Hi! I’m a 35 year old female, no significant past medical history prior to about 8 years ago. 5’1. 183lbs. Current medications: Adderall, Klonopin, Nurtec, Fioricet, Zoloft, Plaquenil, Levothyroxine, Claritin, Prednisone. Family history of Psoriatic arthritis in father and grandmother, Spinal Muscular Atrophy mutation carrier, Mother had a TIA at 29, several aunts and uncles with asthma/eczema/ psoriases and other allergic type issues. Grandmother and great grandmother (mother and daughter) both had breast cancer. One was inflammatory one was estrogen related. I have a daughter who is 15 and has eosinophilic esophagitis and gastritis along with several severe food allergies, hypermobility and chronic cold urticaria.
As for myself, current diagnoses are lupus, Raynauds, chronic migraines, and inflammatory arthritis. Labs show consistently elevated ESR, CRP, platelet count, along with a positive HLA B27 and low positive ANA (1:80 and 1:160). D-Dimer is also always elevated with no known cause. History of estrogen deficiency no known cause - hysterectomy at 28.
8 years ago I started gaining weight rapidly despite eating healthy and exercising regularly. I did see a nutritionist at this time as well who was stumped as to the gains. I was sent to endocrinology who placed me on lasix and phentermine. It did absolutely nothing. I ballooned from 118 to 175 seemingly without cause in roughly 4-6 months. At this time I also started having bouts of chronic diarrhea that would come on suddenly, last a few hours and go away. This would happen several times a month. Colonoscopy showed inflammation and tissue samples taken tested high for both markers for crones and celiac but no further action was taken by the doctor and the issues continued. I also had esophageal dilation performed four times for swallowing difficulties and biopsies showed elevated eosinophils. I have Livedo reticularis on my legs and arms and rashes after showers or any exposure to heat.
I started getting extreme sensitivity to sunlight, heat, stress and alcohol. I would break out into a non itchy rash across my chest and on my shoulders. My hands started to swell and I was diagnosed with dactylitis. My first ANA came back positive but all other rheumatoid tests were normal.
Fast forward many doctors later after moving to another state, the symptoms continue and worsen. I now have crippling fatigue and joint pain, morning stiffness lasting more than an hour, terrible low back pain just above the gluteal cleft and an inability to stand straight back up right away after bending over due to stiffness and pain in lower back. My rashes develop into a daily malar rash, hot to the touch along with flushing and heat in my hands, knees and ears and low grade fevers and night sweats. I start to sweat more than I ever have before and with very little effort or exertion. I am constantly itchy. Everywhere. I own stock in Benadryl. My eyes are so dry I have 3 different eye drops on my bedside table. I develop painful nasal sores that won’t go away. My rheumatologist places me on methotrexate and prednisone. Two months later I’m hospitalized with ARDS. I had ground glass opacities in my lungs. No clear reason was found as to why but I responded well to IV steroids. I now have restrictive breathing issues.
I’ve seen an allergist and had testing done for allergies - no major allergies found. Did test tryptase and IGE suspecting MCAS but those came back normal. Second positive ANA comes back along with continued elevated CRP and ESR despite being on prednisone daily. Rheumatology says they believe it’s lupus like or possibly inflammatory. She wants me to seek a second opinion but she is my third rheumatologist in 8 years (I moved and then one of them moved). I don’t think another doctor is the answer. There has to be something we’re missing.
TLDR What’s up with me?
Seen almost every speciality possible. All have different answers and none are concrete. Been Guinea pigged with tons of medicine that I hate taking (although I am compliant).
Symptoms: Swollen hands, erythema of face, chest and ears, Livedo reticularis on legs and arms, recurrent diarrhea, malar rash, chronic itchiness, fatigue, joint pain, nasal sores, tachycardia, breathing issues, HBP, unexplained weight gain, low grade fevers, night sweats, easy bruising, skin painful to the touch at times and feels like it’s bruised but it isn’t, shortness of breath, easily over exerted, dry eyes, hot/cold intolerance, muscle weakness and pain and chronic tendinitis.
Any thoughts for me? Especially seeing as my rheumatologist wants to “see other people” 😂

40M US 6' tall 230lbs white- headaches
What kind of headache would get better by applying 20lbs of pressure where my neck meets the base of my skull? I have an incredible amount of pain there. A lot of the time it goes all the way from the top half of my neck to the top of the back of my head but sometimes its just at the base of the skull. Every once in a while it includes my forehead. I can't go around pushing this hard with my hand all day it gets tiring pretty fast, then the amount of pressure is uneven, then i quit. But it really does provide relief. I wish I could attach something to apply that much pressure that wouldn't strangle me.
I've already seen every kind of doctor (except ENT) and sometimes got a 2nd opinion from another one so please suggest a test you think I should ask the doctor for or a condition I should run by the doctor. In fact Ive posted here a long time ago when I was having multiple types of headaches at the same time and it was basically impossible to help me because at least one was always going off and I'm terrible at figuring out what kind I'm having.
Progress:
I'm happy to report quitting SSRI medications stopped the headaches serotonin sensitive people get (cyproheptadine helped but not enough and those side effects are rough).
I have ASD and Klonopin stopped my overstimulation headaches.
Adderall stopped my migraines.
Meclizine is only "helping" my motion sickness headaches (maybe not enough) and its extremely tiring. Maybe I should go back to the Scopolamine patches 24/7.
Medications that did not help:
Percocet
Tramadol
Fioricet
Nurtec
Qulipta
Amlodipine
Theophylline
Rizatriptan
Sumatriptan
Pepcid AC
Zyrtec
Magnesium
Tylenol, Meloxicam, caffeine - didn't help back when I tried them but they did give me rebound headaches
TENS machine didn't help but maybe I should try it again. I was really trying to push it to the max I could tolerate but from what i've been reading (yea it hurts so bad I go back reading over the same old stuff hoping I find something I missed) thats really not the way to use it.
Effexor - felt like a headache shift. If I had to guess I would say it helped my migraines but made the serotonin headaches worse (it was before adderall)
Advil – has only started helping this week. This is what got me excited and thinking I might be down to 1 type of headache. A kind that benefits from Advil. because it did nothing for years.
Medial branch block c2:c3 - the procedure hurt insanely badly until the next day and they only injected a medicine that would numb occipital neuralgia for 2 hours so I have no idea if it worked or not. It seems like they should have anticipated I would be unable to articulate the different extreme pains so close to each other in the back of my head/neck.
A few more relevant notes:
I passed the caloric stimulation test but i do have tinnitus.
I had a brain MRI, its fine.
I had a neck MRI, they said I have some problems but they should not be bad enough to be causing any of my headaches:

1. Straightening of cervical lordosis.
2. Multilevel mild degenerative disc disease changes at C3-C7 with multilevel mild canal stenosis. There is no disc protrusion or cord compression.
3. Mild diffuse facet degenerative changes as described.

Trigger Point Injection day was frigging awesome! For 2 hours I felt like a normal person. They said the fact that it was only 2 hours meant it failed. They said I had to be responding to the numbing medicine (Bupivacaine HCl (MARCAINE)) and not the real medicine they shot in there (triamcinolone acetonide (KENALOG-40)).
It looks like there are a lot of possibilities for what the remaining headache could be:
whiplash damage - someone was driving a truck in the rain without windshield wipers and I was stopped at a red light. he hit me doing about 45 without trying to slow down at all because he couldnt see in the rain but that was 15 years ago and this has only been a problem for half that long
cervicogenic headache - because its not a throbbing pain and the diagram showing pain from the top half the neck to the top of the head is perfect for me most of the time. But I went to physical therapy 8 times and a chiropractor 6 times.
Craniocervical Instability - was suggested last time but the chiropractor would feel that right?
Chronic sub-occipital trigger point issues from bad posture - Another Aspie suggested this to me. Maybe we keep those flexed. I do lean my head forward an extreme amount. That is the area that hurts the most (when things are good and only 1 thing is hurting instead of the entire back of my head and top half of my neck that area is the 1 thing).
CFS leak - was suggested by the most people last time because of how much laying down for 30 minutes helps or how bad I feel shortly after getting out of bed in the morning. Laying down seems to help me considerably more than other people having a headache. However Theophylline didn't help so that seems to rule out CFS leak. I read CFS leaks cause "postural headaches" and you can can get postural headaches for other reasons than CFS leak. Perhaps I should be tested for those less common reasons.
Tension headache - But I think its tension headache even though the sides almost never hurt and I only have pain behind my forehead every once in a while. Adderall kills the migraines, makes the tension headaches worse, I take some tizanidine and the headaches go back to how they were before. Also, back before I had any issues resolved Propranolol helped me the most. And propranolol helps migraines and tension headaches. So if it was curing two different kinds of headaches that would definitely explain why it was the best (but it made me so tired I laid down more so that might be misleading me). I can't take Propranolol now. It completely nullifies the Adderall. I need a different muscle relaxer to test this further. Tizanidine ruins noradrenaline and makes me incredibly sleepy. I read there are muscle relaxers that don't change noradrenaline at all, don't significantly raise serotonin (if it raises serotonin more than Adderall's tiny bit I'd guess I can't tolerate it), and are less tiring than Tizanidine I just don't know if they are good for tension headaches.
Could you suggest any tests or medications for me to request from my many doctors? Thank you

