from Healing Rose of the same scent when doing myofascial release at home. I also use Somedays Cramp Cream (https://somedays.com/products/period-cramp-cream?variant=42062153842853).
8. Heating Pads and Ice Pack: I have several varieties of heating pads. A cordless travel heating pad (https://www.amazon.com/dp/B09FPTJL4G?psc=1&ref=ppx_yo2ov_dt_b_product_details), a plug-in heating pad (lhttps://www.hsn.com/products/pure-enrichment-purerelief-xxl-heating-pad-with-9-cord/22188460) and stick on patches (https://www.thermacare.com/ - I use the back patches but reverse them to the front for better coverage). For hot flashes and night sweats (also if you need to relax while anxious) place an ice pack over your chest to help cool or calm down.
9. Self-Care: No joke, massages, facials, epsom salt baths, sound baths, reiki….anything that you find relaxing. Do it. Try it! They also make CBD bath bombs Ive been wanting to check out.
10. TENs Machine: I really want one, don’t have one, but people swear by them (the heating pad linked to MyObi has a TENs version - https://myobistore.com/en-us/collections/my-obi-belts/products/apollo-2-0).
11. Pregnancy Pillow: This one sounds so lame, but I bought a pregnancy pillow for my first endometriosis surgery since I’m a side sleeper to help keep me on my back during recovery. It changed by life! It helps my anxiety and makes me comfortable while sleeping. (https://www.amazon.com/gp/product/B08YYVRXLM/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1)..
12. Heated Blankets/Cozy Blankets: Make yourself feel better with a cozy blanket. Do it, I dare you!
13. Endo To-Go Bag: Includes heating pads (travel, plug-in and patches), medications, balms/salves, essential oils and pads/protection items, change of clothes, wet wipes.
14. Sex Life: I’m single, I don’t have a partner to worry about communicating this issue with at this point, but go slow and communicate given eventually this will have to be a conversation. What I have learned is that if you do have sex and feel pain. Immediately stop! If you associate sex with pain mentally in that moment, it may cause fear in doing so down the line so it’s best to stop the moment you feel any pain occur.
15. Work Life: I work a demanding job so it was not working with the appointments and care I needed to manage pain. Always get FMLA from your doctor for intermittent leave based on your company's policies. This protects you from flare-ups and appointments. Short Term Disability is based on your situation with work so talk with them about any leave of absence for surgery and recovery and ensure the medical providers fill out the paperwork appropriately.
16. Friends/Family: This one is the worst. I have to cancel and make plans all the time based on how I feel. I like to line up a bunch of plans for three months out and do my best to make them happen at the beginning of the month when I know I’m most likely to feel good. I just say I’ll make things up to them when I get better and those who have stuck around have been truly amazing friends, but don’t be upset that some might be over the day in and out of what you’re going through. It’s hard for you and sometimes others and it’s just a part of the relationships we’re meant to experience in life. Most people (unless they have endometriosis) don’t understand it so it can feel isolating, but there’s others out there who know what you’re going through and are willing to chat. Just gotta find them and reach out on social media, online etc..
17. Journaling Symptoms: Guilty of not being the best at this always, but it's good to track your symptoms to see how they work and operate. It helps not only you plan for it, but also your doctors in how best to handle your care. Take photos of things that make sense to show your doctors! Discharge, bowels etc..can sometimes help diagnose or judge with the images.
18. Next to Bed Kit: Make sure your nightstand is stocked with the essentials for your bad days. Makes it easier to access the items you need when you just can’t get up and get it.
19. Squatty Potty: Another thing that is majorly life changing on constipation days! Get one or you can make your own :) Take a stack of books and stack them at equal heights on each side and put your feet up. The trick is making sure you’re in a squat with your knees high to your ears.
20. Clothing: Dressing for this is key but you still want to look cute! Joggers with a stretchy waist are my go to pants, but wide leg trousers with a stretchy waist help with ease of removal but also comfort and brings some style to the look.
21. Pads: I wear Always Discreet vs. pads. I find when you need to wear them full time for incontinence it just makes it more comfortable. They have different cuts and styles so definitely check them out!

