Nursing diagnosis for nausea

Went to the ER on Thursday because I was having symptoms that I could’ve sworn were more than just POTS. Chest pain, terrible shortness of breath, insane palpitations, dizziness not just with motion but constant, nausea and vomiting (4x). I never take my health very seriously but I texted my mom and she told me I should go, and when she says that I know it’s probably serious because she’s a nurse so she will usually just have me come over and monitor me if she thinks it’s a flare up or something minor. Well, they do an EKG and there’s obviously tachycardia (plus a t-wave abnormality that they said is common/asymptomatic), but nothing else out of the ordinary, so my chest pain is probably actually stomach (esophageal) pain from my potential GERD and the other symptoms are just a bad POTS flare up. 🤦🏼‍♀️ I just felt so stupid like now I have to pay a bunch of money for something that wasn’t even serious. I’m also just disheartened because my doctor said until I can get in at the mayo clinic I probably won’t know the answer to a lot of my questions. I live nowhere near a mayo clinic. I’m just so tired of this. I was diagnosed at 14 and i’m 21. It wasn’t ever this bad until about 4 years ago when I got covid. It’s been a nightmare since and i’m beyond over it.

I’m 24F with a very recent diagnosis of MVP with mild regurgitation. I grew up flying long distances at least twice a year and never had issues until recently. The last flights I’ve had around the time of my diagnosis were pretty rough, lots of nausea and discomfort.
Its like the moment we’re up in the air I feel terrible! A sickening feeling begins in my chest, I have palpitations and am put into a constant state of nausea and dizziness. This is all very new for me as I fly often and it has always been a breeze, but now that I have MVP its been terrible.
I have a trip coming up in a few weeks and I’m pretty anxious about the flight. Does anyone have any similar experience and can offer advice?

So, I don't know if anyone else here has same experience, or if my area is weird?
I initially went to my GP to enquire about ASD assessment. The GP fobbed me off, I was in the room for 5 minutes, they told me "we don't do that." When I pressed, they told me to google. I was previously (I think wrongly) diagnosed with a mood disorder & a PD, so I felt it was weird the GP just instantly dismissed me.
After that I got a surprise phone appt with a nurse from the local mental health unit on the NHS as there was a "significant change in my mental state" (no follow up from the GP, just this call) I said again, no I'm looking for an ASD assessment, my mood is okay right now, but I want to make sure my medication & diagnosis is correct. I was told: "Oh okay, well we don't do that"
The private clinic I saw told me, to them, I obviously had both ASD & ADHD. I did two full separate assessments, as well as assessments for other mental health disorders (OCD and PDs) to rule those out. There are several, pages of reports provided from the clinic, as well as follow up letters by the care team about my meds. I definitely feel this team listened to and offered good care to me, it wasn't a quick "check list" it was really involved.
I didn't bother the GP or unit at the time I applied for the ADHD assessment as I thought it would be the same result, I didn't know ASD & ADHD were at all similar. I didn't really research, I was advised by others to get assessed after the current media around women with ASD, as they believed it "fit" me.
The GP said they won't offer shared care, at all. Only via the mental health unit. The people at the unit confirmed this and said that they only do shared care in specific circumstances and it's likely I'll be swapped back onto an NHS waiting list - that I didn't even know I could apply to be on!
She even said "well this is what happens when there are people trying to skip the queue" (I wasn't, I wanted genuine help and no-one would help me.) She did confirm they don't deal, whatsoever, with ASD assessments, which is really confusing.
Sorry for the ramble but if anyone has got this far: a) have you ever heard of this? the clinic I'm with has been so helpful but are also very confused by it. b) if you've been referred to the NHS queue, and done their assessment, after a private one, have you been refused care? c) is the NHS assessment as involved? my family had to be involved with a lot of the history provision which is really difficult in my circumstances.

Hi all, I’m still at the point of trying to get doctors to take me seriously.
I’m a 36 year old female - previously very healthy.
I’ve been ill for a year and a half and none of the other specialists can find anything wrong with me. I had made another post with my symptoms, but I’ve developed more since then. The shortened version is nausea daily for 18 months, stabbing pains in the entire trunk of my body, lightheadedness, difficulty swallowing, difficulty speaking, confusion, and rapid heart rate/heart flopping around in my chest plus elevated blood pressure. I also have had leg weakness and had a fall because of it which landed me in the hospital for 3 days.
The new symptoms are: severe vertigo, numbness/tingling in both arms and legs, migraines that last for days - focused at the back of my head & neck, numbness in my mouth and tongue, hyperreflexia (diagnosed in the hospital but I forgot to include it in the last post).
Since I’m only 5mm herniated I haven’t been taken seriously. I do have a cine MRI scheduled in 2 days that I all but begged for, so hopefully that’ll help with the diagnosis.
What do you guys think about the MRI images I have of my brain and neck? These were the ones from the hospital with just contrast (and they were checking for MS, not Chiari, if that makes any difference).
Thank you in advance, you all are such a wonderful resource and a great comfort to me!!!

Hey all, just wanted to a share a very quick overview, thoughts, and concerns 1 week after having a microdiscectomy on my L4-5 disc last week. I am now coming up to 7 days post op, feel free to ask questions if you have any. I've attached my pre-op scans + radiologists report too, for those who are interested.
I also have some questions at the end for those who have had a MD before that I'd love your take on :)
History TLDR; sciatic pain for ~3 years, started as leg pain when extending whilst sat down, progressed to severe, constant, lower back pain and leg pain when performing any activity other than laying down on the floor.
My surgery lasted for 2 hours, and was in the hospital for a total of 2 days (1 night stay). The hospital bed + assistance from nurses was highly appreciated. As the hospital beds are adjustable, it helped reduce pressure on the wound significantly. After having the procedure, you will be unable to bend to put on socks - it helps to have a second person to assist. The incision site is still very sore, and my back feels bruised, but no complications. The incision is around 5cm.
I have now completely trailed off all of my pain medication. I was on 150mg Tapentadol and 3000mg Paracetamol daily, and the pain was very manageable. My lower back pain has completely gone, I can now sit without pain (except for some soreness around my incision site + muscle aches), but still aim to keep sitting no longer than 30m at a time.
My sciatica went away initially, but has come back slightly since the operation (~60-80% reduction in pain from pre-op). I personally put this down to a mix of coming off pain killers, and increased inflammation. I am scared as hell that it is a sign it won't go away - I know this is just anxiety talking though, as I feel I'd know if I reherniated. From what my physio has said and what others report, it can take a few weeks to a few months for the nerve pain to resolve.
My other associated symptoms have almost completely subsided. Pre-op, I had sporadic difficulty urinating, numbness and tingling in my saddle region, which has now disappeared. I did have pain in my groin/bladder a few days post-op when urinating, but that has subsided, too.
I have been doing the following exercises 3 times daily, I am able to perform these with minimal pain and they really loosen up my back and post surgery stiffness:

• 2 sets of 10 ankle pumps
• 2 sets of 10 heel slides
• 2 sets of 10 single leg knee hug
• 1 set of 10 neural glide
• 2 sets of 10 sit stand from a chair
• 2 sets of 10 sideways walking

Overall, I would put a strong recommendation on the microdiscectomy procedure. If a MD has been identified to be beneficial to your diagnosis, and you feel you have exhausted other options, go for it. I wish I had it a year ago, it would have saved me a lot of pain and likely increased my chance of a positive overall outcome.
Questions I do have for others who have had a MD:

1. How long did it take for your sciatica to improve post-op? For me, it flares up the most when doing single leg raises. Stretching does help to reduce symptoms.
2. For those who have re-herniated; how obvious was it? I keep getting the niggling anxiety that it's already happened and that's why I still have some sciatic symptoms.
3. Did you get other odd pains that weren't there before? As I mentioned, I had groin/bladder pain for a few days post op. I have also found that my shins have started hurting, where they didn't before.