31 year old AFAB woman here, currently dealing with extreme/bizarre pain, fatigue, malaise, weight loss, among so many other things. Recently had x-rays of lumbar spine and noticed what appears to be free gas under my diaphragm on the left side. And possible lesions of my spinal cord that I noticed on my MRI.
diagnosed with:

• endometriosis, confirmed by laparoscopy in Oct 2022
• chronic pelvic pain
• multiple uterine fibroids, biggest over 2cm, left side of uterus
• hiatal hernia, unknown type, diagnosed on June 2
• reactive gastropathy, unknown etiology, most likely from long term NSAID use due to other chronic issues (also dx this week, but I quit taking NSAIDs over 2 years ago after my brother was dx with NSAID induced colitis)
• lymphoid hyperplasia of the small intestine
• mild apex left curvature, lumbar spine
• bilateral foraminal narrowing of L4-5
• facet degeneration of L4-5
• wedge deformities of L1 and L2 anteriorly
• Schmorl's nodes in superior endplates of L2 and L3
• hallux valgus, both feet
• hallux rigidus of big toe joint, right foot
• hallux limitus, left foot
• flattening of right foot
• neuropathy of parts of big toes due to the bunions
• lateral meniscus tear of left knee, oblique, anterior horn right behind knee cap (happened in 2010 and only dx in 2022)
• baker's cyst, left knee, located on right side posteriorly
• migraines / tension headaches, chronic, some lasting 2+ days but these are rare nowadays, usually only have 0-2 per week
• PTSD
• ADHD
• MRIs showing bilateral scattered periventricular and subcortical white matter hyperintensities in both frontal lobes, biggest in right frontal (size never mentioned in report)
• carpal tunnel, diagnosis of exclusion by old GP. although I believe this is much worse and extends up both my arms, right arm esp has neuropathy
• strabismus (had surgery to fix at age 4 but was not completely successful, thankfully not noticeable without exam, believe this contributes to headaches)

Tested for: - ANA antibodies, neg - Lyme disease, neg - RA factor, neg - thyroid hormone values (TSH and free t4) appear normal - troponin is 0.00 - CK is 114 u/L - CCP antibody is 2 - chronic low RBC and WBC which PCP investigated, did not show I had B12 or iron deficiency, so they never investigated further
Medications: - Adderall IR 20mg tabs, 2.5 per day (50mg total, don't always take full dose, only take later dose if needed) - diazepam 5mg tabs, MDD2 PRN ANX and muscle spasms (prescribed by my psychiatrist) - clonidine ER 0.1mg, 1-2 tabs PRN sleep (only take this a few times per week) - Fioricet capsules WITHOUT codeine, 1Q8H PRN headache (rarely take this, maybe 3-6 caps per month) - acetaminophen 325mg OTC PRN - cetirizine 10mg OTC PRN - famotidine 20mg OTC PRN (helps with the pain of my HH)
I am also on the low FODMAP diet which I follow religiously as it does help with my lower GI issues (diarrhea/constipation, blood in stool, etc).
In November 2021 I went ice skating and fell extremely hard on my butt, on the left side. It was so hard that it sent an electric zap up my spinal cord all the way up to my scalp. It felt extremely scary and so painful that I got a rush of endorphins and was able to actually continue ice skating for a few minutes despite knowing I was not okay. I did not go to the ER and this is one of the biggest mistakes I've ever made. I'm positive I broke something. Had multiple x-rays and an MRI and been dismissed by all the doctors, despite multiple types of scans showing abnormalities.
I had laparoscopy for my endometriosis in October 2022, they also performed a D&C at the same time. I had lesions in the anterior and posterior cul-de-sacs, and during the D&C my endometrium was found to be polypoid but not cancerous. During the lap they had to cut my large bowel from the wall of my pelvis on the left side due to adhesions. I have had chronic pain ever since. I am positive a nerve was damaged during this, if not from the lysis of adhesions, then from the placement of the ports, or (least likely imo) the positioning of my body during the procedures which is proven to be a cause of nerve damage during GYN lap surgery.
I have had spasming and pain of my left flank that has gotten progressively worse since. I have lost an extreme amount of muscle mass. I have gone from a size 32 waist to a 26 within 18 months. It's hard for me to lift my arms and legs. Especially my left leg. I joke with my fiance that I have to drag my carcass around (like a zombie). I can barely think straight or even complete simple tasks. So apologies if this write up becomes hard to follow.
I feel stabbing pains in my rectum/anus, cramping in my vagina and labia, extreme pain on the left side of my pelvis especially posteriorly around my hip and sacrum. I have a spot of skin on the left side of my lower abdomen, between my belly button and hip, that has strange CRPS-like symptoms. I had 2 ultrasounds because of this and nothing was found except fluid in the cul-de-sac but my OBGYN never followed up about it (or anything else). I also did 12 weeks of pelvic PT in an attempt to improve this, it helped the vaginal/labia cramps a little but for the most part, everything is still progressing.
The pain began to radiate up into my chest, ribs, and back, about 4 months after surgery. I thought I was having a heart attack. I have a family history of CAD, A-Fib, SVT, atherosclerosis, etc. My brother (he also has colitis as I said above) was born with a hole in his heart, and my maternal first cousin has a bicuspid aortic valve. So of course I was sent directly to cardio where I got a holter for 3 days. It showed I have nothing wrong aside from isolated PVCs and PACs. So I was told I'm fine, all the while still suffering with almost daily unexplained chest pain for months.
Throughout this, nobody has thought to take an x-ray of my chest. My OBGYN ordered me to see ortho (saw him first on May 5) due to my pain not getting better, ortho didn't read my chart before meeting me and told me an MRI would be pointless, but I could get one of I wanted. I said of course I want one that's why I'm here. Ortho never put in an order so when I called to schedule the MRI I was told I need to call him and have him send the order! My OBGYN put "lumbar" on my referral so it seems ortho was only interested in checking my lumbar spine despite me telling him over and over I think it's more than that and I need to have my pelvis checked. He agreed that I must be in pain but refused to investigate any further. And despite my MRI interpretations clearly stating the abnormalities, he legit said to me that he doesn't agree with ANY of it and thinks my back is completely fine. This is his first job out of residency, which he just started in February.
June 2nd I had an upper endoscopy and colonoscopy, it revealed a hiatal hernia which is the source of a lot of my chest pain, at least in my mind. Medical sources will claim hiatal hernias usually don't cause pain but I disagree with this. I think mine is so painful because of the sensitization and possible nerve damage on my left side. It's becoming hard for me to breathe at this point! My diaphragm will spasm and what feels like little lightning bolts zap across what I assume is my diaphragm because I can actually feel it moving horizontally. It's hard to describe and remember everything I've been feeling due to how much is happening and how strange it feels. I have also been experiencing numbness/tingling/burning on the left side of my upper back between my scapula and spine.
I believe I am predisposed to developing chronic pain syndrome esp having PTSD, and I'm terrified that is what is happening to me. I do not take any "narcotic" pain medication for these conditions, nor was I ever given any for the pain aside from a 1 day supply of oxycodone 5mg after my lap/D&C. I take Tylenol as I cannot take ibuprofen.
I think that my left side is already highly sensitive due to my bad knee, and then the fall on ice in 2021 then the surgery in 2022. It all contributed to increasing the amount of pain I felt from all the issues I had before. Everything hurts and I feel sick constantly. I can't even describe it most days because I'm becoming so disoriented by it, not only from the pain itself but from the fatigue and brain fog and just the huge amount of things that are going on in my life outside of my health.
I've also been having spasming in my neck on the left side. I cannot sit down for extended periods not only because of my pelvic pain but because I start to get a headache simply from sitting. The headache (if caused by sitting) will almost immediately improve upon standing. Told many doctors about this and nobody has any idea what's happening. Maybe compression of the vagus nerve or a blood vessel in my abdomen?? Sitting makes much of my pain worse. But I'm becoming too exhausted to stand. I cannot stand still as this also causes pain. Walking is less painful than standing.
TL;DR:
https://imgur.com/a/jCGIWve

• does the x-ray image in the link look suspicious for free gas? It's a lumbar x-ray so unfortunately only a small sliver of my chest is visible, but around the "L" it appears my diaphragm is clearly visible with a void underneath it.
• does the cross section of my spine show possible lesions?