Several people have approached me that they might have endometriosis. Lifelong warrior so thought I would share my tips and tricks I put together for my friends and family to share with you :) Hope this helps someone!
ENDOMETRIOSIS SURGERY FACTS

• EXCISION SURGERY! I cannot stress this one enough. If you have an ablation, it will grow back and likely quick (but consult with your doctors on your case 100%). Excision is when they cut it out vs. it gets burned off. You will have a better success rate and slow rate of growth if they excise. Not all cases can be depending on location so again, please talk with your doctor about your situation. This is not the same for everyone.
• If your doctor cannot do excision surgery. Skip and move on to the next! Trust me, well worth the time to research and find the right doctor. You will thank me later for this one too haha.
• Finding a doctor is stuff. Also tough to find resources. If you cannot find an Endometriosis specialist in your area who does excision, you may need to look out of state, but one tip is exploring gynecological oncologists. Some will take benign cases, but not all so do your research. But it’s a good avenue for help in your area or you want insurance coverage.
• Nanny’s Nook is a good resource for online information regarding endometriosis: https://nancysnookendo.com/
• Dr Seckin’s book called The Doctor Will See You Now is also worth the read (https://www.amazon.com/Doctor-Will-See-You-Endometriosis/dp/1681621126)
• Definitely look into Egg Freezing before doing any permanent surgeries. The ovaries are more intact when there is a uterus in place, so I recommend immediately following any excisions with Egg Freezing if you can and if it’s part of your plans. I found my AMH levels low (1.2) but still retrieved 25 eggs, so never be discouraged if this is your future planning path.
• My Symptoms: I experience bloating, constipation, diarrhea, nausea and vomiting as the main culprits. I have irregular periods in regards to the number of days and if it comes or not (even with an IUD). Pelvic pain is probably the worst of all since it accompanies these symptoms and is present a majority of the time. Others may have different symptoms, and there’s many others I didn’t list but wanted to paint the picture of some I’ve experienced.

ENDOMETRIOSIS LAPAROSCOPIC SURGERY (WHAT TO EXPECT)
PRE-SURGERY

• List of questions to ask your doctor
• Insurance Information and ID
• Necessary forms or paperwork the doctor requires
• Make sure any medical records are sent that would be relevant

POST-OP PREP

• Eat smaller meals and simple foods days beforehand. If bowel prep is necessary, they also recommend taking a laxative in the days leading up to help prep.
• Pack a bag! Not every surgery is an overnight stay but even if you have a day-of surgery, back an overnight bag. Here’s the essentials:
  • Phone/Headphones/iPad/Kindle/Books
  • Device Chargers
  • Medications that you currently take
  • Glasses (do not wear contacts day of)
  • An extra pair of underwear
  • Sanitary Pads or Always Discreet
  • Comfy pants with light elastic band around the waist
  • Non wired bra
  • Slip on shoes (this is clutch! Recommend slides -https://www.amazon.com/gp/product/B0BL7LJKZW/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1).
  • Layers - Sweatshirt, Long Sleeved Shirt etc. - Hospitals are cold!
  • Toothbrush and tooth paste
  • Hairbrush
  • Face wipes, wash cloth, small towel and bar of soap.

SPACE PREP

1. Make sure your bed or couch is prepped. I stayed on the first level for the first 2ish days before feeling well enough to stay upstairs.
2. I used a pregnancy pillow on the bed to help me stay on my back while sleeping and help you feel cozy.
3. Stock the house with foods that will be light for your stomach. Think soups and casseroles! Saltine crackers, broths, rices etc..
4. If you have a raised bed, get a step stool to assist. It’s best to sit on the side of the bed and slowly lay your upper body down while bringing your knees up and over to your back. You will need to use arm strength the first couple of days to get you up and over since you can’t use the abdomen.
5. Water and Beverages stocked at all times. I have a reusable water bottle and avoid carbonated beverages for the time being. They fill you with gas for the procedure so it may make those symptoms worse.
6. Netflix, Kindle, Puzzles, Craft Projects…visits with friends. Whatever makes the time pass, set it up ahead of time so it’s handy.
7. Items to Keep on Hand: Baby Wipes, heating pads, pads/diapers, candles, essential oils, things that smell good haha

BOWEL PREP
This is dependent on the type of surgery you are having, but its good to have Gatorade, Magnesium Citrate (liquid), laxatives and enemas on hand just in case you need these.
ON SURGERY DAY
It’s important to follow the instructions on what to stop taking and/or eating/drinking prior to the surgery. Wear comfy clothes (wide elastic waistband) and slides with cozy socks. Double check your to go bag and breath.
AT THE HOSPITAL

1. Do your check-ins and keep your people with you as long as you want.
2. Make sure to read all the consent forms and ask any questions upfront. Make any advance directives clear.
3. Just try to remain calm as there’s a lot of down time while they do intake. It is about 2 hours of prep before they bring you in for the surgery itself.
4. They will ask you the same questions over and over again, that’s normal and trust me, you want to confirm it’s all being done properly.
5. If you need something for anxiety, they will be sure to give you something if you ask :)
6. You will be wearing a gown, socks, funky underwear and a cool hair net haha wear the gown backward so you keep warm and keep the butt covered.
7. Vitals will happen and the anesthesiologist will come and speak with you to make sure they prep the right meds beforehand. Bring up any concerns here with them!
8. You may be wheeled or walked into surgery. I’ve only ever walked in and laid on the table myself.
9. They will then put the IV in your arm and sometimes will put on a mask, they will then ask you to count backwards and before you know it, you will be awake again!

