Legs having fevers

Male (46yrs), type 1 diabetes since age 4. Generally well managed blood sugar.
Writing this on behalf of my husband: Last night noticed this redness on lower legs (see pics in comments). Warm to touch, not itchy, doesn’t appear to be spreading. No fever or other symptoms, but having difficulty regulating his blood sugar. We suspected cellulitis but went to GP this morning who said she’s unsure what it is but doesn’t suspect infection. He’s heading for blood test results this afternoon but I am feeling very worried and would love a second opinion, please help!

I was in China for 17 days and upon return have developed mild blisters that spread from my leg to torso. The leg regions have lightened drastically. I’ve also gone through a brief fever and am now just stuffy and clogged up in my nose. Had diarrhea for a day.
The blister? Rash spots? Don’t rlly itch but if I scratch them I will want to keep scratching.
F21

Went 75ish head on into the very pointy beginning of an exit barrier. One car accident, I was the only one hurt. Still having some complications but I’m okay-ish.
I just don’t understand why I don’t care that I could have died. I feel bad for crashing the car, I feel bad for my loved ones having to take care of me, and a lot of other things. But thinking about the crash makes me feel absolutely nothing. My kid said they have would have never stopped crying if I had died, and I said I understood I told them I was happy to be alive. But I really don’t care at all. I’ve had a major string of bad luck stemming all the way back from August of ‘23, including someone threatening me with a gun, scarlet fever, a 3rd degree burn on my leg, and in the ER for stroke alert. Am I maybe just too exhausted to be shaken up by anything anymore? This was my first ever car accident, and it was severe one that could have put me 6ft under. I just don’t understand why I lived and why I’m not grateful that I did live. I’m so tired.

TW: blood loss, retained placenta
Well I got my home birth vbac, plus much more than I bargained for!
I'll begin by including that today is my actual due date so baby boy was right on time and I was full term. I'd had bouts of braxton hicks and prodromal labor off and on for the last few weeks, with one very convincing false alarm last week, resulting in me calling the midwife and her assistant over. She checked me out and I was sitting at 3cm, fully effaced but there were no other signs of progress.
In the days leading up to yesterday however, I had passed some noticeable mucus clots and was spotting a bit here and there. I tried not to think about it too much because I know you can lose the plug well before labor and I was just hoping at that point that it would be painfully obvious when I finally went to real labor.
So yesterday I couldn't catch any rest whatsoever. I wasn't sleeping great at night so I had taken to just napping as needed around the clock. But yesterday I couldn't nap for the life of me. I had this nagging anxiety that I really needed to rest so I ended up taking unisom around 5pm and making myself go to bed. I proceeded to wake up every other hour either hungry, thirsty or needing to pee. This is uncharacteristic for me because usually once I fall asleep, I'll stay asleep for at least a few hours. I was miserable.
I dozed off again and around 10:30, a contraction woke me up. It was a bit more intense than braxton hicks but it didn't have the same searing intensity as the worse contractions last week. So I got up and started pacing around to see if they would ease up. I rotated through a series of exercises meant to keep baby in a good position (a la Turning Babies) and they didn't seem to let up so I finally started timing them around 11. They were averaging less than 5 minutes apart and lasting about a minute.
This was starting to feel real. I called my husband who was working late and said he needed to get home asap because I was fairly certain things were really happening. I continued timing the contractions for a full hour and sure enough, they were staying steady so I called my midwife over. From here on out, my sense of time is super vague and warped. I really knew it was finally happening because I suddenly understood what they mean about not being able to walk or talk during a contraction, plus I felt like I was in this liminal space of being and nonbeing - like I was hyper aware of my body and the pain, but I was removed from it in order to cope.
By the time the midwives got to our home, my husband and best friend were there, I had already labored on the toilet, in the shower and on the couch in rounds. They took one look at me and knew it was real, and immediately took turns helping me and setting up the birth pool. I'm guessing I labored in the pool for about 5 hours, because it was ready around 2am and I stayed in there until after the rose. The pool really helped my labor progress and at one point, my midwife noticed that the sounds I was making were getting lower, more intense and drawn out.
She checked me again and sure enough, I was at a 6 and counting! She said, "Now might be a good time to call your moms, we might have a baby soon!" I think it was around that point that my water broke as well, as there was a good bit of mucus and bloody show floating around the pool. Our moms showed up shortly after, along with my teenage son, and I labored a while longer, taking turns holding our moms hands. They kinda started making me anxious so I got out and slowly moved through various labor techniques. Ultimately, I ended up sitting on the couch with my legs up on the midwife's legs, holding myself behind the knees with each push.
After about 12 hours of hard labor and no medication other than some motrin and ginger, he crowned with a beautiful head of curly dark hair! My sweet boy was born a couple pushes later and I immediately knew that I had torn. The ring of fire is a whole other ball game when you tear. The midwife tried to wait for the afterbirth to come away for about thirty minutes but each time I pushed I lost more blood. I started getting dizzy and losing color and we ended up at the hospital for 4 blood transfusions and to surgically remove the placenta.
I was too out of it to get the full run down if the placenta was actually fused to my uterine wall but they were able to get it out quickly in a 15 minute surgery. They were worried that it might be fused to my c section scar and if that was the case I would've ended for a partial hysterectomy. After the surgery I woke up cold and shaking profusely, begging for blankets and a warm compress for my boobs because they were so cold they were like hard as rocks. After they tried to warm me up I spiked a fever, plus losing so much blood had deflated my veins so they had stuck me all over trying to test my blood volume after the transfusions.
I was in surgery and recovery for a good while so the baby was with daddy and fam the whole time. They rode in the ambulance with me and when we got to the hospital we asked if they could give the baby donor milk. They said we'd have to admit him in order to do that and I was hesitant but they've been really respectful of our wishes. I said no vaccines, no bath, no circumcision, no formula and no taking him from us. We're just now letting them take him to the nursery so we can get some sleep. It was pretty hairy there for a while but we made it and he's perfect 🤗
Tl;Dr had an amazing physiological birth but tore severely and had a retained placenta. Ended up in the hospital for blood transfusions and surgery to remove the placenta.