BTW I don't expect an orthopedic doctor to know everything and I'm not trying to blame him for any of this necessarily. Although I disagree with his assessment I don't expect doctors to be perfect. I'm just trying to figure out wtf is going on.

Is this a mix for problems later on? I’m not tapering be benzos right now but j will when I’m ready. Last time was horrific so I’ll stay with what I for right now.
Lyrica 200mg 3x day Methadone 133mg (tapering 3mg per week will jump to suboxone around 100mg or so) Adderall XR: 30mg am and 25mg pm Latuda 80mg Fioricet as needed Clonidine Hydroxyzine 50mg PRN sleep PrEP Truvada Generic Valium 10mg 4x a day SCHEDULED
So this is my med list. Is there anything I should look out for spare the methadone interactions which is why I’m switching back tk suboxone. I feel like the Valium, Latuda and Adderall are all the most important. I switched from Klonipin to Valium to taper down the road. I’ve been taking benzos daily for 5 years and the tapering had landed me on Valium. I want off it so bad bud with the methadone taper and the acute Benzo withdrawal from the failed cross taper kinda scarred me. After 5 years I’m beginning to wonder if I’m a lifer. I can’t not take adderall and function for more than 1.5-2 weeks. And Latuda saved my life, I’ve tried like 7 times to end it all but I rarely get SI with Latuda and I have a prescription for intranasal ketamine for severe depressive episodes. Forgot to list that because I use it maybe twice a month. I know Fioricet (I don’t respond to triptans or ergots I have a reputable neurologist and I get status migrainosis without it) interacts with Latuda and methadone is on its way out and no I don’t even feel the Valium but my methadone does kick in hard in the morning and I hate it and different doses are hitting at different strokes and today I got hit really really hard and that’s not where I am on addiction medicine because I was fucking loaded and I was just trying to write a text and kept nodding out so that happens. That’s a common occurrence and that’s why I am tapering and I know it might be the meds but I have no choice because nobody talks or take me I have a job to go to I have things to do. I have a life to live, and so many meds to manage so again methadone is on its way out and the dosage is being lowered every week so I am taking that into my own hands and tape bring myself down to a safe level that you’re on Suboxone where I’ll be safer with my med list. Outside of the opioid everything everything and them Fioricet and Latuda interaction is there anything else I should look out for? I plan on tapering off benzos to as low as I can go or off and I will do that when I’m done with methadone or when I’m successfully on Suboxone after I’ve fully established my ADHD is very severe and unmedicated I will, well last year I got into six car accidents being on medicated so that’s not gonna happen again so there’s no med list? What are you guys think?

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I'm in a writing mood today, so it's a day ending in y. But, today's a little different. My friend gave me some Adderall because I told her I never tried it. I haven't. Despite clearly having ADHD, I was never able to secure a script of the stuff because my doctors thought I was trying to score amphetamines. Fucking assholes. Apparently if you're smart enough to know you need something and ask for it directly, but lack the social skills to do it gracefully, and are poor enough to have to go to the free clinic, they think you're a drug seeking bastard of a patient. Well, I had also asked for ambien, xanax, fioricet, and a few others, so I was a drug seeker, but it was a story of the boy who cried wolf. After I started piecing together what was wrong with my brain, I knew I needed the shit, and by golly did I lack the social prowess to get any in a less than legal way.
Anywho, this stuffs kinda good but also kinda meh. It's certainly no meth, that's for sure. I don't feel anything, I'm just more motivated, which is great. It doesn't seem to enhance my creativity at all, she says in the wake of finishing an eight-hundred word poem. I don't need creativity to write poetry; they're more like puzzles I have to figure out. I just don't have the motivation to always create them. No, see what I'm talking about is I don't have that oomph I get when I'm deep in mania. You know, that part of me that can think of adding a bit in this sentence about canned beaver meat, but actually be funny. That took me a full minute to think of. In mania, it's just instantaneous, and it's good…forty-seven percent of the time.
Likewise, in mania I just know where to take a post. I see the code. Meanwhile I currently have no plan for what to write next.
Victoria ponders to herself
What if I added a neat little section where I oscillate between narrating what I'm doing and talking with myself?
Victoria pats herself on the back
Hmm…I guess I am a little more creative on this stuff.
Victoria shakes her head. She thinks, "No, nothing compares to my muse when she's wailing at a pace that would make Eminem seem like Droopy.
You guys remember Droopy? I haven't thought of that dog in years. Makes me wonder what other cartoons I'm forgetting. And now I have the Tom and Jerry Show theme song stuck in my head. Great.
It's the Tom…and…Jerry Show
Wait, was it Tom and Jerry Kids?
It's the Tom…and…Jerry Kids
No that doesn't make sense.
It's the Tom…and…Jerry FUCK

Demographics:
23 F, 5'6", 120 pounds, biracial (black/white).
Primary Complaint:
Over the past week I've been experiencing intermittent headaches that last at most 30 seconds each, occurring randomly throughout the day. There are no obvious triggers - they occur when I am sitting, laying down, up and walking, etc. Frequency has been increasing to the point where this happens anywhere from 10-15 times a day, possibly more as I'm not exactly counting. I would describe them as a sharp, almost squeezing type of pain. They are localized to the top, right side of my head (parietal eminence area). Not relieved by Tylenol or Fioricet. The pain is temporarily reproducible when I press on that area of my head.
HPI:
I have been diagnosed with migraines; however, they do not typically present this way. They are usually a more constant pain around my eyebrows that resolves within an hour of taking Fioricet. My migraines usually appear with the estrogen surge before ovulation. I also would get occasional headaches when taking letrozole, but again, they were different.
Medications/Health Conditions:
- Prozac (fluoxetine) 40 mg daily for depression/anxiety (2016)
- Adderall (dextroamphetamine salts) 30 mg XR daily for ADD (2015)
- Hydroxyzine HCl 25 mg PRN anxiety attacks (2014, have not needed to use in past year)
- Fioricet PRN migraines (2018)
- Femara (letrozole) 2.5 mg once daily on cycle days 3-7 for ovulation induction/infertility treatment (past 6 months, NOT currently taking this cycle) note: suspected cause of a blood cholesterol reading of 275 during first month of treatment (8/19/2021) discovered after donating blood.
- Prenatal Vitamin daily (2019)
- Myo and D-chiro inositol supplements daily for PCOS (2021)
- Low-dose aspirin 81 mg every night for chronic systemic inflammation/increased blood flow to uterus (started 1/23/22)
Vaccinations:
All current, including COVID booster (Moderna) and Flu shot (both administered November 2021)
SH:
Occasional drinker (once or twice a month), no smoking, no recreational drugs
Relevant Vitals: (recorded minutes following an episode to rule out hypertensive HA)
BP on left arm: 112/77 with pulse of 127
BP on right arm: 103/72 with pulse of 114
Blood oxygen: 99-100% (Apple Watch reading - take it for what it's worth)
Other:
As a pharmacy student, I should have known better to check for potential drug interactions before adding aspirin. However, I didn't run an interaction check until today to see if there could be a medication-related cause for my strange headaches. I found a major drug interaction between fluoxetine and aspirin due to increased risk of GI bleeding and spontaneous intracranial hemorrhage within first 30 days of co-administering the medications. (Statistically, I know this is unlikely to be the cause of my headaches, but as an infertile 23 year old, statistics are not on my side).
Other than the addition of aspirin, the only change in my medications is this is the first month since August 2021 that I am not taking letrozole during my period. I am currently on cycle day 5.
Question:
Could this be from any of my medication changes? Could it just be worsening migraines with different presentation? Weird hormonal-related headaches? Would it be advised to go to the ER for the small likelihood that my headaches are due to something serious like ICH? I recognize that I have anxiety and felt it best to ask for guidance before freaking out.