https://preview.redd.it/tq5av1xjvd0d1.jpg?width=1044&format=pjpg&auto=webp&s=d12261ee66910d862ec78bc965e1cf493257bbb3
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Hey all,
recently diagnosed Psoriatic Arthritis - Knees, Ankles, Shoulders, Neck, Wrists, One finger and several sausage digit toes.
Since my diagnosis i have been primarily on Opiates and NSAIDs for pain relief, i have had 3 weeks of methotrexate treatment so far, for a while my "symptoms" were fairly stable, i could walk a little and had a little bit more of self independence back, however this last week I've found myself becoming worse and getting to the point where at the end of the night a 2 metre walk to the end of the room is agonising.
I emailed my rheumatology nurses as my next doctors appointment isn't for another few weeks and advised that several of my toes had now become swollen and i was finding myself more and more bed bound.
i have just had a call from my GP who has advised that my rheumatologist wants to put me on a steroid course of 16 weeks starting at 10mg then every 4 weeks reducing my 2.5mgs.
While i wanted steroid treatment from the start due to the sheer agonising pain, after I found a working NSAID i didn't feel it was necessary, now that i have actually been prescribed it I find myself overwhelmed as i have read a lot of bad press about steroids. While i absolutely need the relief it may provide I'm just worried about the side effects...
Can a 16 week course cause long term effects? or is it a relatively safe dosage at 10mg working down to 0 at 2.5mg decrements every 4 weeks?
Has anyone got any advice on some of the side effects like weight gain etc?