Male Ragdoll 4 years old. With history of intestines blockage. My kitty has been ill and lethargic for 4 days. At first he was not moving and he wouldn’t willing to eat. We took him to ER and turned our he had fever 104.4. Vet did bloodwork on him and everything comes back normal. With A/G ratio 0.6. I asked doctor if it could be FIP but he doesn’t think so. So he got injected Convenia and Onsior that day, and that night he came back from ER he looks so much better. But the second and third day he was still a bit down but he’s eating more and more active. We took his rectal temperature and turn out to be 102.5 for three days in a row, which vet said he isnt having fever anymore.
My question is if he doesn’t have fever and he doesn’t have anything wrong with his bloodwork, why would he be so lethargic and he even limps a bit because lack of energy. Almost feels like he cannot walk and jump properly with his back legs. And I heard FIP from my friend and the symptoms look really alike. If nobody can diagnose FIP, can I do GS/441 on him for a week and see if it makes him feel better?
Thanks for everyone trying to help. I’m really panicking now. I feel like I’m a helpless mom trying everything.

I recently requested my medical records for the last 6 years because something feels off. Let’s just say I learned a lot. I’m experiencing some strange symptoms and plan to go to my doctor, but thought I would post my labs/urines to see what you think I should ask, should I be concerned, etc.
31 y/o female. 5’5”, 245lbs approximately. Medical Hx includes: ADHD, post partum preeclampsia + HELLP syndrome (2019), mild asthma.
Symptoms: small lump in left side of neck, petechiae on forearms, some red spots on hip & chest, lower back pain, bone pain (mostly right side hip, back, sometimes to leg), +++ fatigue, changes in bowel habits, increase menstrual flow, feeling hot face/arms at times with no fever.
Doc recently told me I’m deficient in b12 and vitamin D (significant drop from October 2023), and high in uric acid (although it did lower since October it is still higher end of normal).
My record mentioned after having my son in 2019 my d-dimer level was 4014, but I never knew this so unsure if I had a DVT or PE.
Thanks for any advice on what I should discuss with my family doc. Info in the comments.

Big rooms with hardwood floors. Good buffet with crab legs and any cut of beef you want. Not to mention $1.50 hot dogs. It just in general seems like they have a few good food options. There are things kids could do. Rodeos, horse shows, a lot to offer.
I am going to head back this June and I can not be happier. I am not kidding - I even get jitters just thinking about it (literally. My hands and legs start getting wobbly/shaking) and I feel hot, not quite fever hot but red energy hot. The rush of excitement!
This hotel is second only to M Resort off strip its about 10-15 from the strip and you can see the skyline at night. $200 with taxes and resort fees. I have never stayed here - just looking at a video of it. Also he Raiders hotel! Lets go Raiders! Speaking of - what a year were about to have! Anyone know whats going on with Zamir White?