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I'm an AIT soldier on orders to my first duty station. I filled out my part of the DA 5434 but my sponsor hasn't filled out there section and it's been a few weeks. I was told they won't cut my orders unless the sponsor fills out the form. What do I need to do to get a sponsor?
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Current 31B with 4 months left in my reserve contract. Graduating with my Bachelors degree in May and I was trying to decide what I want to do next. Retention told me to just go full hooah and re-enlist for another 6 years and eventually I’ll get slotted for OCS, which is my end game move. I want to move to the 35F or 35L but retention said it doesn’t matter and I should just take the bonus for the 31B re-enlist and move on because OCS will change what I’m doing anyways. I think he’s full of it and I was hoping for an unbiased opinion.
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What is 13F life like as a Ranger, both at home and deployed. Do they hang back but close enough to call for stuff or will they go in with infantry and door kick/trigger pull some times?
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Is 33 too old to enlist?
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What is cat 4?
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Can meps see your medical records ? I know a lot of you guys are going to say I’m lying to meps the only reason I’m asking is because my recruiter told me to lie . I don’t want a bunch responses telling me not to lie because I have already decided lying is the wrong choice
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so i was made aware that i cant get either option 40 or 4 due to my med waiver for 1 screw in my leg. however was curious about me being able to volunteer for airborne and or rasp... in that case some people told me i likely would not be able to even volunteer due to my injury which occured 6 years ago and hasnt even given me trouble since . is this true. i would really like to take a shot at airborne and rasp. but cant find much info as it pertains to my specific predicament
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Long story short, I've been on IRR for 3 years with no contact with the Army besides sending in a yearly deferment for school the entire time. I report to BOLC this Fall and after 3 years I have forgotten pretty much everything I've learned prior to commissioning.
What can I do as a refresher in the meantime so I'm not completely lost? I'll be taking the bar this summer and I'm branched in a non combat arms position on active duty.
Also can't get my orders from HRC because I don't have a valid CAC but that's a different headache.
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Can you transition from active duty to reserve in one term? Or do you have to wait til your enlistment is renewed?
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So I just enlisted today for a six year contract with 25S signal corps. Ive talked to a few people about it and some say really good things, and some people say some really bad things. Some say its easy as hell and some say its as hard as Crypto-linguistics. Can someone set me straight on this? Im doing satellite communications operatomaintainer. Hell some people even says its alot of travel.
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Looking to pick the brain if anyone who has been to CBRN BOLC in the past few years or so.
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Has anyone ever met with a battalion commander to get a waiver approved? Just want to know what to expect.
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I noticed I have like a 2 week gap between my 11X OSUT and jump school on my orders- obviously, because that’s when the next school cycle starts and such. I guess my question is what am I gonna do during that gap? Do I get to take leave, or am I gonna hang out at my training company and do whatever? Just curious.
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Who is responsible for fastening a troop strap on an lmtv? Or who is liable if a soldier falls out the back and there in no troop strap?
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Thoughts on 35p and 68s?
My husband did DLI twice, so I'm a little more familiar with that.
68s sounds fantastic and I'm currently finishing my bachelor's with classes that focus on environmental health and epidemiology - so it seems right up my alley. (It's a general studies degree since I had the hrs but no true concentration - it ended split between education and health promotion).
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My spouse is choosing to live away from me. I did not force her or neglect her. She is living in another town and got a job by her own accord. All of my BAH goes to military post housing. We have no children. Am I obligated to send her any of my regular pay?
I'm gonna check with my post legal aid office on Monday, but if anyone can share some insight, I would appreciate it.
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PCS from OCONUS to CONUS. Do I get a seperate 10 PTDY to pick up my car from the one I used to house hunt?
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I’m thinking about re enlisting because I received an entry level separation from the navy and all my meps stuff is still good but I want a good MOS that will transition well into a civilian job my ASVAB score was a 91. And the recruiter I’ve been talking to is doing what he can to help but the sergeant in charge of the station is pushing me and trying to rush me into signing a contract
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Still looking at MOS' to decide on, I like the concept of 35Q and 17C ive already gotten some info on 17C, but id like to know more about 35Q (i already checked the mega-thread and only found two mentions of the MOS, and it was only in passing.)
Im particularly interested in the Day to Day and what the work is like.
Im also looking for a position that has a decent to high chance of allowing me to live off base (with or without recompense) as i have a pet cat that I would like to keep with me, (I obviously dont mind having to leave him here with my parents for basic and AIT)
Im fine with hearing recommendations for other completely different MOS's aswell! I really dont know specifically what I want to do, so anyone who has experience with an MOS and thinks It might fit me feel free to point it out.
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Can 35 series volunteer for Regiment? If so, are they just enablers with a scroll or are they doing Ranger shit? Where does the new RMIB fall into all this? Is this where all intel Rangers end up? Thanks.
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I'm some kid just asking questions, don't know much
-Thinking of enlisting after college. Heard that college boys become 2nd lieutenant but they go to through OTC, is this true? -If I was to enlist active duty, what's the minimum and average I have to serve? -If I do 32nd Airborne that's more years on my service? -Can I change my MOS throughout or ? I'm thinking of doing 31B (military police) or 31D (criminal investigations special agent) because it leans more towards my career path in FBI. However, 18B (special forces weapon sergeant) is cool af becuase i like guns and that's an interest to me. -Can I choose where I can be stationed? Like Germany?
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Can I join the army if I have a herniated disc? I have a herniated disc that's causing my sciatic nerve to shoot pain down my left leg, been like that for 8 months now. If my back ever improves can I join? Should I? I'm currently a high school junior.
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Had juvenile misdemeanor when I was 17, got it expunged and all that jazz. Recently went to a recruiter to join, told him about past history and he said he may not need waiver for it. Took background check and everything came back clean, nothing showed up. He’s suggesting to not tell anyone and not claim any past criminal history occurred. Is my recruiter setting me up for failure? Should I request to start the waiver process regardless of what he suggest?
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Awesome that’s for the help, didn’t sit well in my gut. Thanks again for the reassurance.
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Is there a regulation concerning rucksacks? I brought a malice back for when I attend ABOLC and just want to make sure I'm good or if I should return it?
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How easy is it to get a medical role in the army and what would life look like in that kind of role? I'd really like to be able to travel and learn new skills!
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We're about 20 months from a potential deployment and were allegedly getting NOS'd this month (National Guard).
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If our state accepts the mission, whats the next step? When do we actually receive orders?
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Bonus points if anyone knows anything about the UH60 A/L situation in Afghanistan because ive heard there are very very few.
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Anyone know anything about the current status of 35L being open to non-prior service? I've googled around and I can't find anyone who has actually done it or if they're still taking people.
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Reserve officer here, looking to go Active early next year. My question is about the new paternity leave policy. If I'm reading the reg correctly, I will only get the 3 weeks of paternity leave if I had already served for 12 months of active time prior to that. My situation is that we WERE planning to have a baby summer of 2020, but at that point I may have only been active for a couple of months. Would there be other leave available for me to use? Or would I be screwing myself over and we should just pick a different time to have another kid? Just not familiar with leave policies in general on active duty. Thanks for any explanation.
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So as far as 35P goes: Are they currently in demand right now? And what exactly justifies the $40k signing bonus?
I see it’s listed in demand on GoArmy.com but I don’t know how often it gets changed/if it’s really accurate so figured I’d ask here.
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Hello! I am going through a difficult situation right now and am asking for anyone with expertise on the subject. I enlisted for 3 years 40 weeks for active duty. I then re-enlisted to serve in the National Guard near the end of my active duty obligation for a 3-year $5,000 bonus. I am now being told that my ETS from the National Guard isn’t until my MSO. My MSO is 4 years 1 month and 4 days from the time I enlisted in the National Guard, not 3 years. When I spoke with Retention, they told me that their was no option to only serve 3 years, and that there is only a try a year option or serve out the entirety of my MSO. I am now being kept a year passed what I thought would have been my ETS, and am being involuntary pulled out of college and being sent to Kuwait. Thoughts? Knowledge? HELP!
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Question about receiving bus driver training:
Our instructor said there used to be a way that you could take your certificate to the DMV of your respective licensed state and get your CDL using just that piece of paper and testing out on the written test there.
Is there still a way to do that? Is it still a thing?
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Any recommendations on Army and/or Air Force Recruiters (both Active and NG) in the DFW area?
I thought that this community might have some specific connections and recommendations for recruiters in the DFW area, especially those involved in Guard units in the area. Are there any specific recruiters in the area you would recommend, or should I just go to the nearest recruiting office?
Also, I likely need a med waiver. So I would need someone willing to work with me on that.
I have a bachelors degree (3.35 GPA in an engineering field) so I think I could be eligible for OCS/OTS as well as enlisted.
Are there any NG units in the area you would recommend?
Any additional advice would be appreciated- thanks!
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I’ve heard rumors and I don’t want to take them without getting a more current view. Will being a Mormon affect a career as an us army officer?
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Looking to join the reserves with no prior service. I had two felony charges for possession of marijuana under 2.5 oz and possession of paraphernalia resulting from the same incident as an adult a long time ago. In the state I was arrested in, any amount was considered a felony. Both charges were dropped due to a pretrial diversion program I entered. They showed up on my rap sheet with a statement that said "No Felony Convictions." My recruiter isn't sure what to make of it.
Is it possible to get a moral waiver for this and is there a realistic chance at doing so if I can?
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I would like to enlist in the military for personal reasons and financial reasons, but I would also like to be a graphic designer and hopefully lead myself into UX/UI design. Has anyone here done any graphic design in the military? I know if there has been work done its been really small. I only hear the Navy has a small portion of work done in there. But recently I found out the Army has their own page dedicated for graphic design called Multimedia Illustrator. https://www.goarmy.com/careers-and-jobs/browse-career-and-job-categories/arts-and-media/multimedia-illustrator.html
Im 17 and I want to pursue this career path but i'm wondering if the Army and this enlisted job specifically can help me out in this field for experience. I already have high school experience.
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how close are you to combat as 14p, i’m stuck between it or 19d, thanks.
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So I’m very close to joining the Reserves currently, but I also am 100% certain I want to go to college, I have a weighted gpa of 3.86, i am apart of honor society, and a junior in high school. I love my country and I want to join both because of that and to help pay for my education. My question is what is the procedure for applying to college? For basic and AIT it would take 6 months to complete after high school. Do I apply to colleges and universities before I leave for basic or do I apply once I get back? I guess my main worry is getting stuck in a crummy college because I took 6 months after graduation to apply. But I’m not sure how the application process for that works, can i apply and get accepted and not start school until the following spring after training? Or do I have to wait to apply all together? I know I asked a lot and it might be confusing if you need some clarification I might be able to try and word it differently, but thanks to anybody who can help.
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I'm currently a freshman in college and after this semester will have over 40 credits completed. I'm planning on being an actuary which is a very weird job that involves risk management for insurance companies. The way to get further in your field is by taking exams that are absurdly difficult and require intense amounts of studying.
Because these exams are supposed to be so hard I'm worried that going through college and then joining the military would be a bad option since I'd likely forget a lot of what I learned. I'm debating on going into a financial type of MOS (such as Financial Management Technician 36B) for either 2 or 4 years, then if I want to make a career out of the military I can while also being able to work on my degree and either finish it while on duty or after my years are up.
Thoughts or suggestions?
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So I may or may not have improperly washed my ACU top and fucked up the velcro. Is there anyway to fix it? I've tried cutting at it with scissors and shaving it a bit but it doesn't seem to be too effective, am I doing it wrong?
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MEPs processing. How picky are they? Also, has anyone had an issue with being Dq’d and how soon can you try again after that? Also I’m a fully certified civilian EMT. Wanting to translate to 68 whiskey. What is the round about afqt percentage that will get me there? I know the GT and ST req’s but all the practice testing I have been using do not show the line scores like the icat or the asvab.
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1. Recruiter had to send my paperwork to the USAREC surgeon. Anyone know how long this usually takes?
   