RECOVERY

• You will wake-up and feel groggy. Totally normal and you will be in a different room. They will likely say a lot really quick about your surgery. Before leaving ask for them to walk through it or see if you can speak with the doctor again when clear headed. RECOMMENDED!
• Your throat will be sore, that’s normal from the tube.
• Just relax and sleep it off if you want, the goal is to be relaxed and pee once before leaving.
• Before you go, eat and drink and pass smoke urine. They’ll provide you with the meds and you’ll be good to go.
• Make sure someone brings you home after :)
• Make sure you have a bag for vomit in the car.
• Bring a small pillow that can be strapped between the car belt and you for maximum comfort on the trip home.
• Pain Med Management: This one is important. I messed up night one and didn’t take it soon enough and was in too much pain so make sure you stick to the schedule the doctors give you to ensure you are comfortable.
• Keep Walking: It seems unnatural to have a surgery then walk, but the sooner you get up and keep moving around the house, the better. Just avoid heavy lifting and immense bending like movements. Stairs are also ok but also consult with your doctor!
• Gas Build Up: I did feel pain in my shoulders from the gas. Just keep moving! It will help get that out of the system but this pain is normal.
• Relax and let people take care of you! Don’t be too quick to recover.
• Keep an eye out for fever, increased vaginal bleeding, or feeling terrible.
• Keep all post op appointments and follow all post op instructions!

ENDOMETRIOSIS MAINTENANCE
Here’s the tips and tricks I found helpful for maintaining my pain and symptoms (GI and back pain related):