This is my cry for help, I’ve been dealing with this for 3 months, and I just need to know if there’s someone else out there dealing with a similar situation, I just need help, considering it’s gotten to the point where I feel I’m alone in this and feel like my own family has given up and turned their backs on me, I know i shouldn’t feel this way, but it truly feels like their care has disappeared, I’d say their support and care last 3 and a half weeks after release from the hospital, now all that I hear is “your fine” “it’s all in your head” “you have a virus we already know what’s going on” I feel like I’m in a damn bad dream. Here what happened. February around the 9th I came down with a fever not rather high not rather small around the middle, assuming at the time was the flu, it last 5 days a fever that couldn’t for some reason get rid of I began to come down with a rather stronger dizziness but not like a dizziness I’ve ever felt before, but still didn’t think much of it, day 4 of that fever I began to come down with a pain in my abdomen and my lymph node on the right side of my neck swelled and the occipital node on the back of my neck swelled, day 5 and the pain in my abdomen got worse and I went to a walk in to my pcp who said if it doesn’t go away in 2 days go to the er because she wanted to assume it was my lung but did mention it could be my gall bladder which I assumed was, the pain got worse and I didn’t make it 2 hours I went to the er they said it was my gall bladder but after an mri and blood work a day later I was transferred to a hospital being monitored for liver failure, the doctors in this case misdiagnosed the reasoning and made what I felt to be an uneducated assumption. And handled it in a way that one of my neurologist said was mal practice. They said it was my meds which I felt was wrong they stripped me of my meds basically cold turkey and put me on keppra which I’ve been on before and was terrible. I was released 3 days after that, and at first felt fine but I knew something was off and I felt something was missed, I began to research so much I discovered and basically diagnosed myself that it was ebv and mono, I brought it up to pcp, but 2 days before I did I went to my neurologist who changed my meds again so that a 3 medicine switch in the span of days, I was already trembling and having a massive anxiety attack in the office and then those anxiety attacks would linger strongly through the next couple of weeks. I felt this was all bad and that these calls were being made incorrectly, my pcp tested me and it came back positive for ebv and mono. Everything was for nothing and I was correct in my own diagnosis. My liver enzymes reached 600 before coming down and right after I found out I went back to my old medication (depakote) because the withdrawals felt like they were killing me. And behold my enzymes remained normal to this day. But the physical and mental toll from this virus lingers still, now on three months, not as bad as before considering the anxiety attacks which I’ve never had before aren’t as strong, but some do still occur. I lost 9 pounds in a week since I was in straight bed for a couple days not eating or anything, dealing with whatever was destroying me inside psychologically and physically, to today I’ve lost 23 pounds, and this coming after my appetite came back and I continue to not be able to gain the weight back, my heart rate elevation has been an issue considering it steady in 110 to 120 when I stand up and walk around, I went from 167 true weight, to 144, I’m 23 years old and 5’8. I continue to have on and off chest pain I get weird inner vibrations and when I lay down I feel like my right arm and leg gets have and a little tense, my right arm feels fuzzy when laying in my back. I have dizziness and I just feel hopeless, sleeping problems. the common way used to feel about the attack was like I feel like a seizure was about to happen but nothing happens. I have trouble sleeping. One lymph node never completely went away. I’ve been to the er twice since being out the hospital but they didn’t do anything the ekg they said came back normal, which I feel I should get another one done soon since the pain is starting up. I’ve stressed a neurological problem, I’ve had some sensations that I can’t even describe but I’ve mentioned concerns of my brain but no one has said anything about getting an mri even though I think I need one done or even potentially my spine considering I’ve had passed damage to my spine, life feels weird right now, I’m beginning to see no end to this problem, I feel like damage is being done to my nerves or brain and no one’s listening. But it all comes back to did this virus trigger something else. I’m sorry it’s a lot to read but I feel like I have no one else to talk to, that will listen. Plz if anyone else has been in a similar situation having epilepsy and complications with this virus plz talk to me. I’m praying one day this will all be done with and I’ll wake up as normal as I used to be. Every symptom I can describe: 1. Anxiety attacks or something 2. Tremors in hands when I with them inwards 3 chest pains 4 elevated heart rated 5 weird sensation in right arm and leg when laying down 6 inner vibrations when laying down 7 left eye twitches recently started 8 weight loss 9 sleep disturbances 10 weird muscle twitches random times of the day random muscles subtle not strong. 11. Fatigue 12 dizziness/vertigo 13 depression 14. Hate to say but I potential altered mental status.