2. Would I be able to take the DLAB and pick a job on the same day since already have my physical/asvab done?
   
3. How does the job selection process work for the army?
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Yeah, I mean it was my first choice of an MOS but I was also considering 91B because I know that would help both in my personal life and also if I decided to go to school for Mechanical Engineering but like I’ve said, I’m also interested in business administration, I guess I just have to weigh all the options in the coming months.
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I have had financial troubles in the past, leading to a couple things reported in collections on my credit report. They total up to around $2500. Will this prevent me from enlisting?
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I am an approved DAT waiver. MOS I'm most interested in is 15W but there is a chance that I may not get it because of security clearance. I got mixed answers at my recruitment station and said I may still be able to get it.
Are DAT waivers completely closed off to jobs even with the lowest level of security clearance?
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I'm reenlisting for Alaska for a 20 level slot. However, I'm definitely going to be a SSG before I report there. Is there any chance of my orders just getting deleted due to this or will I still go?
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I'm preparing for Ranger school and I read in a couple of places that you shouldn't take creatine while training before going. Is this legitimate advice? I don't see how it could negatively affect me, but maybe I'm missing something.
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I'm preparing to enlist with the army but still didn't decide on a MOS My brother recommended 2MOS's: Infantry and Calvary scout How is life for Infantry or Calvary scout? Is it a deathly job? I'm not very afraid to go out to combat but I don't want to die out in combat and leave my family alone. Also can anyone recommend any other MOS's?
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Can I join with clinical depression and ADHD? I want to join the National Guard when I get older but idk if my depression/ADHD will disqualify me?
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Can I bring my dog with me to bolc?
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What’s everyone’s favorite shoes to wear for PT?
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Best way to lose 180 lbs quickly to re enlist?
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Does being in the army lead to health problems? you hear about soldiers who served having back pain, arthritis and no cartilage left in their knees.
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Any of you Army folk at kadena on this thread? I need a favorino 😭, you’ll even make some moneys. My ocps got torn and i need a new set but they won’t let me buy them 😂
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Is there anything that would be good to bring with me to basic?
Will anyone look at you sideways if you use a fountain pen in OCS?
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Can I enlist if I'm diagnosed with a mild case of Bi-Polar disorder?
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Is there a regulation with a time limit on receiving a negative counseling? And or even receiving both of those counselings at the same time? I.E. getting 2 counselings 14 days later at the same time for two missed appointments, with an immediate recommendation of article 15.
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hey, weird question. If you wan to be a doctor in the army, do you have to go through med school first or do you go through med school as your technical school after basic?
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Does anyone still report to a new unit in dress uniform?
I'm talking like knocking on your commander's door in your Blue's, saluting and stating "So and so reporting to such and such unit."
Just wondering if that would impress a BC these days or just make him or her think you're a fucking weirdo
I think I saw a Major do it at my first unit at Campbell, but haven't since.
Edit: Yes, downvote me for asking an honest question, thanks!
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Long story short I am on Tizanidine 2 mg 2x, adderall 10mg 2x, xanax 1 mg 3x, phenergan 25 mg, marinol 10 mg 3x, fioricet, oxycodone, prozac, and Friday will be my 1st Ocrevus infusion. I am petrified. Should I take an extra xanax? Not take the adderall due to the steroids? Just curious on what you would do in my position (except ask your dr.)