1. Pelvic Floor Therapy: This is important for keeping the muscles in your pelvis healthy and strong to maintain your structure and also help manage pain. Consult with your doctor on whether this is right for you.
2. Physical Therapy: I do PT for my back and pelvic floor since it’s all related. We focus on Myofascial Release Therapy to help break up the adhesions and give me more mobility. This helps with temporary pain relief (reduction in number), but that is always welcome :)
3. Acupuncture: I swear by Acupuncture. I don’t know what it does or why, but it works. It’s not a cure by any means, but it's great for relaxation, fertility, digestion, endometriosis, sleep, etc.. I can go on, but it’s not covered by insurance plans all the time so you will need to check and see what you’re able to take on.
4. Diet/Exercise:
   1. Eating high protein, lower fat/carbs (not none just low) helps your body, but overall learn your trigger foods! This will go a long way.
   2. Ginger, turmeric and fennel all help with bloating. I like to drink them in tea form when I’m feeling particularly hard stomached as it’s a good natural way to decrease the bloat. Peppermint also works for some, for me it irritates my GERD.
   3. Chamomile for relaxation
   4. Walking and movement are important. I cannot do anything high impact due to my sacroiliitis diagnosis, so I stick with light yoga and walking.
5. Alcohol/Other Substances: Don’t do it. Don’t touch it. You’ll thank me later on this point.
6. Sleep: Insomnia is a very real thing. I think I went 2 or 3 days at its worst one time and I cannot say enough how important trying to keep the same sleep schedule will benefit you. Waking and sleeping around the same time each day will still feel exhausting but at least you know your body is getting the most sleep it can get.
7. Medications/Supplements:
   1. Ibprofuern: This does NOT work for me. I have GERD and ulcers so I cannot take NSAIDs, but with that in mind, NSAIDs are supposedly the best pain medication over the counter to help you manage it.
   2. Pain Killers: These are AS NEEDED. I try to refrain and leave these for the TRULY bad days which I try to spread out. Not even worth it sometimes, because I don’t like how I feel and sometimes vomit after taking them. But they do help the pain!
   3. IUD/Orilissa: An IUD will NOT do anything. If you are diagnosed, ask your doctor about Orilissa or similar medicines instead of birth control methods. This will not stop the growth, just suppress it. There are side effects and it is only a short term solution.
   4. Linzess: This worked well for me for constipation symptoms when they got severe. Definitely recommend bringing this to your doctor if you’re truly suffering and they have not yet mentioned. I also resorted after trying magnesium citrate
   5. CBD Lotions/Salves: For my pelvis, I use Healing Rose CBD Salve in Orange and Lavender (https://www.thehealingroseco.com/product/orange-lavender-with-chamomile-herbal-salve-300mg-cbd/). For my back, I use a medical grade CBD lotion with menthol (https://cbdclinic.co/clinical-strength-series/). I also use a CBD massage oil from Healing Rose of the same scent when doing myofascial release at home. I also use Somedays Cramp Cream (https://somedays.com/products/period-cramp-cream?variant=42062153842853).
8. Heating Pads and Ice Pack: I have several varieties of heating pads. A cordless travel heating pad (https://www.amazon.com/dp/B09FPTJL4G?psc=1&ref=ppx_yo2ov_dt_b_product_details), a plug-in heating pad (lhttps://www.hsn.com/products/pure-enrichment-purerelief-xxl-heating-pad-with-9-cord/22188460) and stick on patches (https://www.thermacare.com/ - I use the back patches but reverse them to the front for better coverage). For hot flashes and night sweats (also if you need to relax while anxious) place an ice pack over your chest to help cool or calm down.
9. Self-Care: No joke, massages, facials, epsom salt baths, sound baths, reiki….anything that you find relaxing. Do it. Try it! They also make CBD bath bombs Ive been wanting to check out.
10. TENs Machine: I really want one, don’t have one, but people swear by them (the heating pad linked to MyObi has a TENs version - https://myobistore.com/en-us/collections/my-obi-belts/products/apollo-2-0).
11. Pregnancy Pillow: This one sounds so lame, but I bought a pregnancy pillow for my first endometriosis surgery since I’m a side sleeper to help keep me on my back during recovery. It changed by life! It helps my anxiety and makes me comfortable while sleeping. (https://www.amazon.com/gp/product/B08YYVRXLM/ref=ppx_yo_dt_b_search_asin_title?ie=UTF8&psc=1)..
12. Heated Blankets/Cozy Blankets: Make yourself feel better with a cozy blanket. Do it, I dare you!
13. Endo To-Go Bag: Includes heating pads (travel, plug-in and patches), medications, balms/salves, essential oils and pads/protection items, change of clothes, wet wipes.
14. Sex Life: I’m single, I don’t have a partner to worry about communicating this issue with at this point, but go slow and communicate given eventually this will have to be a conversation. What I have learned is that if you do have sex and feel pain. Immediately stop! If you associate sex with pain mentally in that moment, it may cause fear in doing so down the line so it’s best to stop the moment you feel any pain occur.
15. Work Life: I work a demanding job so it was not working with the appointments and care I needed to manage pain. Always get FMLA from your doctor for intermittent leave based on your company's policies. This protects you from flare-ups and appointments. Short Term Disability is based on your situation with work so talk with them about any leave of absence for surgery and recovery and ensure the medical providers fill out the paperwork appropriately.
16. Friends/Family: This one is the worst. I have to cancel and make plans all the time based on how I feel. I like to line up a bunch of plans for three months out and do my best to make them happen at the beginning of the month when I know I’m most likely to feel good. I just say I’ll make things up to them when I get better and those who have stuck around have been truly amazing friends, but don’t be upset that some might be over the day in and out of what you’re going through. It’s hard for you and sometimes others and it’s just a part of the relationships we’re meant to experience in life. Most people (unless they have endometriosis) don’t understand it so it can feel isolating, but there’s others out there who know what you’re going through and are willing to chat. Just gotta find them and reach out on social media, online etc..
17. Journaling Symptoms: Guilty of not being the best at this always, but it's good to track your symptoms to see how they work and operate. It helps not only you plan for it, but also your doctors in how best to handle your care. Take photos of things that make sense to show your doctors! Discharge, bowels etc..can sometimes help diagnose or judge with the images.
18. Next to Bed Kit: Make sure your nightstand is stocked with the essentials for your bad days. Makes it easier to access the items you need when you just can’t get up and get it.
19. Squatty Potty: Another thing that is majorly life changing on constipation days! Get one or you can make your own :) Take a stack of books and stack them at equal heights on each side and put your feet up. The trick is making sure you’re in a squat with your knees high to your ears.
20. Clothing: Dressing for this is key but you still want to look cute! Joggers with a stretchy waist are my go to pants, but wide leg trousers with a stretchy waist help with ease of removal but also comfort and brings some style to the look.
21. Pads: I wear Always Discreet vs. pads. I find when you need to wear them full time for incontinence it just makes it more comfortable. They have different cuts and styles so definitely check them out!