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

Species: cat DSH Age: 8yrs 7months Sex/Neuter status: M, neutered Body weight: 5.2kg History: preciously has had spots, otherwise healthy whole life Your general location: UK Links to test results, vet reports, Xrays etc: haven't got them, vets closed for the day.
Honestly, vets are stumped, he is getting worse and I have no answers so why not let Reddit have a crack.
He has been a healthy boy his whole life, brief amount of spots a few years ago, vets put it down to hay fever. They were tested and sent off to bio lab. This does not seem related but anything is possible.
He also went missing for a month in October last year, came back fine, underweight but fine. Has put weight back on and is healthy.
One last thing, and this is important, my boy became an outdoor cat 2 years ago. Since then he has gone from loving his litter trays to loving going in someone's garden. He does not touch his litter trays unless we keep him in for things like bonfire night. Even at that point he will hold on till desperate and finally give in.
Here is a timeline of events:
6/5 - has his breakfast and has usual morning stroll around the neighborhood. Comes home within an hour (early for him) and will not use catflap. Comes limping through door and starts using his litter trays. Will not go outside. Poo and pee done.
7/5 - limp has gotten worse. Cannot jump up even half a metre. Will pull with front legs so seems to be a back leg issue. Vet recommends an x-ray, cannot feel anything and cat does not seem agitated anywhere when being touched. Poo and wee done.
8/5 - taken in for x-ray. While under vet checks limbs are still working. All seems fine. No breakages. No issues with joints. Comments that there quite a bit of poo in stomach, however does not believe he has a blockage. Reccomends laxitive if he does not go regularly. Vet believes he may have a muscle tear, therefore rest up, come back in if he does not imporve. Has wee, no poo.
10/5 - has first poo since 7/5, is large, soft, pretty good. But since has started limping alot more. Laying around alot more. We believe this is due to muscle tear, think nothing of this.
11-12/5 - cat starts looking at floor while walking. A good chin tickle and he will look up. Will look up for treats.
13/5 - vet prescribes laxative as he hasn't gone since 10/5. Cat has not had laxative yet, has dinner , walks out from dinner and is not only limping/stumbling but is consistently looking at the ground. Vet brings in immediately, bloods, stool and wee sample done at vets (what timing). Vet checks stool, is soft and seems normal so confirms again does not believe blockage is the issue. Asks to bring back in the morning.
14/5 (today) - spends all day in the vets with another blood test and blood pressure monitoring. EVERYTHING on paper is normal. He is the fit of health for a normal cat on paper. Vet today also commented they can feel alot of poo in his stomach. He has come hope this evening and cannot lift his head, is struggling to eat due to head position and is stumbling around. He cannot make it up the stairs in 1 go. He is constantly sleeping. He has tried to go to the toilet this evening for a poo however struggled to keep his bum off the litter, with our help holding him up a little pushed out the smallest poo. He was huffing, and making small strain noises the whole time. Immediately went to lie down.
Throughout all of this he is eating and drinking, his appetite has not been effected.
He can barely get around at this point. Our usual vet did not see him today, the vet that saw him today was stumped, they have never seen anything like it. They did phone our usual vet on his day off to see what to recommend but they are stumped. They are going to talk more tomorrow and phone me. They did give me a list of a bunch of things we can trail and test however we agreed we are running out of time and nothing seems like an anwser.
If anyone has any idea, ANYTHING, please let me know. I don't want to lose my baby, he is slowly becoming a prisoner in his own body and idk how to help.