This is going to be long, but if you have the time and know anything about rare diseases/illnesses, please read this. I will start by telling you what I've been tested for, what I don't have, what treatments have/have not worked to save you a bit of time.I will also tell you what tests have come up positive, abnormal blood work results, ect. Putting a "*" next to the positive tests means that, for whatever reason, I am no longer showing up positive. I will also list out diagnoses I have been given. An "a" will mean acute, and "c" will indicate if the symptoms of this diagnosis are chronic in nature. If you still have some ideas in mind after reading this list, feel free to give your input. I have also had many psychological / neuropsych testing done to rule out and possible physical manifestation of mental illness. I have included pictures at the bottom for reference. Some of what you will read and some of the pictures are pretty gross, so I guess be aware of that.
Stats : 5'9" 100 lbs Upstate New York Female 26 years old
Diagnostic testing/negative test results: Lyme disease (multiple blood tests and spinal taps), Multiple Sclerosis (LP and blood) ,Cancer , Paraneoplastic syndrome, Lupus, HIV, ANA, Sjogrens, Epilepsy, Whipples, Chrons, Ulcerative Colitis (upper endoscopy and colonoscopy. repeated 3x), Seizure disorders, Dementia, Early onset alzheimers, Mad cow, Rheumatoid Arthritis, Diabetes, Thyroid disease, Hashimotos encepholopathy, Adrenal disease, Heart disease, scleroderma, autoimmune hepatitis, myasthenia gravis, anemia, Huntingtons, Guillian Barre, Stachybotrys chartarum, toxoplasmosis, esosinophilic menengitis, allergies, parasites, heavy metals, poisions ovarian teratomas, eosinophilic esophogitis.
Positive Tests: Epstein Barr (c), Fatty Liver disease (c), Primary Biliary Cirrhosis ()- test run 3 different times and sent to three different labs. Positive for one month. Negative after, High Mitochondrial AB (a), High WBC (a),Low Lymph (a),Elevated CRP (c), Elevated RNP (a), Elevated RBC in spinal fluid (a), Elevated Eosinophils (a), Low Creatin (c), 41 KD IGG Band - reactive abnormal (c), High Cholesterol (c), HSV 1&2 - High positive ()- now shows up negative for HSV, IGG P41 - high, IGm p23 - abnormal, High Neurtrophils (c), Reactive Lymph nodes - biopsy - non specific. (c),
Diagnoses : Brain mass - left temporal lobe. W/G matter barrier. 3cm. No growth (c), White matter Brain lesions (c), Tacchycardia (a), Chronic Fatigue Syndrome (c), Ataxia (c), Wasting Disease (a), Fatty liver disease (c), IBS D/C (c), Hypersomnia (c), Insomnia (a), Hallucinations (a), Raynaud's phenomenon (c), Overactive bladder (c), Bladder rentention (a), Cessation of menses (a) - 3 years. Has since returned , Anorexia (not nervosa) (a), Tremors (c), Memory loss (c), Confusion (c), Amnesia (a), Seizures - grand mal (a), dysphagia (a), unsteady gait (c), paresis of legs (c), night sweats(c), bowel incontinence (a), dysarthria (c), numbness/tingling/weakness (c), cluster headaches (a) Possible Autoimmune Encephalitis - unspecified.
Specialists : Neurologists (6), Gastroenterologists, Urologists, OBGYN, Endocrinologists, Rheumetologists, Oncologists, Hemotologists, Cardiologists, Physical Therpists, Pelvic PT, Opthamologists.
Current medications list - Adderall - 25 XR - hypersomnia. Have gone off of medication for many months during diagnostic testing and symptoms such as anorexia, IBS D, raynauds, tacchycardia, insomnia. Symptoms were not effected after removal of medication. Trulance 3mg - constipation IBS/C
Medications we have tried that have been unsucessful: Antibiotics - amoxycilin, ciproflaxan, xiafaxan Antidepressants - zoloft, prozac, welbutrin Antianxiety - clonopin, xanax, hydroxizine Antiseizure - depcaote, seroquel Migraine - Fioricet, and every other one on the market i think Pain - hydrocodone, oxycodone, codiene, morphine Possible MS - Copaxone
Medications that help: Dexamethasone, Prednisone Hyosciamine - (diarrhea/wasting) Adderall - Chronic fatigue/ sleep attacks Trulance - constipation, Linzess - constipation
I am aware that many of these medications come with a number of side effects. All symptoms and testing that I will talk about has been done after any medication has been out of my system for an extended period of time. My symptoms also appear to be cyclical. I have tried moving, and I have tried going to warm, sunny locations close to the equator during the winter time when my symptoms seem to exaccerbate. Climate, sunlight, and humidity make no difference in when my symptoms appear and the severity of them. I have tried moving out of the country to many different places. I have tried every supplement you can think of. I have tried meditation, yoga, therapy, diet changes. I eat a vegan diet. I was not vegan when this began. The vegan diet helps with my IBS symptoms. I take mulivitamins and drink protein shakes. My blood work, besides the things that have always come back abnormal, such as creatin and cholesterol, remain unchanged before and after the vegan diet. I do not smoke or use alcohol or drugs. I get exercise everyday and do physical therapy.
Now for the long, boring part. I'm not exactly sure when I got sick, or what may or may not be important. So I'll start with the first few times I felt sick. When I was 11, I got mono. I was out of school for months. I got mono 3 more times over the course of a 3 year period. I never felt the same after that. I had less stamina, and was exhausted. I began menstruating at 11, and my periods were lasting about 8 months. They were extremely heavy, and I was becoming anemic. They diagnosed me with Von Willibrands Hemophilia, which I would later find out was a misdiagnosis due to improperly run tests. I was put on birth control to help with the periods. It did help.
When I was 19, I was out with my mom and step dad at a diamond mine and I felt unwell. I felt confused, disoriented, exhausted, and had a headache. I assumed I was dehydrated. I got a bunch of spots on back, shoulders, chest, and abdomen that were oblong and red. They were slightly red. They were quarter sized. They did not itch or hurt.
They lasted for about a month. Nothing made them better or worse. We tried antifungals. I never felt right after that day. The fatigue got worse by the day. I developed painful, enlarged lymph nodes on the back of my neck. My doctor thought maybe I had Lyme disease, so he put me on doxycycline just in case. It made no difference.
I began having episodes where I would suddenly get very disoriented and not know where I was, even if I was in a familiar place. Time seemed to slow down or speed up, I'm not sure which. I couldn't see quite right, though I can't pinpoint exactly what wasn't right. I would zone out and become almost catatonic. They would last anywhere from 15 minutes to an hour. I would usually have to lay down. Sometimes I would just fall asleep right where I was. They suspected it was some sort of anxiety attack, so I was put on antidepressants and anti anxiety medication. They didn't help with these episodes.
I started to have digestive issues, much like I did when I was a small child. Anytime I would eat, I would get stomach pains, and very bad diarrhea. I lost 40 pounds in a couple of months. It was not c-diff, parasites, or a bacterial imbalance. After about 8 months, it stopped.
The episodes would go away for a year, then return. Each time, they would return for longer periods of time. They would be more intense, and they were becoming closer and closer together. When I was 22, I went off birth control to make sure this wasn't a hormonal side effect. My menses did not return until this year, and they are very light. My period will happen for 2 days, stop for 2, and then start again for 3. They come about every 6-8 weeks. Sometimes I will have a menstrual cycle 2 weeks after my last, but that is rare.
When I was 24, the episodes were almost constant. I had chronic headaches and migraines. I was sleeping for 22 hours a day when I could. I worked as a funeral director (and no, this is not a result of exposure to any harmful agents I worked with or BBP's, I have been tested). I started working at a pet store after working as a funeral director didn't work out. I was a manager. My boss had to demote me, because she was concerned about my condition. I did not think anything was wrong with me, except that I was tired. She noted I had personality changes, and would become easily angered and aggressive, which is not my nature. She noted I was losing strength, and could no longer lift and carry things I could a few months prior. She said my gait was becoming staggered. She said I could no longer multitask, and I seemed confused and disoriented. I didn't believe her, or I didn't want to. On three separate occasions, I left the cash registers open, full of cash, and the front doors to the store unlocked. I don't remember doing this. After that, she showed me security camera tapes of me standing in corners of the room, for 20 minutes or more, not moving at all. You could see customers try to interact with me, and I was catatonic. A month later, I had a grand mal seizure.
The seizure led me to an MRI where they called me in immediately and told me I had a brain tumor. I was sent to oncology, and they put me on a high dose of dexamethasone to slow the growth of the tumor until we knew what we were dealing with. They wanted to do a biopsy. I refused. The MRI also revealed a number of white matter brain lesions. I also had an arachnoid, a bundle of abnormal veins. These are usually harmless, but can cause anyuerisms. In going back to an MRI I had when I was 8 after a bad concussion, it was confirmed this vascular anomaly was present then, so I was most likely born with it.
I got a repeat MRI a month later, and the tumor had not grown, and the lesions had significantly reduced in size, althoug had left me with some scarring.
I was taken off dexamethasone and within a few months, my condition rapidly declined. Soon, I lost the ability to walk. It started with right sided weakness, and I would fall a lot. One day, I couldn't get back up. I was bound to a wheelchair for almost a year, and through rigorous physical therapy, learned to walk with a crutch. I walked with a crutch for 3 years. Although my spinal taps and other tests came back negative for MS, the only concrete thing the doctors had were images of my brain, which had some white matter lesions, so they thought maybe I had MS. I guess in rare cases, testing can come up negative for MS when you still have it. I saw an MS specialist, and she suggested I try a medicine for MS, which was fairly benign in nature with few side effects. It didn't work.
I began to have trouble urinating and emptying my bladder. The episodes were worse than ever, and I would not be able to communicate in complete sentences while they were happening. I developed severe tremors in my right hand, and the left side of my face. My left eye was drooping, and blinked slowly compared to the right. I lost almost all vision in my left eye, althougn there was nothing structurally wrong with my eye. I developed raynaud's phenomenon. During these episodes, which were happening usually around 3 pm everyday, my fingers and toes would turn blue, my lips would turn blue, and my veins would collapse to a point where they could not draw blood. During one episode at my doctors office, I lost conciousness and woke up in the Neuro ICU where I would remain for quite some time.
They ran multiple tests and LP's, and I was constantly hooked up to machines. I was confused, and would answer questions like "middle" for noon when being asked what time it was. I couldn't write because of tremors and confusion. I was constantly having taccychardic episodes where my heart rate would go to 165 bpm, even when I wasn't moving. There is nothing structurally wrong with my heart, and we have ruled out medication as being the cause. I was constantly hooked up to an EKG, and the ruled out seizures.
For some unknown reason, while in the ICU, I felt a little better one day. After being a little more stable for a couple of days, I was allowed to go home. I was not on any medicine that caused me to feel better.
Months went by with tons of physical therapy, and I started to learn how to walk. Then one day, the episodes returned, this time, with hallucinations. I would feel as if there was warm water dripping from the ceiling onto my skin. I thought I saw my house on fire. I thought I saw myself walking down the road, and it was confirmed that no one was there. I would think that I was other people in stores and such, and would ask things like "how did I get over there?" even when the people did not look anything like me. I became paranoid and aggressive. I thought the people around me were poisioning me, and I started to become physically violent. I couldn't eat because I would choke on my food. I got another MRI, and my brain had lesions on it again. I was put on a very high dose of prednisone, and my symptoms got better.
I went off the steroids again, and felt pretty good for a while. I was learning to write, talk, eat, walk, and even drive again. Things started to look up for a while. Then the headaches came. These headaches were like nothing else I can describe. They were similar to when you have a CSF leak from a botched LP, (and trust me, I've had my fair share), where the pain is excruciating and you go blind and deaf if you lift your head. These headaches were 50x more intense than any migraine I've ever had. They usually started on the back, right side of my head, near the occiptal bone, and went up over my right ear to the top of my left eye near my sinuses.Oxygen therapy helped a little tiny bit while I was using it. Even oxycodone wouldn't touch it. They diagnosed me with cluster headaches. They would gradually turn into pain all over my head. I would get goosebumps in weird patterns on my legs that would rise and fall every few seconds. I started having severe diarrhea, that was green and slimy. I could no longer have any oil, it made it worse. I lost 35 pounds and got down to 87 pounds. Eventually, the diarrhea stopped, and I developed white stools. My eyes turned yellow. Blood work showed I have primary billiary cirhosis. I was transferred to Mass general hospital in Boston. While there, my stools started to change back to a normal color after a week of being white, and my blood work no longer showed positive for cirrhosis. However, my mitochondrial AB was abnormally high, and testing and imaging showed I had fatty liver disease. I had been abstinent from alcohol for 2 years at this point, and my liver showed no damage during the times I had been drinking in college. I was not using a lot of tylenol or other medications that damage the liver. I developed white patches on my skin that looked like hypopigmentation. They would come and go.
My lymph nodes again became swollen and painful. They were so large, they stuck out of my skin like implants. I had a biopsy, and it was shown that they were reactive, but not specifically why.
More lesions, and another round of prednisone later, I decided to go off of the steriods I had been on for 6 months to give my adrenal glands a break. The fatigue was worse than ever, and I became so bloated and constipated, I looked pregnant. My menses once again stopped. The stomach pain was excruciating, and I couldn't pass gas. My skin broke out in painful acne. I figured it was an adrenal insufficency, but my tests showed otherwise. My adrenal system is in suprisingly good shape for the amount of steroids I've been on. The stomach issues lasted for 6 months. One day they were better, as a matter of fact, it was right after my periods started again. I thought all was well until over the summer, the stomach problems came back with a vengence. I was so constipated, I had a back up that was 5 feet long. I had to do 2 bowel preps for a colonoscopy in order to have a bowel movement. I felt constantly hungry, but not in my stomach, in my mouth, if that makes any sense. I was craving sweets and carbs, things I've never really liked. My skin began to constantly burn, especially on my face. My tongue and teeth would tingle.I woild choke on all of my food. Those things were worse when I ate. I got a repeat endoscopy, and it was unremarkable. This lasted for another 6 months. It subsided, and is starting to happen again. However, the pain is now in the lower left and right quadrant of the abdomen, where the ovaries are. I feel a constant, painful, tearing sensation in those areas, even when my stomach isnt that bad. They are visibly swollen. An ultrasound and transvaginal ultrasound showed nothing in my ovaries. The top joints on my fingers and toes become red, and very swollen. They ache.
So, now my circulation is worse than ever. My toes are starting to look borderline necrotic, and unless someone massages blood into my feet, they are a deep purple. It is very painful. A few of the toes that hurt the most became very swollen and red for a while, but now I can't really feel them. They are wrinkly and the skin is peeling on them. My lymph nodes began to swell again. I started to have visual hallucinations. My digestion sucks and I'm having stomach pains and distention again. I decided to go back on prednisone. I started at 10 mg for one month, which did nothing. I recently bumped it up to 20, and my circulation will ocassionally seem a bit better, where you can actually see my veins. I am slightly less tired, and I don't hurt as much. In the past, I have been on 60 mg of prednisone before seeing any good results. However, I’m very young and that dosage of steroids for a long time won’t take long to kill me.
I am currently awaiting approval for some tests to check for vasculitis.
Thank you for your time.
Images may be NSFW
reference photos