Gratitude to the Greatly Merciful and Greatly Compassionate Guan Yin Bodhisattva, Gratitude to Master Jun Hong Lu.
Respected fellow Buddhists, do you know what's worse than death? Have you ever escaped death? Today, I have a firsthand experience of escaping death to share with you.
Have you heard of a disease called myasthenia gravis (MG)? I believe many people have not. As only about 30,000 people worldwide suffer from this disease (Note: This figure may vary as there are differing estimates, with the United States alone having approximately 36,000 to 60,000 cases), where the nerves cannot control the muscles. For example, if the affected area is the hand, it can feel pain, heat, cold, and pressure. But no matter how much you command your hand to move, it won't budge. I am one of those 30,000 people. The affected areas include the cheeks, mouth, left arm, and the chest muscles responsible for breathing. In other words, during an episode of the disease, I cannot breathe. Can you now imagine how close I was to death?
Back to my story. In mid-September 2012, my lungs were infected with bacteria, and I fell seriously ill. On the night of September 29th, my breathing became increasingly difficult, and my family rushed me to the hospital for emergency treatment. The next night, my condition deteriorated to the point of MG, and my breathing became so weak that it was almost cut off. The doctors once again performed emergency procedures for me, eventually placing me on life support system (LSS) and transferring me to the intensive care unit (ICU). The so-called LSS involved many instruments strapped to my body and several tubes inserted into my body. Although the areas where the tubes were inserted were very painful, I dared not move for fear that any loosening of the instruments might endanger my life. So, at that moment, I didn't dare to move at all.
One night, a nurse attempted to draw blood for examination, but the needle just couldn't find the right artery. She would try once, then pull out the needle, try again, and repeat this process several times. I was in excruciating pain, but because my body was encased in instruments, I couldn't move. Finally, I couldn't help but ask myself in my heart, what did I do wrong? Why must I endure all this? I've never harmed anyone, never wronged anyone, so why me?
At that time, I didn't understand Buddhism, nor did I know anything about making vows. But the pain drove me, someone who barely recognized a few Chinese characters despite being educated in English, to silently call out the name of Guan Yin Bodhisattva in my heart, begging her to save me from this sea of suffering. A few days later, my condition improved. The doctors removed my LSS, and I was transferred from the ICU to a regular ward. I thought I would soon be discharged and return to my previous life, believing that everything was almost over. I felt very happy!
Looking back now, I realize how ignorant and selfish I was at that time, even as I began to recover. I was only thinking about my own survival and never cared about other people who were suffering like me. Perhaps it was because of this that I received a retribution. On the same evening that I was transferred to the regular ward, I suddenly had difficulty breathing again, couldn't make any sound, and my whole body was immobilized. I could only use my eyes and hands to draw attention, making small gestures with my hand to communicate.
A nurse noticed and called a doctor from the floor. Surprisingly, after glancing at the readings on the instruments, the doctor told the nurse that my heartbeat and breathing were normal, and then left. Once again, I tried my best to attract the attention of those around me. Thanks to the blessings of the Bodhisattva, another doctor passing by noticed me and observed that something was not right with my condition. He/She called back the previous doctor and urged him to conduct a detailed examination. While they were debating whether I was normal or not, I was almost breathless, mentally giving up on life.
The readings on the instruments once again sounded the alarm. Luckily, with both doctors nearby, they were able to save me at the fastest speed possible. The next day, I woke up in the familiar ICU, with the life support system back on me. Through this rollercoaster of emotions, I finally understood that the suffering I endured stemmed from the ignorance and folly accumulated since my birth, perhaps not just in this lifetime, but through countless past lives. Now, I must face the consequences.
I once again prayed to Guan Yin Bodhisattva and made a vow to her: "Guan Yin Bodhisattva, I believe that every soul, before they pass away, experiences a lot of suffering, and their pain is surely no less than what I am enduring now. I implore Guan Yin Bodhisattva to save me from all this suffering. I am willing to be a vegetarian for the rest of my life."
Whether you believe it or not is up to you. Two days after making this vow to Guan Yin Bodhisattva to be a lifelong vegetarian, my lung infection showed significant improvement, and I was subsequently transferred to a regular ward. Perhaps it was destined. Not only did I start to follow a vegetarian diet, but my parents also understood at the same time that my illness was beyond the control of doctors and only the Bodhisattva could save me. At that time, our entire family had just begun to explore Buddhism.
Every day, my mother devoutly chanted the name of Guan Yin Bodhisattva, while my father recited the Heart Sutra for me diligently.
However, our ordeal was not yet over. One night, I once again experienced difficulty breathing and had to be placed on the LSS for the third time.
I saw my parents kneeling down, praying to the deities and Bodhisattvas to bless me with a safe recovery. They had knelt before doctors before, but this time, seeing them kneel again went beyond what I could bear. I didn't want my parents to kneel for me. Witnessing them kneel deeply wounded me. As a 19-year-old young man, I should be taking care of my parents, yet why were my parents, who were over 50 years old, kneeling for me?
Three times being placed on LSS and admitted to the ICU, followed by three instances of improvement, resulted in my transfer to a regular ward. It was three months later, after my extended hospital stay, that I finally got discharged and returned home. I am deeply grateful for the blessings of the Bodhisattva. Instead of weakening our faith in Buddhism, this series of challenges only deepened our belief in the principles of karma and karmic obstacles as explanations for my condition. After leaving the hospital, my family and I continued to immerse ourselves in the teachings of Buddhism. Grateful for the blessings of the Bodhisattva!
One day, my family and I went to a vegetarian restaurant near our home and discovered Guan Yin Citta Dharma Door. Excitedly, I immediately went online when I returned home and downloaded several Buddhist scriptures in English phonetics from the Guan Yin Citta website to start reciting. Guan Yin Citta Dharma Door truly works wonders. That very night after reciting the Buddhist scriptures, I dreamt that while reciting the Great Compassion Mantra on the balcony at home, the image of Guan Yin Bodhisattva appeared in the clouds.
However, the next day after waking up, I felt a headache and drowsiness when reciting scriptures. My family and I took the liberty of contacting the Guan Yin Citta fellowship in Kuala Lumpur. The Buddhist practitioner who answered the call instructed us to come to the fellowship to recite scriptures. One day, while reciting scriptures at the fellowship, I experienced severe headaches. At that time, everyone was busy preparing for a Dharma conference, and the venue was crowded. I am grateful to the practitioner who cleared some space for me to lie down and gathered many fellow practitioners present to recite scriptures for me.
Later, the practitioner explained that my headaches were messages from the karmic creditors and taught me about releasing lives, making vows, and the importance of Little Houses for eliminating karmic obstacles. I immediately arranged to release thousands of fish. Today, my family still insists on releasing lives for me on the first and fifteenth day of every lunar month.
Guan Yin Citta Dharma Door is truly a miraculous practice. Ever since I began reciting Little Houses under the guidance of the fellow practitioner, I have experienced continuous dreams. On the first night, I dreamt of a seven-story-tall Buddha statue with many people practicing beneath it. Just two weeks later, after memorizing the Great Compassion Mantra, I dreamt of the Dharmakaya of Bodhisattva and two Dharma protectors driving me around in a car. Even more wonderfully, two months later, after memorizing the Eighty-Eight Buddhas Great Repentance, I dreamt of myself having tea with Master Lu.
Most importantly, after continuing to release lives, make vows, and recite Little Houses, my illness has not recurred.
Having now healed from this unusual illness, I'm here to share my story with you. These dreams signify an enhancement in the quality of life. I deeply appreciate the blessings of the Greatly Merciful and Greatly Compassionate Guan Yin Bodhisattva, which have reinforced my resolve to earnestly follow the path of Buddhism and instilled me with confidence. I am dedicated to diligently progressing in the Guan Yin Citta Dharma Door and remain steadfast in my commitment.
Currently, I am studying in Singapore, and whenever I have the opportunity, I propagate the Dharma and benefit sentient beings. Whenever I return to Malaysia, I often volunteer at the fellowship center.
Additionally, I would like to mention two more things. Firstly, on the second night after making my vow to be a vegetarian, I saw a child's spirit clearly flying beside me in the hospital and heard it laughing. Shortly after, I dreamt of a man killing a woman and cutting open her chest. In the dream, I felt that the pain of the woman being cut open was exactly the same as the pain I felt during my surgery.
While many still question the reality of karma and karmic obstacles, doubting Master Lu's teachings, I have personally experienced their effects. Thus, I hope my story can encourage you to embark on the practice of Buddhism and the recitation of Buddhist scriptures, starting today. I wish to prevent anyone from following my path, waiting until karmic obstacles manifest and adversity strikes before beginning their spiritual journey. I am deeply thankful for all those who stood by me during that challenging time, particularly my family and friends, who supported me through my darkest moments. My heartfelt gratitude also goes to the fellow practitioners at the Guan Yin Citta fellowship in Kuala Lumpur, who patiently guided me into the Guan Yin Citta Dharma Door.
Deep gratitude to our Greatly Merciful and Greatly Compassionate Master Jun Hong Lu for establishing the Guan Yin Citta Dharma Door, guiding us on a path away from suffering towards happiness. Lastly, and most importantly, deep gratitude to the Greatly Merciful and Greatly Compassionate Guan Yin Bodhisattva, who saves those in distress and hardship. With Her Buddha light blessing each one of us, She guides us back to the right path of learning Buddhism and constantly watches over us, blessing us at all times and in all places. Gratitude to the Greatly Merciful and Greatly Compassionate Guan Yin Bodhisattva!
Buddhist practitioner: GWT
Speech to text translator: Guan Jing
Proofreaders: Miao and Dong Ri Yang Guang
Date: 2024-05-11
Translator: Frank
Published: 2024-05-14
Statement by translator
The story was translated from video into text, and then translated from Chinese into English. If there is anything that is not rational or in line with the true meaning of the presenter, I pray for forgiveness from the Greatly Merciful and Greatly Compassionate Guan Yin Bodhisattva, all Buddhas and Bodhisattvas, Dharma protectors and Master Jun Hong Lu.
Propagation
It would be greatly appreciated if you would forward this presentation to all sentient beings you know, sick or healthy. You will accumulate immeasurable merits and virtues. Saving a life is more meritorious than building a seven-floor pagoda!
Would you like to change your destiny?
We will show you how to do the Five Golden Buddhist Practices of Guan Yin Citta Dharma Door: (1) making vows, (2) reciting Buddhist scriptures (sutras and mantras), (3) performing life liberation, (4) reading Buddhism in Plain Terms, and (5) repenting. You will personally witness how you and your family can achieve physical and mental stability, relief from illness and grievances, wisdom growth, academic progress, career advancement, and family happiness through Dharma. It’s free of charge.
Contact
Buddhist practitioner: Lily
Email: [sunnypurplelily@gmail.com](mailto:sunnypurplelily@gmail.com)
WeChat: HanJing20210820
原文如下：
下面让我们有请来自马来西亚的郭同修与我们分享：郭同修身患绝症，重症肌无力，饱受病痛折磨几次病危。然而心灵法门使他摆脱病魔，重获新生。让我们掌声欢迎!
感恩大慈大悲观世音菩萨，感恩卢军宏师父。
尊敬的各位佛友，你是否知道什么事情比死更糟糕？你是否曾经死里逃生？今天我便有一个亲身经历死里逃生的故事要告诉你。
你是否听过一种称为重症肌无力的疾病？相信很多人都不曾听过。因为全世界只有约三万人患上这种病，患者的神经控制不到肌肉。举例说，如果患病部位是手臂，这个手就能感觉到痛热冷及压力。但无论如何你怎么叫你那个手动，它都不会动。我就是三万人之一。而受影响的部位包括脸颊，嘴巴，左手臂以及负责呼吸的胸肌。也就是说，当病程发作的时候，我是无法呼吸的。你现在估计到我多接近死亡了吧？
回到我的故事。2012年9月中旬，我肺部被细菌感染，久病不起。在9月29日当晚，我的呼吸也到了越来越困难，家人赶紧送进医院急救。第二天夜里，病情终于恶化到重症肌无力，我的呼吸微弱到快要断气了。医生再次替我急救，最后替我戴上了维生系统，并送进加护病房。所谓维生系统，就是很多仪器套在身上，很多管子插进身体里。虽然被插管子的部位很痛，但万一随便一个仪器松脱了，可能我的生命就会有危机。所以，我当时连动都不敢动。
有一夜，护士替我抽血检查，但是针管却一直插不进正确的动脉。她们这里插一下不行，拔出针管，在那里又插一下，一次又一次。我那时痛得死去活来，却因为全身套满了仪器而不能动。我终于忍不住在心里问自己，我做错了什么？为何必须承受这一切？我不曾伤害任何人，也不曾亏待任何人，为什么是我？
那时还不懂佛法，也不懂什么许愿。但痛苦使得我这个受英文教育认不到几个中文字的人也会在心里喊出观世音菩萨的佛号，祈求她救我出苦海。几天后，我的情况有好转。医生移除了我的维生系统，从加护病房推进了普通病房。我想自己很快可以出院，回到之前的生活，一切几乎结束了。我觉得很开心！
现在回想起来，我才发觉自己当时是多么的愚昧，才开始康复仍然如此的自私。只想着自己生存，不曾关心其他和我一样受苦的人。可能因为这样我受到了教训。就在我被转进普通病房的同一天晚上，我突然呼吸困难，发不出声音，全身又不能动，只能用眼神和手，以我的手用一点小动作来引起别人的注意。
一个护士发现到把楼层的医生叫来。想不到医生竟然看看仪器读数后跟护士说我的心跳和呼吸都正常，然后就离开了。我再一次用最尽力的引起身旁的人注意。感谢菩萨保佑。这时有另外一位医生经过，看到我，察觉到我的神态不正常，并把之前的医生叫回来，求他详细检查。就在他们两个还在争论我究竟是正常或不正常，一旁我已经几乎断气了，心里放弃活命了。
仪器读数也再一次变成警报状态。幸好两个医生在身旁，能以最快的速度把我救了。第二天，我在熟悉的加护病房里醒来，身上又套上了维生系统。经过这一次乐极生悲，我终于明白到我受的苦是源于我出生以来愚昧无知的罪，或许不止只有这一世，而是过去无数世累积下来的因果。如今要面对果报了。
我再次向观世音菩萨祈求，而且向她发愿说：“观世音菩萨，我相信每个灵魂，他们死之前都会受到很多苦，它们的痛苦肯定不比我现在所受的少。请求观世音菩萨救我脱离这一切痛苦。我愿意为此一生吃素。
相不相信由你。向观世音菩萨发愿终身吃素后两天我肺部感染有了明显的好转，之后被转进普通病房。或许是因缘到了。不但我自己开始吃素，我父母也同时明白到我的疾病已不在医生的控制范围，只有菩萨才能救到我。当时我们全家人才刚接触佛法。
妈妈每天勤念观音菩萨的佛号。爸爸找来一本《心经》每天为我念诵。
但是，我们的考验还没过去。某天晚上我再次感到呼吸困难，第三次戴上了维生系统。
我看到父母下跪求神佛菩萨保佑我平安度过。他们之前已经跪过医生了，这一次再下跪，已经超出我能承受的限度。我不要父母为我下跪。看到他们下跪，深深地刺伤了我。我这一个19岁的男孩应该照顾父母，反而为什么要让他们超过50岁的父母为我而下跪？
三次戴上了维生系统住进加护病房又三次的好转，被转进普通病房。我在医院里住了三个月后，才终于出院回家。感恩菩萨保佑。这三好三坏的过程，不但没有减少我和家人对佛法的信心，反而相信只有因果和业障才能解释我的状况。出院后，我和家人还继续研究什么是佛法。感恩菩萨加持！
某一天，我和家人到住家附近的一间素食馆，认识到心灵法门。于是，我回家就急不及待的上网，上心灵法门的网站下载了几篇佛经的英文拼音版开始念诵。心灵法门真的很灵验。我当夜念诵了经文后，便梦见在家中的阳台念诵《大悲咒》时，在梦里天上的云朵化出观世音菩萨的形象。
然而，第二天醒来后我念经便感到头痛及爱睡。我和家人冒昧地拨电话联络吉隆坡心灵法门共修会。接电话的师姐便叫我们到共修会里念经。一天我在共修会里念经时，头痛剧烈。当时大家正在忙着筹备法会，会所堆得很拥挤。很感恩师姐搬开东西，腾出空间让我躺下，还召集了在场的许多师兄师姐们一起为我念诵经文。
后来，师姐解释我的头痛是要经者的讯息，还教会我放生、许愿及小房子并告诉我消除业障的急迫性。我当时便即刻安排放生数千条鱼。如今家人依然坚持每逢初一十五为我放生。
心灵法门真的是很灵验的法门，自从我在师姐的教导下，开始以正确的方式念小房子之后，便不断有梦境显现。第一晚便梦见一座七层楼高的佛像，底下有很多人在共修。心灵法门真的很灵验的法门，两个星期后我背熟了《大悲咒》时，便梦到菩萨的法身，还有两护法神用车子载我兜圈。更美妙的是，两个月后，当我背起了《礼佛大忏悔文》，竟然梦见自己和师父一起喝茶。
最重要的是我继续的放生许愿及念小房子之后，我的病情不曾复发。
现在已经从这奇怪的疾病中痊愈，活下来告诉你们这一个故事。这一切的梦境显示生活素质提升。我都感恩大慈大悲的观世音菩萨的加持，坚定了我学佛精进，很有信心，并立志在心灵法门一门精进永不退转。
我如今在新加坡求学，只要有机会就弘法利生，一回到马来西亚更是经常到共修会工去做义工。
另外，我要补充两件事，第一件事在我发愿吃素后的第二晚，我便在医院看见一小孩子的灵性清楚地在我旁边飞过，还发出了笑声。不久后我又梦见了一个男人杀了一个女人，还把她的胸口割开。而我在梦里感觉，那女人的被割开胸口的痛苦竟然跟我动手术时的痛苦一模一样。很多人还在质疑因果和业障的存在，怀疑卢台长的教导，但是我亲身体验过了。因此，我希望自己的故事能启发你学佛，学习佛法，今天就开始念诵经文。因为我不希望有人跟我一样，等到业障显现坏事发生之后才开始修行。深深感恩所有在我那段时间陪伴过我的人，尤其是我家人和朋友，在我最艰难的时刻，可以为我支持的人。深深感恩吉隆坡心灵法门共修会的师兄师姐们。他们耐心引导我进入心灵法门。
深深感恩我们大慈大悲的卢军宏台长创办了心灵法门，指引我们一条离苦得乐的道路。最后也是最重要的，深深感恩南无大慈大悲救苦救难广大灵感观世音菩萨，以她的佛光加持了我们每一个人，指引我们回到正确的学佛之道，随时随地都在庇佑着我们。感恩南无大慈大悲救苦救难广大灵感观世音菩萨！
如果整理过程中有不如理不如法之处，还请观世音菩萨护法神菩萨慈悲原谅！
观净师兄语音转文字，妙师兄和东日阳光师兄校对。
2024-05-11
您想改变命运吗？
我们手把手传授您观世音菩萨的心灵法门五大法宝：“许愿”、“放生”、“念经”、“读《白话佛法》、大忏悔”。您将亲自见证如何通过佛法让自己及家人获得身心安定、病苦解除、冤结化解、智慧增长、学业进步、事业提升、家庭幸福。免费学习，免费结缘。
欢迎联络Lily佛友：sunnypurplelily@gmail.com
或者加Lily佛友微信：HanJing20210820
Disclaimer of Liability:
The contents of the presentation and answers, including text, images, and other information obtained from Dharma practitioners, are provided strictly for reference purposes. Due to the unique nature of individual karma, results similar to those experienced by the authors may not be replicated. The experiences and advice shared should not be construed as medical advice or a diagnosis.
In the event of an emergency, it is crucial to promptly contact your doctor or emergency services by dialing 911. Relying on any information found in the answers is done solely at your own risk. The translator and answerer bear no responsibility for the consequences. By using or misusing the contents, you accept liability for any personal injury, including death. It is imperative to exercise caution and seek professional medical guidance for health-related concerns.