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

TLDR: I have had non spinning dizziness for 3 years, did every test, saw a world expert in dizziness at Mayo clinic, diagnosed with Panic Disorder, General Anxiety Disorder, Agoraphobia, possibly Vestibular Migraines from a neurologist, but not PPPD, and I accept it finally.
Hello everyone,
I wanted to share my story with dizziness as I have read many others on many different forums and hope that this can help others like others have helped me!
I have experienced dizziness for over three years now (28M) that is non-spinning in nature, it is an up and down feeling like you are on an elevator, on a boat, or walking on sand as some may describe it, typically while walking, standing, or slight position adjustments while sitting or laying down. It has caused anxiety, panic attacks, shakiness, heart palpitations, arm/leg numbess, neck tingling, neck pain, muscle spasms, brain fog, hearing sensitivity, headaches, fevers, and others I am probably forgetting.
I recently visited with Dr. Staab at Mayo Clinic who is one of the best in the world at looking into problems with dizziness, among many countless providers over the last three years. Dr. Staab specifically researches and treats dizziness, and recently diagnosed me with Panic Disorder, General Anxiety Disorder, Agoraphobia, but NOT Persistent postural perceptual dizziness (PPPD) as I don’t completely fit the criteria. The reason I was given was that I did not have a typical reason such as an ear infection or other PPPD pre-cursors, and that certain motion does not trigger dizziness in me like typical PPPD patients (I can play video games and watch movies with no issues). I for sure thought I had PPPD, but regardless, treatment is relatively the same with or without that diagnosis for my symptoms.
The best way it was explained to me was that my initial dizziness episode three years ago was a panic attack where the first symptom was dizziness followed by other physical symptoms, and heightened anxiety/panic over this dizziness caused my body to be overly alert/sensitive to the space/movement around me, creating a loop of constant dizziness. While my anxiety has improved tremendously and I have only experienced less than 10 (being generous with this) panic attacks my whole life, the dizziness has improved but remained, as it is described as basically a residual effect of the initial anxiety/panic attacks that my body has not yet corrected.
I also saw Dr. Beh who is a neurologist that specializes in vestibular disorders and migraines, and he further diagnosed me with Vestibular Migraines (which Dr. Staab says is a possibility but he doesn’t have enough evidence to diagnose me with it).
My current treatment includes taking Venlafaxine (going to 75mg soon) to directly treat the dizziness and help with any remaining anxiety/panic issues, receive therapy (psychoeducation and CBT) by a therapist with a PhD preferably, and vestibular rehab. Dr. Staab also said massages (light on the neck) could be helpful as dizziness can cause neck and back muscles to tighten due to the body stiffening over time to try to avoid dizziness sensations.
I was told to take Vitamin B2 (400mg) and venlafaxine in the morning. In the afternoon I take COq10 (200mg) after lunch and 200mg after dinner. Before bed, I take magnesium glycinate (500mg) and effexor. I take other supplements, but these I specifically take for migraine/dizziness related issues.
I have seen Dr. Staab, Dr. Beh, the Vestibular Psychologist Emily Kostelnik, have watched the Steady Coach on youtube, looked into the dizzy cook, and have seen multiple Neurologists, ENT’s, Cardiologists, PCP’s, Physical therapists, audiologists, gastro’s, even an allergist. I was misdiagnosed with POT’s, but otherwise every test that was done came back normal except that I have a hiatial hernia, fatty liver, low vitamin D, and a deviated septum.
I’ve had the brain scans, blood tests, heart monitoscans/ultrasounds, tilt table, ear tests, balance tests, epley maneuver, rotary chair, basically every test you can think of (some multiple times) and have tried basically every supplements/lifestyle changes you can think of as well. I have also done a lot of the above tests at Mayo Clinic in their dizziness program that I was accepted into in Minnesota.
My dizziness began at work 3 years ago when it felt like I was bouncing up and down just while standing and my body proceded to panic. I went from having this kind of episode once a month, to once every few weeks, to every day, to basically dizzy any time I stood or walked. Because of the dizziness, I stopped going to stores, didn’t shower as much as I should have, did not workout, and took off of work as it was so difficult to just walk. I currently work full time, workout, am in a relationship, and can do so much that I felt like I couldn’t do. I still have days where I need to take a break, and you won’t catch me on a boat for awhile as that triggers me GREATLY!
Two things that have for sure helped me so far, walking and time. Going for walks was a hard thing to start being dizzy, but that is something I can for sure say I’ve noticed helps without a doubt. And time; my dizziness didn’t improve overnight, it’s been three years, and i still deal with it! I’ve learned it isn’t going to hurt me and to simply learn to live with it (for now) and to push myself baby steps at a time.
Also, parasympathetic breathing has helped me tremendously as well as guided meditation to relax and practice mindfulness. I pay for an app called Downdog which has great guided programs (and yoga!) and currently get it for free for being a student.
Don’t give up, even if it feels like you are just trying to survive. Don’t let doctors write you off, advocate for yourself. If the doctor doesn’t listen or help, find new ones. Lean on your support system. Help others and share your story so there is more awareness and research for dizziness. It is one of the most difficult symptoms to diagnose. And it is just that, a SYMPTOM! You are you and not your symptoms or diagnoses!
If you have any questions, I will try my best to respond to everything no matter the question or if it is 10 years from now. There is SO much to this journey, and attempting to fit it into one post feels impossible. One thing that bothered me was people posting about their symptoms and never giving updates/responding to others, so I will try my best to do so…