25 y/o female with migraines for over 10 years. They have gotten progressively worse every year since I was a teenager.
Allergies: NSAIDS (this knocks out all OTC migraine meds, plus any presciptions that have any IB profen/aleve/aspirin/torodol/etc. in them.
Current medications: Tramadol, Adderall, spironolactone, lexapro, gabapentin, rizatriptan (PRN), trazadone, Frova (just got, have not tried yet), birth control
Past Pertinent medical history: Fibromyalgia, severe migraines, PCOS, ADD. Family history of lupus (my mother) and I had a positive ANA two years ago, but not diagnosed yet (they're just calling it fibro for now).
I finally went to a neurologist after my fourth-migraine related ER visit in six months back in October. He put me on Rizatriptan at first. It worked for some of my more mild migraines (although I maxed out my three pills for the day to do so and then the migraine usually comes back as soon as the pills wear off) but doesn't help my horrendous hormonal migraines very much. With those, it basically takes what would've been an "ER visit" migraine to an "I'll just cry myself to sleep and possibly vomit a few times" migraine. And that's, again, with maxing out the rizatriptan for the day. I told my neuro about this and he put me on this stuff called Midrin (why in fuck's name was this scheduled recently? Its not getting anyone high...). It was almost impossible to find, but when I finally did, it didn't do much. It was no more effective than the rizatriptan. My last visit was a few days ago and he gave me this stuff called frova as a preventative. I'm already on Gabapentin for my fibromyalgia. Haven't tried the frova yet. But if the other triptans were useless, won't this one be useless too? What can I ask my doc to try next? What else is there? Is the next step controlled substances like fioricet or other narcs? I got a small prescription for fioricet after an ER visit and it was FUCKING MAGICAL. That shit stopped several migraines in their tracks. I've never had a medication be that effective before. But now every time I try to ask a doc (in the most non-drug seeking sounding way possible) about it, I get the "you're already on two controlled substances" speech (fucking Georgia makes it impossible for chronic pain patients to get meds they need...). At this point I've tried rizatripan and sumatriptan to no avail. I don't think triptans are going to cut it. What do? :(