I basically decided over the weekend that I can’t do this job anymore and I have to quit or I won’t survive. It’s kind of a dumb move though because it’s an amazing salary (like seriously still not sure why they’re paying me this much…), great benefits, time off, work culture, basically everything else. But the actual job itself is burning me out and wearing me down and just not making anything else worth it. So I have to be done, and I need to work as a server or something again instead of this desk job for a minute, clear my head, treat my mental health, and then go back to school and figure my life out. I’m not happy with the type of work I’m doing, and the idea of learning again and gaining more skills now that I’m older and know myself better sounds like heaven on Earth. Just typing this out provides so much relief. (I’ve always considered going into nursing or teaching or doing something with kids, and I’m literally smiling with tears in my eyes thinking about changing my career and doing something this fulfilling.)
But I’m terrified that I’m making the dumbest decision ever, which is ironic because I’ve actually done this exact thing before I’m a way, but it just feels a lot more drastic this time because I’ve been at this company since August 2022, but only in my new department/on my new team since January of this year (2024), so part of me does worry that I’m giving up on a great company too quickly without giving this new position a real shot…but y’all, I’ve been having panic attacks, not sleeping, not breathing, feeling nauseous and anxitious and dizzy and a WRECK everyday because of this. (To the point where I had a panic attack yesterday and my amazing girlfriend found a mental health urgent care center, and I was diagnosed with anxiety and depression, along with getting an adhd diagnosis. So. Clearly I’m not doing well. Lol).
Anyway, I guess this is all to say that if anyone has been in a similar situation with leaving a job somewhat quickly and unexpectedly and a little rashly and maybe in a risky and not super well thought out way, but you just really felt like in your gut this was something you needed to do, I would really, really love to hear from you.
Signed, an already burnt-out 25yo gir who just wants to be a happy and change career paths before it feels too late.