My dog a 50 lbs husky male has cut open his paw pad one of his front toes on his front leg from our fence. We have since fixed the fence issue and immediately removed debris and cleaned and bandaged his wound from home. We have been changing the bandage everyday and occasionally adding Neosporin and keeping it bandaged. He seems normal other than limping around. Should we let it breathe in the house? He doesnt have a fever or any other signs of infection. How do we know when its safe to keep the bandage off completely.

Back story: My 4 year old daughter was diagnosed with type 1 diabetes 3 months ago. We have no family history, but I have been hyper-aware with symptoms in my other children.
Spoke with my sons pediatrician and she wasn't concerned as of right now. Not looking for medical advise- just wondering if I'm overreacting and this is normal for a nondiabetic child. My nondiabetic 6 yr old started to feel sick yesterday (fever, sore throat) we pushed fluids and he still ate, but definitely not his normal amount. Woke up and didn't want breakfast because of an upset stomach, but chugged 2 bottles of water. I'm hyper-aware of T1D symptoms after my daughters diagnosis. I check his pee, large ketones. Trying not to freak out too much as he hasn't eaten since last night and hardly ate yesterday. Here's the thing that freaked me out even more- blood sugar was 49! 49!!! My daughter has never been this low. I tried to have him drink a juice but he started vomitting. I had him sip on pedialyte and eat a popsicle. Blood sugar went to 74. He was not feeling well when his bg was low. Said he felt like he couldn't move and thought his legs are paralyzed. He's now feeling so much better and starting to eat like normal.
I believe he had ketotic hypoglycemia. Can be somewhat common in kids especially when they're sick, from what I researched. My question is: I've come across stories of this being a super early symptom of T1D. Something about the pancreas basically malfunctioning. I guess I'm looking for people to share their stories that had a similar experience. Did you experience hypos months or even years before diagnosis? It makes me wonder as I look back on some of my daughter's symptoms before diagnosis and maybe she had hypoglycemic episodes and I just had no idea.

Update post on my progress and protocols for my treatment with side effects and how I managed it all.
Now that I'm done with treatment, I hope that this can help others who may be starting the same journey and have questions. I attribute my easy time to the premeds and my mental willpower. I focus on the positives and silver linings over the negatives. You can only control one thing -- your reactions. The rest requires you to practice acceptance.
Diagnosis: Stage 2 Endocervical Adenocarcinoma Gastric Type with LVSI
Treatment Plan: Surgery (cervix, uterus, and ovaries) followed by concurrent Chemo with Radiation with a PET Scan scheduled 2 months after treatment to determine if NED or more treatment is required.
I was scheduled for 6 chemo cycles, once a week, and 28 radiation beam therapies. Chemo happened on Monday and Radiation was Monday through Friday. I had to skip Cycle 3 on Chemo only because I was hospitalized with Norovirus and my counts were too low. I still did radiation those days.
Chemo Protocol in order of meds:

1. Magnesium Sulfate + Potassium Chloride. Cisplatin strips this from your body, supplements.
2. Emend (Fosaprepitant) - antiemetic. I had to get a port for this, it burned my arm vein and I had to use other arm for Chemo, no fun.
3. Aloxi (Palonosetron) - antiemetic.
4. Decadron (Dexamethasone) - steroid. It burns in your nether region, if it burns too much, ask them to push it slower.
5. Lasix (Furosemide) - diuretic. Cisplatin is hard on kidneys, this is to help purge the chemo faster. Be close to a bathroom and ask nurse if you can just unplug your IV pole and go to bathroom freely vs. pushing call button -- its easier.
6. Cisplatin (Platinol) 70mg (my dose). Didn't make me feel any different than the other infusions.

Plan for at least 5 hours for the above. I started at 7:30am and ended between 12 and 12:30pm.
Cisplatin Symptoms: This is going to vary person to person and you may get different premeds than me.