So I took a step back and thought over everything I needed to get done to get my life back on track.
Work
My job is finally going to stop fucking with me, it sounds like. I was going to stick it out until the end of summer so it didn't look like I was constantly dropping jobs on my resume, but I've been told by the end of summer, I'll be trained to do prep, my shifts will get doubled, and I'll no longer be having my shifts cut all the time. I'm fine with this.
Getting Screwed Over
** General Practitioner**
My General Practitioner referred me to my old therapist from three years ago, when I knew I needed a neurologist, and told him as much. (He hadn't let me get through the list of symptoms that should have told HIM as much as well.) I was like "nope, done with that guy."
Told the referral lady that no, I really really needed to see a neurologist. She said he just wanted to have a current psych eval before he sent me to one. He knew I was at a therapy clinic! It was in my charts! I dropped off the psych eval, only a month old, the next day.
** Psychiatrist**
And then, a few days later, I told my psychiatrist that the anti-anxiety medication he put me on wasn't really working, and might have caused an unacceptable side effect. (2 straight weeks of nightmares.)
He said "I'm going to take you off of that and not put you on an alternative." I showed him my calendar which showed him how many panic attacks I'd had with the medicine in my system and called him out, gently.
I just said: "I've been with this clinic for nine months, with an official anxiety diagnosis, and you guys have done nothing about it." Then the medication got doubled. It turns me into a high zombie, but I can complain to his nurse (who does something for me) about those side effects, whereas if I let him totally take me off of the anti-anxiety, I'd have nothing.
Doing Stuff About It: Psychiatrist
Then I reported him. I have it marked on my calendar when to call back if they haven't called me to check in on it. If I'm not satisfied with what they've done, I'm reporting him to the state, focusing on the fact that he gave me two medication names and told me to pick between them, telling me they were equivalent meds and refusing to give me more information even when I asked.
Therapist
My therapist and I are actually talking. I'd held her on a leash for a while now, but she and I are now talking. We're discussing my father in a few days and that's going to be... quite the discussion. She has some idea of him and what I think about him, but digging in deep? Not going to be fun. There's a reason I've been dodging talking to her for nine months. (To her credit she's been sneakily doing her job anyway.)
General PractitioneNeurologist
My GP finally did refer me to a neurologist. So I need to sit down and prepare a truncated list of my symptoms, dumbed down so I actually sound like a patient and not a hypochondriac-psych student. (I know what brain system each problem I'm having is linked to, which makes sense for the problem I think I have, which I don't think works in my favor. But if it does, I want to bring both lists.)
New GP/New Psychiatrist
I sent in an application to a hospital that my insurance covers both for GPs and psychiatrists. I'm waiting to hear back from them. I don't have a lot of options that take my insurance, so I'm just seeing what happens there. I was a little disheartened to see things like: I had to check off seven conditions on their chart, my meds didn't fit on their chart, for family history on things like mental illness, I had to write "multiple" because I didn't have enough room for how many people were crazy, even in the small subsection they wanted me to look at. (parents, siblings, grandparents.) I had to check off a lot of "at risk" behaviors. Only thing it feels I have going for me is I'm maintaining employment and school.
Still, hoping they at least give me a shot for the intake appointment. I've got a goal list for the intake appointment too, which is:

1. I need a psychiatrist
2. I need a GP who will A: find out what's wrong with my leg B: help with my chronic headaches (topamax isn't helping as much anymore) C: change out my secondary pain med to one that works (I have a med schedule to try and prove I'm not drug seeking here, I just need drugs that work)

General Life Helping
And I got a new kitten, which should hopefully help reduce stress, and thus my stress headaches. The lil gal kept me up a lot last night by her insistence that 3AM was the best time to play, but that's okay. She can do that.
I'm so used to being invalidated and screwed over I've just gotten to accept it... but I think I've just finally reached a tipping point where I'm just done. I'm absolutely done. You cannot do it. My brain is falling apart in front of me, (which is the only part about me I actually kinda like) and you're telling me you won't help because I'm crazy? Fuck off. Then my crazy doctor tells me he doesn't want to help because... I don't know, he's too busy talking about how it's so amazing I've lost weight (dude, I don't want to burst your bubble, but it's a Wellbutrin side effect, and if I keep telling you I don't exercise and I'm losing weight this fast, maybe it's a red flag. If you want to play my GP, do it right). I got so used to it I pushed away the people who actually want to help.
I refuse to just look at my life and go "oh, I've backslid. I guess I'm done again." No. I'm getting back up, getting all my meds changed (again) and moving back on with my life. Because that's what I do.
If I had to guess right now, I'm gonna get switched to Effexor, stay on Topamax, get switched off Tramadol, stay on Fioricet, get put on Xanax, and might get an Adderall like med added into the system by the neurologist to counter my memory problems which I'm going to them to see about. Which, eventually I'll get frustrated and start throwing subconscious fits I'm taking this many meds (since Singulair and my asthma meds won't change), but if it's a stable system and I'm actually happy, I won't care.
I know this was really raelly long, but...
Tl;Dr; I had a lot of doctor shit going on, I'm firing all my doctors, reporting one, and I'm getting all my meds changed, I hope.

Wall of Text Warning! This is a throwaway account, and my first post-although I have been following this sub for a while now. I am posting a copy of a letter I wrote (but have yet to send) to the PA-C in my Doctor's practice who is refusing to write my standing Adderall prescriptions (20xr and 10ir) or refill my migraine meds. Is there anything I should add? This woman is such a thundering cunt I want to scream. I have a call into my actual doctor to try and sort this out as well as trying to get an appt with a neurologist other family members with ADHD see.
January 22, 2015 Ms. Fucknuggent,PA-C
Ms. Fucknugget, I have ADHD-inattentive type, which was diagnosed 14 years ago, and I have suffered from migraines since I was a child. I have taken the same dosage of medication for both conditions for over five years. I haven’t varied because it’s been successful and I didn’t need to titrate the already very low dose for my stimulant medications. It took many years of trial and error to land on this regimen.
I understand needing to occasionally schedule an office visit to check in. What I do not understand, is completely circumventing the treatment I have been receiving successfully for years, after a mere cursory glance at my chart, within five minutes of seeing me for the first time.
Nor do I understand how telling me about another patient, who is a mother and an Editor who only takes her Adderall when she’s working on a project, has anything to do with me. I am not that woman, and that is not the treatment I was prescribed and to which I have been adhering. Might I suggest that in future you remove such personal identifiers like ‘woman,' ‘mother’ and ‘editor’ from your anecdotes, as I believe it hovers dangerously close, if it isn’t already a possible HIPAA violation.
My former psychiatrist wrote a letter detailing my treatment protocol which is in my file. I no longer see him because this office told me they would take over the prescribing . I had changed jobs, and was no longer commuting into _____ regularly. It isn’t convenient nor cost effective to see him merely for prescriptions.
It was fairly evident you don’t put a lot of stock in an ADHD diagnosis, and made a big point of telling me that Adderall is speed and is addicting and can lead to long term abuse.
While it is true that Adderall has the potential to be abused, that is generally not the case when it is taken as prescribed. And certainly not true in my case. I resent your very blatant implications.
I’d like to point you to this excerpt from an article written by Timothy Wilens, M.D., an associate professor of psychiatry at Harvard Medical School in Boston, for Additude Magazine: “To examine this issue further, our group at Harvard Medical School followed a group of adolescents for four years. We divided them into three: ADHD boys taking medication, ADHD boys not taking medication, and boys without ADHD. In mid-adolescence we checked for alcohol, cocaine, stimulant, and other illicit drug abuse. The ADHD group taking medication had far lower rates of substance abuse than the ADHD group not taking medication. There are similar findings in a study of adults with ADHD who were treated previously with stimulants. Those treated with stimulants as youths had lower rates of substance abuse than ADHD adults who were never treated with medication. Treatment isn’t all that matters. So does treatment response. Studies show that adolescents with ADHD who respond well to their medications are at lower risk for substance abuse compared than those who respond poorly to their medication.”
Besides prescribing an antibiotic for my sinus infection and insisting upon a blood test before giving me my monthly prescriptions,results of which were normal, you did nothing more than tell me to see psych and pain management for my meds. No. I do not have the time nor do I want to spend the multiple copays, and drive all over NJ to get the prescriptions I need for my long-documented conditions which up until my encounter with you, were successfully managed from one office, as per an earlier agreement. Concerning my migraine medicine: Fioricet is not a controlled substance, as you insisted. I mentioned to my pharmacist that you said it was and he went as far as to print out the drug information on file, as well as that for Fiorinal which IS controlled because it contains codeine. My migraine medication does not contain codeine or any other controlled substance, ergo it’s not controlled. I delivered the printed information to the front desk and asked them to give it to you for your edification and education. I’ve had testing done my entire life to find the cause of these migraines, to no avail. Telling a nurse to tell me to go to Neurology if I still have headaches is so monumentally unhelpful and dismissive.
I have to believe that you don’t realize how judgmental and condescending you appear to be. There is already enough stigma attached to having ADHD, I don’t need you, who should be better informed, adding humiliation to the embarrassment of having to call every month for medication. Specifically, when I am a patient of a different Doctor in the practice.
Sincerely-
pissed off pat331
cc: Dr.
Patient Relations,