Hi, I'm 23, I live in the UK, and I have a laundry list of physical and mental health issues that are still largely undiagnosed due to our failing healthcare system, so I'm also being left to completely self manage. Now the government is trying to push disabled people back into work without actually providing the necessary health care and support and I don't know what to do. I'm estranged from my family so I have no support that way and have no choice but to live independently, I have to be able to pay my bills and living costs, and I also have no idea if a job even exists that I'd be suitable for.
I dropped out of secondary school because my health was so poor my school attendance was 34%, I am unqualified to do pretty much anything. I'm considering going back into education hoping that it will open some doors but even that would be a monumental task so here are my limitations:
I would need a minimum of 3 days a month in sick days just to manage my endometriosis flare ups, I would not even be able to work from home on those days as they are mostly spent on the bathroom floor somewhere between consciousness and unconsciousness in unmanageable pain.
I have joint and mobility issues that have a flare/remission pattern and are wildly unpredictable, I wake up with dislocated shoulders frequently and randomly, I could go 6 months with my knees being fine and then have recurring patella dislocations that leave me wheelchair bound as crutches cause my elbows problems. I might be able to work from home on days this is an issue.
I have social and sensory issues that are thought to be undiagnosed autism (my brother and father are autistic, I showed all the same signs as my brother, I was just punished for my traits while he was accommodated.) This affects me in work profoundly because I frequently misunderstand instructions or feedback, take things very literally, am seen as overly pedantic and difficult to instruct, and get very burnt out by any kind of customer facing roles, and things like work uniforms, jobs involving unpleasant sensory tasks, can all cause me to experience periods of verbal shut down, self injuring behaviour, repetitive motion (pacing, rocking) and become intolerant of lights, sounds, and temperature. This is a constant issue that I don't know how to manage.
I have chronic pain that also has flare ups, baseline pain, and somewhat remission, it affects my muscles and joints and is unpredictable, baseline pain I'm somewhat functional but limited, flare ups have me bed bound and unable to concentrate. I may be able to work from home on some of these days but not others.
I have digestive issues that cause nausea, alternating bowel movements between cant go and going too much, episodes of passing blood, mucus, extreme painful bloating, severe nausea and weight loss, but there are brief periods of remission. I probably wouldn't be able to do a full day of work from home during a flare up due to the time constraints of actively being in flare up.
I have been coughing up mucus to a point of bleeding from the back of my throat for about a year, I also have episodes of air hunger with pain and wheezing. Again, thank you NHS for no diagnosis or treatment. I could work from home during a flare up of this issue most of the time.
I have some kind of blood pressure or fainting issue, when I stand, I'm close to fainting, its worse when standing still, sometimes walking just about keeps me going but sometimes it ends with my faceplanting the floor, loosing consciousness and fitting. This is unpredictable and I've done everything I can to manage symptoms (cutting out nicotine, caffeine, sugar, pushing fluids and gentle floor based exercise when possible.) I would not be able to go anywhere during a flare up, I'm dubious about my ability to work from home during a particularly bad episode as post faint/fit I'm usually confused and out of commission for hours.
I also struggle with depression, getting out of bed, showering, making food (when physical issues allow) can be a struggle. I also have CPTSD, anxiety, agoraphobia, PMDD, derealisation and depersonalisation. So on bad mental health days, I don't feel real, the world doesn't seem real, I'm reliving traumatic events, can't leave my home, and have back to back panic attacks while having no energy or inclination to care for myself.
All in all, I don't think anyone would want to employ me, and I'm very uncertain about my ability to work, but seeing as my government has created an environment where I can't get adequate healthcare to manage any of my conditions, doesn't believe that I'm that severely disabled due to lack of formal diagnoses for the physical health problems despite my medical record reflecting me seeking help since age 10 for most of these issues, and therefore is now trying to force me back into work or else stop all my payments leaving me homeless and penniless, I'm not sure what to do. I can't stay with family, and they would not financially support me regardless, I've got no safety net. I don't think any jobs exist with the flexibility I need, AND the certainty I'd need of income.
Any advice would be appreciated, I'm really trying to rack my brain for any workable solutions but it's looking bleak.
TLTR:
Physically disabled, mentally ill, unable to access adequate health care, no family support, and possibly being forced to work despite not being able.

Hi everyone. I'm newly diagnosed (under 3 weeks). I had bloods done on the day of diagnosis to rule out a number of possible underlying viruses. I was led to believe that it's dangerous to be on DMTs if you have the JC virus. The MS nurse rang me yesterday to say I'm positive for JC, but that they still want to start me on Kesimpta. She said there are no known cases of fatalities, but that doesn't rule them out. I'm a bit scared, and don't know what to do. Are any of you on Kesimpta with the JC?

So I was charged with a dui in 08/2019..less safe and drugs in system. 1ST DUI IN GA COVID CAME Pushed courts back 2020 Sept. I went to court and guilty.completed most court ordered processes. Ended up in emergency room got out weeks later still on schedule for probate. Ended up on my deathbed..meningitis, aids,septic..at first the nurses was faxing I was under Dr. Care..as my situation wosened..switch from hospitals to personal care homes..communication with the whole court stopped..I was evicted in hospital so I never went back home car was picked up 90 lbs and losing the fight. Got better...started to improve,learned to stand and walk..was released nov.2022..with recovery until this day..I know nothing ,I feel violated but I fell off the earth for two years so we haven't communicated.Now that I live well with my hiv I still need recovery ,constant dr appointments..The courts and I still haven't settled..but of course no new arrests or charges,I was able to complete the last court ordered process after release from hospital...I always felt the corruption they can do anything to me,but I can produce overwhelming amounts of paperwork,diagnosis everything they need.

Im almost certain i have MCAS waiting on a diagnosis. I have had bladder frequency/ irritation for years, then nausea, extreme fatigue and dizziness has come on recently along with hundreds of other symptoms. Often after eating or exposure to chemicals/certain buildings etc. One thing ive noticed is if i eat a lot my symptoms become suppressed? Even if it’s foods that are triggers. I know it sounds odd cause usually we react to most foods but has anyone else experienced anything like this? Please let me know thank you!

I'm a 38 y/o female.
I was diagnosed with asthma as a kid.
Current meds Soprobec 200 two puffs AM, two puffs PM, ventolin as needed.
I moved into this flat in 2022, was fine before I moved and to begin with, then I developed worsening asthma symptoms as the months went on. I spent ages trying to fathom out the possible cause. I found no sign of mold or anything like that. then found out tobacco smoke from the man downstairs was coming into mine, it's been so bad on a couple of occasions my bathroom has 'fogged up' with smoke. I have tried everything, including having the council works department out to see if we could seal up any gaps etc, nope, no way of stopping it. He seems to vanish for long periods of time, leaving his flat empty. During these periods, my asthma symptoms vanish completely.
In response to my worsening asthma symptoms, in Jan 2024 the asthma nurses at my surgery decided to increase my ICS dose of Beclomethasone from 400mg a day to 800mg a day. Now I have high functioning Autism on top of all this, I am far from dumb or stupid, but anything to do with numbers seems to go over my head a lot of the time, even though I am better at maths now, amounts of things can still flummox me.
NOBODY told me this was considered a moderate to high dose and I should be carrying a steroid warning card, nobody, not once. I wrongly guessed it was only a few mg more than the soprobec 100 I was on. The Soprobec 100 was two puffs am, two puffs pm.
Now, since I have been on the Soprobec 200 at 800mg a day, I have developed some extreme and very disruptive possible side effects.
All possible other causes of these symptoms just got ruled out in a complete bloodwork which included diabetes, hypercalcemia, thyroid and iron deficiency, which are all possible causes of the things I have listed below, all tests have come back requiring no further action.
These are:
EXTREME, unquenchable thirst. I am drinking easily over four liters of water per day. I am also waking up several times a night for a drink, and if I go out I must carry water with me otherwise the thirst is VERY distressing. I feel dehydrated on a 'cellular level', like it doesn't matter how much I drink, I feel thirsty WHILE drinking water!.
Fatigue so bad I can hardly get up out of my chair most days and I am asleep by 9pm, where before I would like to chill with my dog watching a film or something till about 12pm. I have gone from waking literal miles through local fields and woodland with my dog, to barely being able to take her on the local park which is only across the road. I hardly ever go out, and if I do, I suffer immensely as my muscles start aching. I live upstairs and I am struggling getting up the stairs.
It feels as if I have lost all muscle tone all over my body. I no longer feel safe walking my dog as she is med size mastiff cross who is quite strong, she has almost pulled me over at times and I cannot even lift my kitchen bin bag or the laundry basket, I have NEVER had this problem before.
I have lost my appetite and have to force myself to eat every meal, often taking hours rather than minutes.
Episodes of vaginal thrush, something I have NOT had for YEARS, started when I went on this high dose of ICS.
My once 'perfect' periods are now very heavy and irregular.
I feel more angry than before. I had to seriously check my anger levels in my adult years, and developed a much more patient and stoical outlook to life, which brought my stress levels down massively. Since I went on this inhaler I have been snapping at people again, including my own family :(
Tingling hands. This can come on anytime, never had it before the inhaler.
A terrible hoarse voice and it feels like my voice is getting deeper and I am starting to sound 'male' other people have noticed this too.
Profuse sweating on my hands and feet. My hands DRIP with sweat, to the point I hide them from people. Never happened before this inhaler.
Salt and red meat cravings. I am not a big fan of either, and due to heart problems in the family I keep my salt intake low. Other day I just felt compelled to walk into the local coop and buy pork loins and a pack of beef biltong, things I haven't eaten in many moons. I recall saying to myself 'this is SO out of character for you'.
Episodes of nausea, two episodes of vomiting in the morning over two months (not preggers before anyone asks lol) which were not related to anything I had eaten.
Dizzy spells and almost fainting, usually happens if I push myself to do even basic stuff like household chores, which I usually enjoy doing.
I know these are listed as 'rare' side effects, but unusual thirst, tiredness and weakness is mentioned both in the patient info leaflet with the inhaler, and in various other information regarding side effects, such as this article: https://www.mayoclinic.org/drugs-supplements/corticosteroid-inhalation-route/side-effects/drg-20070533?p=1
I take the inhaler via a spacer, my technique is good, I've been doing this whole asthma game all my life, so I am pretty ofay with it all now lol.
I have had a battle over this inhaler with my GP and other asthma services as well. They just do NOT believe ICS can have systemic side effects, in contradiction to what the drug manufacturers say on the leaflet. I think I am going to have to go back to the GP and stand up for myself, which is not something I am good at at all, and present them with this information leaflet, which actually tells you to consult your doctor if you develop any of them!.
Would it be worth asking to try the same dose, as I do not want to risk withdrawal, I have experienced this before from ICS, but on a different steroid with a different inhaler?.
Is there any more bloodwork I could ask for, perhaps adrenal function or cortisol levels?.
I am at a loss, I need to control my asthma, but I also need to be able to live!.
Thank you for taking time to read this, I hope everyone is well and your asthma leaves you alone to enjoy the summer!. :)