• Mon (Day 1) - just the cold feeling in your veins from all the fluid infusions. You also gain like 5lbs of water weight that day. I was typically ravenous and ate whatever I wanted, the antiemetics made this possible. Be wary of constipation from chemo, it took me by surprise the first week. The other weeks I ate a few prunes on Sunday and then after chemo on Monday to help. Otherwise you won't poop for a week and be miserable.
• Tues (Day 2) - no appetite and I don't eat. Even marijuana does not work to stimulate. I'll force myself if DH forces me, but since I eat everything in sight Day 1 I'm not too hard on myself. Important to have first BM this day, if nothing then you need to start addressing. Of course I BM daily so this may not apply to you.
• Wed - Thu (Day 3 - 4) - acid reflux and indigestion. Keep some Tums handy or use pills, it doesn't really help and you get used to it. All in, better than throwing up, so take it as a win if this is the worst for you. Appetite back.
• Fri - Sun (Day 5 -7) - less side effects, should be at normal BMs, if you are not you need to address for next cycle. Very important to purge your bowels if you are constipated before your next chemo. I ended up doing Miralax my first week, I had zero BM before Sat and I could feel the pressure. The following weeks I just did a handful of prunes Sunday night after dinner and Monday when I got home from chemo. I happen to like prunes and they worked to keep me regular.

Pelvic Radiation Symptoms: This is going to be different based on what areas are treated. My bladder, vagina, and pelvic nodes were heavily treated. Be sure you understand the side effects before you start treatment - so you can be on top of everything. Below is my experience and I had a fairly easy time of it.

• The fatigue sets in slowly. By week 3/4 I needed 12 hours a night to sleep. Don't ignore this important rest. I adjusted my work schedule from day 1 -- from 7a to 1p Tue - Thu. I didn't work Mon due to Chemo and Fri I had to get labs done and radiation so I worked from 7a to 11am. I did this from day 1 to set the tone with my boss and ensure I had the time needed to rest even if I didn't need it. I ended up working Sat and sometimes Sun to make up for things. I am a WFH executive - right hand of CEO and in charge of operations. Helps to have a great boss pick up the slack and an amazing team who supported me every step of the way.
• Bowels get softer over time, they do not go from hard to diarrhea overnight. If you have diarrhea fast, don't ignore it or let your doctor's ignore. I thought it was the prunes week 2 that did it, no it was norovirus. They didn't catch it until I had a 102 fever week 3 and had to be hospitalized. The chemo constipation masked it during the week.
• AZO is your BEST FRIEND. Take it every day. It is made to as a pain reliever for the bladder. I missed it for a week and paid for it so bad. Do not skip this important drug. I need to keep taking it for a few weeks until the symptoms subside.
• When you go in for your initial telemetry setup for the machines, make sure you are comfortable before they start anything. The moment you lay down on the machine bed, you need to make sure you are in a good position. They used a mold on my legs and I was not in a good position so it really hurt my hips every session thereafter.
• You have to put your hands on your chest. They give a ring, I hated it. I recommend relaxing your shoulders or you'll have a hard time while they do the treatment.
• You get used to the flow. You walk into the treatment room, hop on a bed while two techs adjust you (I had x marks on both hips and belly that they lined up). Then you get a quick CT to ensure your bladder is full and you're in a good position. Adjustments are made as needed. You know when the radiation beam starts because it is the only thing with noise. Don't move until they say you can. Whole thing is 10 mins or less.
• Bladder management is the worst part. You need to have a full bladder for this and as the treatment progresses you will have a harder time determining if your bladder is full or not. Your kidneys will also work slower (I attribute to the chemo) as the weeks go on, so you'll need to drink earlier. I recommend drinking what will fill your bladder two hours before your treatment. It is easier to let of some pressure than it is to fill the bladder. Tea is a natural diuretic and is very helpful to giving your kidneys a boost. I usually drank 20+ oz of Powerade two hours before (chugging), then tea when I arrived (they had fancy machines) and this worked 90% of the time.
• Be wary of foods you eat. I did great until Week 4 when I had lots of stuff with red sauce and it caused gas. I had to pass this gas before they could do my treatment, it was a riot but you don't want your visits to be like that every day. Stay away from tomato products and anything else that gives you even mild gas outside of treatment. It is nearly impossible to pass gas with an overfull bladder.