I need someone to hear me please.
I feel like I’ve failed my parents. I feel like a failure. I barely went to school this year, completed the bare minimum to graduate. And yet here I am. Preparing to stand next to everyone else who tried. Who deserves their diploma.
My dad died in December of 2023. From those of you who have been on this subreddit long enough you’ll recognize my story. Shorty after, my mom was diagnosed with terminal brain cancer, and has been in a nursing home slowly declining since February. I see her often. But everytime it’s like a stab to the gut. Seeing my mom in this much pain. So out of it, barely speaking a word. Only 47. It breaks my heart. Nobody deserves cancer. But my mom especially. Because she is the most selfless, brave, kind, loving woman I have ever met. She gave up so much in her life and never complained. Went through cancer 3 times. While my father made it all about himself. Worked her butt off for years, being basically the only income in my household while my dad spiraled into depression and alcoholism.
Don’t get it twisted. I’d do anything for my father to come back. I miss him everyday and love him dearly. But that doesn’t excuse the pain he caused me and my family when he was drunk.
Anyways I’m getting off topic.
I was always the prodigy of the family. Taking college classes in 8th grade. All A’s etc*. When my dad died, and my mom got sick. I didn’t go back to school for months. So stuck in grief, and PTSD, and Depression. I didn’t leave my room for weeks, only to eat and go to the bathroom. Eventually, I had to go back. And I almost didn’t graduate. As I rightfully shouldn’t have. But, I had done all my work while gone. My GPA is a 3.4. So the school, thankfully, is letting me walk.
Despite this. I know I don’t deserve it. I’m not the success story they wanted. “Girl graduates after dad’s death and mom’s cancer diagnosis with honors”.
I’m not a success at all.
I don’t have any plans for my future. My dad’s gone, my mom’s dying. I haven’t told anyone the date I graduate. Haven’t set up a party. I don’t deserve their support. I don’t deserve anything.
I’m so lonely. I miss my dad. I wish my mom could see me walk. I wish they were the ones planning my party. I wish they were the ones sending out announcements. I’m not proud of myself. And I feel like they shouldn’t be either.
I’m usually good with words. But when it comes to this. this ugly feeling. I don’t know how to speak it.
Here’s something I wrote about grief. Or how I’ve experienced it everyday these past months. Maybe someone will understand it too.
“ Grief is one of those things that makes sense when you haven't experienced it. You think it's gonna be sudden. Like a cool bucket of water dumped over your head on a hot day.
A gasp of sudden breath, to make sure you're not drowning in it. In reality, it's not the water you should be dreading. That's the easy part. The shock.
It's the sun.
There's no sunscreen for grief. No way to stop it, to make it hurt less. You can run from it sure, enjoy the day.
But in the end, you're still sunburnt.”
I apologize if this makes no sense. I got sun poisoning last week and am sick af.

just to preface, i would never do this to someone. hello, food allergy sufferer here o7
cw: childhood abuse, allergy suffering.
growing up, i have always had a hard time with bananas. thankfully, it’s one of my non-anaphylactic allergies. regardless, it’s extremely uncomfortable. my throat, tongue, mouth, and ears get tingly and itchy. my stomach WILL reject it (nausea, vomiting, cramping.) if i ever eat it raw.
back in 2020 or so, my mother would force me to drink smoothies. they would consist of anything she could find in the fridge + water + maybe some random other ingredient. pretty much every time without fail, she would put banana in it and lie about putting banana in there. (needless to say, i knew every single time.) i did not have a proper diagnosis from a blood test at this time, but i remember frequently begging her to not put bananas in because i was (and still am) allergic. (honestly i was begging to not drink the smoothies at all because OAS sucks and they were disgusting. but she would watch me and scream how she’d be laughing over my grave in 10 years :P)
now, my family isn’t new to allergies. i grew up with dairy, egg, peanut, tree nut, and allergies to most meats. but my mother would scream at me how banana allergies “don’t exist” and that she hasn’t ever heard of them.
going straight into adulthood, i got allergy testing done. low and behold, banana popped up as a class 3 allergen (11.5). learned from my dad that my mother got upset with me for getting this done.
this past mother’s day it suddenly hit me that this is still affecting my mental health. i literally don’t know what to call this. assault? poisoning? reckless endangerment?
i’d love to know, it would help a ton. thank you for reading up.