Nurses are your best friend. Having cancer and going through treatment sucks, but the nurses are there for you and my experience was all-inclusive resort service. Take advantage of the snacks (yes they have ice cream) when you're getting chemo. Don't be shy about asking them about your meds, they did a good job explaining this to me, but I still had questions now and again. It takes a special person to be an oncology nurse and you feel it. It never felt fake or like they were putting on a show/smile just for me. They truly cared. I never want to see them again either way :)
Edited to add: get a port. You will not regret it. I plan on keeping mine for a year after NED, which will require a monthly flush. It makes things so much easier, especially if you have to be hospitalized. I didn't need the numbing cream, it hurts less than the arm pokes for labs and infusions. I asked for mine before chemo and doctor didn't think it was necessary. First treatment proved it was - I had three IV's that day and I'm still suffering from the Emend infusion (not the chemo surprisingly) on my arm. Yes, its surgery but its easy. I had it in place before my 2nd chemo and it was lifechanging. I'd keep it for life it wasn't for the monthly flushes lol, my arm veins were crap to start and the more they are poked the worse they get.

I am a 17 year old male from india west bengal. In late march i think 28th march , i went out to get some physics books for my school. While i was waiting in line at the store a dog came near my feet but i dont think it touched me or its mouth came close. But i did feel my right ankle feel cold for a moment as if some water slid down there. I think it was my sweat evaporating ( cause i was sweating profusely at that time ) . But from the next day i had a peculiar symptom. My right leg's calf muscle had been aching when i was resting it. For example at night. During the day when i am physically active, i never felt any hinderance cause of that. Even if i did sometimes applying a pain relief spray could relieve the pain for 3-4 hours. But the pain was recurring. And as i am typing right now, the calf muscle pain is the only thing thats bothering me right now. I dont think i contacted rabies. My right ankle doesnt have any cuts. The dog didnt bite me or scratch me ( i wore some tight pants so i wouldve known if that was the case ) . I did have some fever like symptoms in past few days but that was completely because of my poor sleep ( 2-3 hours max at night ) and i recovered after fixing my sleep schedule. I am just anxious about this. Any help or assurance would help. THERE IS NO TINGLING OR ITCHING NEAR MY ANKLE IT LOOKS NORMAL.

Hi everyone, the title is pretty much the core of the issue.
23, male, 180cm, 60kg, white pale complexion, smoker, no previous heart or circulatory condition, previous food-allergy related rashes and epileptic crises during high fevers as a kid (both no longer present).
I have been experiencing this for years now and I can’t seem to find any definitive solution. Not even my doctor could help me so I’m asking here in the hope someone recognises this or has some useful advice.
Long story short sometimes I get out of the shower or bath and as soon as my legs dry a little they start to itch. Itching restlessly and intensely as if someone was pinching me all over them. It usually lasts a few minutes and then progressively calms down, even tho it can last up to half an hour sometimes.
I know it doesn’t sound like much of a problem but I really can’t describe how terrible it feels with words. When it happens I feel helpless and like I could go mad, it’s a very intense sensation, sometimes I even slapped my legs hoping they would stop. Sometimes it starts making me shake
It feels obvious to say it but scratching only makes it worse and prolongs the torture.
On to the weirdness of this: I thought of every possible reason this happens and every possible remedy doesn’t help in the slightest and sometimes makes it worse.
I thought it was a skin sensitivity problem and I only use pharmacy’s shower oil to wash my body, nor do I use exfoliants chemical or physical (I wash myself with my bare hands and nothing more).
I thought it was a dryness problem so I tried multiple hydrating creams all with varying results from no effect to making the situation worse.
I thought it was an oil depletion problem so I applied sweet almond oil (which also should have calming effects on irritations) and it doesn’t do anything.
I thought it was a circulatory problem so I started wearing compression socks as some recommend (I don’t have varicose veins nor anything similar).
What is left on my list of ideas is a peripheral nervous problem and I really want to hope that is not the case.
I can’t see a correlation between the times it happens (as it’s not a regular appointment, thankfully) as it doesn’t matter if I shower or bathe, hot or cold, etc.
The additional useful information that I can tell you is:

• It could have some correlation with shaving: I say could because I don’t shave often, I don’t do it with anything other than an electric razors with spacers anymore and, most importantly, it happened when I hadn’t shaved for months too, although less intensely
  
• It happens consistently every time I bathe in sea water and that is the only time the sensation expands all over my body (when it happens at home my arms itch too sometimes, but way less noticeably than my legs).
  
• There are no visible signs of this, no rashes, not even redness
  
• My mother said she has had this problem all her life but the solution that worked for her was using cleaning products for sensitive skin which, as I mentioned, didn’t do it for me (although it seems to have made it a little less frequent, sea water aside).
  

Please help Thank you for reading this long message