18F, 5'7, possible endo, severe menstrual pain and appetite loss. at my limit with my symptoms and have no idea where to go from here.
Around March/April 2023 I began having 2 periods a month, significantly heavier than usual and significantly more painful than I've ever had. This pain has been so significant it will make me curl to the ground when I have cramps, even with alternating 800mg Ibuprofen 2-4x daily and Tylenol.
had been on Hailey Fe 1.5/30 for 4 years, and after discussing with my doctor I then went on Ortho-Cyclen (28). My doctor believed it to be PCOS after my ovaries appearsd to have too many immature follicules (I've had 4 ultrasounds since, all of which state everything looks normal), and stayed the Ortho-Cyclen was more effective for women with PCOS). I had no improvement and continued pain, so we discussed the potential of Endometriosis (I also have cyclic difficulty urinating with my period), and I had the Mirena IUD inserted.
Shortly after insertion (~2 weeks) I began noticing appetitie loss (not nausea, more just a complete lack of desire to eat food, nothing seems appetitizing ever and forcing it down makes me feel sick). Besides this, I've had a great experience with the IUD- no bleeding, and while I still have pain, it's tolerable if I alternate Ibuprofen and Tylenol.
Fast foward to now, the appetite loss has gotten so severe that I'm having difficulty eating more than a few bites of food a day. I haven't lost a TON of weight, but I feel insanely weak. I'm usually very active as I'm a full-time college student and figure skate (usually 1-2 hours, 5-6 days per week, now managing once or twice a weak for maybe 30 minutes). I had a hard time getting in with my regular doctor so I was placed with a different OBGYN, who told me it likely wasn't the IUD and to drink smoothies and protein shakes and cream (which I was already doing, main source of nutrition over the past 3 months). She also did several blood tests, which showed nothing other than a slightly elevated Anion Gap (14 iirc). I was told my next option would be remove the IUD and get a Kyleena placed, although that would carry the risk of returned pain. I was told if that would happen, I could get a laproscopic surgery to check for and remove any endometrial lesions. I weighed around 146 at this appointment at the beginning of March. I began bleeding once a month like a regular period just after this appointment as well, after having no bleeding since the insertion (the strings are still in place).
I had no improvement in symptoms and noticeably lost weight, so I visited another doctor (again, could not get in to see either previous doctor until June). At this visit on April 4th, I weighed 128 (~16 lb weight loss). This doctor was incredibly dismissive (as well as two different nurses saying to my face "they wished they had my problem") ans told me she's never seen a case where someone has had appetite loss from IUD and that it was more likely another medication of mine.
I'm on 300mg Modafinil daily for Chronic Fatigue Syndrome I developed in 2022 after getting Influenza A. I've been on this medication since early August 2023 (1.5 months after getting the IUD placed). While I had no increases appetitie loss after starting it, I had suspected this to be the case, so I paused taking it to find no difference in my symptoms back in January. I told her this and she said while she would take the IUD out, she doesn't believe it to be the cause and provided no further discussion on options.
I found IUD insertion to be rather uncomfortable, but no where near as painful as my menstrual cramps. That said, I really didn't want to remove the Mirena and replace it with a Kyleena unless I needed to. I followed up my primary and decided to take a 3 week break from the Modafinil. I've had absolutely zero improvement in symptoms.
Im about to make my appointment to swap the IUDS, but I'm just so frustrated with the care I've recieved.
I understand my weight loss isn't that significant, but for someone like me who has a very consistent weight and a very active lifestyle, it is for me. I can't function how I need to, and my symptoms are interfering with my life significantly. I still have no idea if its PCOS or endometriosis, but I feel my symptoms better align with endo.
Is there any advice anyone can give me going forward? I'm terrified the pain is going to come back after swapping these IUDs, as the pain is so bad I can't handle it twice a month. I can't continue not eating either.
Thank you to anyone who got this far

I posted about this awhile back and did not get much response but I am gaslighting myself and need people who have gone through this or similar to help me be objective.
I will Try to keep this brief but it's a lot.
-long history of stricturing Crohn's of terminal ileum diagnosed in 2006. First resection Sept 2018, Last resection in April 2022. Surgeon told me he found Crohn's high up in small bowel, could not remove safely, hoped new biologic (Stelara) would take care of it.
-6 month delay in starting Stelara due to GI F up (forgot to send preauthorization)
-July 2022 began having severe upper gastric pain (under ribs and belly button) after even the smallest amount of food, followed by severe nausea and often vomiting. Within half hour multiple liquid BM's undigested food and insane amount of fluid. Began to eat less and less, moved to soft diet, and finally to complete liquids in August 2023
-July 2023-Oct 2023- Weight loss of 20 lbs over 3 month period. Many ER visits needed for rehydration and IV anti emetics and pain meds as could not keep down any oral meds. GI did colonoscopy but only found microscopic Crohn's in anastomosis site (he only took 2 biopsies from that area and nowhere else). CT's done in hospital showed thickening of wall of ascending colon, and collapsed bowel, free fluid in peritoneum. GI dismissed as "not reliable". Fecal Cal slightly elevated. Constant low grade anemia. After 4th ER visit in Oct 2023 they did a high res Ultrasound and I was admitted by surgery department. However, as I was urgent but not emergent, there were no beds available. Was given choice of staying in ER and receiving IV steroids, or going home and following up with GI. Chose home and was given Entocort. Entocort slowed down bowel from 30-50 bm's a day to ten. Did not help pain, nausea, vomiting, lack of ability to eat. After several desperate emails where I begged for help, said I wanted to die-GI ordered urgent MRI, would not change meds or give prednisone without "proof".
-November 2023-Began to experience fatigue like never before. Could hardly keep eyes open. This would be followed by severe upper gastric pain, nausea, vomiting and diarrhea that went on for days, followed by constipation for 1-2 days and severe bloating, only on the left side of belly which would be rock hard and hot to the touch. Then the diarrhea cycle woud begin again. Always pure liquid, sometimes black, always tons of mucous.
-Went to Mexico to visit my parents for the holidays where I usually feel better but still could not eat. Injecting myself with IM Gravol (anti emetic) just to keep fluids down. I lived off of chicken broth with rice. Saw GI in private hospital. Ordered full workup. Blood found in stool. 3 D CT ordered (could not find a vein for IV after 5 nurses, two doctors, and a radiologist with a vein finder so only had oral contrast) showed inflammation in small bowel, thickening of the ascending colon wall 11 mm, and inflammation of ileum. He wanted to send me to special IBD hospital in Mexico City for MRI but it would have cost 2500$ so I decided to wait till I got home to Canada where it would be free. Treated me with antibiotics for IBS (only available in Mexico and Germany) Zero improvement. I lived off of electrolyte drinks.
-Jan 29th 2024 returned to hospital because I could not keep any oral meds in (pills would be in toilet) also pain was 9/10, high fever, vomiting. Admitted again, but no beds. Left AMA with another prescription for Entocort.
-Feb 12 2024- High fever followed by two days of 40 plus liquid BM's, some of them bloody, all of them black. Husband insisted back to ER where I was admitted immediately. Cortisol levels 11 (close to adrenal failure) very low potassium. Doc said if we'd waited I likely would have died from heart event. Spent 8 + weeks in hospital having every kind of test imaginable. NOTHING showed on MRI, inflammation on CT, lower scope clear, upper endoscopy showed inflammation in esophagus, stomach, and duodenum. Negative for H Pylori, negative for celiac. Started on 150 mg of hydrocortisone for low cortisol to rescue my organs. MRI of brain showed small tumour on pituitary. Endocrinologist did ACTH test and was unhappy, kept me on 40 mg of hydrocortisone IV. PICC line insertion went awry when they Discovered I had complete stenosis of veins and needed port catheter surgically implanted. Was on TPN for 5 weeks. Needed pain meds and anti emetics every 4 hours or severe vomiting and diarrhea would ensue. 30-50 liquid bm's continued (they made me write down everything I ingested and every time I had a BM. They tested me for everything. No blood, NO CDiff, no parasites, no infection. High fever 104.5 plus delirium and CRP shot up to 50. Continued Anemia, blood work all over the place, even with TPN I needed potassium and sodium boluses 3 times a day.
-Requested pill endoscopy, GI said no Crohn's, no need for test. Suggested psych evaluation for a fucking eating disorder. Endocrinologist disagreed, said starvation and whatever disease process was causing symptoms was causing my cortisol issue. Psych diagnosed medical PTSD and generalized anxiety disorder (no shit) but NO eating disorder. Fired GI and hired IBD specialist from another city. Re ran all tests, CT showed huge diverticulum on duodenum otherwise clear. Was going to be moved to a ward from a private room. Had a panic attack because I could not share a bathroom and was not about to use a commode. Asked to be discharged after nearly 9 weeks. They were so overcrowded and basically did not know what else to do to help me, so they let me go even though I was still on TPN and NPO. Got a 5 minute instruction on how to insert a butterfly catheter for pain meds, and let go.
-Present-3 weeks later, still on liquid diet, (Boost drinks, blended oatmeal, yoghurt and soup) still on sub q and IM meds. Finally got new IBD doc to order capsule endoscopy and is treating me for SIBO (never been tested) plus set me up with nutritionist and psychologist for support. MRI repeated- totally clear.
I FEEL CRAZY. This is the sickest I have ever felt. It's been almost a year since I chewed food. The pain under my ribs just to the left of my belly button is now constant, whether I eat or not, pain meds barely take the edge off. Sometimes it's so intense I can hardly breathe. I keep passing out on the toilet. I projectile vomit daily, even using Gravol and Pantoprozole, the bile acid is awful. I've been doing tons of research and have learned that GDC and Jejunal Crohn's are extremely hard to diagnose. I have every single symptom and fit the criteria. Does this sound familiar to anyone????

Sorry for the long text. I don't have an official diagnosis, but it's very likely that I have cfs, specially because of PEM (it could be something extremely similar to PEM but it's unlikely) I have gone to uncountable doctors and done even more exams, nothing abnormal, at least that could explain what I feel and felt. I just lost hope that I can actually feel better in the future, not in life itself, but in its quality. Some years ago I was bed-bound, depression and tiredness came together so I couldn't get up and didn't want to. I found a treatment for depression that worked, even if just a little. Some time later I found out I might have asthma, never had any "attack" but lately I had some breathlessness all the time. With medication my exhaustion got better and I was no more bed-bound, but still tired all the time, just able to do things. Now I'm actually working and going to college, that's actually incredible for me because I remember well when I couldn't get out off bed. I know I'm extremely privileged. But everyday I feel my body degrading, my tiredness and breathlessness increasing slightly. I tried just sucking it up, not saying how tired I was or complaining about it very much, but I just can't anymore. I feel like my body is shutting down little by little, muscles getting weaker, breathing getting even harder, almost constant nausea. And I now feel line I have nobody to even vent, I tried to do it with my best friend and that I need an specialist in CFS so I could at least know if it was this because I can't deal with not even knowing for sure he suggested I try other things, including exercise. I've tried to exercise but it didnt do anything good, he and some doctors said it wasnt for enough time. Then I've tried saying that I don't believe I can get better and he just said for me to not talk about is anymore unless I have a development with a doctor or something. Can't talk with my mom because she would worry too much, other friends also don't get it. So I came here, just to complain somewhere, even if no one see or say anything.

I (49m) had my first trip to the urologist a couple of weeks ago, and I'm left with feelings of doubt as to her diagnosis.
I was referred to this Urologist by my GP after I found a lump on my testicle. The GP ordered an ultrasound and referred me to the urologist. Ultrasound found that the lump was a cyst and the pain in my other testicle was from a swollen, likely infected, epididymis.
The urologist visit was about a week later. The nurse took my vitals, asked if I could provide a urine sample, and I couldn't on the spot, so she said we would just get one before I left. The attending Dr asked a few questions and told me that it's common for men my age to have enlarged prostates, so he was going to prescribe flomax. Likely the swollen epididymis was from incomplete voiding due to the enlarged prostate. I asked if he was going to run any tests, and he said no. I asked if we were going to try to find out why it was enlarged, since it's only really been in the last 8 months that I've had the issue. Again, no; men's prostates just enlarge around this age and so, we just treat the symptom. I pressed again about testing and he said that the only really effective test was one that had a catheter in one end and a balloon in the other and it was rather extreme, since we could simply resolve the issue with the flomax. He did indicate that men should start getting PSA tests at 50, and so I will get one of those in 9 months when I turn 50.
He left, then came back with urologist that I booked the appointment with, and she said that she agreed with his diagnosis and felt nothing further was needed. When she directed me to the clerk for checkout I let her know that I wasn't able to provide a urine sample when I arrived, and still needed to do that. She said there was no need, so we would be doing any of that.
Am I wrong in feeling like maybe a root cause should be searched for? It just feels like I've been diagnosed with a case of being old and shitty.

Sorry for the long post but I really want to see if anyone relates and how to deal with it.
All my life I've had vasovagal syncope (not sure if that's what it is, but I'll call it that because I think it's what it is). Usually it would happen as a kid at the doctors when I would get shots. Didn't happen every time but it did happen. They always told me it was because I got myself so worked up over it that once it was over I felt so much sudden relief I had that reaction because it all happened faster than my body could keep up with. Also one time when I was 10 I got sick on a cruise. I experienced intractable vomiting, high fever and other things. I was given an injection at the medical center on the ship (I have no idea what they injected me with, I assume antiemetics, I just remember it was particularly painful) and I collapsed when I tried to walk out of the room afterward.
Nowadays some of my triggers are weird. I get the main ones like blood draws and injections, but also simply reading about procedures such as nasogastric tubes, colonoscopies, spinal taps and things like that are also triggers. I remember nearly fainting in high school health class when we were learning about epidurals. Then years after that I also nearly fainted when I found out what the initial COVID test entailed (the nasopharyngeal swab...ugh). When I am exposed to those bizarre triggers, it's very weird. I'll get all squeamish and weird. I'll start squirming, holding my breath, moving around and grimacing. I can't explain why I do this, it just kinda happens as a response to information about invasive procedures.
The actual experience is horrible. I don't know how to explain how bad it is, it's something you really have to experience to know what it's like. I don't JUST pass out. There's a period of misery before that. I'll start feeling off, then the room seems bright but dark at the same time if that makes any sense. Then my vision gets all weird, tunnel vision and sometimes I'll see a bunch of colors. Then comes the intense nausea and malaise, and I'll think I'm about to vomit. At this point I'll usually be asking for water and to lay down, but all I wanna do is curl up on the floor. I'll want someone to hold me. I'll feel really hot and I'll be dripping with sweat. I'll feel dizzy and won't be able to see straight. I'll go super pale. I'll always have this frantic terrified look on my face. Not sure what it looks like, but I know I make it and it's to kind of express that I'm not feeling well at all and I don't know how to verbally express it. Kind of like a "help me, I feel terrible and I don't know how to express how it feels at this moment" kind of look. Eventually my hearing becomes muffled as if I'm underwater. It happened recently when I was getting a skin abscess treated and they were taking swabs to check the bacteria. It was a particularly bad episode though. Not even drinking water and laying down could help much. It did help but didn't solve it. Eventually I leaned forward and hugged my legs to my chest and I recovered from the episode doing that.
The nurse that witnessed it told me it was a vasovagal response. Then I was told it might've been a panic attack. Having a lifelong history of anxiety, I know my panic attacks and they're different depending on the trigger, but I know this was not simply a panic attack. Due to having health anxiety I guess the vasovagal episodes happen and maybe panic attacks happen at the same time as a reaction, so maybe that's why it's so miserable but I don't know. Then I'll typically get a bad headache on one side of my head but it'll usually resolve within 15 or so minutes.
I know this sounds dramatic (I mean, the episodes ARE dramatic and I have no idea why my body goes that far) but I'm not trying to exaggerate. They feel HORRIBLE. Having anxiety on top of it is even worse. Usually I don't actually end up technically becoming unconscious, but sometimes I do. It's mainly presyncope. When I get blood tests they will have me keep my eyes open and keep my head up (despite it being very difficult) and by that point I'm wanting to beg them to just let me pass out so the feeling goes away.
Any idea what this is? When I first feel an episode coming on I get so frustrated with myself and I usually roll my eyes and think "oh come on...great, another episode, why am I so squeamish over everything and why am I having such an overreaction and why does nobody else have this?"
If anyone has anything similar to this, please share. Any differential diagnoses? Someone mentioned dysautonomia to me but I'm not sure. Whatever it is, I'm sure my anxiety exacerbates it but I know for sure it's not just anxiety.

CONTEXT: I (17F) work in a nursing home as a waitress. I missed two shifts in a row due to a POTS/Cyclic Vomitting flare. I texted my manager to let her know the situation and to make sure she didn't think I was just skipping work. I told about my diagnosis, how they flare without warning, and that I can provide documentation if need be.
The issue is when the May schedule came out a week ago, I wasn't on it. I know I put in my availability on time but I wasn't scheduled for any shifts. I texted her about it, assuming there was a mistake, but she told me she took me off the schedule because of my disability. She said: "I figured that would be easiest for both of us given the issues you have to deal with."
Does this violate ADA?